The World’s Largest Side Effects Database Is Below
This is the largest database of peer experienced side effects by and for people living with UC. It was started in 2016 and growing daily.
YOU can add any side effects you have experienced from any ulcerative colitis medications as well. (DATABASE IS BELOW)
Search the Side Effects Database Below:
Medication | Age | Side Effects | Other Meds | Date |
|---|---|---|---|---|
6-MP | 46 | Hair loss, muscle ache, skin itchiness for an hour after taking the tablet since taking tablets from January | Pentasa (mesalazine) for 5 years Alupurinol after a month of taking MP6 to counteract | May 9, 2019 |
6-MP | 29 | Diahrreah | Octasa | February 28, 2019 |
6-MP | 27 | *Thinning hair Otherwise, very well tolerated, with good monthly bloodwork results (7 yrs) | Lialda | January 24, 2019 |
6-MP | 55 | Basal cell carcinoma (multiple), viral infections | Allopurinol | December 26, 2018 |
6-MP | 47 | Hair loss | Humira | November 8, 2017 |
6-MP | 37 | Mouth sores | Predisone | November 1, 2017 |
6-MP | 18 | Pain under rib cage | No | July 2, 2017 |
6-MP | 62 | Have taken 6MP daily for the last 4 years. Receive Remicade Infusion every 8 weeks. Wanted off the 6MP due to paternal grandfather having Lymphoma Cancer. With approval from Gastroenterologist we have stopped the 6MP cold turkey. Have been off the 6MP for about two weeks. Have developed stomachache, diarrhea, gassiness, fever and chills. Gastroenterologist feels its just a viral bug that I have caught and it's not a flare up. Have been down for 1 week. Hoping it all subsides soon as new job begins in 4 days. | On Remicade. Infusion is every 8 weeks. | March 23, 2017 |
6-MP | 39 | headache and high feverand muscular aches | lialda | February 5, 2017 |
6-MP | 18 | None | February 3, 2017 | |
6-MP | 25 | sore throat, cough | remicade | January 6, 2017 |
6-MP | 45 | None | September 4, 2016 | |
6-MP | 64 | Killed most of my red blood cells | Yes I was doing on Radioactive iodine for thyroid | August 28, 2016 |
6-MP | 53 | Skin cancer (non Melanoma) | No | August 22, 2016 |
6-MP | 22 | Chronic nausea, vomiting, weight loss, loss of appetite, thinning hair, chronic fatigue | sulfasalazine, wellbutrin, folic acid, multi vitamins | August 21, 2016 |
6-MP | 36 | Nausea and weight loss | Lialda | August 19, 2016 |
6-MP | 42 | None. Had complete remission from UC while on it and bloods fine each time. Took a 16 week break as had been well for 2 years. UC returning so returned to the 6mp. Waiting for the medication to work again. | Pentassa | August 15, 2016 |
6-MP | 42 | 6mp is both a chemotherapy and an immune-suppressant drug which means it shuts it down (as opposed to UC which means it is active all the time) and leaves you vulnerable to other ailments. I have been on 6mp since 2012 and have experienced the following: 1. I got Shingles within a month or so after starting. My treatment was a two hour I.V. bag of Famvir and within an hour or so, the itching and pain went away and by the next day, I was ok. The scarring however, left the area a light purple which is fading away. 2. Bronchitis: I had Bronchitis in 2014, 2015, and 2016, usually around the winter time (and while the winter is not the same in Hawaii as it is elsewhere), our winters are unpredictable; cold one day, rainy another, and humid later so that combined with just being tired a lot leaves me vulnerable for Bronchitis. Each time, I was treated with a daily (every single day) of I.V. treatment for two months with a steroid called dexmethasone. If you miss a day, you have to start over, but if you are loyal to the treatment, then within a week, your symptoms clear, the breathing is regular, and you just have to stay healthy. 2014 was the worst for me because I just had my first carpal tunnel surgery which took a month and a half to completely heal. After those two, I got a really bad case of nausea and had to go back for an I.V. treatment of Zofran which within an hour, I was able to eat and drink again. 3. Nausea: It varies from time to time and it happens. Sometimes I will get it when my stomach is aching and I still have to use the toilet. Other times, if its too hot or my temperature is up which Canada Dry really does help. The ginger ale provides a soothing solution to an upset stomach and nausea while the carbonation kills the taste of the acid reflux. 4. Fatigue: Colitis can make a person feel fatigued so it's not that much difference though with 6mp, you have days where just doing things in the morning like fixing your bed, showering, hygiene, brushing your teeth, and having breakfast can make you feel like you worked an 8-hour shift. I just found out I have sleep apnea so these symptoms kinda blend together. 5. And the last is bruising. Sometimes you find bruises on your knees, legs, back, or arms and not remember how you get it. It's not like you hit it on something but just happens. | I take Avorstatin for blood pressure, Lipitor for cholesterol, Wellbutrin for anxiety and depression (it is no surprise that with this physical craziness that it won't affect your mental health), and Delzicol. | August 13, 2016 |
6-MP | 53 | Rash from exposure to sun while on 6-MP | August 12, 2016 | |
6-MP | 23 | Severe nausea even though I was taking anti-sickness meds at the same time. Leg pain. Lethargy and constantly felt tired. General health wasn't good for the entire time I was on it. I even had abnormal cells in my smear tests. | Prednisolone and domperidone | August 11, 2016 |
6-MP | 18 | My 14 yr old daughter took 6MP and very quickly developed high levels and was not feeling very well. Dr added on Allipurnal, took for a short amount of time and we decided to take her off both Meds. She is back to Lialida 4 pills a day | Lialda | July 27, 2016 |
6-MP | 35 | Hair fell out, always exhausted, blood counts went out of wack with higher dosage. | None | July 20, 2016 |
6-MP | 41 | Anemia, leukopenia, jaundice | Allopurinol | July 17, 2016 |
6-MP | 57 | Thinning hair. Other than the first week taking 6MP feeling a little headache there is no obvious side effects felt. | I also take 3- 800mg Asacol HD and 1mg folic acid tablets per-day | July 17, 2016 |
Apriso | 22 | Headaches, dizziness, light headed, left side pain, blurry vision, an nausea. | February 14, 2018 | |
Apriso | 60 | I believe it is causing joint pain in my knees and neck. | Omezaprole Avorstatin | October 12, 2017 |
Apriso | 18 | Stomach pain, nausea | Remicade | August 23, 2017 |
Apriso | 18 | Soreness and pain on left side under rib cage. Hurts more when stretching and taking deep breaths. | Uceris9mg | August 11, 2017 |
Apriso | 22 | Inflamed pancreas shown in blood work, very extreme nausea, vomiting, abdominal pain, cramps under the ribs, diahrrea | No | December 7, 2016 |
Apriso | 28 | Blood vessels in hands more apparent and do bruise more easily. | N/A | October 31, 2016 |
Apriso | 28 | Also, I posted already, but I have also noticed that my blood vessels seem more apparent (in my hands, etc) and I do bruise more easily. | N/A | October 31, 2016 |
Apriso | 28 | Tired feeling after taking; hair loss, although it may just be my body getting used to the medication; I feel like underneath my eyes I have more wrinkles or dark circles, which do not go away. | n/a | October 31, 2016 |
Apriso | 18 | Non-stop headache the 3 months I was taking it. Also made my hair fall out. | Mesalamine | October 23, 2016 |
Apriso | 63 | Tinnitus | Atenolol Armour Thyroid | October 23, 2016 |
Apriso | 55 | stomach acke | no other meds | September 29, 2016 |
Apriso | 21 | Unformed stools, more hair loss in my hair brush, fatigue, cramping, bloating, gas, bruise more easily, nausea-especially when bending over | daily probiotics | September 28, 2016 |
Apriso | 39 | Sneezing, swollen stomach | August 14, 2016 | |
Asacol / Delzicol / Asacolon | 18 | eczema | May 3, 2019 | |
Asacol / Delzicol / Asacolon | 29 | Octasa caused loads of spots around my chin and neck which iv never had before my skin was always clear, severe dry eye which felt inflamed and recently nausea | February 26, 2019 | |
Asacol / Delzicol / Asacolon | 29 | Vomiting, fever, shakes and dizziness and panic feeling | February 26, 2019 | |
Asacol / Delzicol / Asacolon | 43 | weight gain | none | August 25, 2018 |
Asacol / Delzicol / Asacolon | 22 | fatigue | March 21, 2018 | |
Asacol / Delzicol / Asacolon | 53 | Headache, depressed, red nose, acne | No | December 31, 2017 |
Asacol / Delzicol / Asacolon | 32 | Bloating | Prednisone | December 18, 2017 |
Asacol / Delzicol / Asacolon | 57 | Severe hearing loss. Don't know if it was the medication or the UC. | Steroids and flagyl | November 2, 2017 |
Asacol / Delzicol / Asacolon | 18 | fatigue | October 16, 2017 | |
Asacol / Delzicol / Asacolon | 42 | Had like sharp acid type burning in my stomach & joint pains | Yes | October 12, 2017 |
Asacol / Delzicol / Asacolon | 63 | Severe muscular pain after stopping treatment.i felt it was not working for me so I went off it about two weeks ago and all my joints are in trouble. Salafalk enema may also b causing this. What the he'll can I take for this pain. With u colitis there is nothing that is safe. | Salafalk enema | October 4, 2017 |
Asacol / Delzicol / Asacolon | 21 | weight gain, bloating | September 30, 2017 | |
Asacol / Delzicol / Asacolon | 57 | constipation | no | September 9, 2017 |
Asacol / Delzicol / Asacolon | 70 | vivid dreams | no | August 10, 2017 |
Asacol / Delzicol / Asacolon | 78 | dislocation of my jaw bone paralisis of the left side of my arms and legs | adcal3 cocodrymol and occassionally iron tablets | July 15, 2017 |
Asacol / Delzicol / Asacolon | 27 | knee pains, pimples, gas trouble | omnacartil tampered doses | April 1, 2017 |
Asacol / Delzicol / Asacolon | 56 | Pain in left lung/shoulder/arm. Tingling itchy skin. Coughing | No | March 19, 2017 |
Asacol / Delzicol / Asacolon | 46 | Aches pains | no | March 12, 2017 |
Asacol / Delzicol / Asacolon | 42 | Dry skin, dry mouth, headaches, stomach aches, bad eyes sight, high blood pressure, high sugar | Tramadol | February 13, 2017 |
Asacol / Delzicol / Asacolon | 34 | Migraine Nose pain Swollen joints Mood swings | Steroids on and off | February 4, 2017 |
Asacol / Delzicol / Asacolon | 44 | Terrible headaches at least twice weekly. | Rowasa | January 1, 2017 |
Asacol / Delzicol / Asacolon | 47 | Diarrhoea got much worse | October 25, 2016 | |
Asacol / Delzicol / Asacolon | 26 | Back pain and neck acne | Prednizone | October 23, 2016 |
Asacol / Delzicol / Asacolon | 59 | Increased diarrhea, abdominal pain, nausea Insurance will no longer cover Delzicol | Linzess, Well Fiber, | October 23, 2016 |
Asacol / Delzicol / Asacolon | 53 | Hair loss | September 29, 2016 | |
Asacol / Delzicol / Asacolon | 25 | Pancreatitis | None | September 27, 2016 |
Asacol / Delzicol / Asacolon | 28 | None | September 27, 2016 | |
Asacol / Delzicol / Asacolon | 59 | Abdominal pain and bloating, nausea, joint pain, headaches. | September 27, 2016 | |
Asacol / Delzicol / Asacolon | 18 | Hair loss | September 26, 2016 | |
Asacol / Delzicol / Asacolon | 66 | Raising my blood sugar levels | September 7, 2016 | |
Asacol / Delzicol / Asacolon | 73 | Aching joints | No | September 4, 2016 |
Asacol / Delzicol / Asacolon | 58 | None | No | August 20, 2016 |
Asacol / Delzicol / Asacolon | 61 | Intense stomach pains and extreme diarrhea | No | August 16, 2016 |
Asacol / Delzicol / Asacolon | 25 | Felt bloated and experienced more pain from the flare up in my abdomen which went away as soon as I switched to Pentasa | August 15, 2016 | |
Asacol / Delzicol / Asacolon | 45 | Reaction to hair dye | August 7, 2016 | |
Asacol / Delzicol / Asacolon | 75 | Fever, flu-like symptoms, joint pain, esophagitis | July 30, 2016 | |
Asacol / Delzicol / Asacolon | 51 | joint pain | July 30, 2016 | |
Asacol / Delzicol / Asacolon | 53 | None | None | July 28, 2016 |
Asacol / Delzicol / Asacolon | 39 | None | Salofalk granules Omega 4,6,9 supplement Azapress Calcium supplement | July 28, 2016 |
Asacol / Delzicol / Asacolon | 27 | Asacol - no side effects! | July 27, 2016 | |
Asacol / Delzicol / Asacolon | 33 | None | Geodon | July 27, 2016 |
Asacol / Delzicol / Asacolon | 49 | Tiredness | No | July 27, 2016 |
Asacol / Delzicol / Asacolon | 32 | None | July 27, 2016 | |
Asacol / Delzicol / Asacolon | 37 | Headache | July 27, 2016 | |
Azathioprine (Imuran) | 18 | mood swings, hair becoming thin | pentasa | April 4, 2019 |
Azathioprine (Imuran) | 26 | Sensitive Teeth Nausea Extreme Fatigue Headaches Rib Pain Back Pain | Mesalazine, Infliximab, Prednisolone | November 2, 2018 |
Azathioprine (Imuran) | 18 | Nightmares | September 21, 2018 | |
Azathioprine (Imuran) | 45 | Significant hair loss, stomach cramps, nausea, insomnia, body aches, dry red and itchy spots on face, generally feeling unwell. (stopped meds 3 months ago and my hair isn't filling back in). As I tapered off prednisone the reaction to Aza got worse and worse until I finally had to stop taking it. | prednisone for some of the time | September 7, 2018 |
Azathioprine (Imuran) | 71 | Sensitive teeth. Brittle dry hair. Joint pain | No | June 17, 2018 |
Azathioprine (Imuran) | 52 | none | asacol , imixaflab infusion | March 16, 2018 |
Azathioprine (Imuran) | 48 | rib pain | mesalamine, ezetimibe, symvastatin, lymecycline | February 25, 2018 |
Azathioprine (Imuran) | 52 | Burning up feeling, head was very hot but body cold, uncontrollable shivering, dizzy, achy... | Prednisone | November 12, 2017 |
