Help Me Gain Weight!

Hi Ulcerative Colitis People,

I need help with putting on weight!  I have ulcerative colitis too.
I have lost a lot of weight. I am 6’1 and normally weight around 160 (so I’m tall and skinny/lean already…not much body fat to begin with) and right now I weigh 130 pounds. I need help putting weight back on! Any suggestions?!?! Help would be appreciated very very much!
My Current Medications: Remicade and Prednisone…tapering off the Prednisone every week.
Thank you


gainging weight with colitis

how do you gain weight while UC is flaring?

39 thoughts on “Help Me Gain Weight!”

  1. Hi Curtis, is your flare under control on the meds? I found I regained the weight fairly fast once I stopped vomiting and having diarreha all the time. I started SCD at around the time that I got my last major flare under control, with pred and infliximab. I ate heaps of eggs for breakfast, and meat with every meal (including breakfast), and a good amount of fat in the form of avacado and cheese. Assuming that you are okay with dairy, yoghurt is good too. Carbs are of course a great way to gain weight, but given I’m on SCD and have found it so successful, I couldn’t recommend them at all!

    I also found that the pred made me want to eat all the time, which was a huge difference from while I was in the flare and unmedicated, where I sometimes went a couple of days without eating, because even the thought of food made me want to chuck.

    All the best,


  2. Hi…Anonymous-UC’er hope u must be doing well with ur current medication…and must have stabilized by now u need to take high protein diet which is must be low or moderate in fat..! bcoz our GI system doesn’t respond well high fat diets when suffering from UC. I recommend Nutrilite Protein Powder. Along with this you must take ripe banana throughout the day i.e. 2 to 3 times a day. this is a very good natural source having minerals and high GI(glycimic index, instant energy source)it’s better that you chew thoroughly whatever u eat. banana is also a mild laxative will help u in getting ur system clean and detoxify.
    Bbye TC
    God bless us all..!

    1. Nutrilite Protein Powder, has soy in it and several other illegal items not on the SCD diet. It is recommended when you can handle eggs to add raw eggs to your shakes instead of protein powder because of the potential harmful ingredients in protein powders. Also, rice and potatoes may seem digestible but turn to sugar and starch and feed the bad bacteria when in a flare up. They are illegal on the SCD diet. The number one thing you and your doctor must do, is control the flare before worrying about weight gain.

  3. Dear Curtis, Ashwin gave you great advice, but I just want to add make sure you get checked out by you docs and e sure to keep close track of your weight, bmi, blood work, etc. Someone in my support group had real problems with this. Take care of yourself! I am gonna look into this for you–hang in there! I went from 123 up to 140 after I tapered off Prednisone… Potent chicken soup with rice and carrots, small frequent meals, banana smoothies, gentle walking and yoga, vitamins & supplements, along with keeping a food journal. Can you eat eggs? I craved them at first and would boil 2 at a time for 7 minutes. Yum.

  4. Hey guys thanks for the responses.
    I haven’t gotten my flare under control yet and I think it might be because I am not staying as strict on the scd diet as I should. My parents are really pushing me to eat carbs like potatoes and rice and stuff to try and gain some weight, even though I’ve been telling them that I still have symptoms and am still in a flare. I eat eggs every morning and make Adam’s smoothie everyday as well. I am eating a lot of protein as well like chicken and fish and turkey and what not. Drinking lots of water and Vitamin water and orange juice as well. My parents are thinking of trying gluten free mac and cheese and gluten free bread to see how that goes, but I need some help calming this flare down.

    How long does it normally take you guys to get out of a flare? I was released from the hospital last Monday and am still having symptoms, mostly throughout the night (my symptoms are better during the day after I take the Prednisone in the morning).

    Any help with a specific diet layout would be much appreciated!



