Medications Side Effects

47

Hair loss

November 8, 2017

37

Mouth sores

Predisone

November 1, 2017

6-MP

18

Pain under rib cage

No

July 2, 2017

6-MP

62

Have taken 6MP daily for the last 4 years. Receive Remicade Infusion every 8 weeks.
Wanted off the 6MP due to paternal grandfather having Lymphoma Cancer. With approval from Gastroenterologist we have stopped the 6MP cold turkey. Have been off the 6MP for about two weeks. Have developed stomachache, diarrhea, gassiness, fever and chills. Gastroenterologist feels its just a viral bug that I have caught and it's not a flare up. Have been down for 1 week. Hoping it all subsides soon as new job begins in 4 days.

On Remicade. Infusion is every 8 weeks.

March 23, 2017

6-MP

39

headache and high feverand muscular aches

February 5, 2017

6-MP

18

None

February 3, 2017

6-MP

25

sore throat, cough

remicade

January 6, 2017

6-MP

45

None

September 4, 2016

6-MP

64

Killed most of my red blood cells

Yes I was doing on Radioactive iodine for thyroid

August 28, 2016

6-MP

53

Skin cancer (non Melanoma)

No

August 22, 2016

6-MP

22

Chronic nausea, vomiting, weight loss, loss of appetite, thinning hair, chronic fatigue

sulfasalazine, wellbutrin, folic acid, multi vitamins

August 21, 2016

6-MP

36

Nausea and weight loss

August 19, 2016

6-MP

42

None. Had complete remission from UC while on it and bloods fine each time. Took a 16 week break as had been well for 2 years. UC returning so returned to the 6mp. Waiting for the medication to work again.

Pentassa

August 15, 2016

6-MP

42

6mp is both a chemotherapy and an immune-suppressant drug which means it shuts it down (as opposed to UC which means it is active all the time) and leaves you vulnerable to other ailments. I have been on 6mp since 2012 and have experienced the following:

1. I got Shingles within a month or so after starting. My treatment was a two hour I.V. bag of Famvir and within an hour or so, the itching and pain went away and by the next day, I was ok. The scarring however, left the area a light purple which is fading away.

2. Bronchitis: I had Bronchitis in 2014, 2015, and 2016, usually around the winter time (and while the winter is not the same in Hawaii as it is elsewhere), our winters are unpredictable; cold one day, rainy another, and humid later so that combined with just being tired a lot leaves me vulnerable for Bronchitis. Each time, I was treated with a daily (every single day) of I.V. treatment for two months with a steroid called dexmethasone. If you miss a day, you have to start over, but if you are loyal to the treatment, then within a week, your symptoms clear, the breathing is regular, and you just have to stay healthy. 2014 was the worst for me because I just had my first carpal tunnel surgery which took a month and a half to completely heal. After those two, I got a really bad case of nausea and had to go back for an I.V. treatment of Zofran which within an hour, I was able to eat and drink again.

3. Nausea: It varies from time to time and it happens. Sometimes I will get it when my stomach is aching and I still have to use the toilet. Other times, if its too hot or my temperature is up which Canada Dry really does help. The ginger ale provides a soothing solution to an upset stomach and nausea while the carbonation kills the taste of the acid reflux.

4. Fatigue: Colitis can make a person feel fatigued so it's not that much difference though with 6mp, you have days where just doing things in the morning like fixing your bed, showering, hygiene, brushing your teeth, and having breakfast can make you feel like you worked an 8-hour shift. I just found out I have sleep apnea so these symptoms kinda blend together.

5. And the last is bruising. Sometimes you find bruises on your knees, legs, back, or arms and not remember how you get it. It's not like you hit it on something but just happens.

I take Avorstatin for blood pressure, Lipitor for cholesterol, Wellbutrin for anxiety and depression (it is no surprise that with this physical craziness that it won't affect your mental health), and Delzicol.

August 13, 2016

6-MP

53

Rash from exposure to sun while on 6-MP

August 12, 2016

6-MP

23

Severe nausea even though I was taking anti-sickness meds at the same time. Leg pain. Lethargy and constantly felt tired. General health wasn't good for the entire time I was on it. I even had abnormal cells in my smear tests.

Prednisolone and domperidone

August 11, 2016

6-MP

18

My 14 yr old daughter took 6MP and very quickly developed high levels and was not feeling very well.
Dr added on Allipurnal, took for a short amount of time and we decided to take her off both Meds. She is back to Lialida 4 pills a day

July 27, 2016

6-MP

35

Hair fell out, always exhausted, blood counts went out of wack with higher dosage.

None

July 20, 2016

6-MP

41

Anemia, leukopenia, jaundice

Allopurinol

July 17, 2016

6-MP

57

Thinning hair. Other than the first week taking 6MP feeling a little headache there is no obvious side effects felt.

I also take 3- 800mg Asacol HD and 1mg folic acid tablets per-day

July 17, 2016

Apriso

22

Headaches, dizziness, light headed, left side pain, blurry vision, an nausea.

February 14, 2018

Apriso

60

I believe it is causing joint pain in my knees and neck.

Omezaprole
Avorstatin

October 12, 2017

Apriso

18

Stomach pain, nausea

Remicade

August 23, 2017

Apriso

18

Soreness and pain on left side under rib cage. Hurts more when stretching and taking deep breaths.

Uceris9mg

August 11, 2017

Apriso

22

Inflamed pancreas shown in blood work, very extreme nausea, vomiting, abdominal pain, cramps under the ribs, diahrrea

No

December 7, 2016

Apriso

28

Blood vessels in hands more apparent and do bruise more easily.

N/A

October 31, 2016

Apriso

28

Also, I posted already, but I have also noticed that my blood vessels seem more apparent (in my hands, etc) and I do bruise more easily.

N/A

October 31, 2016

Apriso

28

Tired feeling after taking; hair loss, although it may just be my body getting used to the medication; I feel like underneath my eyes I have more wrinkles or dark circles, which do not go away.

n/a

October 31, 2016

Apriso

18

Non-stop headache the 3 months I was taking it. Also made my hair fall out.

Mesalamine

October 23, 2016

Apriso

63

Tinnitus

Atenolol Armour Thyroid

October 23, 2016

Apriso

55

stomach acke

no other meds

September 29, 2016

Apriso

21

Unformed stools, more hair loss in my hair brush, fatigue, cramping, bloating, gas, bruise more easily, nausea-especially when bending over

daily probiotics

September 28, 2016

Apriso

39

Sneezing, swollen stomach

August 14, 2016

Asacol / Delzicol / Asacolon

43

weight gain

none

August 25, 2018

Asacol / Delzicol / Asacolon

22

fatigue

March 21, 2018

Asacol / Delzicol / Asacolon

53

Headache, depressed, red nose, acne

No

December 31, 2017

Asacol / Delzicol / Asacolon

32

Bloating

December 18, 2017

Asacol / Delzicol / Asacolon

57

Severe hearing loss. Don't know if it was the medication or the UC.

Steroids and flagyl

November 2, 2017

Asacol / Delzicol / Asacolon

18

fatigue

October 16, 2017

Asacol / Delzicol / Asacolon

42

Had like sharp acid type burning in my stomach & joint pains

Yes

October 12, 2017

Asacol / Delzicol / Asacolon

63

Severe muscular pain after stopping treatment.i felt it was not working for me so I went off it about two weeks ago and all my joints are in trouble. Salafalk enema may also b causing this. What the he'll can I take for this pain. With u colitis there is nothing that is safe.