Azathioprine (Imuran) | 47 | Faint voice in evening like if super tired headaches fever More bronchites in winter | Pentesa | June 14, 2017 |
Azathioprine (Imuran) | 50 | severe joint aches, chills, fever | April 24, 2017 | |
Azathioprine (Imuran) | 54 | Nausea, insomnia, body feels warm | Asacol | March 3, 2017 |
Azathioprine (Imuran) | 18 | dry mouth, dry eyes, dry mucous membranes | Eltroxin, Topzole, Sertra | February 28, 2017 |
Azathioprine (Imuran) | 19 | Tearful and mood swings | Had contraceptive injection | February 23, 2017 |
Azathioprine (Imuran) | 32 | Tiredness, insomnia, headaches and migraines,mood swings,feeling weak all the time but it has sorted my uc symptoms out for now,(touch wood) | November 12, 2016 | |
Azathioprine (Imuran) | 18 | Insomnia | Mezavant | October 31, 2016 |
Azathioprine (Imuran) | 32 | Pharmacological pancytopenia (my bone marrow stopped working: no red cells, nothing); Hemoglobine dropped to 4.9! , two blood tranfussions after, in the hospital 3 weeks. Stop taking the pills, bone marrow started to work again. | Mesalamine | October 26, 2016 |
Azathioprine (Imuran) | 48 | Liver bloods (ALT's) went very high so had to discontinue with Azathioprine | Prednisolone - 40mg tapering down to 0 by 5mg each week | October 25, 2016 |
Azathioprine (Imuran) | 62 | Was prescribed Azathioprine, 200 mg a day a little over two months ago. I just recently started having dark urine, itchy skin, rashes. My doctor told me yesterday my liver enzymes have increased almost 10 fold. She took me off this med immediately. | Prednisone, Mesalamine | October 14, 2016 |
Azathioprine (Imuran) | 28 | I switched to Azathioprine after 2.5 months of Prednisone. The first 2 weeks were horrible because of severe nausea and stomach ache. I did a CBC a month later and there was a drop in both red and white blood cells plus hemoglobin. My period was also a week late that first month. It's been 2 months now and no nausea or stomach pain but I have not repeated the CBC yet. There is definitely noticeable hair loss and increase in split ends. | Iron supplement, Vitamin C, folic acid, vitamin D, Omega 3 | October 12, 2016 |
Azathioprine (Imuran) | 18 | flu like symptoms, extreme exhaustion ,high temperature, swollen throat, dizziness | mezalazine | October 5, 2016 |
Azathioprine (Imuran) | 30 | After 1 week of Azoron tablet 100 MG, i got severe numbness in head and also headache....Now it is almost 3 months of having Azoron tablet....once in a 2 days headache on and off....but numbness still persists.... | September 27, 2016 | |
Azathioprine (Imuran) | 35 | Headaches Nausea Rash Hair loss | Mezavant | September 26, 2016 |
Azathioprine (Imuran) | 45 | None so far, been taking for about 3 months, all UC symptoms gone with this medication! Although, I have to remain on the Lialda as well. | Lialda 4 per day. Esomeprozole | September 26, 2016 |
Azathioprine (Imuran) | 18 | This medication increased mood swings and emotional panic attacks. | I was also taking Humira and omeprazole | September 23, 2016 |
Azathioprine (Imuran) | 59 | Took this drug for three weeks and hair started breaking and falling out which was rather distressing. Then I had severe flu symptoms of fever, aching limbs and joints for about 4 days. Called my consultant who advised me to stop taking it immediately and to start Mercaptopurin. Ended up with pancreatitis! Have now been offered Humira but it sounds just as awful! | Pentasa suppositories and granular sachets. | September 15, 2016 |
Azathioprine (Imuran) | 43 | None - I'm far from being out of the woods so-to-speak but i have not experienced any side effects from when the get go. I started azathioprine as a 100mg in the morning & then 75mg additional which I am on at night so...175mg a day for about a year. Weekly blood tests followed by monthly now limited to when I visit my specialist & never shown any signs of weirdness other than UC symptoms. They say this drug is slow burner. | Prednisone. Then... Goliumab. Then & now... Entyvio. (Feel better now than I have in 4 years)! | September 13, 2016 |
Azathioprine (Imuran) | 55 | None. After 22yrs & diagnoised crohns. IMPORTANT do regular bood tests & be good to your liver! | Lialda | September 9, 2016 |
Azathioprine (Imuran) | 42 | I started this medication with one tablet a day and increased to two after a few days, an hour after taking my first dose of two tablets, I got extremely sick. Vomiting like I never did before and a serious dose of the scuts. I was so sick that I asked my wife to stay with me as I thought I might choke on my own puke. Needless to say, I stopped that medication immediately. I tried it again a few years later and the same thing happened. | No | August 27, 2016 |
Azathioprine (Imuran) | 31 | Headaches | Remicade (7 weeks since last infusion), uceris every other day, Wellbutrin, armour. | August 27, 2016 |
Azathioprine (Imuran) | 26 | Immune system depressed enough to get C diff. | Apriso, Uceris | August 19, 2016 |
Azathioprine (Imuran) | 54 | Very tired for first 2 days after injection, lack of energy and flu like symptoms, chills, dragging myself to bed | some probiotics, glutamine | August 15, 2016 |
Azathioprine (Imuran) | 61 | Joint ache | Asacol | August 15, 2016 |
Azathioprine (Imuran) | 26 | Fatigue, chemical pee | August 12, 2016 | |
Azathioprine (Imuran) | 23 | Extreme vomiting so I was only on it for a couple of days. | Prednisolone | August 11, 2016 |
Azathioprine (Imuran) | 49 | Nausea, vomiting, diarrhea, total lethagy/having to ly down and rest(1-2hrs), abdominal pain. These side effects only started after i'd been taking 125mg for 5mths (sept2015-jan2016) i experienced no side effects during first 5months. | prednisone / pentasa | August 9, 2016 |
Azathioprine (Imuran) | 41 | Pancreatitis | Lialda, 4 tablets,day | August 8, 2016 |
Azathioprine (Imuran) | 77 | First month was fine. Second month and I started to get flushed and then broke into a sweat an hour after taking the pills. Next came nausea and weakness. This lasted about 2 hours. Blood test second month showed high liver enzymes. Dr had me stop the med but stay on apricot and Canada suppositories. I have been in remission almost 3 months now, 3 weeks of that on only the apriso and canasa. | Apriso and canasa suppositories | August 8, 2016 |
Azathioprine (Imuran) | 61 | Vertigo Nausea | Remicade Prednisone | July 30, 2016 |
Azathioprine (Imuran) | 50 | Fever | Entyvio | July 29, 2016 |
Azathioprine (Imuran) | 40 | Fine at first (3-6 months), then became very lethargic and no skin colour (grey). Wasn't improving BMs then developed very bad skin rash. Consultant advised coming off them. | Pentasa | July 29, 2016 |
Azathioprine (Imuran) | 39 | Severe bleeding, flare up | Salofalk | July 28, 2016 |
Azathioprine (Imuran) | 38 | racing heartbeat | no | July 28, 2016 |
Azathioprine (Imuran) | 53 | Elevated liver enzymes | No | July 28, 2016 |
Azathioprine (Imuran) | 24 | Mediaction worked perfectly for me until a few months in when I started vomiting 4 hours after taking it- you could set your watch by it. I stopped the medication and saw my GP who did some liver function tests and they were off the charts, had to wait a few months for them to return to normal. Didn't try Aza again! | Probably prednisolone | July 27, 2016 |
Azathioprine (Imuran) | 47 | Nausea at first, subsided after only a month - otherwise - nothing | July 27, 2016 | |
Azathioprine (Imuran) | 29 | Sensitive teeth. Weight gain. Bad mood swings. | Pentasa Azathiaprine | July 27, 2016 |
Azathioprine (Imuran) | 70 | knee and leg soreness weakness | July 27, 2016 | |
Azathioprine (Imuran) | 51 | According to my doctor, I metabolize the "good' part not as well as the "bad" part of the med so my white count goes crazy and he has to adjust the dosage. | Colazol | July 27, 2016 |
Azathioprine (Imuran) | 20 | Bradycardia Preventricular contractions Vomiting | Remicade | July 23, 2016 |
Azathioprine (Imuran) | 53 | Cancer. | Asacol, Bentyl, Tylenol #3, Rowasa. | July 22, 2016 |
Azathioprine (Imuran) | 23 | Was fine for the first 6 weeks but as the medication started to kick in (takes some time) I experienced severe nausea, vomitting and exhaustion. This would last for hours then finally go away. I changed the the time I would take it to see if that helped but the exact same thing happened. Had to stop taking it as the side effects were too much for me. | Salofalk granules 1.5mg | July 20, 2016 |
Azathioprine (Imuran) | 32 | Pancreatitis | July 20, 2016 | |
Azathioprine (Imuran) | 45 | No side effects so far, low dosage, and not been a month yet, however all UC symptoms seem to be gone! | Lialda, 4 per day | July 17, 2016 |
Azathioprine (Imuran) | 45 | Hair thinning, felt tired the first month | Salofalk | July 17, 2016 |
Azathioprine (Imuran) | 29 | The nausea experienced with this drug was almost debilitating. Nothing helped ease the discomfort. It also gave me ridiculous heartburn. I'd never experienced heartburn before starting this drug. After 6 weeks, I ended up coming off of it as my liver numbers were really elevated. The nausea went away as did the heartburn. | Remicade and Prednisone | July 17, 2016 |
Canasa (Suppositories) | 18 | Trouble sleeping | October 5, 2018 | |
Canasa (Suppositories) | 58 | red bumps on skin just near the scrotum with dark purple marks under them, itchy. | yes, alfuzosin | November 24, 2017 |
Canasa (Suppositories) | 18 | Tinnitus | October 12, 2017 | |
Canasa (Suppositories) | 18 | headache | none | August 22, 2017 |
Canasa (Suppositories) | 52 | Black mucous rectally and vaginally | August 7, 2017 | |
Canasa (Suppositories) | 35 | Hairloss, general fatigue - unable to fight off other infections well, reduced immune response, other medications don't clear system quickly, puffy, general malaise, skin rash on tops of hand and knuckles | Thyroid | June 6, 2017 |
Canasa (Suppositories) | 64 | Very strangely it causes nasal congestion. Otherwise no other side effects noted. | No other meds during the use of Canasa | August 16, 2016 |
Canasa (Suppositories) | 54 | turns blood and mucous black | no | July 27, 2016 |
Colazal | 65 | reduced sex drive | no | June 14, 2018 |
Colazal | 64 | Hair loss. | Lisinopril, Metformin, Canasa. | July 30, 2017 |
Colazal | 58 | Heart Palipitations | January 3, 2017 | |
Colazal | 35 | Felt just about nothing and pretty sure the medication didn't do any thing for me. | prednisone | October 23, 2016 |
Colazal | 35 | Severe abdominal cramping, increased symptoms, diarrhea, nausea | September 27, 2016 | |
Colazal | 75 | hair loss | no | August 25, 2016 |
Colazal | 62 | Bad headaches. | Nasacort and Advair. | August 24, 2016 |
Colazal | 49 | Joint pain Fatigue Sustained UC symptoms | July 27, 2016 | |
Colazal | 63 | Cramping Diarrhea | July 27, 2016 | |
Entyvio (Vedolizumab) | 46 | high temperature | June 11, 2019 | |
Entyvio (Vedolizumab) | 58 | arthritis | June 8, 2019 | |
Entyvio (Vedolizumab) | 58 | artritis | no | June 8, 2019 |
Entyvio (Vedolizumab) | 18 | Hair loss | May 26, 2019 | |
Entyvio (Vedolizumab) | 72 | Pneumonia 3 times within the 8 months I took Entyvio. Even though I had 2 pneumonia vaccines, and never previously ever had pneumonia or been sick from the flu or even colds much, I got pneumonia within a week after my first dose and two more times within the 8 months of taking Entyvio. When having a colonoscopy 9 months after starting Entyvio, my colon showed no positive effects from the drug so it was discontinued. My doctor insisted Entyvio did not cause the pneumonia, however the Dept of Health indicates that women over 60 were much more prone to pneumonia from taking Entyvio. It makes sense, since the drug cuts down one’s immune system and we are more suseptble to any infection. The effects of having pneumonia 3 times in such a short time has given me asthma and constant cough as a result. | Only sulphasalazine 8 tablets a day for UC which I’ve been taking for over 30 years and had no adverse effects. | April 1, 2019 |
Entyvio (Vedolizumab) | 22 | Joint and bone pain couldn’t walk. This was after 2 doses of Entyvio. Was hospitalized and put on prednisone, had an MRI. They discovered the Entyvio has this side effect in some people. | No meds Ostomy since 2017 Best thing got my life back | March 27, 2019 |
Entyvio (Vedolizumab) | 68 | Brain fog, constipation, fatigue. | December 18, 2018 | |
Entyvio (Vedolizumab) | 59 | Arthritis pain muscle pain | yes | November 26, 2018 |
Entyvio (Vedolizumab) | 55 | joint pain runny nose | Azathorprine, Apriso | September 7, 2018 |
Entyvio (Vedolizumab) | 67 | rash on left side of my waist | June 7, 2018 | |
Entyvio (Vedolizumab) | 18 | Very tired. Headache | March 7, 2018 | |
Entyvio (Vedolizumab) | 65 | dry mouth | March 1, 2018 | |
Entyvio (Vedolizumab) | 43 | sex drive | none | January 18, 2018 |
Entyvio (Vedolizumab) | 34 | Tight chest shortness of breath | October 5, 2017 | |
Entyvio (Vedolizumab) | 57 | No sex drive | September 4, 2017 | |
Entyvio (Vedolizumab) | 49 | sun burn | July 6, 2017 | |
Entyvio (Vedolizumab) | 18 | Dry skin | No | June 26, 2017 |
Entyvio (Vedolizumab) | 49 | Heart flutters, pressure | Imuran Lialda | March 28, 2017 |
Entyvio (Vedolizumab) | 64 | Fatigue | February 19, 2017 | |
Entyvio (Vedolizumab) | 64 | Fatigue | February 19, 2017 | |
Entyvio (Vedolizumab) | 43 | Joint pain in hands, wrist, ankle and elbow. | Delzicol | January 22, 2017 |