    1. Hey Curtis,

      Getting the flare calmed down can take time. But it for sure can be done. Don’t get too upset if you don’t see results right away, really what you are doing is trying to heal the inner lining of your colon. that takes time. It sounds like you are eating alot of good stuff, but you might want to cut back on the orange juice until your plumbing system is working much better. I nearly cut out completely the orange juice during my last introduction to the SCD diet, and I only have about 5-6 ounces at a time with a smoothie right now still, even though I am feeling much better and nearly blood free. As for normal time to get out of a flare, that has varied for me too. It has been ten-14 days before getting out of most symptoms, to well over a month. There is no normal amount of time in my opinion. Everyone’s different on their recovery, or healing of the colon…
      It sounds like you need to get a bit more structure into your diet plan. There is a free guide on how to get started on the SCD diet: SCD Diet free Guide and I would recommend anyone who is starting or thinking about starting the diet to try it.
      I for sure would not touch the potato or rice if it was presented to me while in a flare(infact, I don’t think I’ll be touching that stuff anymore even when I am 100% out of my most recent flare up, just to be as SCD diet legit as possible…)
      There is a list of good starter diet foods to be eating. it sounds like you are having a little bit of progress, but right now is critical for you to get some healing done before you start adding other stuff to the diet. Best of luck Curtis, you can do it for sure!!

      1. Hi Adam
        My wife was diagnosed with ulcerative colitis in last January 2012.
        She was kept on Masacol 800 mg 3 times in a day & wysolen 40 mg.
        Her symptons get under controll after 10 days of starting that medicine & doctor has gradually stopped steroids 3 months back & she is now on sazo 500 with no symptons.
        Meanwhile we have started netropathy diet paralaly.
        The only problem she is facing is of light body & joint pains.
        I think this is due to strict diet of netropathy in which she is not getting enough nutrition & vitamin minerals etc.

        I came to know about the product from Amway company called Nutrilit powder.
        My question is. Can she take this powder to improve her nutrition level????

        Please advice.


        1. Hi Vishal,

          I myself have not ever tried that product so I can’t relate any experience about that unfortunately. However the joint pains you mentioned are very common for uc patients while in the middle of active symptoms and even when in remission. There are some ideas about managing the joint pains in the Joint Pain survey in the survey section if the site which you might like to read
          Best of luck to you and your wife

          1. Hi Adam,

            I wanted to know if you were following scd from the time that you initially started? Were you on the diet when you flared? When and how you cut your medicine (how long after being symptom free)? do you have any advise on how to gain weight while on scd? I wrote down the number of calories that I get from food but I still am 400 cal/day behind…


          2. Hey Mobin,
            I have been following the diet (not 100%) but pretty darn close from the time I started almost 4 years ago. I’ve been on the diet during flares. I was on prednisone when i started, and a slow slow taper along with starting SCD and seeing positive results allowed me to get off medications back then. The taper was about 2 months after starting the diet changes. As for gaining weight while on SCD, my biggest bit of advice would be to focus no obtaining full healing and no symptoms, and then after that, weight gain is certainly possible. For me it allowed me to go from 130 pounds back up to 160, but, and i repeat, only once I was healed did I notice my weight increasing.

            I wish you the best,


    2. The concept of the SCD diet is to eliminate grain and refined sugar. Grain turns into sugar immediately and so it is just the same as ingesting table sugar. What your body needs right now is to get rid of sugar that will feed the bad bacteria in your colon. Your parents mean well, but gluten free Mac and cheese will set you back. It isn’t just the gluten that is turning into sugar and causing problems. It is ALL grain. Elaine Gottschall’s book “Breaking the Vicious Cycle” and the inventor of the SCD diet, explains it well in her book. The more you understand about what is happening in your body, the more success you will have with the diet. Your body is craving sugar because the bad bacteria want to live. Macaroni is a pasta/starch/sugar. Don’t let the desire to gain weight set you back in your progress to get past the flare. God bless you, hang in there!

  5. First of all:

    Get out of the flare!!

    Now you have to understand, that if you want to gain weight you have to lift weights. Your body needs a reason to grow. It must be a speicific programm, cause you want to GAIN weight. There are lots of such stuff on the market. (Something like no-nonsense muscle building, from skrawny to brawny etc. will do)

    You also will need a decent amount of sleep everyday. At least 6 hours..

    How do you distribute your meals during the day? You didn’t wrote anything about that.. You should eat every 3 hours a not to big meal. (Would be 5-7 meals a day then).

    Calculate how many calories you body burns every day
    You’ ll need to intake more than this number.
    Distribute your meals
    Get enough sleep
    Add Weight-Lifting training

    If you follow this advices you really quickly will gain some serious weight.