Salafalk enema

October 4, 2017

Asacol / Delzicol / Asacolon

21

weight gain, bloating

September 30, 2017

Asacol / Delzicol / Asacolon

57

constipation

no

September 9, 2017

Asacol / Delzicol / Asacolon

70

vivid dreams

no

August 10, 2017

Asacol / Delzicol / Asacolon

78

dislocation of my jaw bone paralisis of the left side of my arms and legs

adcal3 cocodrymol and occassionally iron tablets

July 15, 2017

Asacol / Delzicol / Asacolon

27

knee pains, pimples, gas trouble

omnacartil tampered doses

April 1, 2017

Asacol / Delzicol / Asacolon

56

Pain in left lung/shoulder/arm. Tingling itchy skin.
Coughing

No

March 19, 2017

Asacol / Delzicol / Asacolon

46

Aches pains

no

March 12, 2017

Asacol / Delzicol / Asacolon

42

Dry skin, dry mouth, headaches, stomach aches, bad eyes sight, high blood pressure, high sugar

Tramadol

February 13, 2017

Asacol / Delzicol / Asacolon

34

Migraine
Nose pain
Swollen joints
Mood swings

Steroids on and off

February 4, 2017

Asacol / Delzicol / Asacolon

44

Terrible headaches at least twice weekly.

Rowasa

January 1, 2017

Asacol / Delzicol / Asacolon

47

Diarrhoea got much worse

October 25, 2016

Asacol / Delzicol / Asacolon

26

Back pain and neck acne

Prednizone

October 23, 2016

Asacol / Delzicol / Asacolon

59

Increased diarrhea, abdominal pain, nausea
Insurance will no longer cover Delzicol

Linzess, Well Fiber,

October 23, 2016

Asacol / Delzicol / Asacolon

53

Hair loss

September 29, 2016

Asacol / Delzicol / Asacolon

25

Pancreatitis

None

September 27, 2016

Asacol / Delzicol / Asacolon

28

None

September 27, 2016

Asacol / Delzicol / Asacolon

59

Abdominal pain and bloating, nausea, joint pain, headaches.

September 27, 2016

Asacol / Delzicol / Asacolon

18

Hair loss

September 26, 2016

Asacol / Delzicol / Asacolon

66

Raising my blood sugar levels

September 7, 2016

Asacol / Delzicol / Asacolon

73

Aching joints

No

September 4, 2016

Asacol / Delzicol / Asacolon

58

None

No

August 20, 2016

Asacol / Delzicol / Asacolon

61

Intense stomach pains and extreme diarrhea

No

August 16, 2016

Asacol / Delzicol / Asacolon

25

Felt bloated and experienced more pain from the flare up in my abdomen which went away as soon as I switched to Pentasa

August 15, 2016

Asacol / Delzicol / Asacolon

45

Reaction to hair dye

August 7, 2016

Asacol / Delzicol / Asacolon

75

Fever, flu-like symptoms, joint pain, esophagitis

July 30, 2016

Asacol / Delzicol / Asacolon

51

joint pain

July 30, 2016

Asacol / Delzicol / Asacolon

53

None

None

July 28, 2016

Asacol / Delzicol / Asacolon

39

None

Salofalk granules

Omega 4,6,9 supplement

Azapress

Calcium supplement

July 28, 2016

Asacol / Delzicol / Asacolon

27

Asacol - no side effects!

July 27, 2016

Asacol / Delzicol / Asacolon

33

None

Geodon

July 27, 2016

Asacol / Delzicol / Asacolon

49

Tiredness

No

July 27, 2016

Asacol / Delzicol / Asacolon

32

None

July 27, 2016

Asacol / Delzicol / Asacolon

37

Headache

July 27, 2016

Azathioprine (Imuran)

26

Sensitive Teeth
Nausea
Extreme Fatigue
Headaches
Rib Pain
Back Pain

Mesalazine, Infliximab, Prednisolone

November 2, 2018

Azathioprine (Imuran)

18

Nightmares

September 21, 2018

Azathioprine (Imuran)

45

Significant hair loss, stomach cramps, nausea, insomnia, body aches, dry red and itchy spots on face, generally feeling unwell. (stopped meds 3 months ago and my hair isn't filling back in). As I tapered off prednisone the reaction to Aza got worse and worse until I finally had to stop taking it.

prednisone for some of the time

September 7, 2018

Azathioprine (Imuran)

71

Sensitive teeth. Brittle dry hair. Joint pain

No

June 17, 2018

Azathioprine (Imuran)

52

none

asacol , imixaflab infusion

March 16, 2018

Azathioprine (Imuran)

48

rib pain

mesalamine, ezetimibe, symvastatin, lymecycline

February 25, 2018

Azathioprine (Imuran)

52

Burning up feeling, head was very hot but body cold, uncontrollable shivering, dizzy, achy...

Prednisone

November 12, 2017

Azathioprine (Imuran)

47

Faint voice in evening like if super tired
headaches
fever
More bronchites in winter

Pentesa

June 14, 2017

Azathioprine (Imuran)

50

severe joint aches, chills, fever

April 24, 2017

Azathioprine (Imuran)

54

Nausea, insomnia, body feels warm

Asacol

March 3, 2017

Azathioprine (Imuran)

18

dry mouth, dry eyes, dry mucous membranes

Eltroxin, Topzole, Sertra

February 28, 2017

Azathioprine (Imuran)

19

Tearful and mood swings

Had contraceptive injection

February 23, 2017

Azathioprine (Imuran)

32

Tiredness, insomnia, headaches and migraines,mood swings,feeling weak all the time but it has sorted my uc symptoms out for now,(touch wood)

November 12, 2016

Azathioprine (Imuran)

18

Insomnia

Mezavant

October 31, 2016

Azathioprine (Imuran)

32

Pharmacological pancytopenia (my bone marrow stopped working: no red cells, nothing); Hemoglobine dropped to 4.9! , two blood tranfussions after, in the hospital 3 weeks. Stop taking the pills, bone marrow started to work again.

Mesalamine

October 26, 2016

Azathioprine (Imuran)

48

Liver bloods (ALT's) went very high so had to discontinue with Azathioprine

Prednisolone - 40mg tapering down to 0 by 5mg each week

October 25, 2016

Azathioprine (Imuran)

62

Was prescribed Azathioprine, 200 mg a day a little over two months ago. I just recently started having dark urine, itchy skin, rashes. My doctor told me yesterday my liver enzymes have increased almost 10 fold. She took me off this med immediately.

Prednisone, Mesalamine

October 14, 2016

Azathioprine (Imuran)

28

I switched to Azathioprine after 2.5 months of Prednisone. The first 2 weeks were horrible because of severe nausea and stomach ache. I did a CBC a month later and there was a drop in both red and white blood cells plus hemoglobin. My period was also a week late that first month. It's been 2 months now and no nausea or stomach pain but I have not repeated the CBC yet. There is definitely noticeable hair loss and increase in split ends.