Entyvio (Vedolizumab) | 50 | joint pain, swelling, stiffness, weakness (hands, wrists, shoulders, knees, ankles). Pain is worse at night / through the night / first thing in the morning. The pain moves around, day to day. | Azathiaprine | January 16, 2017 |
Entyvio (Vedolizumab) | 18 | Thirst | December 8, 2016 | |
Entyvio (Vedolizumab) | 66 | I think it is interfering with Pramipexole 1mg. and Zopiclone 5mg. | Apo- Ranitidine 150mg Flecainide 100mg Prolopa 50/12.5mg Teva-modafinil 100mg Act-Ropinirole .25mg G0-Atenolol50mg | November 15, 2016 |
Entyvio (Vedolizumab) | 54 | Joint pain | November 13, 2016 | |
Entyvio (Vedolizumab) | 43 | Joint pain in ankles knees elbows and wrists | Azathioprine Asacol | November 12, 2016 |
Entyvio (Vedolizumab) | 62 | High blood pressure | Yes ,Uceris and norvasc | November 11, 2016 |
Entyvio (Vedolizumab) | 59 | Sinus infection | November 10, 2016 | |
Entyvio (Vedolizumab) | 26 | Nausea | No | October 6, 2016 |
Entyvio (Vedolizumab) | 23 | Headaches, nausea, joint pain and extreme fatigue. A bit of depressive tendencies, but it's manageable. | Purinethol | September 26, 2016 |
Entyvio (Vedolizumab) | 42 | Nausea and itching 20 days after the infusion | Canasa, Delzicol | August 24, 2016 |
Entyvio (Vedolizumab) | 55 | Started Entyvio November 2014. Had more than usual upper respiratory infections and other infections during first 1.5 years. I was in full remission after one year, and have been doing great ever since. I do best when preparing my own whole food small meals -- fruits, mostly cooked/few raw vegetables, and fish and chicken (red meat is rough on me). It is a miracle drug. | No | August 22, 2016 |
Entyvio (Vedolizumab) | 19 | hair loss | prednisone | August 17, 2016 |
Entyvio (Vedolizumab) | 43 | Weight loss | None | August 14, 2016 |
Entyvio (Vedolizumab) | 18 | Dizziness during infusion, headache after Weight gain/bloating | August 11, 2016 | |
Entyvio (Vedolizumab) | 72 | Miracle drug so far; colonoscopy in November 2015 - severe ulcertive colitis. Started entyvio January 2016, 5 treatments so far. Sigmoidoscopy July 2016, now mild to moderate ulcertive colitis. | 6mp, lialda | July 28, 2016 |
Entyvio (Vedolizumab) | 69 | Have had 11 doses over the last 1 1/2 years. Began working well between the 4th and 5th doses. Fatigue, joint and muscle pain, hot flashes and night sweats. Can live with all these side effects because it works very well. Been off Prednisone for a year, that's such a blessing. | Lialda 4 pills a day | July 28, 2016 |
Entyvio (Vedolizumab) | 69 | It's effective but creates fatigue. I also become nauseous after eating. I'm not sure if entyvio causes it or if it's because I'm now off the prednisone. | July 28, 2016 | |
Entyvio (Vedolizumab) | 54 | Tiredness at first, but gotten used to it. No effects now. This stuff is magic. | Bystolic | July 28, 2016 |
Entyvio (Vedolizumab) | 42 | Fatigue!!!!!! Joint pain, headaches. Had 3 doses(loading dose) and have not really seen any change. Still having alot of abdominal cramping/pain, still loose, watery stool. | Methalamine, thyroid meds, xarelto | July 28, 2016 |
Humira (Adalimumab) | 25 | Alopecia | April 2, 2019 | |
Humira (Adalimumab) | 68 | I have not had any adverse reactions and actually have had great success with Humira and have been using in it twice weekly for the first year and now have cut back to once per week one the last year. I also take Cortiment and Mezavant. I am prescribed Mezavant for 4 tablets a day but over time (have been on it for 5 or 6 years) have reduced it to 1 per day and most recently have gone to 1 every other day. I m prescribed Cortiment for 1 per day and have been on it for about 3 years. I recently reduced that to one every other day and (touch wood) all has been very good for the most part. One side effect of these drugs is what is referred to as "thin skin" which basically allows you to bruise very easily. This bruise, actually blood immediately under the skin which usually disapates after 4 or 5 days. However should you break the skin you bleed substantially and need to clean the wound with an alcohol pad and apply a liberal coating of neo-sporin or poly sporin and a bandage to protect it. Generally heals completely within several days but you must keep it clean and protected as it will fester and infect very easily. Not sure which of these drugs causes the "thin skin" if not all of them in some manner. In closing my Colitas has been very manageable while on these drugs and can say when I do have a problem it is mild and totally my own fault due to food or beer I have consumed. Hope this is of interest and assistance to some. Paul Murphy (TabomaToo) | Mezavant EX 1.2 g and Cortiment 9mg Tablet | March 28, 2019 |
Humira (Adalimumab) | 59 | Sinusitis and dry eyes and skin around the eyes. Fatigue. Joint pain in the knees | Synthroid | March 28, 2019 |
Humira (Adalimumab) | 58 | Severe joint pain in shoulders, hands, back, and feet. Lower back pain. Tightening and pain of tendons (hamstrings, arms, calves, neck...) Have seen a few Rheums, spine Drs, orthos, and pain management. They say it is just osteo arthritis that was masked by the prednisone, but this is something new and just had started since tapering off prednisone and starting Humira. Thought symptoms were from prednisone withdrawal. Not sure what is happening. Test for Adrenal insufficiency tomorrow.... Been going on for 4-5 months now, getting worse every week. Went from being able to mountain bike, hike mountains, and climb ladders all day for work, to having a difficult time climbing stairs without going up on all fours....At least the Humira completely put the UC in remission, but it might not be worth it if this can be attributed to the Humira.... | Mercatopurine 50mg. Tapered off prednisone 4 mos ago. Stopped Balsalazide. B12, D3, Fish oil. | March 27, 2019 |
Humira (Adalimumab) | 59 | Rash! Biopsy report was positive for Lupus. | None | March 27, 2019 |
Humira (Adalimumab) | 60 | Humira was completely ineffective for the colitis. No Positives. Took it for a year. Scary stuff. The shots stung like getting stung by a wasp. Edema in my lower legs - cardiologist treated me for congestive heart failure. My right eye swelled completely shut one day. Folliculitis (hair follicle infection) on the back of my left thigh. Like having 20-30 boils on the back of your leg. | Prednisone, Mesalamine | March 27, 2019 |
Humira (Adalimumab) | 47 | Psoriasis from my knees to my ankles. I never had Psoriasis previously. It went away when I discontinued Humira. | Synthroid , Mesalamine, Align probiotic, multivitamin | March 27, 2019 |
Humira (Adalimumab) | 55 | substantial hair loss and vision disturbances. | Lialda | March 27, 2019 |
Humira (Adalimumab) | 36 | Tingling itchy dry scaling skin on face & scalp | Humira | October 31, 2018 |
Humira (Adalimumab) | 45 | The first 3 doses caused non-stop headache (sometimes severe), after 3rd dose the headache goes away in about 24 hrs. For 24-48 hours after an injection my muscles and joints ache like I have the flu (with fatigue), the following 24 hours its just stiffness/soreness then it mostly goes away. 24 hours before next dose I start to feel bad. I've had precursors to an attack for 2 months and it's just held it at bay... not better, not worse. | none | September 7, 2018 |
Humira (Adalimumab) | 41 | Dry patches of skin on face and ears. | Pentasa | September 7, 2018 |
Humira (Adalimumab) | 35 | Avascular Necrosis of knees and hip | September 7, 2018 | |
Humira (Adalimumab) | 74 | No side effects | September 1, 2018 | |
Humira (Adalimumab) | 59 | non itching rash | predisone | August 15, 2018 |
Humira (Adalimumab) | 59 | non itching rash | August 15, 2018 | |
Humira (Adalimumab) | 32 | Redness and itching at the injection site. | Imuran | June 26, 2018 |
Humira (Adalimumab) | 32 | Pancreatitis after taking the second dose of Humira injection | None | November 16, 2017 |
Humira (Adalimumab) | 54 | Hair loss, weakness, extreme exhaustion | November 1, 2017 | |
Humira (Adalimumab) | 18 | Extreme muscle aches and joint pain. I have chills and sweating. More pain than before I took the shot. Hurts to breathe. Severe headache, all this after first shot, taken two days ago. | None | September 2, 2017 |
Humira (Adalimumab) | 53 | Yeast infection , 2 bladder infections , prostate infection , skin rash , right side flank pain , tiredness . | None | July 11, 2017 |
Humira (Adalimumab) | 46 | Specific Anti-TNF psoriasis on lowers legs/foot/hands. Skin biopsies show that it is specifically caused by Humira. Doctors not worried and called it a "common side effect." | Synthroid for hypothyroid | July 6, 2017 |
Humira (Adalimumab) | 36 | Severe loss of appetite | March 29, 2017 | |
Humira (Adalimumab) | 37 | water filled rash tiredness | March 26, 2017 | |
Humira (Adalimumab) | 33 | Drug Induced Lupus | None | March 21, 2017 |
Humira (Adalimumab) | 55 | Only side affects are when stopping the medication | March 20, 2017 | |
Humira (Adalimumab) | 40 | Dry patches on buttocks and upper legs. Fatigue. | Celexa | February 3, 2017 |
Humira (Adalimumab) | 66 | Chronic fatigue hair thinning, boils, insomnia | Losarten asprin | January 10, 2017 |
Humira (Adalimumab) | 52 | Weight gain | Asprin | December 13, 2016 |
Humira (Adalimumab) | 52 | Weight gain | December 13, 2016 | |
Humira (Adalimumab) | 30 | Hair loss, aching and stiff joints, headaches. | December 3, 2016 | |
Humira (Adalimumab) | 28 | Injection site reaction on stomach. Swelled and got itchy (size of an egg). Also experienced chest tightness and slight issues breathing. | Buspar, Celexa | December 3, 2016 |
Humira (Adalimumab) | 68 | Hair loss, bruising (could have been from the prior prednisone), extremely dry skin, itching (psoriasis?) | Balsalazide and Uceris. Other medications unrelated to UC; metformin (consequences of taking prednisone), losartan, naturethroid. | November 14, 2016 |
Humira (Adalimumab) | 62 | I experienced extreme abdominal pain, the worse diarhhea I've ever had, rapid weight loss and general all over aches and pain. It started almost as soon as I had my first injection and lasted for the entire two and a half months that I took the injections. | Apriso | October 26, 2016 |
Humira (Adalimumab) | 47 | Bone loss | Canasa | October 15, 2016 |
Humira (Adalimumab) | 47 | Extreme mucas production in upper airway. Thickened mucas in the throat that causes gagging | None | October 12, 2016 |
Humira (Adalimumab) | 66 | I get a big red rash on my thigh every time I give myself a shot and it itch for a week. | Yes calcium 600-bit d3 200 tablet,folic acid,azathioprine 50 mg tablet,alendronate sodium 70 mg tab and amlodipine best late 5 mg tab | October 3, 2016 |
Humira (Adalimumab) | 66 | I broke out all over body with a really bad hives rash so was very allergic to hu ira | Took aleve @ aleve pm just to get some rest at night because of the terrible itching rash I broke out in | September 26, 2016 |
Humira (Adalimumab) | 87 | Severe headaches, weakness, and joint pain. | August 31, 2016 | |
Humira (Adalimumab) | 44 | Sinusitis, Joint Pain, Depression, Irritability. | Lialda | August 27, 2016 |
Humira (Adalimumab) | 44 | PLEASE WATCH ON YOUTUBE HUMIRA DID TO ME SIDE EFFECTS, THANKS | August 17, 2016 | |
Humira (Adalimumab) | 65 | I had several infusions of Humira as my rheumatologist felt it could help my RA with psoriasis as well as my UC however I experienced extreme freezing and shivering during the infusions and eventually stopped them. Didn't have the freezing feeling except while infusing but did not notice any improvement in my condition either. Perhaps did not take it long enough for it to work. | No other meds. | August 15, 2016 |
Humira (Adalimumab) | 35 | Fatigue First few injections- nausea and headache gets better 2 months later Ive had a flare while on it still giving it a shot for abt 6 more weeks to decide on its effectiveness | Pentasa 4g Cortisone 20 mg | August 15, 2016 |
Humira (Adalimumab) | 22 | Rash | Pentasa | August 14, 2016 |
Humira (Adalimumab) | 53 | My UC symptoms got better and then stopped improving and started going the other way - blood tests revealed my body was producing antibodies against it :( | 6 MP | August 12, 2016 |
Humira (Adalimumab) | 23 | Muscle weakness, sinus inflammation, shortness of breath | August 12, 2016 | |
Humira (Adalimumab) | 23 | Terrible sinus problems (extremely sore throat, congestion, headache, nasal polyp) everyday for a week after each injection, rash (psoriasis) on arms, shortness of breath | August 12, 2016 | |
Humira (Adalimumab) | 30 | Extreme worsening of my atopic dermatitis. Especially eczema on the scalp, ears and face. Caused me to lose much of my hair because I would basically scratch it off. | August 12, 2016 | |
Humira (Adalimumab) | 72 | I am getting pimples in my scalp. Could this be from the Humira | August 11, 2016 | |
Humira (Adalimumab) | 27 | Sunburn like rash on hands/wrists Extremely dry skin | August 11, 2016 | |
Humira (Adalimumab) | 22 | pyroderma gangrenosm | August 9, 2016 | |
Humira (Adalimumab) | 35 | 30 | Asacol lialda Canada humira | August 9, 2016 |
Humira (Adalimumab) | 65 | Severe joint pain, a new shingles outbreak and ringing in my ears | None | August 8, 2016 |
Humira (Adalimumab) | 51 | After two months of injections ( with each time having a larger reaction) , I had a raised 4 in circle around Both sites. They were swollen and whelp looking. MD discontinued. | August 7, 2016 | |
Humira (Adalimumab) | 63 | Nerve problems, 75% effective. | August 7, 2016 | |
