Archive | Surveys

Patient Survey information and data from ulcerative colitis patients.

Survey – Skin Problems Related to Ulcerative Colitis

By Adam on January 21, 2018 in Surveys

Survey Results are Here,

(Real life, and maybe I should repeat, very real life pictures submitted from many brave UC’ers along with details of their skin conditions.)

Thank you to all the members of the ANG – active newsletter group, who participated in the Ulcerative Colitis Skin Survey. There were over 500 participants who completed the survey, and many people who shared personal pictures of what the skin problems look like they are dealing with(or have dealt with in the past).

We’ll jump right into the survey detail below, but again, a very big thank you to all who participated.… Read the rest

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Ulcerative Colitis Flare Survey – 2017

By Adam on November 15, 2017 in Colitis Survey Data, Surveys

The results of the 2017 Ulcerative Colitis Flare survey are here. Thank you to all 776 participants who spent some time filling in their answers. It is much appreciated. At the end of the page, I have listed all the people who have submitted their pictures along with their individual answers. As you will see in the survey results, there are several PDF files you can download to review the complete list of answers for a few of the questions too.

The goal of this survey was to learn from other people who have UC, especially regarding the process of … Read the rest

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940 Person Survey – All About Drinking Alcohol with Colitis

By Adam on August 21, 2016 in Surveys

Thank you to all the Nine Hundred and Forty COLITIS ROCKSTARS who contributed to the Alcohol and Colitis survey!

There was participation from 43 countries! (which is always cool to see, I guess us UC folks be a drinking in all sorts of places)

Here are the questions from the UC and Alcohol Survey that took place the 3rd week of August 2016 (Pictures are at the bottom):

Question 1: Do You Drink Alcohol:

39% — YES
38% — Somedays YES, Somedays No
22% — No (Meaning never, or not in a long time)

Question 2: Do you think alcohol … Read the rest

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Ulcerative Colitis Clinical Trials Survey

By Adam on May 22, 2016 in Surveys

Thank you to all the 549 Participants in this month’s iHaveUC Survey!

The survey was focused on ulcerative colitis clinical trails, and WOW, some very interesting ideas, suggestions, and comments by many of you regarding this type of research.

Below are the questions that were part of the survey.

Ulcerative Colitis Clinical Trial Survey (May 20, 2016)

Official Survey Answers – In the Summarized Form – CLICK HERE

Question #1: Do you have ulcerative colitis?
Question #2: Have you ever participated in a UC related Clinical Trial?
Question #3: Would you expect to be paid some money for participating in

… Read the rest

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Coffee Survey Results – 975 Participated – Wow…lots of Coffee…

By Adam on January 24, 2016 in Surveys

975-participant-coffee-and-colitis-survey-results-aa

Thank you once again to the 975 members of the newsletter who participated in the survey.

This survey’s results I have decided to post a bit different than usual. It actually is much much faster for me to simply create PDF files of the data which you can easily view via the link below. (Please let me now via comments if this is better for you in terms of reading the results form the questions that were asked.)

The link below has the full overview of the survey results:

Coffee and Colitis Full Survey Overview

**Once again, that link … Read the rest

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Recent Reviews

Colitis Book Reviews SKU UPC Model

Very informative

Oct 20, 2018 by Mary Maass

City/country:: Cincinnati Ohio

I found Adam’s book to be very information on about having UC. I am a mom of a UCer but I also have digestive issues. It can be overwhelming at times and Adams book brought me hope. I highly recommend it as a book to help you find your way through it.

Sharing is Caring

Mar 25, 2018 by Lily Totovian

Thank you for sharing your story and journey to remission Adam. I am integrating some of your ideas and asking more questions of my health care practitioners to get on my own path to remission faster. Also, the immediate changes I made in my diet has been encouraging to alleviate some symptoms.

Thank you again. I look forward to the next iteration of your cook book.