Iron supplement, Vitamin C, folic acid, vitamin D, Omega 3

October 12, 2016

Azathioprine (Imuran)

18

flu like symptoms, extreme exhaustion ,high temperature, swollen throat, dizziness

mezalazine

October 5, 2016

Azathioprine (Imuran)

30

After 1 week of Azoron tablet 100 MG, i got severe numbness in head and also headache....Now it is almost 3 months of having Azoron tablet....once in a 2 days headache on and off....but numbness still persists....

September 27, 2016

Azathioprine (Imuran)

35

Headaches
Nausea
Rash
Hair loss

Mezavant

September 26, 2016

Azathioprine (Imuran)

45

None so far, been taking for about 3 months, all UC symptoms gone with this medication! Although, I have to remain on the Lialda as well.

Lialda 4 per day. Esomeprozole

September 26, 2016

Azathioprine (Imuran)

18

This medication increased mood swings and emotional panic attacks.

I was also taking Humira and omeprazole

September 23, 2016

Azathioprine (Imuran)

59

Took this drug for three weeks and hair started breaking and falling out which was rather distressing. Then I had severe flu symptoms of fever, aching limbs and joints for about 4 days. Called my consultant who advised me to stop taking it immediately and to start Mercaptopurin. Ended up with pancreatitis! Have now been offered Humira but it sounds just as awful!

Pentasa suppositories and granular sachets.

September 15, 2016

Azathioprine (Imuran)

43

None - I'm far from being out of the woods so-to-speak but i have not experienced any side effects from when the get go.
I started azathioprine as a 100mg in the morning & then 75mg additional which I am on at night so...175mg a day for about a year. Weekly blood tests followed by monthly now limited to when I visit my specialist & never shown any signs of weirdness other than UC symptoms. They say this drug is slow burner.

Prednisone. Then...
Goliumab. Then & now...
Entyvio. (Feel better now than I have in 4 years)!

September 13, 2016

Azathioprine (Imuran)

55

None. After 22yrs & diagnoised crohns. IMPORTANT do regular bood tests & be good to your liver!

Lialda

September 9, 2016

Azathioprine (Imuran)

42

I started this medication with one tablet a day and increased to two after a few days, an hour after taking my first dose of two tablets, I got extremely sick. Vomiting like I never did before and a serious dose of the scuts. I was so sick that I asked my wife to stay with me as I thought I might choke on my own puke. Needless to say, I stopped that medication immediately. I tried it again a few years later and the same thing happened.

No

August 27, 2016

Azathioprine (Imuran)

31

Headaches

Remicade (7 weeks since last infusion), uceris every other day, Wellbutrin, armour.

August 27, 2016

Azathioprine (Imuran)

26

Immune system depressed enough to get C diff.

Apriso, Uceris

August 19, 2016

Azathioprine (Imuran)

54

Very tired for first 2 days after injection, lack of energy and flu like symptoms, chills, dragging myself to bed

some probiotics, glutamine

August 15, 2016

Azathioprine (Imuran)

61

Joint ache

Asacol

August 15, 2016

Azathioprine (Imuran)

26

Fatigue, chemical pee

August 12, 2016

Azathioprine (Imuran)

23

Extreme vomiting so I was only on it for a couple of days.

Prednisolone

August 11, 2016

Azathioprine (Imuran)

49

Nausea, vomiting, diarrhea, total lethagy/having to ly down and rest(1-2hrs), abdominal pain. These side effects only started after i'd been taking 125mg for 5mths (sept2015-jan2016) i experienced no side effects during first 5months.

prednisone / pentasa

August 9, 2016

Azathioprine (Imuran)

41

Pancreatitis

Lialda, 4 tablets,day

August 8, 2016

Azathioprine (Imuran)

77

First month was fine. Second month and I started to get flushed and then broke into a sweat an hour after taking the pills. Next came nausea and weakness. This lasted about 2 hours. Blood test second month showed high liver enzymes. Dr had me stop the med but stay on apricot and Canada suppositories. I have been in remission almost 3 months now, 3 weeks of that on only the apriso and canasa.

Apriso and canasa suppositories

August 8, 2016

Azathioprine (Imuran)

61

Vertigo
Nausea

Remicade
Prednisone

July 30, 2016

Azathioprine (Imuran)

50

Fever

July 29, 2016

Azathioprine (Imuran)

40

Fine at first (3-6 months), then became very lethargic and no skin colour (grey). Wasn't improving BMs then developed very bad skin rash. Consultant advised coming off them.

Pentasa

July 29, 2016

Azathioprine (Imuran)

39

Severe bleeding, flare up

Salofalk

July 28, 2016

Azathioprine (Imuran)

38

racing heartbeat

no

July 28, 2016

Azathioprine (Imuran)

53

Elevated liver enzymes

No

July 28, 2016

Azathioprine (Imuran)

24

Mediaction worked perfectly for me until a few months in when I started vomiting 4 hours after taking it- you could set your watch by it. I stopped the medication and saw my GP who did some liver function tests and they were off the charts, had to wait a few months for them to return to normal. Didn't try Aza again!

Probably prednisolone

July 27, 2016

Azathioprine (Imuran)

47

Nausea at first, subsided after only a month - otherwise - nothing

July 27, 2016

Azathioprine (Imuran)

29

Sensitive teeth.
Weight gain.
Bad mood swings.

Pentasa
Azathiaprine

July 27, 2016

Azathioprine (Imuran)

70

knee and leg soreness weakness

July 27, 2016

Azathioprine (Imuran)

51

According to my doctor, I metabolize the "good' part not as well as the "bad" part of the med so my white count goes crazy and he has to adjust the dosage.

Colazol

July 27, 2016

Azathioprine (Imuran)

20

Bradycardia
Preventricular contractions
Vomiting

Remicade

July 23, 2016

Azathioprine (Imuran)

53

Cancer.

Asacol, Bentyl, Tylenol #3, Rowasa.

July 22, 2016

Azathioprine (Imuran)

23

Was fine for the first 6 weeks but as the medication started to kick in (takes some time) I experienced severe nausea, vomitting and exhaustion. This would last for hours then finally go away. I changed the the time I would take it to see if that helped but the exact same thing happened. Had to stop taking it as the side effects were too much for me.

Salofalk granules 1.5mg

July 20, 2016

Azathioprine (Imuran)

32

Pancreatitis

July 20, 2016

Azathioprine (Imuran)

45

No side effects so far, low dosage, and not been a month yet, however all UC symptoms seem to be gone!

Lialda, 4 per day

July 17, 2016

Azathioprine (Imuran)

45

Hair thinning, felt tired the first month

Salofalk

July 17, 2016

Azathioprine (Imuran)

29

The nausea experienced with this drug was almost debilitating. Nothing helped ease the discomfort. It also gave me ridiculous heartburn. I'd never experienced heartburn before starting this drug. After 6 weeks, I ended up coming off of it as my liver numbers were really elevated. The nausea went away as did the heartburn.

Remicade and Prednisone

July 17, 2016

Canasa (Suppositories)

18

Trouble sleeping

October 5, 2018

Canasa (Suppositories)

58

red bumps on skin just near the scrotum with dark purple marks under them, itchy.

yes, alfuzosin

November 24, 2017

Canasa (Suppositories)

18

Tinnitus

October 12, 2017

Canasa (Suppositories)

18

headache

none

August 22, 2017

Canasa (Suppositories)

52

Black mucous rectally and vaginally

August 7, 2017

Canasa (Suppositories)

35

Hairloss, general fatigue - unable to fight off other infections well, reduced immune response, other medications don't clear system quickly, puffy, general malaise, skin rash on tops of hand and knuckles

Thyroid

June 6, 2017

Canasa (Suppositories)

64

Very strangely it causes nasal congestion. Otherwise no other side effects noted.