Humira (Adalimumab) | 56 | Joint pain ,swelling of ankles,hip and knee pains always on my left side,when first take my shot itching all over. | August 7, 2016 | |
Humira (Adalimumab) | 36 | - swollen, VERY itchy, and hard lump at injection site. It would eventually turn into a large bruise a week later after swelling went down. - rash on inside of arms. Had to see a dermatologist and go for skin cancer screening. Ended up having a spot removed from stomach and needed stitches. Results showed abnormal cells (pre-cancerous) so had to see a surgeon to do a deeper and wider incision to get the rest of the area around it. -anemia and blood count not good -flare up and developed c-difficile (lost 32 lbs) | colazal, 6mp, rowasa | August 5, 2016 |
Humira (Adalimumab) | 77 | Rectal bleeding. Been going on for over six weeks now. Lost over 45 pounds past six months. Went to Dr today. Increased Humira from 40 mg sq every two weeks to 80 mg.Totally exhausted! | Sulfasalazine. for over a year now. | July 28, 2016 |
Humira (Adalimumab) | 52 | Drug induced Lupus, systemic fungal infection, pneumonia and breast cancer! Wish I had never taken Humira. | None | July 28, 2016 |
Humira (Adalimumab) | 18 | congestion and sometimes wheezing | July 27, 2016 | |
Humira (Adalimumab) | 72 | Pimples on scalp | July 27, 2016 | |
Humira (Adalimumab) | 18 | Multiple sclerosis | Asacol hd. | July 27, 2016 |
Humira (Adalimumab) | 53 | Sepsis | July 27, 2016 | |
Humira (Adalimumab) | 22 | pyroderma gangranosm | July 24, 2016 | |
Humira (Adalimumab) | 28 | Hair loss, joint pain, acne | No | July 21, 2016 |
Humira (Adalimumab) | 32 | swollen, itchy, hot bruised injection site fatigue achy joints particularly first few days after injection | prednisone canasa | July 20, 2016 |
Humira (Adalimumab) | 36 | Weight gain, exhausted after taking the shot and the next day, sometimes bruise at injection site, slight itchy feeling at injection site for a short while after using the pen. Migraines first two months of using, went away once body got use to the drug. Typically have a bad day the day before I need to take the pen. | None | July 20, 2016 |
Humira (Adalimumab) | 29 | After taking the loading dose I started to experience skin problems that became severe. The skin on my hands, feet, and shins became very itchy and started to scale up and fall off. At times it became so bad that I started to have open cuts/wounds. Additionally, within two to three weeks of starting the humira, I started to have very awful joint pain in my shoulders and back. | No other meds at the time of Humira. | July 17, 2016 |
Lialda | 34 | Severe gas and bloating, increased bleeding at full dose | Low-dose naltrexone | July 10, 2018 |
Lialda | 34 | Sinusitis | Uceris | April 30, 2018 |
Lialda | 66 | Headaches, Hair loss | High cholesterol. Meds High bp. Meds | February 17, 2018 |
Lialda | 33 | severe migraines, intermittent nausea, fatigue, foul smelling gas | February 5, 2018 | |
Lialda | 79 | Flu and colds | Insilin, eye drops for glacoma, | January 27, 2018 |
Lialda | 70 | Soreness under left rib cage | January 24, 2018 | |
Lialda | 28 | Joint pain, nausea, acid reflux, headaches, tiredness, hair loss | Birth control pills, multi vitamin | January 11, 2018 |
Lialda | 57 | Difficulty sleeping and or staying asleep. Tiredness. Eye blurring. Runny nose. | Enema. | December 10, 2017 |
Lialda | 29 | Peripheral neuropathy, limb heaviness | Canasa | December 9, 2017 |
Lialda | 52 | Hair loss and tooth sensitivity | None | November 21, 2017 |
Lialda | 70 | None, but Balsalazide caused diarrhea. | November 16, 2017 | |
Lialda | 45 | Hair loss, Headaches, breakthrough flares | Canasa | November 10, 2017 |
Lialda | 51 | Suffered three heart attacks, on three subsequent days ... while in the ICU recovering from the 2nd attack, the doctors figured-out that I took Lialda the same time every day, and the heart attacks were also occurring the same time every day. | Nexium for GERD | November 1, 2017 |
Lialda | 50 | liver thyroid | October 11, 2017 | |
Lialda | 18 | Trouble sleeping, frequent urination | 6-mp | September 3, 2017 |
Lialda | 62 | None so far. It's only 7 months. | Prednisone. Side effects: weight gain. Balsalazide, uceris, Remicade. | August 26, 2017 |
Lialda | 40 | Hair loss, weight gain, bloating, tight pressure over my heart while running | No | August 25, 2017 |
Lialda | 18 | Skunk | July 22, 2017 | |
Lialda | 25 | Heart palpitations | July 20, 2017 | |
Lialda | 24 | Extreme fatigue Nausea | Asacol Birth control | June 7, 2017 |
Lialda | 54 | short of breath | no | May 14, 2017 |
Lialda | 64 | Lose bowels, some headaches, light headed, tastes have changed somewhat. | BP medication low dose | April 10, 2017 |
Lialda | 38 | Acidity ion stomach, right kidney pain | Canasa | April 7, 2017 |
Lialda | 44 | sleepy, dizzy | February 21, 2017 | |
Lialda | 63 | Severe joint pain in hips, shoulders and knees, stomach pain, diarrhea, chest pains, scalp sores,dry cough, sinusitis, headache, dizziness, dry eye, eye pain, increased pressure in eyes (pre-glacoma), tinnitus. | (Sometimes) prednisolone, omeprezole, rowasa enema | February 16, 2017 |
Lialda | 18 | None | February 3, 2017 | |
Lialda | 28 | Joint, muscle pain, flares up in my eyes , chest pain and rib pains. And sometimes but not often hard time getting out of bed. Diarrhea, runny nose bleeding nose. Light sensitivity, arthritis like pains | Valtrex, pain meds | January 31, 2017 |
Lialda | 53 | Hives every evening and at night. Mild headaches and sleepy all the time. | None associated | December 27, 2016 |
Lialda | 49 | Severe chest pain and tightness, shortness of breath, dry cough after 2.5 weeks. MD said I got pericarditis as a s/e of Lialda. Also experienced low back pain and fatigue. | Canasa (Advised to discontinue as well as Liada) | December 17, 2016 |
Lialda | 18 | grey teeth | insulin | December 6, 2016 |
Lialda | 52 | Bad breath ( like skunk spray ), vomiting, vaginal smell (again like skunk) | November 30, 2016 | |
Lialda | 64 | None | November 12, 2016 | |
Lialda | 71 | High blood pressure | November 12, 2016 | |
Lialda | 65 | no sleep | October 23, 2016 | |
Lialda | 46 | Joint pain. It makes me feel old and sore! | October 23, 2016 | |
Lialda | 54 | When taken shortly after head for toilet. | Uceris | October 23, 2016 |
Lialda | 25 | Diarrea, nausea, stomach pains, runny/stuffy nose. Green in corner of eyes, dry mouth, sleep problems. Tired, achey, headaches | Prednisone | October 21, 2016 |
Lialda | 46 | Flu like symptom, runny nose | October 12, 2016 | |
Lialda | 22 | vagina odor | October 6, 2016 | |
Lialda | 37 | After 2 wks on Lialda I started experiencing shortness of breath while exercising and after 2.5wks I ended up in the hospital due to severe chest pain and inability to breath properly. I was checked for all clots in the chest, all sorts of heart exams, the works and was determined it was a serious reaction to Lialda. I've stopped taking it for 4 days and the pain is starting to subside and my breathing is improving. | Remicade, methotrexate, salsalate for 20 yrs | October 5, 2016 |
Lialda | 50 | bad taste in mouth | October 1, 2016 | |
Lialda | 18 | bruising | September 28, 2016 | |
Lialda | 49 | Really haven't experienced any | September 26, 2016 | |
Lialda | 45 | Aching legs, sharp pain under rib cage, fatigue. I have quit and resumed this medication to make sure, and always these side effects as soon as I restart them. However, it seems I need them to stay in remission. | Imuran, esomeprozole, iron | September 26, 2016 |
Lialda | 55 | I have occasional bloating, hair thinning, and mainly my lower back hurts pretty much all the time. | Medroxyprogesterone, estradiol, pantoprazole, and bupropion. Also 2 Lialda a day. | September 10, 2016 |
Lialda | 55 | Bloating | Azathioprine, calcium citrate | September 9, 2016 |
Lialda | 32 | I developed severe hives and swelling of the face and throat | Bentyl Zofran Prilosec | September 3, 2016 |
Lialda | 44 | Weight Gain | Humira | August 27, 2016 |
Lialda | 59 | Flu like symptoms. Body Aches and nausea. | August 27, 2016 | |
Lialda | 36 | difficulty urinating, very bad gas (sometimes uncontrollable), hair loss (random patches). | too many to list, but all other medications stayed the same from several months before to about 6-7 months after getting diagnosed with UC/ getting prescribed Lialda. | August 23, 2016 |
Lialda | 61 | Stomach pain immediately after taking the medication which then subsides over time. | Prestiq and Xanax | August 22, 2016 |
Lialda | 24 | Dry mouth and hair loss | Glycopyrrolate | August 17, 2016 |
Lialda | 54 | Headaches, Dry mouth, Foul smell stools, | B complex, Calcium, Zrytec, Singular, VSL probiotics, Mutivitamins, | August 15, 2016 |
Lialda | 66 | it seems I always have to take a larger dose than when I take Lialda, another anri-inflamatory | August 15, 2016 | |
Lialda | 65 | hair thinning | ativan | August 13, 2016 |
Lialda | 71 | IBS | August 12, 2016 | |
Lialda | 52 | I have been on Lialda for 9 years for my UC the medication has caused constrictive bronchiolitis its rare lung disease. I have also taken Remicaide, cimza, and Humeria, and more. I would be interested if anyone else has this disease. | August 11, 2016 | |
Lialda | 47 | Sharp stabbing shoulder pain, side pain like an elephant was sitting on my rib area. Also made diarrhea worse. | Prednisone, uceris | August 11, 2016 |
Lialda | 27 | Intolerance due to severe headaches | Mesalamine enemas nightly | August 11, 2016 |
Lialda | 69 | Some nausea, but if I make sure I have eaten before taking Lialda, I do not notice any side effects. | No other meds. | August 11, 2016 |
Lialda | 50 | Low back pain, joint pain, tendinitis and frozen shoulder | No other meds at the same time | August 11, 2016 |
Lialda | 33 | gave me diarrhea and upset my stomach. Turned my stool Orange | Humira | August 11, 2016 |
Lialda | 20 | Significant hair loss. | Azathioprine, Remicade | August 11, 2016 |
Mesalamine | 18 | Back pain | No | June 28, 2019 |
Mesalamine | 18 | Watery Diarrhoea, vomiting, headache, weak | May 17, 2019 | |
Mesalamine | 88 | boil like infection | cholorestoral, blood pressure, gout | May 5, 2019 |
Mesalamine | 36 | Skin redness / rosacea | April 30, 2019 | |
Mesalamine | 59 | swollen lymph nodes in jaw | none | March 21, 2019 |
Mesalamine | 46 | After 3 days on 2.4 mg | December 6, 2018 | |
Mesalamine | 28 | Increase in the frequency of migraine / headaches. | October 6, 2018 | |
Mesalamine | 29 | Tingling numb feeling | No | September 29, 2018 |
Mesalamine | 60 | Fatigue | May 14, 2018 | |
Mesalamine | 18 | Burning in throat | Vitamin d | March 13, 2018 |
Mesalamine | 54 | Pericarditis. Developed diffuse chest pain over first few days, followed by an intense non-stop heart pain overnight. Woke me from my sleep and did not go away -- felt like a heart attack. Primary doctor sent me to ER next morning -- heart all clear. Later that day my UC doctor said that pericarditis does occur in some people. I stopped the meds and the severe heart/chest pain subsided -- but it has been 6 days and I still have the more diffuse chest pain on and off, with headaches on and off. | None | December 19, 2017 |
Mesalamine | 33 | chest pain | iron | December 18, 2017 |
Mesalamine | 65 | hyper | no | November 14, 2017 |
Mesalamine | 32 | Green diarrhea. Cramping. Chills and fever. Yuck. | November 13, 2017 | |
Mesalamine | 58 | Short of breath abdominal pains | Omeprazol prednisoline symbicort fexofenadine ranitidine montelucast | November 13, 2017 |
Mesalamine | 64 | Big red mark on my face | Prednisolone | November 10, 2017 |
Mesalamine | 38 | Itching skin all over. | Dicyclomine Uceris Vitamin D3 Lialda | November 1, 2017 |
Mesalamine | 63 | fatigue. pain in back | No | September 23, 2017 |
Mesalamine | 54 | brownish vaginal discharge | September 14, 2017 | |
Mesalamine | 18 | Severe immune reaction to pentasa (which I had been taking for 5 years without previuosl ill effects) resulting in: muscle pain, joint pain, muscle weakness, hair loss, extreme fatigue and eventually skin lesions. This went on gradually worsening for 3 months until somebody realised it was a reaction to mesalazine. Symptoms started to clear within 24 hours of stopping taking it. | No | August 23, 2017 |
Mesalamine | 60 | Hair Loss, Decreased Libido | No | February 23, 2017 |
Mesalamine | 77 | Difficulty in expelling gas as it is preceded by mucous or feacees. Have to rush to washroom, or else? | February 13, 2017 | |
Mesalamine | 28 | None | Welchol | January 12, 2017 |
Mesalamine | 61 | hair loss | November 15, 2016 | |
Mesalamine | 39 | All symptoms of UC flared up. Cramping, bleeding, hypersensitivity of gag reflex. I was told I was "translucent". Was on it for a couple of weeks until my doctor took me off it and put me back on Prednisone. Synmptoms subsided in a matter of hours. Gastroenterologist thinks it may have been an allergic reaction. Was put on Colazide (Balzalaside). No side effects and have been on this for two and a half years. | October 24, 2016 | |
Mesalamine | 62 | Four 1.2gm pills a day, bloating and gas at first, some cramping. | Prednisone, Azathioprine | October 14, 2016 |
Mesalamine | 18 | Hair loss, weight gain, and headaches | September 21, 2016 | |
Mesalamine | 18 | Weight gain, dry cracked mouth | September 21, 2016 | |
Mesalamine | 37 | Been on it for 3 years, get extremely fatigued, muscle weakness, and joint aches. I am in remission, but I had to give up gluten and dairy also. I struggle to exercise and hold onto excess weight. | September 19, 2016 | |