  6. Next one:

    How to calculate your daily calorie needs:

    1. Take your weight in lbs (if you know it in kg just multiply the value by 2.2)
    2. Multiply this by 20
    3. = your daily calorie needs to weight gain (note this is a minimum amount. you need to achieve this number day by day.)

    There are tons of other formulas for calculating the daily needs (based on BMI, work level and so on ) but this is one is straight forward and works like a charm.


  7. Next one:

    How to calculate your daily calorie needs:

    1 Take your weight in lbs (If you only know it in kg, than multiply this value by 2.2)
    2. Multiply by 20
    3. ? Your daile calorie needs. (This is the minimum amount of calories you have to take in for gaining weight. You have to achieve this day by day. plus the other things from my previous post like weight training, enough sleep every day and regeneration periods between workouts.)

    There are many other formulas out there for calclulating you daily calorie needs based on BMI, work amount and so on. The one above is really straight forward and works really good for hardgainers / skinny dudes.

  8. You can not just look at calories taken in to gain weight. Even when I am feeling slightly off my weight starts to drop. I,am 6’1″ and usually walk around at 185lbs, I have to eat a ton of calories to stay at this weight when when healthy. I drop 10 or 15 lbs in a few weeks when feeling off. Human metabolism is very complex, I could eat 10,000 calories a day when flared and still loose weight.
    . I would concentrate on eating lots of healthy fats, ie. free range eggs, meat, fish, sardines, along with potatoes and rice. Stay away from sugar, flour, it is really not healthy for anyone.
    Lift weights 3 times per week, for half hour to 45 minutes, don’t do,any cardio, you don’t need to burn any extra calories.

  9. i am trying to gain my weight back too i have no clue how to do it. as of right now i only weigh 118 pounds and usually weight aroun 130.

  10. I to have lost weight due to my diarreha. I have gained a lot of insight on what can be done. Ti will have to try different things ubtil I find what is right for me. Thank you.

  11. I have lost about 12 pounds in last 6 months. Went to GI doc Thursday, he isnt concerned with weight loss. I certainly am. I very self-conscious, I hate when people say, “oh, you’ve lost so much weight.” My back and shoulders feel bony. PLEASE tell me how to put weight on fast, before I become a hermit.

  12. Hi all,
    I’ve been struggling with putting on weight since my diagnosis. My preliminary goal is ten pounds heavier than I am now, but ultimately about 20. I am nervous about making this happen quickly, as I am in the performance business and entering my final year of school, which means lots of auditions. Looking malnourished never helps with casting. Naturally, I am looking to gain healthy weight and muscle weight. I have a really tough time getting to the gym, so I have been doing some home workouts with light weights— I am always looking for more recommendations on exercises I can do at home, as I squeeze these in when I get the chance. Any suggestions? (I’m doing yoga frequently too— LOVE IT). I’ve seen an increase in muscle, but not weight.

    I am also looking for protein powders or drinks that don’t aggravate me. Lately I have used dairy protein drinks, but I think that I shouldn’t continue that because of the inflammatory effects of dairy, and I don’t want to throw myself into a flare up because of my own stupidity. I used to have to take lactate pills, but since going gluten free, I’ve found my tolerance of dairy has actually improved. BUT I don’t want to abuse it! I’m wondering if anyone has recommendations for powders that are dairy free AND soy free, as I am soy sensitive as well. (What a year it’s been!) I’ve been looking into Hemp protein powders… anyone know if that can help?

    Sorry this is a jumbled bunch of questions! I’m recently diagnosed and just now making my peace with it and trying to reach out. I realize a big part of weight loss can be stress— and I am working on that as well! Any advice would be greatly appreciated.

    1. Hi Emily! Gaining weight is really tough when you are trying to heal and your body isn’t absorbing anything. I think everyone has to figure out what works for them and helps in gaining the weight, while adding nutrients and most importantly, not further irritating our guts! It’s a tall order.