No other meds during the use of Canasa

August 16, 2016

Canasa (Suppositories)

54

turns blood and mucous black

no

July 27, 2016

Colazal

65

reduced sex drive

no

June 14, 2018

Colazal

64

Hair loss.

Lisinopril, Metformin, Canasa.

July 30, 2017

Colazal

58

Heart Palipitations

January 3, 2017

Colazal

35

Felt just about nothing and pretty sure the medication didn't do any thing for me.

prednisone

October 23, 2016

Colazal

35

Severe abdominal cramping, increased symptoms, diarrhea, nausea

September 27, 2016

Colazal

75

hair loss

no

August 25, 2016

Colazal

62

Bad headaches.

Nasacort and Advair.

August 24, 2016

Colazal

49

Joint pain
Fatigue
Sustained UC symptoms

July 27, 2016

Colazal

63

Cramping
Diarrhea

July 27, 2016

Entyvio (Vedolizumab)

55

joint pain runny nose

Azathorprine, Apriso

September 7, 2018

Entyvio (Vedolizumab)

67

rash on left side of my waist

June 7, 2018

Entyvio (Vedolizumab)

18

Very tired. Headache

March 7, 2018

Entyvio (Vedolizumab)

65

dry mouth

March 1, 2018

Entyvio (Vedolizumab)

43

sex drive

none

January 18, 2018

Entyvio (Vedolizumab)

34

Tight chest shortness of breath

October 5, 2017

Entyvio (Vedolizumab)

57

No sex drive

September 4, 2017

Entyvio (Vedolizumab)

49

sun burn

July 6, 2017

Entyvio (Vedolizumab)

18

Dry skin

No

June 26, 2017

Entyvio (Vedolizumab)

49

Heart flutters, pressure

Imuran
Lialda

March 28, 2017

Entyvio (Vedolizumab)

64

Fatigue

February 19, 2017

Entyvio (Vedolizumab)

64

Fatigue

February 19, 2017

Entyvio (Vedolizumab)

43

Joint pain in hands, wrist, ankle and elbow.

Delzicol

January 22, 2017

Entyvio (Vedolizumab)

50

joint pain, swelling, stiffness, weakness (hands, wrists, shoulders, knees, ankles). Pain is worse at night / through the night / first thing in the morning. The pain moves around, day to day.

Azathiaprine

January 16, 2017

Entyvio (Vedolizumab)

18

Thirst

December 8, 2016

Entyvio (Vedolizumab)

66

I think it is interfering with Pramipexole 1mg. and Zopiclone 5mg.

Apo- Ranitidine 150mg
Flecainide 100mg
Prolopa 50/12.5mg
Teva-modafinil 100mg
Act-Ropinirole .25mg
G0-Atenolol50mg

November 15, 2016

Entyvio (Vedolizumab)

54

Joint pain

November 13, 2016

Entyvio (Vedolizumab)

43

Joint pain in ankles knees elbows and wrists

Azathioprine
Asacol

November 12, 2016

Entyvio (Vedolizumab)

62

High blood pressure

Yes ,Uceris and norvasc

November 11, 2016

Entyvio (Vedolizumab)

59

Sinus infection

November 10, 2016

Entyvio (Vedolizumab)

26

Nausea

No

October 6, 2016

Entyvio (Vedolizumab)

23

Headaches, nausea, joint pain and extreme fatigue. A bit of depressive tendencies, but it's manageable.

Purinethol

September 26, 2016

Entyvio (Vedolizumab)

42

Nausea and itching 20 days after the infusion

Canasa, Delzicol

August 24, 2016

Entyvio (Vedolizumab)

55

Started Entyvio November 2014. Had more than usual upper respiratory infections and other infections during first 1.5 years. I was in full remission after one year, and have been doing great ever since. I do best when preparing my own whole food small meals -- fruits, mostly cooked/few raw vegetables, and fish and chicken (red meat is rough on me). It is a miracle drug.

No

August 22, 2016

Entyvio (Vedolizumab)

19

hair loss

prednisone

August 17, 2016

Entyvio (Vedolizumab)

43

Weight loss

None

August 14, 2016

Entyvio (Vedolizumab)

18

Dizziness during infusion, headache after

Weight gain/bloating

August 11, 2016

Entyvio (Vedolizumab)

72

Miracle drug so far; colonoscopy in November 2015 - severe ulcertive colitis.
Started entyvio January 2016, 5 treatments so far.
Sigmoidoscopy July 2016, now mild to moderate ulcertive colitis.

6mp, lialda

July 28, 2016

Entyvio (Vedolizumab)

69

Have had 11 doses over the last 1 1/2 years. Began working well between the 4th and 5th doses. Fatigue, joint and muscle pain, hot flashes and night sweats. Can live with all these side effects because it works very well. Been off Prednisone for a year, that's such a blessing.

Lialda 4 pills a day

July 28, 2016

Entyvio (Vedolizumab)

69

It's effective but creates fatigue. I also become nauseous after eating. I'm not sure if entyvio causes it or if it's because I'm now off the prednisone.

July 28, 2016

Entyvio (Vedolizumab)

54

Tiredness at first, but gotten used to it. No effects now. This stuff is magic.

Bystolic

July 28, 2016

Entyvio (Vedolizumab)

42

Fatigue!!!!!! Joint pain, headaches. Had 3 doses(loading dose) and have not really seen any change. Still having alot of abdominal cramping/pain, still loose, watery stool.

Methalamine, thyroid meds, xarelto

July 28, 2016

Humira (Adalimumab)

36

Tingling itchy dry scaling skin on face & scalp

Humira

October 31, 2018

Humira (Adalimumab)

45

The first 3 doses caused non-stop headache (sometimes severe), after 3rd dose the headache goes away in about 24 hrs. For 24-48 hours after an injection my muscles and joints ache like I have the flu (with fatigue), the following 24 hours its just stiffness/soreness then it mostly goes away. 24 hours before next dose I start to feel bad. I've had precursors to an attack for 2 months and it's just held it at bay... not better, not worse.

none

September 7, 2018

Humira (Adalimumab)

41

Dry patches of skin on face and ears.

Pentasa

September 7, 2018

Humira (Adalimumab)

35

Avascular Necrosis of knees and hip

September 7, 2018

Humira (Adalimumab)

74

No side effects

September 1, 2018

Humira (Adalimumab)

59

non itching rash

predisone

August 15, 2018

Humira (Adalimumab)

59

non itching rash

August 15, 2018

Humira (Adalimumab)

32

Redness and itching at the injection site.

Imuran

June 26, 2018

Humira (Adalimumab)

32

Pancreatitis after taking the second dose of Humira injection

None

November 16, 2017

Humira (Adalimumab)

54

Hair loss, weakness, extreme exhaustion

November 1, 2017

Humira (Adalimumab)

18

Extreme muscle aches and joint pain. I have chills and sweating. More pain than before I took the shot. Hurts to breathe. Severe headache, all this after first shot, taken two days ago.