Mesalamine | 34 | After 6 months or so on Mesalamine, my bms got weird, I started having trouble with a yeast-fungus-type infection that has only gotten worse since (6 years) to the point where I can't eat anything. Definitely not UC. | Prednisone off and on. | August 23, 2016 |
Mesalamine | 30 | Kidney abscess, severe renal failure | Prednisone | August 23, 2016 |
Mesalamine | 18 | Headaches everyday, ranging from minor to severe. Thinning hair/hair loss. | August 12, 2016 | |
Mesalamine | 20 | Caused my bone marrow to stop producing red blood cells. | No | August 11, 2016 |
Mesalamine | 48 | Hair loss | Prednisone for 3 months. | August 8, 2016 |
Mesalamine | 24 | Rapid heart beat Hair loss Anxiety Fatigue Cramping Joint pain Rash Nausea | Donnatal anti cramping Anti nausea | August 7, 2016 |
Mesalamine | 31 | Diarrhea, blood, rectal pain, urgency worse | Hydrocortisone enemas | August 7, 2016 |
Mesalamine | 28 | Pericarditis | August 7, 2016 | |
Mesalamine | 52 | elevated liver enzymes | Salofalk | August 3, 2016 |
Mesalamine | 65 | constipation | July 29, 2016 | |
Mesalamine | 18 | Diaorrhea | July 29, 2016 | |
Mesalamine | 74 | bloody diarrhea | July 28, 2016 | |
Mesalamine | 47 | Itchiness on the upper part of my body, like food inthoxication | no | July 28, 2016 |
Mesalamine | 18 | Skin | Lialda | July 28, 2016 |
Mesalamine | 18 | Neck pain | No | July 27, 2016 |
Mesalamine | 30 | Mild headaches from time to time, otherwise no side-effects. | Multivitamin and probiotic | July 27, 2016 |
Mesalamine | 58 | Loose unformed stools, gas, hair loss, water retention. | Amoldipine, Trazodone, Ativan, Multi-vitamins, | July 27, 2016 |
Mesalamine | 18 | Hair thinned on head and fell out completely on my arms and legs, skin lesions. My body felt dirty on the inside and I could smell the meds when I would sweat. Discontinued and my hair is back. Managing colitis with diet and stress reduction. Also, switched my HIV meds and discontinued Hep.B meds. | Hepsera, Baraclude, Lexiva, Epivir and Norvir. | July 27, 2016 |
Mesalamine | 48 | None | Prednisone | July 27, 2016 |
Mesalamine | 22 | Hair loss, joint pain | July 20, 2016 | |
Methotrexate | 36 | Mass on side of head and chin | Amitriptylin | March 30, 2017 |
Mezavant | 36 | Hair thinning | May 26, 2019 | |
Mezavant | 49 | tinnitus | February 17, 2019 | |
Mezavant | 69 | High red blood cell count | October 27, 2018 | |
Mezavant | 25 | Acne on scalp | September 6, 2018 | |
Mezavant | 57 | excess urine | June 4, 2018 | |
Mezavant | 60 | weight gain | coversyl | May 20, 2018 |
Mezavant | 61 | weight gain | Coversyl | May 20, 2018 |
Mezavant | 39 | none | none | January 23, 2018 |
Mezavant | 48 | Headache | No | November 16, 2017 |
Mezavant | 48 | Raised blood pressure | Beta blockers | November 13, 2017 |
Mezavant | 18 | Muscle weakness | no | September 9, 2017 |
Mezavant | 47 | Tired sleepy | August 10, 2017 | |
Mezavant | 37 | Hair loss | Inhalers and antihistamines | August 5, 2017 |
Mezavant | 28 | Erectile Dysfunction at 4 tablets a day. Lesser effects at 2 a day. | June 15, 2017 | |
Mezavant | 34 | Hives | May 11, 2017 | |
Mezavant | 46 | After 3 weeks with major side effect suffered extremely severe large joint pain requiring hospitalisation for 4 days. Immediately taken off mezavant | 50mg prednisone | May 10, 2017 |
Mezavant | 38 | Stomach ache | March 20, 2017 | |
Mezavant | 19 | acne | March 15, 2017 | |
Mezavant | 49 | Heart palpitations | December 19, 2016 | |
Pentasa | 57 | rapid heartbeat, anemia, dyspepsia, burping, blurred vision, headaches, bloated abdomen | predisone | March 26, 2019 |
Pentasa | 67 | cough flem | October 2, 2018 | |
Pentasa | 67 | cough | no | October 2, 2018 |
Pentasa | 51 | hair loss | August 30, 2018 | |
Pentasa | 49 | Ear sounds | Prednisolone Omeprazole | February 22, 2018 |
Pentasa | 39 | Headaches Stomach cramps Diahrreah | Levothyroxine | October 24, 2017 |
Pentasa | 44 | Joint pains if I miss my medication for a couple of days | October 12, 2017 | |
Pentasa | 47 | Acne hair became thinner | August 10, 2017 | |
Pentasa | 58 | Reduction in platelet count | No | July 31, 2017 |
Pentasa | 47 | Acne | No | June 8, 2017 |
Pentasa | 27 | Shortness of breath | May 22, 2017 | |
Pentasa | 20 | Mucus, skin rashes | April 26, 2017 | |
Pentasa | 39 | Exacerbated colitis. Increased diarrhea and bleeding, severe rectal pain. Side effects of the drug were worse than the colitis. | Prednisolone | January 2, 2017 |
Pentasa | 59 | Muscle cramping in leg and cramping in bowel, I have reduce the symptoms of this by taking magnesium supplements. | Idaprex combi | November 12, 2016 |
Pentasa | 47 | Bad abdominal pain, diarrhoea | October 25, 2016 | |
Pentasa | 58 | None | Asacol | August 22, 2016 |
Pentasa | 26 | None | August 15, 2016 | |
Pentasa | 60 | Indigestion | No | August 9, 2016 |
Pentasa | 23 | Tiredness | August 8, 2016 | |
Pentasa | 41 | My hair thinned noticeably. I was taking 4, 500mg tablets twice a day. It grew back eventually on stopping Pentasa. | No | August 7, 2016 |
Pentasa | 52 | On it for two now getting sore joints | No | August 7, 2016 |
Pentasa | 38 | Yellow skin. | Prednisone. Agitation, Trouble sleeping, hyperactive, Trouble focusing | July 28, 2016 |
Pentasa | 48 | Eye pain & chest pain when breathing. Never had either of them before the medication and they both disappeared when I stopped taking it. | None | July 24, 2016 |
Prednisone | 32 | Been on prednisone now for 7months for UC. Tapering off from 60mg/day, was down to 20mg/day and I started to go into another flare. I’m back up to 40mg/day but might have to increase dose to pull out of flare up. This drug was horrible in the beginning but has been a lifesaver for me. No more ulcers in my mouth!! It cause me to be VERY shaky some days and some days not. Acne on face, arms, and shoulders. Loss of muscle is the most noticeable side effect beside the shakiness. Puffy face and pale skin. All these side effects are better than the pain and suffering of a flare up. | I started to take Remicade but it made me feel week for about a weak after each infusion. After 2 infusions I stopped. It’s also known to cause a rare form of lymphoma that’s undetectable until it’s too late to save your life. Don’t know what my long term outlooks will be. I value and appreciate everyday I’m not in pain and on the toilet. UC has completely changed my life and I wouldn’t wish this disease on my worst eneny. | April 17, 2019 |
Prednisone | 60 | I call this the devil's drug. It arrested my colitis symptoms quickly, but it makes me feel pretty bad in high doses (40mg/day). While it helps with the symptoms, it does not make them go away entirely. It just makes the situation more livable for me. It is the one drug that I have found that I can count on to actually do something. It has screwed up my eyes. I now have to have cataract surgery on both eyes. My skin is getting thin. I'm worried about bone density. Getting a Dexa Scan soon. | Mesalamine | March 27, 2019 |
Prednisone | 34 | - Hair loss - Frequent micturition - Nighttime sleep loss and daytime drowsiness - Anxiety (Dosage: 30mg/day for 2weeks and tapering) | - Oral mesalazine 2g/day - Rectal mesalazine (2x500mg/day) while tapering | March 27, 2019 |
Prednisone | 18 | Loss of libido | October 16, 2018 | |
Prednisone | 18 | elevated heart rate | October 12, 2018 | |
Prednisone | 39 | Central serous retinopathy - is an eye disease which causes visual impairment, often temporary, usually in one eye.[1][2] When the disorder is active it is characterized by leakage of fluid under the retina that has a propensity to accumulate under the central macula. This results in blurred or distorted vision (metamorphopsia). A blurred or gray spot in the central visual field is common when the retina is detached. Reduced visual acuity may persist after the fluid has disappeared = NOT FUN! | September 7, 2018 | |
Prednisone | 23 | Extreme swelling , easily bruising | Labetalol Tylenol 3 | May 25, 2018 |
Prednisone | 30 | Shaking fever | April 27, 2018 | |
Prednisone | 33 | anxious, paranoid, weight gain, moon face | March 12, 2018 | |
Prednisone | 81 | Weak legs, atrial fibrillation, excess desire to eat, loss of concentration | Lialda | March 4, 2018 |
Prednisone | 18 | Moon Face Increase in hair growth on stomach Increase in appetite Fatigue | azathioprine lansoprazole | February 19, 2018 |
Prednisone | 27 | Sleeplessness Feeling Agro Had to take sleeping pill | Sulfasalazine for sure. Rowasa? Not sure it was a long time ago... but have used it, it was difficult to use | February 6, 2018 |
Prednisone | 18 | Excessive acne | Mesalamine Folivel | November 18, 2017 |
Prednisone | 70 | Made me crazy, hyperactive, gain weight. Got a stress fracture in my foot from walking off the excess energy. | Lialda, 6mp, Canasa | November 16, 2017 |
Prednisone | 39 | Oedema and skin rashes | salazopirine | August 2, 2017 |
Prednisone | 69 | bruising | lialda and loperamide | July 25, 2017 |
Prednisone | 53 | shortness of breath , anxiety , mood swings , insomnia . | None | July 11, 2017 |
Prednisone | 55 | Osteopenia | Delzicol Mesalamine enemas Steroid enemas Remicade 6MP | July 2, 2017 |
Prednisone | 55 | Diabetes (type2), osteoporosis , beginning of cataracts, insomnia, shakiness, heartburn/acid reflux, palpitations, rapid heart beat | July 1, 2017 | |
Prednisone | 59 | muscle pain | lialda | July 1, 2017 |
Prednisone | 47 | Sensitive teeth, weight gain, headache | Lialda, Effexor 75 mg | May 22, 2017 |
Prednisone | 46 | Insomnia Moon face Weight gain Blurry vision Sore throat Skin tags Moody | Colazide | May 10, 2017 |
Prednisone | 43 | Shortness of breath Vaginal mucas/blood Bloating Tired | Spark Pro biotic | April 18, 2017 |
Prednisone | 55 | Hair thinning. | December 19, 2016 | |
Prednisone | 18 | Hair loss/thinning. | December 19, 2016 | |
Prednisone | 63 | Sleeplessness, a bit hyper but it makes feel great. Tapering off right now, was up to 40mg a day for two weeks. | Lialda, Omeprazole | December 11, 2016 |
Prednisone | 64 | Serious spike in eye pressure related to Glaucoma. | November 13, 2016 | |
Prednisone | 28 | Ah, where do I start. I just saw my doctor Monday who told me "you basically have all the aide effects you could have, to their extreme." Awesome. -sleeplessness -weight gain (I have what's called centripetal obesity) -increased appetite -muscle weakness -lower back pain -irregular menstrual cyclet -facial hair growth (I now use facial nair for women) -anxiety/depression -steroid induced bipolar -crying all the time -talking a lot -impulsivity -extreme dry skin -thrush -easily over stimulated in large or loud groups -OCD -decrease in sex drive -wounds heal less quickly That's all I can think of for now! | Delzicol 400mg | October 23, 2016 |
Prednisone | 19 | Severe stretch marks all over my arms, back and thighs. Don't know how to get over it | Immuran, mesalazine. | October 23, 2016 |
Prednisone | 62 | Was prescribed 60 mg a day about four months ago. Most notable side affect was nervousness, shaky hands, weakness and tingling in my extremities. Also had anxiety, insomnia. Finally being weened off this med. I'm currently taking 15 mg a day now. | Azathioprine, Mesalamine | October 14, 2016 |
Prednisone | 30 | Sweating, specially night sweats, weight loss, hair changed textured but became nicer, hunger all the time, hard to sleep. Puts me in a great mood. | September 18, 2016 | |
Prednisone | 73 | Face swelling up,mood change,bad side effects trying to get off ofprednisone | Remacide | September 15, 2016 |
Prednisone | 44 | 6th day after stopping uceris and starting prednisone....some stomach pains are back, diarrhea more than I had it on the 7th week of uceris. Hungrier but could be in my head. Bloated pretty bad. No other side effects so far. | No other | September 15, 2016 |
Prednisone | 40 | Daily: Sweating, puffy skin, thirst, hungar, weight gain, adrenal rush, ringing ears, unclear decisions. LONG TERM: (3months doses, prescribed every 18months for Chrons flare ups; total usage after 7years, bone scan revealed significant bone loss! | Azathioprine, asacol then, pentasa, then colazol, then lialda | September 9, 2016 |
Prednisone | 58 | Insomnia, heart burn & reflux, leg weakness, feeling low, strangely weight loss, agitation, severe tiredness in the afternoons, palpitations | Pentasa, | September 4, 2016 |
Prednisone | 18 | Moon face,weight gain,weakened bones(deficiency of calcium),Candida,mood swings,heart burn,mouth ulcer .etc | Pentasa,imuran | September 2, 2016 |
Prednisone | 29 | Acne, depression, bone pain | Entyvio, tacrolimus, dificid, citalopram | August 27, 2016 |
Prednisone | 55 | Leg weakness Hair loss Foggy head Moody | August 24, 2016 | |
Prednisone | 18 | hyperactivity | remicade | August 16, 2016 |
Prednisone | 25 | Weight gain | August 15, 2016 | |
Prednisone | 58 | Weight gain, insomnia, irritability, acne, hot flushes. | Pentasa | August 12, 2016 |
Prednisone | 49 | shakes | August 10, 2016 | |
Prednisone | 22 | lack of sleep Acne Moon face | Asacol Azathioprine | August 9, 2016 |
Prednisone | 18 | Bloating Mood swings Depression Weight gain / always craving for food pimples | Imuran Mesalazine | August 8, 2016 |
Prednisone | 36 | I was able to finally taper off of prednisone for the first time in two years. I am currently experiencing severe joint and muscle pain in most of my body. So far my stomach has been good but these pains keep me up at night. | Lialda Azathioprine Entyvio Infusions | August 8, 2016 |