Must read

Mar 15, 2018 by Carly

City/country:: Lakeland, FL USA

What an amazing resource. It definitely opened my eyes to the world of UC. I love how realistic Adam was about all the different treatments, and the details of the struggles to get to remission. While it definitely wasn’t what I wanted to hear (I think we can all agree it would be nice if we could just wake up and feel better), it was definitely comforting to know I’m not the only one struggling hardcore to get to remission so that I can hopefully control my pancolitis with lifestyle and not medications eventually. The book had me laughing at times and in tears from being able to relate to the struggles. Thank you so much for writing this book. It’s been such a valuable resource in so many ways, including helping me learn ways to share information so my family and friends can have a better understanding of what it’s like. So again, thank you for this Adam. It is a must read for anyone struggling to gather as much information as possible.

My Biography

Jan 16, 2018 by Prinolan Govender

City/country:: South Africa

I honestly felt like you wrote my biography. I've lived my life the same way you did, eating, drinking and partying without having to worry. I did have signs along the way as well but didn't take to much notice to it until the blood showed up. I was diagnosed in October 2016 and at the time my GI told me it had nothing to do with my diet, so I lived my life the same way I always did. I've been trying many different meds without little or no results. After my 29th birthday in June 2017 I started feeling more sick and the weight loss had started, I've always been a skinny guy and ever since I lost quiet a bit of weight which has been something that just makes me feel more uncomfortable. I consulted a Homeopath in October 2017 and she started me on the Paleo diet, while researching that I came across your site and the SCD diet which I started in December 2017. I didn't do any of the diets a 100%, but I did start seeing results. I went a bit off the rails during the festive season while traveling but I'm easing into the SCD diet again and plan on going 100% this weekend. UC has caused a lot of stress for me but I've come to accept it and look at it in a positive way. My goal is to eat healthy, put some weight back on and start living a normal life again. I haven't let UC stop me from living my life although it has limited me, but thats all going to change! Thank you for sharing your story and being an inspiration to all of us.

Feeling lucky

Dec 10, 2017 by Kathryn-Jane

City/country:: Vancouver Island, Canada

I found this to be a very funny, informative book. It made me realize how lucky I am, as well. I haven't suffered anything like the severity of symptoms Adam has experienced, for which I am grateful - but that's not to say I haven't known the usual UC misery at times! As a wordsmith and grammarian, though, I wish the book had been given a more thorough edit. Maybe in the next edition.

Feeling crappy to happy

Nov 21, 2017 by Lynn

City/country:: North Carolina

The book was so honest and forthcoming about UC symptoms. It was almost like reading my own story since this journey began for me 2 years ago (no remission yet). I was starting to feel pretty hopeless about this whole situation but Adam’s book gave me hope that I (we) can take control of UC. I have been following the SCD and eating what Adam ate while in a flare. I can tell a difference! Still sticking with my docs medical plan for now. But, I am hopeful that healing is coming and that diet is the key. Thank you Adam for continuing th share your journey!

Thank you!

Oct 06, 2017 by Jennifer

City/country:: Toronto, Canada

Thank you so much for writing your e-book. I'm glad I came across it. I learned a lot. I realized that I don't like my GI doctor and need to find another one. She hasn't helped me at all. As soon as I was diagnosed with a mild case of UC back in 2009 I knew that I had to visit my Naturopath. I was not interested in taking any medication. I was prescribed salofalk enemas and I tried a few but when you keep having to run to the bathroom it didn't make any sense to me. I was prescribed the pills as well. I sat down with my Naturopath and we went through the side affects. My symptoms were less than the side affects so I decided not to take it. It has been quite a journey and unlike Adam I knew it had a lot to do with food. I'm sorry you had to suffer so much Adam. I gave up pop and any carbonated drinks, deep fried foods and aspartame/splenda. This seemed to help. I now think I need to take things to the next level. I just came across FODMAP and what Adam suggests. I'm also looking into Keto or Paleo. My stress levels are less currently due to a less stressful job and I realized that has helped. I take supplements like probiotics, digestive enzymes, fish oil, etc. Thank you so much for sharing your story Adam. It makes me feel like I'm not alone in this.

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