None

September 2, 2017

Humira (Adalimumab)

53

Yeast infection , 2 bladder infections , prostate infection , skin rash , right side flank pain , tiredness .

None

July 11, 2017

Humira (Adalimumab)

46

Specific Anti-TNF psoriasis on lowers legs/foot/hands. Skin biopsies show that it is specifically caused by Humira. Doctors not worried and called it a "common side effect."

Synthroid for hypothyroid

July 6, 2017

Humira (Adalimumab)

36

Severe loss of appetite

March 29, 2017

Humira (Adalimumab)

37

water filled rash tiredness

March 26, 2017

Humira (Adalimumab)

33

Drug Induced Lupus

None

March 21, 2017

Humira (Adalimumab)

55

Only side affects are when stopping the medication

March 20, 2017

Humira (Adalimumab)

40

Dry patches on buttocks and upper legs. Fatigue.

Celexa

February 3, 2017

Humira (Adalimumab)

66

Chronic fatigue hair thinning, boils, insomnia

Losarten asprin

January 10, 2017

Humira (Adalimumab)

52

Weight gain

Asprin

December 13, 2016

Humira (Adalimumab)

52

Weight gain

December 13, 2016

Humira (Adalimumab)

30

Hair loss, aching and stiff joints, headaches.

December 3, 2016

Humira (Adalimumab)

28

Injection site reaction on stomach. Swelled and got itchy (size of an egg). Also experienced chest tightness and slight issues breathing.

Buspar, Celexa

December 3, 2016

Humira (Adalimumab)

68

Hair loss, bruising (could have been from the prior prednisone), extremely dry skin, itching (psoriasis?)

Balsalazide and Uceris. Other medications unrelated to UC; metformin (consequences of taking prednisone), losartan, naturethroid.

November 14, 2016

Humira (Adalimumab)

62

I experienced extreme abdominal pain, the worse diarhhea I've ever had, rapid weight loss and general all over aches and pain. It started almost as soon as I had my first injection and lasted for the entire two and a half months that I took the injections.

Apriso

October 26, 2016

Humira (Adalimumab)

47

Bone loss

Canasa

October 15, 2016

Humira (Adalimumab)

47

Extreme mucas production in upper airway. Thickened mucas in the throat that causes gagging

None

October 12, 2016

Humira (Adalimumab)

66

I get a big red rash on my thigh every time I give myself a shot and it itch for a week.

Yes calcium 600-bit d3 200 tablet,folic acid,azathioprine 50 mg tablet,alendronate sodium 70 mg tab and amlodipine best late 5 mg tab

October 3, 2016

Humira (Adalimumab)

66

I broke out all over body with a really bad hives rash so was very allergic to hu ira

Took aleve @ aleve pm just to get some rest at night because of the terrible itching rash I broke out in

September 26, 2016

Humira (Adalimumab)

87

Severe headaches, weakness, and joint pain.

August 31, 2016

Humira (Adalimumab)

44

Sinusitis, Joint Pain, Depression, Irritability.

Lialda

August 27, 2016

Humira (Adalimumab)

44

PLEASE WATCH ON YOUTUBE HUMIRA DID TO ME SIDE EFFECTS, THANKS

August 17, 2016

Humira (Adalimumab)

65

I had several infusions of Humira as my rheumatologist felt it could help my RA with psoriasis as well as my UC however I experienced extreme freezing and shivering during the infusions and eventually stopped them. Didn't have the freezing feeling except while infusing but did not notice any improvement in my condition either. Perhaps did not take it long enough for it to work.

No other meds.

August 15, 2016

Humira (Adalimumab)

35

Fatigue
First few injections- nausea and headache gets better 2 months later
Ive had a flare while on it still giving it a shot for abt 6 more weeks to decide on its effectiveness

Pentasa 4g
Cortisone 20 mg

August 15, 2016

Humira (Adalimumab)

22

Rash

Pentasa

August 14, 2016

Humira (Adalimumab)

53

My UC symptoms got better and then stopped improving and started going the other way - blood tests revealed my body was producing antibodies against it :(

6 MP

August 12, 2016

Humira (Adalimumab)

23

Muscle weakness, sinus inflammation, shortness of breath

August 12, 2016

Humira (Adalimumab)

23

Terrible sinus problems (extremely sore throat, congestion, headache, nasal polyp) everyday for a week after each injection, rash (psoriasis) on arms, shortness of breath

August 12, 2016

Humira (Adalimumab)

30

Extreme worsening of my atopic dermatitis. Especially eczema on the scalp, ears and face. Caused me to lose much of my hair because I would basically scratch it off.

August 12, 2016

Humira (Adalimumab)

72

I am getting pimples in my scalp. Could this be from the Humira

August 11, 2016

Humira (Adalimumab)

27

Sunburn like rash on hands/wrists

Extremely dry skin

August 11, 2016

Humira (Adalimumab)

22

pyroderma gangrenosm

August 9, 2016

Humira (Adalimumab)

35

30

Asacol
lialda
Canada
humira

August 9, 2016

Humira (Adalimumab)

65

Severe joint pain, a new shingles outbreak and ringing in my ears

None

August 8, 2016

Humira (Adalimumab)

51

After two months of injections ( with each time having a larger reaction) , I had a raised 4 in circle around Both sites. They were swollen and whelp looking. MD discontinued.

August 7, 2016

Humira (Adalimumab)

63

Nerve problems, 75% effective.

August 7, 2016

Humira (Adalimumab)

56

Joint pain ,swelling of ankles,hip and knee pains always on my left side,when first take my shot itching all over.

August 7, 2016

Humira (Adalimumab)

36

- swollen, VERY itchy, and hard lump at injection site. It would eventually turn into a large bruise a week later after swelling went down.
- rash on inside of arms. Had to see a dermatologist and go for skin cancer screening. Ended up having a spot removed from stomach and needed stitches. Results showed abnormal cells (pre-cancerous) so had to see a surgeon to do a deeper and wider incision to get the rest of the area around it.
-anemia and blood count not good
-flare up and developed c-difficile (lost 32 lbs)

colazal, 6mp, rowasa

August 5, 2016

Humira (Adalimumab)

77

Rectal bleeding. Been going on for over six weeks now. Lost over 45 pounds past six months. Went to Dr today. Increased Humira from 40 mg sq every two weeks to 80 mg.Totally exhausted!

Sulfasalazine. for over a year now.

July 28, 2016

Humira (Adalimumab)

52

Drug induced Lupus, systemic fungal infection, pneumonia and breast cancer!
Wish I had never taken Humira.

None

July 28, 2016

Humira (Adalimumab)

18

congestion and sometimes wheezing

July 27, 2016

Humira (Adalimumab)

72

Pimples on scalp

July 27, 2016

Humira (Adalimumab)

18

Multiple sclerosis

Asacol hd.

July 27, 2016

Humira (Adalimumab)

53

Sepsis

July 27, 2016

Humira (Adalimumab)

22

pyroderma gangranosm

July 24, 2016

Humira (Adalimumab)

28

Hair loss, joint pain, acne

No

July 21, 2016

Humira (Adalimumab)

32

swollen, itchy, hot bruised injection site
fatigue
achy joints particularly first few days after injection

prednisone
canasa

July 20, 2016

Humira (Adalimumab)

36

Weight gain, exhausted after taking the shot and the next day, sometimes bruise at injection site, slight itchy feeling at injection site for a short while after using the pen. Migraines first two months of using, went away once body got use to the drug. Typically have a bad day the day before I need to take the pen.