Prednisone | 29 | Acne, severe thirst, issues with my blood sugar really high around 10-15, couldn't stop eating, put on 35lbs in 4 months. | Imurian | August 8, 2016 |
Prednisone | 18 | Muscle pain in quad directly above the knee in both legs, caused pain when bending and a constand dull ache. Swollen ankles midday making it painful and difficult to walk. Swollen left thumb. | Mezevant | August 8, 2016 |
Prednisone | 18 | agression | August 7, 2016 | |
Prednisone | 63 | Feeling dizzy when turning quickly. Nauseous when driving. | Asacol | August 7, 2016 |
Prednisone | 53 | Massive weight gain | Asacol | August 7, 2016 |
Prednisone | 41 | Moon face Trunk fat gain Insomnia (now chronic insomnia for the last 3 years in UC remission - not sure if triggered by pred or UC) Hair loss upon tapering | Mesalazine (Mezavant) | August 7, 2016 |
Prednisone | 53 | Hair loss, 10 lb weight gain, overall feeling of bloating. | was not taking another med at the same time | August 6, 2016 |
Prednisone | 18 | Hair loss | Pentasa, imuran | August 6, 2016 |
Prednisone | 29 | Increased frequency and diarrhea. Severe insomnia, depression and anxiety. | Lialda Imuran | August 5, 2016 |
Prednisone | 29 | Hair loss, weight gain, swollen body, swollen face, moon face, joint aches, increased appetite, increased heart rate | Lialda | July 28, 2016 |
Prednisone | 24 | i got way bigger. unbearable joint pain that curled my spine and prevented me from walking. insatiable appetite. mood swings | July 28, 2016 | |
Prednisone | 37 | gritty teeth, joint pain, gritty teeth, shutting down my emotions, anxiety, no energy at 3pm, awake at 3am, and my favorite - moonface | Lialda, which was insufficient to maintain remission Today, 6 years later - no meds, in remission | July 28, 2016 |
Prednisone | 30 | Weight gain. Blurry vision. | Canasa. Delzicol. | July 27, 2016 |
Prednisone | 35 | Acne, moon face, weight gain, mood swings, insomnia, osteopenia. | Asocial, immuran | July 27, 2016 |
Prednisone | 18 | Heart hurts when breathing in | July 27, 2016 | |
Prednisone | 48 | Severe heartburn @40mg Staph infection @40mg Insomnia | Colazol Antibiotics | July 27, 2016 |
Prednisone | 21 | Severe mood swings, achiness, headaches | Remicade | July 27, 2016 |
Prednisone | 66 | High blood pressure cannot sleep made feel strange no sleep had to go on a sleeping pill. Had to take water pill to bring down pressure ended up in hospital 3 days the water pill took made my sodium level go way below normal .....Abd the sad part was on Predisone 30 days did not do a thing for my UC.... | No | July 27, 2016 |
Prednisone | 69 | While on a 60 mg (7 days for each 60 thru 10) Prednisone taper for 6 weeks, I experienced inability to sleep through the night; jitters; weakness in my legs; weakness in the muscles in my thighs. My legs felt very heavy and I found it hard to walk up stairs in my house. Around the 4th week of taking the Prednisone, I would need a cane to help support myself. This was the second time on the Prednisone. I was also on it last year for 6 weeks and in addition to the above side effects, I also developed a soreness in my right ankle and then it appeared swollen and tender to the touch. Went for an ultrasound and found out I had superficial phlebitis in that area. I don't know if it was directly related to the Prednisone, but I didn't have it prior to taking this medication. One good thing is that once done with the Prednisone, the strength comes back in the legs. I also took Vitamin D3 and Calcium while on the Prednisone, and also ate more bananas for Potassium. | I was also taking my diuretic for BP, and the second time on the Prednisone, I was started on Lialda for my UC. | July 27, 2016 |
Prednisone | 28 | Moon-face, insomnia, hunger, hyper, osteopenia and osteoporosis later on - 59 yrs. old now. Did nothing for my U/C symptoms and have not taken any since. | Dipentum | July 27, 2016 |
Prednisone | 73 | red spots weakness in lower legs | July 27, 2016 | |
Prednisone | 67 | Hair loss after stopping prednisone | July 27, 2016 | |
Prednisone | 41 | Every course of steroids gives me rosacea which is a flushed red face and spots (after food). You can get rid with oral antibiotics but this causes colitis to flare. You need to take the topical cream for 8 weeks to clear. | Asacol. | July 27, 2016 |
Prednisone | 18 | Leg pain thigh | July 27, 2016 | |
Prednisone | 60 | Catteracs within 4 weeks of taking a high dose | July 27, 2016 | |
Prednisone | 48 | Anxiety, depression, major mood swings | Lialda, Azathioprine | July 27, 2016 |
Prednisone | 28 | Weight gain, hair loss, acne, swollen face, thinning of skin, dry skin patches, fatigue, high heart rate , night sweats, insomnia, weakness | None | July 21, 2016 |
Prednisone | 22 | Moon face that lasted months, severe weight gain due to always being hungry, night sweats, mood swings and trouble sleeping | Salofalk granules 1.5mg | July 20, 2016 |
Prednisone | 30 | Weight gain, moon face, insomnia, easy to bruise, thin skin resulting in stretch marks, osteopenia and osteoporosis, hip fracture. | Asacol, colazol, uceris, Humira | July 20, 2016 |
Prednisone | 25 | Extreme night sweats, joint/ knee pain, tremors in my hands, insomnia, mood swings | Lialda | July 20, 2016 |
Prednisone | 27 | Rapid heart rate, weight gain, trouble sleeping, chipmunk cheeks, acne, anxiety from knowing all the bad things that can happen with long term steroid use! | I've had to combine Prednisone with different meds. I am now combining them with Humira. In the past I have combined them with mesalamine. I've also combined them with Canasa. I've also combined them with sulfas. Doesn't matter what I combine them with, they still produce the same side-effects. | July 20, 2016 |
Prednisone | 31 | -Reduced sleep -Dry skin on hands to the point of cracking -Moon face | Lialda (started 1 month into Pred) | July 19, 2016 |
Prednisone | 26 | -sensitive teeth from anything slightly cold -tongue sores and pain -insomnia -weight gain -things smelled and tasted different....almost metallic -severe hair loss | Remicade and Imuran | July 17, 2016 |
Prednisone | 41 | Osteopenia | 6mp | July 17, 2016 |
Prednisone | 42 | Extreme sensitivity to cold on my teeth. I had to drink everything through a straw it was so bad. When I asked my GI he said it wasn't the Prednisone but my dentist thought it could be. Now that I see other people have had this side effect, I know it's for real. Plus a few weeks after I finished the medication the sensitivity disappeared. | July 17, 2016 | |
Prednisone | 26 | Weight gain Hunger Insomnia | Mezavant | July 17, 2016 |
Prednisone | 33 | Extreme agitation, anxiety, headaches and red face at 40mg dose. Increased appetite. | Octasa | July 17, 2016 |
Prednisone | 23 | Not able to sleep, pain in knees, alot of hunger, mood swings | July 17, 2016 | |
Prednisone | 37 | Prednisone: insomnia at high doses, joint pain in fingers when weaning off. Salofalk (mesalamine): no side effects so far. | No | July 17, 2016 |
Prednisone | 28 | Shortly after taking a high dose of prednisone, I began to feel sensitivity in my teeth, that only after inquiring with my dentist did I learn is something that many other patients have experienced. | At the time I was taking a 5-ASA medication called colazal | July 17, 2016 |
Remicade (Infliximab) | 62 | Joint pain | no | June 27, 2019 |
Remicade (Infliximab) | 18 | Fatigue mostly. Been in remission since started on 8 week infusions in 2011. | No | June 22, 2019 |
Remicade (Infliximab) | 69 | Bruising on arms; light headed/some dizziness; gums had minor bleeding; some acne | 6MP-50mgs/day Predizone - 20 - 50mgs/day Zoloff 50mgs/day Lipitor -50 mgs/day | June 9, 2019 |
Remicade (Infliximab) | 18 | Plaque psoriasis Swollen joints | No | May 16, 2019 |
Remicade (Infliximab) | 58 | No side effect, with the exception of a quickly shrinking wallet!! | Lialda, and upped my vitamin uptake. | March 27, 2019 |
Remicade (Infliximab) | 20 | headache nausea tiredness hair loss | methotrexate | January 23, 2019 |
Remicade (Infliximab) | 64 | photo sensitivity | September 7, 2018 | |
Remicade (Infliximab) | 58 | Extreme fatigue, muscle and joint pain. I stopped taking it two months ago after 4 infusions. The side effects are still with me, but starting to wear off. In the beginning I slept more than I was awake, I walked at the pace of a 90-year-old man and was extremely weak with no strength. Fortunately I have now found a doctor who is looking for causes (so far she has determined I am gluten sensitive) and not just throwing drugs at it | Mesalamine tablets (1.2 gms/4 per day) and one Canasa suppository daily, both of which I have been on since I was diagnosed in 2005. I don't have any side effects from these drugs, but I'm also not sure they've done any good. I go back to my new doc for test results on 9/12 (she did a colonoscopy and an endoscopy a couple weeks ago), and she has hinted she will take me off those drugs | September 7, 2018 |
Remicade (Infliximab) | 19 | Worsening cystic acne on cheeks and forehead. Skin was clear before starting Remicaide two years ago | Vitamin D3 and fish oil | June 17, 2018 |
Remicade (Infliximab) | 47 | I always used to feel hot, since on Remicade I have constantly cold hand and feet.... Have sometimes pains in my hands and feet (joint pain) | Meds: Asacol and Azapress. Supplements: Vitamin D3, C, Calcium, Magnesium, Curcumin, Fish oils, Vitamin B complex, Colostrum, Zinc, CBD tablets and THC oil | May 15, 2018 |
Remicade (Infliximab) | 39 | Unwanted Weight gain, almost 1/2 lb a day, while eating incredibly healthy and only about 1,200 calories a day- on SCD diet | Lialda, but I have been taking that for over a year with zero weight gain | March 18, 2018 |
Remicade (Infliximab) | 45 | Have had loading doses number 1 and 2 so only my first month. After week one my stool went from unformed average 2 a day to difficult to pass, lumpy, and hard! Through intro of more insoluble fiber (flax meal, chia mostly) and more water it's only somewhat improved things. Currently at about end of week three since beginning. Total elimination of UC symptoms otherwise. Slight headache/fatigue, slight appetite loss follows 2 days after both infusions so far. | Tapering off prednisone. Was at 35mg week of first infusion, am down to 15mg by second infusion. | March 14, 2018 |
Remicade (Infliximab) | 41 | I took 4 treatments. I started breaking out with it. Big psoriasis looking sores. All over my body. Had a biopsy and I'm allergic to both humira and remicade. It's very painful and burns. | Just vitamins | March 9, 2018 |
Remicade (Infliximab) | 38 | minor stomach pain | none | March 5, 2018 |
Remicade (Infliximab) | 47 | Hair loss weight gain memory loss confusion hands shake dropping items pustual psoriasis body jerks vomiting which causes teeth loss | Remicade humera methetrexate Prednisone dulera | March 3, 2018 |
Remicade (Infliximab) | 47 | Ankle/foot swelling, redness, / mild after first infusion, then worsening after second, and third. Docs were baffled. Within 24 hours of third infusion, both ankles/ feet were swollen, red, hit to touch, difficult to walk | Prednisone | February 8, 2018 |
Remicade (Infliximab) | 37 | No side effects | Dexilant (for GERD). I have been on Remicade for 10 yrs with no side effects. I had a healthy baby 5 yrs ago while on Remicade. I also was restarted on Remicade 3x because of moving to different states. | January 21, 2018 |
Remicade (Infliximab) | 41 | I built up antibodies to the medication. Very ineffective drug anyway.... | No | December 27, 2017 |
Remicade (Infliximab) | 55 | Head pain, tiredness, lack of focus | Lialda | December 24, 2017 |
Remicade (Infliximab) | 35 | swollen Lymph nodes shortness of breath chest pains | November 24, 2017 | |
Remicade (Infliximab) | 35 | Psoriasis on my head, inside ears, behind ears. Eczema on my arms, hips, behind my legs and on my neck. Fatigued at times Brain fog back pain some hair loss acid reflux anxiety muscle soreness | November 24, 2017 | |
Remicade (Infliximab) | 56 | SHOULDER JOINT PAINS CALVES PAIN MEMORY LOSS ( MAINLY FORGETTING NAMES ) | ASACOL PANTAPRAZOLE | November 18, 2017 |
Remicade (Infliximab) | 35 | vasculitis | November 14, 2017 | |
Remicade (Infliximab) | 70 | Hair loss | Imuran | November 8, 2017 |
Remicade (Infliximab) | 37 | Fatigue, weight gain, prone to infections | Anti-Depressants | November 1, 2017 |
Remicade (Infliximab) | 55 | Pain in hands and feet Convulsions Swollen lymph nodes | Delzicol Mesalamine enemas Steroid enemas Prednisone 6MP | July 2, 2017 |
Remicade (Infliximab) | 25 | bleeding | no | June 15, 2017 |
Remicade (Infliximab) | 24 | Acne | Nothing else but I maintain a healthy diet. Had moderate to severe U.C. prior to Remicade. Though Remicade works great for now, hoping to switch to CBD someday and use that exclusively with diet. I do not trust medicine, doctors or the government with what they label as "safe." | May 31, 2017 |
Remicade (Infliximab) | 41 | Dizziness, confusion | Diazepam | May 2, 2017 |
Remicade (Infliximab) | 54 | shingles | March 31, 2017 | |
Remicade (Infliximab) | 54 | psoriasis | March 31, 2017 | |
Remicade (Infliximab) | 46 | Exhaustion Dizziness Shortness of breath | February 23, 2017 | |
Remicade (Infliximab) | 49 | psoriasis all over body and red spots all over | yes,lialda,topomax.lomotil, tramadol,triamerene,gabapentin | February 21, 2017 |