      I was wary of powders – they just seemed to have a lot of ingredients and I was nervous about that. For me, the plainer the better! I tinkered around with smoothies, and fell in love with this one. It is chock full of healthy fat and made my tummy very happy. So happy that I gained back every last ounce of weight I lost. :)

      Coconut milk (full fat, from a can, organic)
      1 frozen banana
      2 raw pastured eggs
      1 packet VSL #3 DS (prescription probiotic – if you aren’t taking a probiotic I strongly recommend them)
      1-2 scoops L-Glutamine (helps to heal the intestinal lining – use more if you are bleeding)
      1 tsp organic cocoa powder (or you can make it with a few strawberries or blueberries for flavor – very good!)

      Good luck to you! This diagnosis is a doozy and there is so much to learn and try. I was just diagnosed in January and it’s been quite a journey so far – fortunately I am in remission and loving every day! It’s easy to get overwhelmed and stressed out – please know that it gets better and you will learn what works for you. This is a great place for support – hang in there!

  13. Hello Adam,
    I am new to your site but with hope of finding help with weight gain. I was diagnosed in 2013 with ulcerative colitis, and I too chose to do the alternative
    route with SCD diet and supplements. After 4 months I got the biles undercontrol
    and thought i was on my way to recovery until a month ago I came down with the stomach flu, causing me to even more weight, which my doctor have already told me on my last visit, not to do.
    Now I have turned around a got the flu a second time, loosing even more weight, and look very malnurist, and in a very weak state. I take a good multi vit, Omega-3, L-Glutathine, D3, B6, good probiotic, HCL for digestion, B12. Don’t know what to do. Can you give any advise so this would not lead me to the hospital? I truly are in diar straights.

    1. Hi Sheila,

      Figuring out how to put on or take off weight with UC is for sure not an easy thing. It sounds like you’ve figured out the UC side of things but are in the middle of awful bouts back to back of the flu. For sure getting the flu squared away will be a big help to your body overall, and I surely would hope that if you have healed your colon and are eating good meals throughout the day, your body should slowly gain back some of the weight you’ve lost. There’s for sure a chance you may not ever get back to your pre-UC weight, that is different for everyone. For me, it was several years of life with the SCD dieting and staying healthy (and not getting sick with other stuff) before I was putting pounds back on. I have not gotten back to the 165 pound level I was several years before my diagnosis, but I hover around 157-160 which is pretty darn close.

      As far as outside the box ideas…I’m not sure if you do lots and lots of excercise, but if that’s something you do excessively, that’s something you might want to consider toning down on (especially while getting over things like the flu of course). As for foods with high calories since SCD foods are often pretty low on them, you could look at some of the higher calorie things like almond flour based cooking. But I myself tend not to suggest that to others since that stuff is often hard to digest and can lead to going backwards with UC symptoms returning if it gets out of control. Better I think is to up the high quality protein stuff like fish and chicken in my opinion. Not tons of calories, but good stuff in there that’s easier to digest in my experiences.

      More than anything, stay positive, and realize it takes lots of time for many people to put back on weight, but its for sure possible.

      Best to you,

  14. Omni diet is also really helpful, just fine tune it to your own sensitivity. However, she recommends lots of raw veggies which can be a huge problem while in a flare.

    1600 asacol X 3

  15. So fed up, diagnosed 20 yrs ago, never got any better just got used to it ( manageable) Recently moved to a warm climate, eating well, not had a flare but losing soo much weight, in two months gone from 50 kg to 41, taking protein drinks but still losing…..

    1. Hi Breda,
      I’m super sorry to hear things are not going well for you with regards to the weight gain/loss. It is strange that you’re continuing to lose weight even though your symptoms are gone. If you’re eating a normal amount of calories each day, that shouldn’t be happening(way different story if you were also experiencing active symptoms, but doesn’t sound like that’s the case). Id suggest you talk with your doctor, maybe a blood test might reveal something else that is happening. no matter what, congrats on getting your symptoms under control:)

  16. Dear Brenda,
    My son has UC, and it is a severe case just diagnosed in March of this year. The GI said he is the worst case he has seen. Have you done the SCD diet? My son strictly adhears to the diet, home made yogurt, chicken bone broth soup, and broiled chicken, beef and fish, puréed vegtibles, no processed foods, grain or sugar. We make all his meals, twice a week, and put them in travel containers. He refused to do Humira, and has tapered off prednisone, and is currently on Lialda only. He is symptom free now. We believe the diet is essential. He originally lost 45 pounds in 6 weeks, and is slowly regaining the weight. He has gained 10 pounds as of today. He has finally started light weight lifting. Building back slowly. All doctors recommend drugs, not diet, but it is the digestive system so “cause” is important to figure out. Elaine Gottschall’s book Breaking the vicious cycle, started us of the current track that appears to really be helping. Hope this helps, I’ll keep you posted!