None

July 20, 2016

Humira (Adalimumab)

29

After taking the loading dose I started to experience skin problems that became severe. The skin on my hands, feet, and shins became very itchy and started to scale up and fall off. At times it became so bad that I started to have open cuts/wounds. Additionally, within two to three weeks of starting the humira, I started to have very awful joint pain in my shoulders and back.

No other meds at the time of Humira.

July 17, 2016

Lialda

34

Severe gas and bloating, increased bleeding at full dose

Low-dose naltrexone

July 10, 2018

Lialda

34

Sinusitis

Uceris

April 30, 2018

Lialda

66

Headaches,
Hair loss

High cholesterol. Meds
High bp. Meds

February 17, 2018

Lialda

33

severe migraines, intermittent nausea, fatigue, foul smelling gas

February 5, 2018

Lialda

79

Flu and colds

Insilin, eye drops for glacoma,

January 27, 2018

Lialda

70

Soreness under left rib cage

January 24, 2018

Lialda

28

Joint pain, nausea, acid reflux, headaches, tiredness, hair loss

Birth control pills, multi vitamin

January 11, 2018

Lialda

57

Difficulty sleeping and or staying asleep. Tiredness. Eye blurring. Runny nose.

Enema.

December 10, 2017

Lialda

29

Peripheral neuropathy, limb heaviness

Canasa

December 9, 2017

Lialda

52

Hair loss and tooth sensitivity

None

November 21, 2017

Lialda

70

None, but Balsalazide caused diarrhea.

November 16, 2017

Lialda

45

Hair loss, Headaches, breakthrough flares

Canasa

November 10, 2017

Lialda

51

Suffered three heart attacks, on three subsequent days ... while in the ICU recovering from the 2nd attack, the doctors figured-out that I took Lialda the same time every day, and the heart attacks were also occurring the same time every day.

Nexium for GERD

November 1, 2017

Lialda

50

liver thyroid

October 11, 2017

Lialda

18

Trouble sleeping, frequent urination

6-mp

September 3, 2017

Lialda

62

None so far. It's only 7 months.

Prednisone. Side effects: weight gain. Balsalazide, uceris, Remicade.

August 26, 2017

Lialda

40

Hair loss, weight gain, bloating, tight pressure over my heart while running

No

August 25, 2017

Lialda

18

Skunk

July 22, 2017

Lialda

25

Heart palpitations

July 20, 2017

Lialda

24

Extreme fatigue
Nausea

Asacol
Birth control

June 7, 2017

Lialda

54

short of breath

no

May 14, 2017

Lialda

64

Lose bowels, some headaches, light headed, tastes have changed somewhat.

BP medication low dose

April 10, 2017

Lialda

38

Acidity ion stomach, right kidney pain

Canasa

April 7, 2017

Lialda

44

sleepy, dizzy

February 21, 2017

Lialda

63

Severe joint pain in hips, shoulders and knees, stomach pain, diarrhea, chest pains, scalp sores,dry cough, sinusitis, headache, dizziness, dry eye, eye pain, increased pressure in eyes (pre-glacoma), tinnitus.

(Sometimes) prednisolone,
omeprezole, rowasa enema

February 16, 2017

Lialda

18

None

February 3, 2017

Lialda

28

Joint, muscle pain, flares up in my eyes , chest pain and rib pains. And sometimes but not often hard time getting out of bed. Diarrhea, runny nose bleeding nose. Light sensitivity, arthritis like pains

Valtrex, pain meds

January 31, 2017

Lialda

53

Hives every evening and at night. Mild headaches and sleepy all the time.

None associated

December 27, 2016

Lialda

49

Severe chest pain and tightness, shortness of breath, dry cough after 2.5 weeks. MD said I got pericarditis as a s/e of Lialda. Also experienced low back pain and fatigue.

Canasa
(Advised to discontinue as well as Liada)

December 17, 2016

Lialda

18

grey teeth

insulin

December 6, 2016

Lialda

52

Bad breath ( like skunk spray ), vomiting, vaginal smell (again like skunk)

November 30, 2016

Lialda

64

None

November 12, 2016

Lialda

71

High blood pressure

November 12, 2016

Lialda

65

no sleep

October 23, 2016

Lialda

46

Joint pain. It makes me feel old and sore!

October 23, 2016

Lialda

54

When taken shortly after head for toilet.

Uceris

October 23, 2016

Lialda

25

Diarrea, nausea, stomach pains, runny/stuffy nose. Green in corner of eyes, dry mouth, sleep problems. Tired, achey, headaches

Prednisone

October 21, 2016

Lialda

46

Flu like symptom, runny nose

October 12, 2016

Lialda

22

vagina odor

October 6, 2016

Lialda

37

After 2 wks on Lialda I started experiencing shortness of breath while exercising and after 2.5wks I ended up in the hospital due to severe chest pain and inability to breath properly. I was checked for all clots in the chest, all sorts of heart exams, the works and was determined it was a serious reaction to Lialda. I've stopped taking it for 4 days and the pain is starting to subside and my breathing is improving.

Remicade, methotrexate, salsalate for 20 yrs

October 5, 2016

Lialda

50

bad taste in mouth

October 1, 2016

Lialda

18

bruising

September 28, 2016

Lialda

49

Really haven't experienced any

September 26, 2016

Lialda

45

Aching legs, sharp pain under rib cage, fatigue. I have quit and resumed this medication to make sure, and always these side effects as soon as I restart them. However, it seems I need them to stay in remission.

Imuran, esomeprozole, iron

September 26, 2016

Lialda

55

I have occasional bloating, hair thinning, and mainly my lower back hurts pretty much all the time.

Medroxyprogesterone, estradiol, pantoprazole, and bupropion. Also 2 Lialda a day.

September 10, 2016

Lialda

55

Bloating

Azathioprine, calcium citrate

September 9, 2016

Lialda

32

I developed severe hives and swelling of the face and throat

Bentyl
Zofran
Prilosec

September 3, 2016

Lialda

44

Weight Gain

Humira

August 27, 2016

Lialda

59

Flu like symptoms. Body Aches and nausea.

August 27, 2016

Lialda

36

difficulty urinating, very bad gas (sometimes uncontrollable), hair loss (random patches).

too many to list, but all other medications stayed the same from several months before to about 6-7 months after getting diagnosed with UC/ getting prescribed Lialda.

August 23, 2016

Lialda

61

Stomach pain immediately after taking the medication which then subsides over time.

Prestiq and Xanax

August 22, 2016

Lialda

24

Dry mouth and hair loss

Glycopyrrolate

August 17, 2016

Lialda

54

Headaches, Dry mouth, Foul smell stools,

B complex, Calcium, Zrytec, Singular, VSL probiotics, Mutivitamins,

August 15, 2016

Lialda

66

it seems I always have to take a larger dose than when I take Lialda, another anri-inflamatory

August 15, 2016

Lialda

65

hair thinning

ativan

August 13, 2016

Lialda

71

IBS

August 12, 2016

Lialda

52

I have been on Lialda for 9 years for my UC the medication has caused constrictive bronchiolitis its rare lung disease. I have also taken Remicaide, cimza, and Humeria, and more. I would be interested if anyone else has this disease.