Remicade (Infliximab) | 44 | Hodgkin Lymphoma | Azathioprine | February 4, 2017 |
Remicade (Infliximab) | 50 | muscle pain | February 4, 2017 | |
Remicade (Infliximab) | 35 | Anaphylaxis | Pre-meds in effort to avoid negative reaction. Solumedrol, benedryl, Tylenol. | February 3, 2017 |
Remicade (Infliximab) | 64 | sick to mu stomach and no energy | aspirin 81mg | February 2, 2017 |
Remicade (Infliximab) | 32 | Melanoma, hair loss, skin rashes | 6 mp | December 30, 2016 |
Remicade (Infliximab) | 54 | Fever that wouldn't go away every night. Oral thrush. | Uceris, Bentyl, Allegra, Ibuprofen, VSL3, Iron, MultiVitamin, Vit D and Calcium | November 13, 2016 |
Remicade (Infliximab) | 52 | tiredness | November 13, 2016 | |
Remicade (Infliximab) | 50 | Aches in knee joints at times, bloating from time to time when I'm getting close to my next infusion. Some fatigue. It got me out of a terrible flare which I was hospitalized for a week. I get it every 8 weeks now since April 2016 | Methotrexate 12.5 MG once a week Folic Acid 5MG | November 4, 2016 |
Remicade (Infliximab) | 32 | shingles | none | November 4, 2016 |
Remicade (Infliximab) | 56 | My hair thinned out and I got scaly plaques on my scalp diagnosed as Lichen planopilaris, an autoimmune disorder. Also have joint pain in my hands and feet. The fun never ends. | Lialda | October 26, 2016 |
Remicade (Infliximab) | 47 | Symptoms similar to MS, including drop foot, loss of dexterity in my hands and weakness in my left side. Stopped Remicade and still some lingering issues 8 months later. | No | October 14, 2016 |
Remicade (Infliximab) | 20 | Fatigue, suicidal thoughts, itchy rash all over my body, moods swings. Get angry very quickly,join pain and swelling | CYMBALTA, SULFASALAZINE, NEXIUM, ATIVAN, VENTOLIN INHALER, | September 17, 2016 |
Remicade (Infliximab) | 48 | Immediete allergic symptoms, after 3rd dosage too far apart, therefore developed immunity | Azathioprine, asacol, calcium citrate | September 9, 2016 |
Remicade (Infliximab) | 57 | Joint soreness, fatigue | mesalamine | September 7, 2016 |
Remicade (Infliximab) | 34 | lot of bacterial infections (mouth sores, ear, cheeck, joints), abscess, acné, shingles, ..because of low (or none) resistance This happens more and more the last years...i get remicade since 11 years. The day i get my remicade..i'm very sleepy, warm and sweaty...and HUNGRY !!! In the beginning: Hair loss Psoriasis came, went, came back, went again... | no (or maybe some cbd...) | September 3, 2016 |
Remicade (Infliximab) | 30 | Nausea and head aches. Lots of headaches. I will feel down and out for at least a day after infusion as well. | September 3, 2016 | |
Remicade (Infliximab) | 60 | Been on remicade for almost a year. Had hair loss but not sure if it was from that or a combination of other meds I was on at the time. Anyway.. it came back curly! Now the only medicine i'm on is the Remicade every 8 weeks. Now i'm getting extreme bloating, like my stomach has a spare tire. I've started walking 3 miles / day and it's not helping at all. Also I get abscesses constantly. Some very severe. | August 27, 2016 | |
Remicade (Infliximab) | 55 | Broke out in a rash while receiving the infusion. Added Benadryl and that took care of it. Dr. says I have developed antibodies to Remicade so now not sure what will happen. He has me going to Mayo Clinic next month for another opinion. | August 22, 2016 | |
Remicade (Infliximab) | 68 | Hives, itching, rash, fatigue | August 19, 2016 | |
Remicade (Infliximab) | 57 | Cough, fever, itchiness, insomnia, anxiety | Yes...I am taking mesalazine 6 tablets a day, azathioprine 50mg on Monday, Wednesday & Friday; 75mg rest of the 4 days. BP meds Amlopidine Besilate 2.5mg daily. | August 18, 2016 |
Remicade (Infliximab) | 60 | Headache for 2 -3 days after infusion; not debilitating Voice is weak and hoarse for a couple days after infusion | I get an injection of prednisone immediately prior to infusion. | August 15, 2016 |
Remicade (Infliximab) | 37 | Had first dose when hospitalized in around 2010. Worked great and got me out of a terrible cycle of flair ups and prednisone . 6 weeks later went for follow up dose and had anaphylaxis . Chest felt right, hard to breath , face flushed and confusion . My mom who was there recognized it and got nurse immediately. Reaction began to leave as soon as the nurse stopped the med. nurse also immediately administered Iv benedryl | Asascol; prednisone | August 15, 2016 |
Remicade (Infliximab) | 52 | Drug induced Lupus - while my UC symptoms were getting better, I couldn't get moving again. Exercising was torture - yoga was torture. I kept thinking I just needed to push through it and I was being lazy. Blood tests revealed Lupus. I stopped Remicade and it went away. | Steroids | August 12, 2016 |
Remicade (Infliximab) | 32 | My liver became blackened and dead. I required a liver transplant. | Dotheipin Hydrochloride. Yasmin. | August 12, 2016 |
Remicade (Infliximab) | 34 | Psoriasis on the palms of the hands. | Lialdia | August 11, 2016 |
Remicade (Infliximab) | 37 | Remicade worked well until I built antibodies...BUT it did make my hair fall out, in chunks. | August 11, 2016 | |
Remicade (Infliximab) | 61 | weakness | August 9, 2016 | |
Remicade (Infliximab) | 25 | I occasionally get eczema as a side effect, vomiting occasionally, nausea, my equilibrium feels off, sensitivity to light at night, sensitivity to sun, bloating, occasional constipation, extreme fatigue, hot flash type symptoms where my face will turn red and flushed and I get really hot and feel like I have to vommit | Asacol Omezaprole | August 8, 2016 |
Remicade (Infliximab) | 18 | Suicidal ideation. Awful. | August 8, 2016 | |
Remicade (Infliximab) | 62 | hives nightmares on night of infusion | pred 5 meloxicam atenolol tramadol | August 7, 2016 |
Remicade (Infliximab) | 66 | Low blood pressure Itching over whole body starting while getting infusion Bad Headache for 24 hours Inability to stand in one spot for more than a few seconds without leg pain and weakness 100 % antibodies to drug within 1 year of starting it determined through the prometheus blood test | Lialda 8 per day | August 7, 2016 |
Remicade (Infliximab) | 41 | No side effects that I could detect | August 7, 2016 | |
Remicade (Infliximab) | 36 | Stiff joints high blood pressure and pain all over | No other meds | August 7, 2016 |
Remicade (Infliximab) | 67 | At 1st I was just very tired..all the time. I was not sleeping well either. These both come and go. About 1 year into therapy the pain started...1st in my L foot, then R foot, then my hands until I could barely walk. I was finally diagnosed with drug induced Lupus, though through it all I am in remission, the pain is now manageable with prednisone (20>5mg a day) At this time with the level of my pain where it is, and how my body is cooperating, I can enjoy my life | I would be hydrated in the ER and given oxy for the pain at one ER visit early on, my thyroid went from hypo to hyper so they changed my synthroid levels | August 6, 2016 |
Remicade (Infliximab) | 43 | Drug induced lupus. (too bad because it was the first med that put me into remission) | Asacol | July 29, 2016 |
Remicade (Infliximab) | 35 | Edema | Prednisone | July 29, 2016 |
Remicade (Infliximab) | 72 | Effective for 1st year, then ineffective. Started to get severe pain night of infusion. Platelets dropped from normal to 44,000. Stopped Remicade, now platelets are normal. | 6mp, Lialda | July 28, 2016 |
Remicade (Infliximab) | 48 | Memory loss | no | July 28, 2016 |
Remicade (Infliximab) | 28 | Fatigue, joint pains, insomnia, nightmares, depression | Tramadol, Omeprazole, antrptyline | July 28, 2016 |
Remicade (Infliximab) | 25 | Sometimes, the day of the IV i have weird head sensations: ending up in a room w/o knowing how I got there, head feels like a bowling ball. Since I started taking it I get the occasional blockage of peripheral vision. Also my wife said that since I began I became generally more depressive. | July 28, 2016 | |
Remicade (Infliximab) | 50 | Mouth sores/pain. Psoriasis on limbs and scalp. Acne. | None | July 28, 2016 |
Remicade (Infliximab) | 36 | Blister like growth on my gums. | Imuran, asocal | July 27, 2016 |
Remicade (Infliximab) | 18 | 14 yr old daughter tried Remicade after Humeria. Developed sever reaction after first dose. Was unable to move, her whole body hurt could hardly walk, get dressed, all her joints hurt. Very bad reaction | Lialdia | July 27, 2016 |
Remicade (Infliximab) | 64 | Took it for a year with no problems. | July 27, 2016 | |
Remicade (Infliximab) | 57 | Hair loss. A few muscular spasms in fingers. Tired. | Prednisone. | July 27, 2016 |
Remicade (Infliximab) | 18 | PSORIASIS | July 27, 2016 | |
Remicade (Infliximab) | 25 | Chest pain, full body rash (became allergic according to Doctor) | Prednisone, pantaloc, pentasa | July 27, 2016 |
Remicade (Infliximab) | 55 | SEVERE eczema of my eyes - extremely swollen eyelids/both eyes, by the 3rd infusion | Asacol HD | July 24, 2016 |
Remicade (Infliximab) | 24 | Have only had one infusion so far when I was in hospital and no side effects from what I can tell. If anything I felt better after it. | Steroids and salofalk granules | July 20, 2016 |
Remicade (Infliximab) | 47 | Leg pain. Hair loss | Azathioprine | July 17, 2016 |
Remicade (Infliximab) | 26 | -severe night sweats -for the first 6 months I would get incredibly tired lasting a couple days after the infusion -low BP | Imuran | July 17, 2016 |
Remicade (Infliximab) | 18 | Serum sickness in hospital for days . Couldn't walk high fever | July 17, 2016 | |
Salofolk | 27 | Hair loss and tender scalp | No other meds | May 9, 2019 |
Salofolk | 39 | Flu like symptoms | No | January 22, 2018 |
Salofolk | 70 | nausea headache increased appetite leading to weight gain | Asacol suppositories beta blockers and aspirin | December 22, 2017 |
Salofolk | 36 | Insomnia | No | December 18, 2017 |
Salofolk | 33 | Smelly urine | October 3, 2017 | |
Salofolk | 33 | Smelly urine | Pentasa | October 3, 2017 |
Salofolk | 55 | Thinning hair Slight breathing issues | Metformin Gliclazide Aspirin Simvastatin Multivitamin Cod liver oil | September 8, 2017 |
Salofolk | 35 | no | no | March 8, 2017 |
Salofolk | 44 | I take salofalk when I have a flare. Like most fall seasons, I had a bad flare in Oct and increased to 8 tablets a day. 2 weeks later of being bugs vigelent onbit, abdominal pain gone and more solid BM. But I also cut out most wheat, dairy and sugar at this time too. | I increased my probiotic and aloe | October 23, 2016 |
Salofolk | 21 | Gas | Remicade | September 28, 2016 |
Salofolk | 34 | Pain tiredness | September 27, 2016 | |
Salofolk | 45 | Massive massive tiredness to a point you could hardly function at all | August 15, 2016 | |
Select Medication | 18 | Inflammation in the lower back | April 16, 2019 | |
Select Medication | 53 | Red eyes (the whites of my eyes), new psoriasis like rashes | Levothyroxine | April 14, 2019 |
Select Medication | 62 | I was taking Humira to help cure the Psoriatic Arthritis i was experiencing with in one month my whole body was covered in a red itchy rash was immediately taken off and put on Cosentryx which cured the Psoriatic Arthritis but is a possible cause of me getting Colitis a year later | Prior to the Humira I was on Methotrexate per protocol of my insurance | March 28, 2019 |
Select Medication | 51 | hair loss | August 30, 2018 | |
Select Medication | 18 | Put on this Med for Crohn’s 200mg morning 200mg night ok for first 5 days then all hell let loose, violently sick ? with high temperature felt really ill. Consultant then cut the dose down to 5mg taken with another drug used for gout again felt so ill with very high temperature and violently sick worse than before taken off the drug and started to feel normal so taking my old medication mezavant. | Had been on Mezavant | June 17, 2018 |
Select Medication | 18 | Black mucous | February 7, 2018 | |
Select Medication | 72 | . I have been in a flare up for almost 3 years. Even with the meds I still have "episodes" every 10-12 days. Started PANTOPRAZOLE 40 mg daily on Aug 1 and experienced 7 days of episodes in August. So far in first 20 days of Sept I have had 5 days with episodes | 3200 ASACOL daily. SALOFALK Enema 1 daily. Zopiclone 3/4 nightly | September 22, 2017 |
Select Medication | 18 | Burning, tingling face | Bisipropol and fostair | August 22, 2017 |
Select Medication | 32 | Fever, back pain and heart rate | Zantac 75 | August 4, 2017 |
Select Medication | 18 | increased liver enzymes | aspirin | July 18, 2017 |
Select Medication | 18 | Stretch marks on back | Imuran and enemas | July 4, 2017 |
Select Medication | 27 | Weight gain, hair loss, severe sepsis | January 12, 2017 | |
Select Medication | 57 | Balsalazide. Foggy feeling, fatigue, body swelling up, itchy red spots that look like eczema. Causes lots of gas and belching. Small bumps on my arms and legs. Cough. | January 8, 2017 | |
Select Medication | 20 | Pancreatitis | LIALDA | November 3, 2016 |
Select Medication | 57 | Hunger tearful angry week legs shaky and fast heartbeat and loud hears it in my head. Dont know if its the prednisolone doing it or itd part of the copd I akso take spiriva and seritide | September 30, 2016 | |
Select Medication | 29 | None that I can notice. | Prednisone- only with an active flare-up. | September 6, 2016 |
Simponi (Golimumab) | 41 | Hair thinning/falling out | None | October 31, 2017 |