  17. Hey there! I just came across this thread because I also really want to gain weight. Lately I have been feeling progress (except for a bad setback this week) but it frustrates me that I am still so skinny!! And I know I have to wait until I am healed, but that’s not much help!

    Anyway, I noticed a few people here looking for a protein shake. I was doing the same thing last week (found out I’m malnourished, no suprise, haha), and I found Vega One nutritional shake. It’s dairy, gluten, and soy free (although it may not be safe for SCD-I saw rice protein on the list-sorry guys!!). It has 50% DV of tons of vitamins and minerals, as well as omega 3s, probiotics, etc. It is also plant based, and counts as a serving or two of veggies (which is part of why I bought it).

    The serving size is huge-and it has 6 g of fiber…so I only take about a tablespoon in a cup of kefir, since its new for me and I’m always cautious about new stuff. So far it’s been going well! They also have a plant-based protein powder, but I chose this one because of the nutrition. I know a lottt of nutritional/protein powders have lots of bad stuff in them, so maybe this will be helpful to someone else on here :)

  18. I am suffering from UC as well. I am 6’2 and 20 years old. I use to weigh 185-190 lbs but in the past year I have lost 20-30 lbs from UC and now I am 160-163 lbs I have a hard time eating or having an appetite as well and also I am suffering from GAD (Generalized Anxiety Disorder) and my condition causes weight loss as well, I have had an colonoscopy and my doctor told me I had some bacteria and an Ulcer on my colon I am so stressed and I have no idea how I can gain my weight back can someone help please :( and also I have a baby face and since losing the weight I look very young for my age most people assume I’m 15-16 years old and it’s really taking a tole on my confidence especially when it comes to my job. Please, if you have any answers help… :-(

    1. Read the book “breaking the vicious cycle”, I was the worst case my doctor had seen and now im 100% cured through the diet. Goodluck and I promise if you stick to the diet you will be cured. Godbless, Jeros

  19. I have had UC for going on almost 20 years now. In that time I have tried pretty much everything under the sun in the way of diets; some with good results, most with not so good results. The main goal with each being 1 – Recovery, and 2 – Weight Gain – trying to get back what I have lost

    In that time, I have found that recovery and especially gaining weight is extremely difficult if you try to steer clear of the aggravating items. But slow weight gain back to somewhat New normal weight is possible if you take it slow and don’t overdo it – and overdoing it would be eating in excess something that is considered “good and beneficial” and quickly turning it into something that is “bad”. It is a really sensitive balancing act that takes a long while to figure out; most often by trial and error.

    The end goal being to try and stay as symptom free as possible, for the longest stretch possible, and add a little weight back.

    I have boiled it down to basically 3 highlights that I find helps me gain weight and also stay “mostly” symptom free in regards to diet.

    Other than the fact that everything in the way of food that has any sort of processing done to it is suspect, my three findings are as follows:

    1. Cut the sugar. Anything you can do to reduce sugar is absolutely essential. I call it added sugar; anything that has sugar as an ingredient has the potential to cause flares. Now in saying that, fruit sugars for me are not a negative, in small quantities. So it is a balancing act; but for sugar anything with added sugars or things that quickly convert to sugar once digested are a big no on the diet track. Added sugars lead to added aggravation of the intestines, which leads to more weight loss because an aggravated bowel pushes material thru quicker to get it out of the works and keep it from causing more problems. Added salt is also a player in this as well, same conversation, same sort of results because salt is offensive to an aggravated intestine, just a different mechanism what is happening in your gut – just think about putting salt on an open wound on your arm, same thing happens in your intestines, so the more you cut the more you reduce chances for aggravation.