August 11, 2016

Lialda

47

Sharp stabbing shoulder pain, side pain like an elephant was sitting on my rib area. Also made diarrhea worse.

Prednisone, uceris

August 11, 2016

Lialda

27

Intolerance due to severe headaches

Mesalamine enemas nightly

August 11, 2016

Lialda

69

Some nausea, but if I make sure I have eaten before taking Lialda, I do not notice any side effects.

No other meds.

August 11, 2016

Lialda

50

Low back pain, joint pain, tendinitis and frozen shoulder

No other meds at the same time

August 11, 2016

Lialda

33

gave me diarrhea and upset my stomach. Turned my stool Orange

Humira

August 11, 2016

Lialda

20

Significant hair loss.

Azathioprine, Remicade

August 11, 2016

Mesalamine

28

Increase in the frequency of migraine / headaches.

October 6, 2018

Mesalamine

29

Tingling numb feeling

No

September 29, 2018

Mesalamine

60

Fatigue

May 14, 2018

Mesalamine

18

Burning in throat

Vitamin d

March 13, 2018

Mesalamine

54

Pericarditis. Developed diffuse chest pain over first few days, followed by an intense non-stop heart pain overnight. Woke me from my sleep and did not go away -- felt like a heart attack. Primary doctor sent me to ER next morning -- heart all clear. Later that day my UC doctor said that pericarditis does occur in some people. I stopped the meds and the severe heart/chest pain subsided -- but it has been 6 days and I still have the more diffuse chest pain on and off, with headaches on and off.

None

December 19, 2017

Mesalamine

33

chest pain

iron

December 18, 2017

Mesalamine

65

hyper

no

November 14, 2017

Mesalamine

32

Green diarrhea. Cramping. Chills and fever. Yuck.

November 13, 2017

Mesalamine

58

Short of breath abdominal pains

Omeprazol prednisoline symbicort fexofenadine ranitidine montelucast

November 13, 2017

Mesalamine

64

Big red mark on my face

Prednisolone

November 10, 2017

Mesalamine

38

Itching skin all over.

Dicyclomine
Uceris
Vitamin D3
Lialda

November 1, 2017

Mesalamine

63

fatigue. pain in back

No

September 23, 2017

Mesalamine

54

brownish vaginal discharge

September 14, 2017

Mesalamine

18

Severe immune reaction to pentasa (which I had been taking for 5 years without previuosl ill effects) resulting in: muscle pain, joint pain, muscle weakness, hair loss, extreme fatigue and eventually skin lesions. This went on gradually worsening for 3 months until somebody realised it was a reaction to mesalazine. Symptoms started to clear within 24 hours of stopping taking it.

No

August 23, 2017

Mesalamine

60

Hair Loss, Decreased Libido

No

February 23, 2017

Mesalamine

77

Difficulty in expelling gas as it is preceded by mucous or feacees. Have to rush to washroom, or else?

February 13, 2017

Mesalamine

28

None

Welchol

January 12, 2017

Mesalamine

61

hair loss

November 15, 2016

Mesalamine

39

All symptoms of UC flared up. Cramping, bleeding, hypersensitivity of gag reflex. I was told I was "translucent". Was on it for a couple of weeks until my doctor took me off it and put me back on Prednisone. Synmptoms subsided in a matter of hours. Gastroenterologist thinks it may have been an allergic reaction. Was put on Colazide (Balzalaside). No side effects and have been on this for two and a half years.

October 24, 2016

Mesalamine

62

Four 1.2gm pills a day, bloating and gas at first, some cramping.

Prednisone, Azathioprine

October 14, 2016

Mesalamine

18

Hair loss, weight gain, and headaches

September 21, 2016

Mesalamine

18

Weight gain, dry cracked mouth

September 21, 2016

Mesalamine

37

Been on it for 3 years, get extremely fatigued, muscle weakness, and joint aches. I am in remission, but I had to give up gluten and dairy also. I struggle to exercise and hold onto excess weight.

September 19, 2016

Mesalamine

34

After 6 months or so on Mesalamine, my bms got weird, I started having trouble with a yeast-fungus-type infection that has only gotten worse since (6 years) to the point where I can't eat anything. Definitely not UC.

Prednisone off and on.

August 23, 2016

Mesalamine

30

Kidney abscess, severe renal failure

Prednisone

August 23, 2016

Mesalamine

18

Headaches everyday, ranging from minor to severe. Thinning hair/hair loss.

August 12, 2016

Mesalamine

20

Caused my bone marrow to stop producing red blood cells.

No

August 11, 2016

Mesalamine

48

Hair loss

Prednisone for 3 months.

August 8, 2016

Mesalamine

24

Rapid heart beat
Hair loss
Anxiety
Fatigue
Cramping
Joint pain
Rash
Nausea

Donnatal anti cramping
Anti nausea

August 7, 2016

Mesalamine

31

Diarrhea, blood, rectal pain, urgency worse

Hydrocortisone enemas

August 7, 2016

Mesalamine

28

Pericarditis

August 7, 2016

Mesalamine

52

elevated liver enzymes

Salofalk

August 3, 2016

Mesalamine

65

constipation

July 29, 2016

Mesalamine

18

Diaorrhea

July 29, 2016

Mesalamine

74

bloody diarrhea

July 28, 2016

Mesalamine

47

Itchiness on the upper part of my body, like food inthoxication

no

July 28, 2016

Mesalamine

18

Skin

Lialda

July 28, 2016

Mesalamine

18

Neck pain

No

July 27, 2016

Mesalamine

30

Mild headaches from time to time, otherwise no side-effects.

Multivitamin and probiotic

July 27, 2016

Mesalamine

58

Loose unformed stools, gas, hair loss, water retention.

Amoldipine, Trazodone, Ativan, Multi-vitamins,

July 27, 2016

Mesalamine

18

Hair thinned on head and fell out completely on my arms and legs, skin lesions. My body felt dirty on the inside and I could smell the meds when I would sweat. Discontinued and my hair is back. Managing colitis with diet and stress reduction. Also, switched my HIV meds and discontinued Hep.B meds.

Hepsera, Baraclude, Lexiva, Epivir and Norvir.

July 27, 2016

Mesalamine

48

None

Prednisone

July 27, 2016

Mesalamine

22

Hair loss, joint pain

July 20, 2016

36

Mass on side of head and chin

Amitriptylin

March 30, 2017

Mezavant

69

High red blood cell count

October 27, 2018

Mezavant

25

Acne on scalp

September 6, 2018

Mezavant

57

excess urine

June 4, 2018

Mezavant

60

weight gain

coversyl

May 20, 2018

Mezavant

61

weight gain

Coversyl

May 20, 2018

Mezavant

39

none

none

January 23, 2018

Mezavant

48

Headache

No

November 16, 2017

Mezavant

48

Raised blood pressure

Beta blockers

November 13, 2017

Mezavant

18

Muscle weakness

no

September 9, 2017

Mezavant

47

Tired sleepy

August 10, 2017

Mezavant

37

Hair loss

Inhalers and antihistamines

August 5, 2017

Mezavant

28

Erectile Dysfunction at 4 tablets a day. Lesser effects at 2 a day.