Simponi (Golimumab) | 30 | Slight skin rash | None | August 27, 2016 |
Simponi (Golimumab) | 32 | None | No other meds | August 7, 2016 |
Simponi (Golimumab) | 31 | Painful when injecting and causes bruising | Prednisone & 6mp | July 22, 2016 |
Stelara (Ustekinumab) | 43 | Perianal bumps, muscle ache, fatigue | July 20, 2017 | |
Stelara (Ustekinumab) | 57 | Hot flashes, anxiety, chest tightness, mouth ulcers | April 24, 2017 | |
Stelara (Ustekinumab) | 42 | Bruises on back of legs | Lialda | March 5, 2017 |
Sulfasalazine | 70 | bleeding | March 27, 2019 | |
Sulfasalazine | 44 | Severe vomiting and diarrhea with just one dose. | none | September 7, 2018 |
Sulfasalazine | 51 | Blood spotslike.looks like dark purple bruise | No | June 28, 2018 |
Sulfasalazine | 60 | Dizzyness and nausea | buspirone | June 1, 2018 |
Sulfasalazine | 43 | Joint pains, tiredness | Yes | October 12, 2017 |
Sulfasalazine | 29 | Vagina discharge that stinks | None | July 30, 2017 |
Sulfasalazine | 43 | diarrhea | December 13, 2016 | |
Sulfasalazine | 55 | Headache Dizziness | Salazopyrin Tablets 500mg | November 27, 2016 |
Sulfasalazine | 69 | Achy joints | October 23, 2016 | |
Sulfasalazine | 30 | I don't have pains or nobody aches but I still have diarrhea. | Lialda didn't work at all. I was still getting pains and severe cramping and bloody diarrhea | September 11, 2016 |
Sulfasalazine | 57 | Tiredness. Could not be bothered doing anything and preferred to sleep the day away instead. Started to lose a lot of hair after being on it for a few weeks. My red blood cell count was low because of this medication. I stopped using it. I feel better now. I will try and see if there are more natural ways to deal with my UC. I am taking a high dose probiotic, kefir and kombucha products and fermented foods. Not going to take the toxic rubbish that doctors prescribe. | I was taking prednisone for 5 weeks at first but tapered off slowly, as advised. | September 3, 2016 |
Sulfasalazine | 43 | Rash, shortness of breath, increased heart rate, fatigue, increased abdominal pain and redness of skin that lasted for several weeks after stopping the medication (sunlight made it way worse) | August 21, 2016 | |
Sulfasalazine | 31 | Heart palpitations Joint pain | No | August 9, 2016 |
Sulfasalazine | 50 | headaches (they can be minimized by drinking plenty of water, which may also help with the other side effects) | none | August 7, 2016 |
Sulfasalazine | 23 | Soon after being prescribed sulfasalazine I was diagnosed with drug induced Lupus. It took 3 months of tests to prove sulfasalazine was the cause during which time I had intensely painful, inflamed joints throughout my body, as well as UC. | Steroids | August 7, 2016 |
Sulfasalazine | 27 | After taking 3x2 salazopyrin a day for about a year, my kidneys flared. I think it was called glomerulonephritis. After the flare has gone my kidneys left in a 3rd state of insufficiency. | August 4, 2016 | |
Sulfasalazine | 48 | None | July 29, 2016 | |
Sulfasalazine | 72 | Extreme tiredness, ringing in the ears, tingling in fingers. | July 27, 2016 | |
Sulfasalazine | 63 | Blistering on my chest | Atenolol Premarin | July 27, 2016 |
UCERIS (Budesonide) | 59 | Bone pain, cramps, vitamin d deficiency | August 7, 2016 | |
UCERIS (Budesonide) | 63 | High blood sugar | August 7, 2016 | |
UCERIS (Budesonide) | 53 | Some hair loss, 5 lb weight gain | was not taking another medication at the same time | August 6, 2016 |
UCERIS (Budesonide) | 18 | I have not had a period for 10 years. I am 50 yrs. old. This is my 7th day in Uceris 9 mg/ daily. I started vaginal bleeding this morning. I also have had nausea and vommiting along with flatulence and diarrhea! I thought this medication was going to ease my symptoms! This has NOT been the case. I will gladly go back to prednisone and suffer the adverse side effects! Best of luck to all who suffer. | July 29, 2016 | |
UCERIS (Budesonide,Entocort) | 18 | Hair loss on head. Increased facial hair. I’m female. | Mesalamine. Metformin. Thyroid. Jardiance | May 23, 2019 |
UCERIS (Budesonide,Entocort) | 44 | Severe vomiting and diarrhea with just one dose. The gift of time release capsules.... I'd be violently ill for 3 1/2 hours, get about a 30 minute break and time release would kick in. It was a miserable 24 hours. (almost exactly to the minute) | none | September 7, 2018 |
UCERIS (Budesonide,Entocort) | 45 | Mild muscle cramping in back, headaches | Atenolol 20mg twice daily Omeprazole 20mg twice daily Xanax as needed Tramadol as needed | July 28, 2018 |
UCERIS (Budesonide,Entocort) | 55 | Have UC for about a year now. Uceris review: Did not see any discernible impact. Symptoms did not necessarily improve. Took it for 4 months. Stopped as forgot to take it on a trip out of town, and have not taken almost two months. Relieved as holistic medicine practitioner had suggested liver function was showing signs of malfunction. That is has dissipated now. Bottom line, UCERIS showed zero benefit, took it for flareups and stayed with it. Does not seem like a good idea and it's a very expensive drug if Insurance does not cover it. | Taking Lialda at the same time. | June 3, 2018 |
UCERIS (Budesonide,Entocort) | 66 | increased appetite, nausea and diarrhea worse, no positive results yet | March 15, 2018 | |
UCERIS (Budesonide,Entocort) | 72 | Horrible nerve pain shooting through my legs, weakness in legs and inflammation. VERY scary since the drug is supposed to be 90% into the gut ant that's all. For me, it was different and violent. | Lialda | January 14, 2018 |
UCERIS (Budesonide,Entocort) | 36 | No major side effects. Felt relief of UC symptoms after 3 days. After about 3 weeks on it, I started to notice joint pain and occasional headaches, but not enough to make want to stop taking Uceris. | None. | December 22, 2017 |
UCERIS (Budesonide,Entocort) | 36 | Got my first and worst flare up ever had! In October 2017. A two-week span of 2 - trips to er 2 cat-scans, one colonoscopy and a 6 day stay in the hospital, finally labeled me with severe ulcerative colitis! 6 days in hospital was promising getting I.v. Prednazone to put colon into remission and was working (slowly) ! When released to go home after day 6 of treatment they gave me a scrypt of (BUDESONIDE) - to take 9mg a day starting day I left. So I get generic BUDESONIDE (thanks to insurance) and take 3-3mg capsules. Within 6 hours of leaving hospital I begin to go down hill!!!!!! Bleeding slowly coming back every movement. Cramps, pains, gas, ext. urgency to go grows every hour! By Monday morning , I was back on the phone with my specialist who therefore remove me from the budesonide & put me back on prednizone and it started a slow road back up hill. I cautious those who try new medicines! if something isn't broke don't fix it ! | November 1, 2017 | |
UCERIS (Budesonide,Entocort) | 35 | Very few side effects with oral uceris. Much better than being on Prednisone. Increased urination at night. Low appetite & nausea. Also took a solid 2 weeks before it fully kicked in. Some relief after 3 days, but 2-3 weeks before it fully kicked in. | Mesalamine, VSL #3, Omega 3 fish oil | October 16, 2017 |
UCERIS (Budesonide,Entocort) | 52 | Frequent night urination, insomnia, increased appetite, reflux. | Side effects started once I started taking Lialda w/ Uceris | October 12, 2017 |
UCERIS (Budesonide,Entocort) | 72 | heavy night sweats, frequent urination, very bloody stools (from 3-4/day when I started to 12-14/day when I quit) thrush, facial hair, leg cramps (especially at night), interrupted sleep (awake two hours at a time) | Lialda - 2 /day | August 21, 2017 |
UCERIS (Budesonide,Entocort) | 44 | Increased, soft bowel movements (sometimes right after injecting) and they are SUPER stinky!! I don't see anyone else reporting this... | 4 lialda/day | July 21, 2017 |
UCERIS (Budesonide,Entocort) | 43 | swelling and pain in both ankles | canada, lialda | July 19, 2017 |
UCERIS (Budesonide,Entocort) | 49 | Extreme fatigue and very vivid dreams. | I take Lialda 2 tabs per day. Krill 500mg per day, Nutrí Calm one per day. I also OxyPowder 3 tabs every other day. | June 4, 2017 |
UCERIS (Budesonide,Entocort) | 53 | Weight gain, vaginal bleeding, increase facial hair | Triamterene/hctz, cymbalta | May 17, 2017 |
UCERIS (Budesonide,Entocort) | 58 | medication helped my symptoms, but after 4 weeks had moon face and swelling in ankles. Also frequent urination at night (5 times most nights). I have also had weight gain. Dosage was 9mg per day. Discontinued medication. | Lialda, gabapentin, verapamil | May 2, 2017 |
UCERIS (Budesonide,Entocort) | 36 | abdominal pain | Pentasa | April 25, 2017 |
UCERIS (Budesonide,Entocort) | 51 | I have UC and have taken Uceris for 18 months continuously and it has helped somewhat. 5ASA, imuran, etc. have not worked on me. Side effects include, sleeplessness, tired, weak legs and I am always hungry. I am trying to wean myself of Uceris by taking it every other day and I am experiencing itching symptoms on my things and arms. | No | March 30, 2017 |
UCERIS (Budesonide,Entocort) | 19 | Even after one week on the med, still in severe pain, bloodier stool, extreme nausea (nausea meds help little). Patiently waiting...hoping. | March 2, 2017 | |
UCERIS (Budesonide,Entocort) | 67 | Headache, achy joints, dizziness. | No | February 22, 2017 |
UCERIS (Budesonide,Entocort) | 19 | Stomach pain, fatigue | None | February 11, 2017 |
UCERIS (Budesonide,Entocort) | 45 | Severe nausea | February 1, 2017 | |
UCERIS (Budesonide,Entocort) | 58 | Had to get off Lialda because of kidney damage. Started flaring so I tried Uceris for 4 days. Bad idea. Debilitating cramps every time I tried to eat and no change in the blood amount. Glad it worked for some. It contains lactose, which I am highly sensitive to, which many or may not have been the problem. | Asthma meds symbicort, albuterol, zyrtec. | January 10, 2017 |
UCERIS (Budesonide,Entocort) | 24 | Pressure on chest, blurry, restless, weird jittery feeling in body | January 4, 2017 | |
UCERIS (Budesonide,Entocort) | 52 | Hives. Would start in the evening under arms and over night spread all over torso. Mild headache | December 27, 2016 | |
UCERIS (Budesonide,Entocort) | 41 | increased appetite, weight gain, bloating, gassy, puffy face, hair growth on face | Liadla | December 14, 2016 |
UCERIS (Budesonide,Entocort) | 52 | Frequent urination - up every 2 hours at night. Had to stop after 2 months. Also caused my blood to get very 'thin'. | Warfarin, Balsalazide | December 11, 2016 |
UCERIS (Budesonide,Entocort) | 38 | Loose stools, itching on top of feet, swollen leg, liquid leaking from swollen leg, tired, mood swings | Ursodiol, azathioprine, bupropion, asacol hd | December 10, 2016 |
UCERIS (Budesonide,Entocort) | 41 | Been on this medication for a week now and I have noticed lesser blood on the stool, sometimes there is still blood though. I have also noticed itching of the skin mainly around my sides and underwear area (around the hips and lower stomach), red dots. I believe this is a side effect from the medication. My appetite is up and it also before my menstrual cycle, too. Which does not help. My face is puffy but not too bad yet. If this becomes worse with weight gain and puffiness, I will stop the medication. For this is why, i refuse to take prednisone. | Lialda | November 9, 2016 |
UCERIS (Budesonide,Entocort) | 31 | I have had a difficulty sleeping, gained weight/moon face, night sweats, increased appetite as well as skin sensitivity. | 6MP and Entyvio infusions | November 1, 2016 |
UCERIS (Budesonide,Entocort) | 53 | Uceris Rectal Foam Fever, sore throat, sneezing | Azathorprine, Apriso | October 31, 2016 |
UCERIS (Budesonide,Entocort) | 24 | This steroid literally put me in a flare. Bleeding more than ever. Bathroom 5 times a days. Cramping. Nausea | Lialda- was doing 2 tabs a day but now off steroid back up to 4. Iron supplements | October 23, 2016 |
UCERIS (Budesonide,Entocort) | 22 | Worked well for me except for the big mood swings as well - strange to describe - this set in after 3 months of usage and I chose to tapper off quick during month 4. | October 20, 2016 | |
UCERIS (Budesonide,Entocort) | 44 | None | None | September 15, 2016 |
UCERIS (Budesonide,Entocort) | 45 | Lethargic Headaches Weight gain Loss of focus | Lialda Pantoprozole Canada Corticosteroids | September 11, 2016 |
UCERIS (Budesonide,Entocort) | 31 | Uceris gave me horrible mood swings. I would be cool and collected at one moment and then the next moment I have the rage of the Hulk. I was so glad to get off it! | Canasa Remicade Apriso | September 9, 2016 |
UCERIS (Budesonide,Entocort) | 34 | Swollen Ankles, Anxiousness, Trouble Sleeping, Stomach Cramping, Diarrhea | Balsalazide, Humira | September 2, 2016 |
UCERIS (Budesonide,Entocort) | 55 | Weight gain, facial hair growth, diarrhea | Lialda | August 27, 2016 |
UCERIS (Budesonide,Entocort) | 61 | muscle cramps headache back ache | balsalazide | August 22, 2016 |
UCERIS (Budesonide,Entocort) | 56 | Headaches and swollen legs. | Advair(for asthma) and Nasacort(for sinus). | August 16, 2016 |
UCERIS (Budesonide,Entocort) | 31 | Nausea, headaches, dizziness, memory loss | Lialda, mercaptopurine | August 15, 2016 |
Xeljanz (Tofacitinib) | 68 | diarrhea | May 30, 2019 | |
Xeljanz (Tofacitinib) | 62 | None | Colazol Prednisone 10 mg | December 25, 2018 |
Xeljanz (Tofacitinib) | 45 | None | Toprol Hyzaar Prednisone tapered to 7.5 mg | November 28, 2018 |