    2. Avoid anything with Ascorbic Acid like the plague. And try to find something that is processed these days that doesn’t have Ascorbic Acid in it – you will be surprised when you start reading labels. Ascorbic acid is a preservative, plus it has Vitamin C properties, so they put it in absolutely everything and act like it is the miracle food. And you have to be careful because it has many names, sometimes listed as Citric Acid, sometimes Phosphoric Acid, etc., etc. – the list goes on. It may not have the same effect on everyone but it causes chaos for me. Simplest way I have for testing, assuming you are in a semi-recovered and stable state, buy a pack of apple sauce, any brand – try it out and limit your food intake that day to known safe foods. If you get negative results, aka loose stool, the following BM, you could have a culprit. Point is, processed foods have all sorts of stuff in them that don’t necessarily agree with UC – and I am talking on a molecular level. Think about what you eat that is processed. Eat is a relative term as well, so maybe say everything you put in your mouth – Vitamins often have large doses of Ascorbic Acid because of the Vitamin C content; kills me every time. Best multi I have found, Ascorbic or other type of acid free is NOW ADAM, or EVE for the ladies. They use Calcium Ascorbate for the vitamin C – much better absorption and more tolerant for me. I still only take half a dose, better safe than sorry.

    3. Protein supplements. I think a common thread in all weight gain plans is a protein supplement. Lots of protein in a quick and convenient delivery system. Pack on the pounds, apparently. Unless you have UC, and the protein supplement, which is highly processed, turns into the nightmare scenario. This is due mostly to the hidden unknowns from the processing, the mystery ingredients. So the trick here is to look for protein supplements that are pretty basic without a lot of added “stuff”.

    Whey protein is your best bet for protein. I have tried pretty much every type of protein there is out there, and it all comes back to whey as being the only decent option. There are three main types of protein of the Whey category – concentrate, isolate, and hydrolyzed. For both concentrate and isolate, with damaged intestines, it is highly likely that most all the protein with be “wasted” and pass thru without ever getting absorbed. Thankfully things like hydrolyzed whey exist, which simply put is predigested protein, without all the other whey dairy stuff coming along with it – just straight protein. Predigested means it gets absorbed quickly and completely, so although it is more expensive and refined than other types of whey; you end up getting more bang for your buck, and the best piece is that it all gets absorbed in your small intestine and never makes it to the large intestine where it could have adverse effects if it had dairy traces – which it doesn’t. The best whey protein, hydrolyzed, I have ever found is Proto Whey, by BNRG. You can find it at Vitamin Shoppe or online at a few limited places. This stuff is a life saver in my book. It has a few “added” ingredients, but the benefit from taking this protein supplement far outweighs the possible negatives. I have been taking it for probably about 5 years now and I have no issues with the added ingredients, and it does not taste bad either, which is a huge positive compared to some other protein shakes. 2 servings a day and it truly does help me maintain a reasonable weight.

    I never truly have gotten back to my “ideal weight”, back before I had UC, but I am always working to get closer. What I have described above helps me stay in the ballpark. I came on this site looking for ideas on possible weight gain opportunities, with UC, see if anyone had anything they had tried that had worked better than what I had found. Not saying my stuff is 100% on point for everyone, but figured I would leave my take and see if anyone could add to it.

  20. Hi, I was diagnosed with chrons disease, ulcerative colitis and colitis. Before I got pregnant with my son I was 155 pounds. With my height, I was in love. About a month before I had my son I started noticing my appetite was decreasing. Every sight or thought of food made me want to barf. And that was odd being I could eat more than a man before that. Needless to say I’ve done 2 colonoscopies and a scope down my throat. I have multiples ulcers multiple polyps and a hiatal hernia in my esophagus and my colon and stomach is inflamed.. I’ve been on prednisone 3 times they put me on a high dose then gradually take me off of it. I’m also on a low maintenance medicine to help cure the inflammation. But so far it’s doing nothing. My doctor doesn’t tell me what I should eat what i shouldnt eat. Anything! It’s getting really frustrating. I’m 95 pounds now. And nothing seems to be getting my weight any higher.. It’s so depressing. I’ve been wanting to give up for quite some time now. Is there anything over the counter in a pill form or drink wise that I could gain any weight? I really don’t know where to begin.. Any help would be so appreciated..

    1. Kristi – my take on things – and not saying I am an expert – almost 20 years in with UC and I still am on a constant path of discovery when it comes to what to eat. Short answer is – no – there is no pill or drink to help you gain weight. You could eat and drink all you want, but as long as you stay in a flare, nothing will absorb “efficiently” and most of the valuable nutrients will pass unprocessed. That is your bodies natural reaction, get it out of there because it is causing issues and your insides know it.

      Also, my opinion, prednisone is some tricky stuff. I have done everything and sacrificed much to stay off and away from that stuff over the years. Different take on it for different folks, but I have my own take on what good it does versus what good it doesn’t do. My dad has Chrons and was on it for a while to get things under control, he is still struggling with the effects. But I am not a doctor, just a guy with a theory.

      So – for the food thing – there is not a short answer, but here is what I would recommend –

      1. In my last post I recommended Proto Whey – plain jane Vanilla. It is by far the best protein supplement I have found over the years because of two things a) It is a pre-digested protein, so your body does not have to do much to process it and absorbs it quickly. It is the only real reason I think I am able to keep my meager weight I have now. 2 servings a day. b) It is just protein, no added junk like a bunch of the other brands, just protein with a little sucralose – which some will say is bad for you, but I think the benefit outweighs the detractors. and b.2) It helps fight inflation since there is nothing for your body to process

      2. Buy and read – The New Eating Right for a Bad Gut – by James Scala. I call this guy the food Nazi because once you read this book you will figure out pretty quickly that he thinks all food is bad. But what this book does is it teaches you about food and what effect it has on the inside of your body. With UC and Chrons you need to be concerned about internal irritation; and reducing the drag. This guy helps break down how food gets processed on the inside. Books like Breaking the Vicious cycle and such have their points, but this book truly teaches you about what is happening with the food you eat. But from there – you – have to figure out the rest. Everyone is different and finding the right diet is a trial and error thing. I am not saying I am right but I have found positive effects with my current diet, but I eat the exact same thing every single day, no variation, no matter what. I have trial and error’ed over the years many many different combinations and I have found something that works for me. It is tough when everyone else around you is eating all sorts of stuff with reckless abandon, but for me, I am interested in keeping my colon and not living with the chaos of IBD. And it seems to be working in my favor, most of the time, so I trudge on. By the way, after reading this book you may understand this comment more, but I eat pretty much only vegetable based foods, absolutely nothing processed (except Proto Whey and some store bought plain yogurt – Fage); and everything in moderation; even including moderation.

      3. Look up on the internet and read all about – Food Combining – look up Food Combining charts on google and you get plenty of results. Point of this is to understand more about how food does its thing on the inside. My personal believe is that this helps tremendously with healing. Today’s standard diet is absolutely insane once you read and understand why this concept matters. Take a common hamburger for example, think about how it gets processed on the inside, and then look at how the chart helps breakdown why this is all wrong with proper eating. Your stomach and intestine are a smart machine and they know to take care of the tough stuff first, so they break down the heavy fats and proteins first, so when you combine a whole bunch of stuff together like the standard diet of today’s American, you get this festering pool of half putrefied matter snaking thru you insides, all of which causes further inflammation. I know I sound a bit fanatical, but I am trying to say that there is some merit in what these charts are saying – we just all have been taught over the years through commercials and advertising and just hinging off the fallacies of our parents and our parents parents learning and upbringing in the industrial age of this new superior diet – which turns out is really not all that superior. This food combination thing has many other ties to health and obesity, but in our case here, it has everything to do with internal inflammation and wrecking your insides.

      So to end my rambling, you have to focus on stopping the inflammation before you can think about gaining weight. It is tough. Really really tough to break old eating habits, but in my opinion it beats the alternative. And it is not quick, 20 years and I am still working it, but there again, I think it beats the alternative and it seems to be working for me – in one way shape or form.


  21. I am 23, recently diagnosed a year ago with moderate U.C. I’m 6’1 female who plays collegiate basketball and initially weighed 165, down to now 147 because of colitis. I have tried delzicol, lialda, and most recently balsalazide which have all failed me. UC is different for everyone but what I’ve come to realize is that all these medicines strive to treat our symptoms, while the food we eat continue to worsen our colons. Often times the side effects of taking the medicines were significantly worse than what I remembered colitis to be like in the first place, so what did I do? I went off medications and used a SCD diet. Not only do I feel better, but I feel better than I’ve ever felt in life, and could gain back my weight. the most important thing about this is not straying from the diet, and also to eat a ton, forcing yourself sometimes. While that sounds unpleasant, I’ve also felt stronger and more energized than ever before. I recommend a couple teaspoons of apple cider vinegar three times a day too. Who’d think meat and vegetables let you gain weight so fast, but boy do they. Doctors get paid to sell you medicine and don’t mention changing your diet which is robbing people of their health.

    Find new SCD recipes, cook with variety and eat often and enjoy a healthier and symptom free life than ever before

  22. Hey guys and especially Adam,

    I am 50 and I have been going through this UC agony for the last 2 years, i had 3 colonoscopies to take different opinions, now i am on prednisolon and Asacol 800mgx3 times,

    just want to know is this going to take my life out ??

    1. What’s up Joseph,

      Thank you for sharing your story!

      First off, I hope you have a GI doc you are working with who you trust and who listens to you and makes you a priority! You like all of us deserve that. Either way, about your question, no you will for sure experience ups and downs with UC, I think all of us can agree on that. But in the end, it is always going to be up to you as far as how you move forward. I for sure find myself doing things at the ripe/young age of 37 that I had never done in my twenties pre-UC diagnosis. And I am for sure expecting this to last a long long time.

      The key is finding a way to keep the UC under control, and then after that, yes indeed, you have many many years of life to come!
      Wishing you the best,


  23. I am at a lost now. I sometimes don’t know what to do with myself. Take pills for anxiety. Feels like the world is closing in on me, smothering me. I am in a black hole. No one to talk to. My friend does not seem to understand. When I am not feeling well he brushes it off. I am so stressed. I am trying to focus on me right now though. However. I care for him as always.

    I was diagnosed in August 2016. I have always been into health and fitness. I was a fitness instructor for many years. Life at this time is pretty gloomy. I am used to going as I please and doing my thing as I please but this has knocked the wind out of me. Most of this year, I spent not feeling well. Lost a lot of weight early on. Had no idea what was going on with my body as I was diagnosed in August. I believe I have been suffering from this disease for 20 years as I recall missing work reguraly with stomach cramps. I would take a few days off. It would disappear as quickly as it came out of no where. My doctor then described it as IBS. I made a few minor changes to my diet then and resumed my life as usual but recently began to have constant digestive issues. Made more changes to my diet but never lost my appetite until February or March of this year. I, however, soon regained my eating habits. Had a colonoscopy in August and wham!! God almighty! I pray a lot. I guess it could be worse. As down and out as I feel now, I am determined to exercise, eat right, pray for good health, and live to the utmost.

  24. Hi there,

    I was diagnosed with colitis (pancolitis) a few months ago, but I believe I’ve had it for quite a while as losing weight and having weird stool were not unusual in my life before. As a kid or teenager I could spend my school vacations in hospitals almost every year with various stomach issues.

    Now it has got worse and I’m trying to figure out my diet because my body reacts differently to the same food. There is 100% my own fault because I’ve been ruining my health with unhealthy food (atomic spices, fat, loads of sugar and MSG junk) but I also believe this illness might originate from your psychological condition. It isn’t a secret that once we are stressed our stomach might work differently (thanks to the brain signals and all that hormone related mess). In my case I can get so anxious that I would need to run to the toilet immediately.

    So sometimes it works like this: stress -> IBS -> UC. Or stress -> gastritis -> ulcers -> so on…

    Just an idea, don’t get pissed with your GI who can’t tell you what to eat. Nobody knows in fact. All doctors can offer is a common recommendation that still has to be adjusted to your condition.

    So during the treatment try to figure out whether you have anxiety issues and work on them, too. It’s crucial because when you worry about your weight, suspect cancer or other scary stuff you enter a cycle that helps ruining your health.

    Good luck!

  25. Hello everyone….
    I am 20 years old and I was diagnosed UC a month ago and I got rid of the symptoms in a week (with medications) but I lost quite a weight. I am right now around 50 kgs and want to get upto atleast 55. Van anyone help me. Also I have a busy schedule because of my college.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.