June 15, 2017

Mezavant

34

Hives

May 11, 2017

Mezavant

46

After 3 weeks with major side effect suffered extremely severe large joint pain requiring hospitalisation for 4 days. Immediately taken off mezavant

50mg prednisone

May 10, 2017

Mezavant

38

Stomach ache

March 20, 2017

Mezavant

19

acne

March 15, 2017

Mezavant

49

Heart palpitations

December 19, 2016

Pentasa

67

cough flem

October 2, 2018

Pentasa

67

cough

no

October 2, 2018

Pentasa

51

hair loss

August 30, 2018

Pentasa

49

Ear sounds

Prednisolone
Omeprazole

February 22, 2018

Pentasa

39

Headaches
Stomach cramps
Diahrreah

Levothyroxine

October 24, 2017

Pentasa

44

Joint pains if I miss my medication for a couple of days

October 12, 2017

Pentasa

47

Acne
hair became thinner

August 10, 2017

Pentasa

58

Reduction in platelet count

No

July 31, 2017

Pentasa

47

Acne

No

June 8, 2017

Pentasa

27

Shortness of breath

May 22, 2017

Pentasa

20

Mucus, skin rashes

April 26, 2017

Pentasa

39

Exacerbated colitis. Increased diarrhea and bleeding, severe rectal pain. Side effects of the drug were worse than the colitis.

Prednisolone

January 2, 2017

Pentasa

59

Muscle cramping in leg and cramping in bowel, I have reduce the symptoms of this by taking magnesium supplements.

Idaprex combi

November 12, 2016

Pentasa

47

Bad abdominal pain, diarrhoea

October 25, 2016

Pentasa

58

None

Asacol

August 22, 2016

Pentasa

26

None

August 15, 2016

Pentasa

60

Indigestion

No

August 9, 2016

Pentasa

23

Tiredness

August 8, 2016

Pentasa

41

My hair thinned noticeably. I was taking 4, 500mg tablets twice a day. It grew back eventually on stopping Pentasa.

No

August 7, 2016

Pentasa

52

On it for two now getting sore joints

No

August 7, 2016

Pentasa

38

Yellow skin.

Prednisone. Agitation, Trouble sleeping, hyperactive, Trouble focusing

July 28, 2016

Pentasa

48

Eye pain & chest pain when breathing. Never had either of them before the medication and they both disappeared when I stopped taking it.

None

July 24, 2016

Prednisone

18

Loss of libido

October 16, 2018

Prednisone

18

elevated heart rate

October 12, 2018

Prednisone

39

Central serous retinopathy - is an eye disease which causes visual impairment, often temporary, usually in one eye.[1][2] When the disorder is active it is characterized by leakage of fluid under the retina that has a propensity to accumulate under the central macula. This results in blurred or distorted vision (metamorphopsia). A blurred or gray spot in the central visual field is common when the retina is detached. Reduced visual acuity may persist after the fluid has disappeared = NOT FUN!

September 7, 2018

Prednisone

23

Extreme swelling , easily bruising

Labetalol
Tylenol 3

May 25, 2018

Prednisone

30

Shaking fever

April 27, 2018

Prednisone

33

anxious,
paranoid,
weight gain,
moon face

March 12, 2018

Prednisone

81

Weak legs, atrial fibrillation, excess desire to eat, loss of concentration

Lialda

March 4, 2018

Prednisone

18

Moon Face
Increase in hair growth on stomach
Increase in appetite
Fatigue

azathioprine
lansoprazole

February 19, 2018

Prednisone

27

Sleeplessness
Feeling Agro
Had to take sleeping pill

Sulfasalazine for sure.
Rowasa? Not sure it was a long time ago... but have used it, it was difficult to use

February 6, 2018

Prednisone

18

Excessive acne

Mesalamine
Folivel

November 18, 2017

Prednisone

70

Made me crazy, hyperactive, gain weight. Got a stress fracture in my foot
from walking off the excess energy.

Lialda, 6mp, Canasa

November 16, 2017

Prednisone

39

Oedema and skin rashes

salazopirine

August 2, 2017

Prednisone

69

bruising

lialda and loperamide

July 25, 2017

Prednisone

53

shortness of breath , anxiety , mood swings , insomnia .

None

July 11, 2017

Prednisone

55

Osteopenia

Delzicol
Mesalamine enemas
Steroid enemas
Remicade
6MP

July 2, 2017

Prednisone

55

Diabetes (type2), osteoporosis , beginning of cataracts, insomnia, shakiness, heartburn/acid reflux, palpitations, rapid heart beat

July 1, 2017

Prednisone

59

muscle pain

lialda

July 1, 2017

Prednisone

47

Sensitive teeth, weight gain, headache

Lialda, Effexor 75 mg

May 22, 2017

Prednisone

46

Insomnia
Moon face
Weight gain
Blurry vision
Sore throat
Skin tags
Moody

Colazide

May 10, 2017

Prednisone

43

Shortness of breath
Vaginal mucas/blood
Bloating
Tired

Spark
Pro biotic

April 18, 2017

Prednisone

55

Hair thinning.

December 19, 2016

Prednisone

18

Hair loss/thinning.

December 19, 2016

Prednisone

63

Sleeplessness, a bit hyper but it makes feel great. Tapering off right now, was up to 40mg a day for two weeks.

Lialda, Omeprazole

December 11, 2016

Prednisone

64

Serious spike in eye pressure related to Glaucoma.

November 13, 2016

Prednisone

28

Ah, where do I start. I just saw my doctor Monday who told me "you basically have all the aide effects you could have, to their extreme." Awesome.

-sleeplessness
-weight gain (I have what's called centripetal obesity)
-increased appetite
-muscle weakness
-lower back pain
-irregular menstrual cyclet
-facial hair growth (I now use facial nair for women)
-anxiety/depression
-steroid induced bipolar
-crying all the time
-talking a lot
-impulsivity
-extreme dry skin
-thrush
-easily over stimulated in large or loud groups
-OCD
-decrease in sex drive
-wounds heal less quickly

That's all I can think of for now!

Delzicol 400mg

October 23, 2016

Prednisone

19

Severe stretch marks all over my arms, back and thighs. Don't know how to get over it

Immuran, mesalazine.

October 23, 2016

Prednisone

62

Was prescribed 60 mg a day about four months ago. Most notable side affect was nervousness, shaky hands, weakness and tingling in my extremities. Also had anxiety, insomnia. Finally being weened off this med. I'm currently taking 15 mg a day now.

Azathioprine, Mesalamine

October 14, 2016

Prednisone

30

Sweating, specially night sweats, weight loss, hair changed textured but became nicer, hunger all the time, hard to sleep. Puts me in a great mood.

September 18, 2016

Prednisone

73

Face swelling up,mood change,bad side effects trying to get off ofprednisone

Remacide

September 15, 2016

Prednisone

44

6th day after stopping uceris and starting prednisone....some stomach pains are back, diarrhea more than I had it on the 7th week of uceris.
Hungrier but could be in my head. Bloated pretty bad. No other side effects so far.

No other

September 15, 2016

Prednisone

40

Daily: Sweating, puffy skin, thirst, hungar, weight gain, adrenal rush, ringing ears, unclear decisions. LONG TERM: (3months doses, prescribed every 18months for Chrons flare ups; total usage after 7years, bone scan revealed significant bone loss!

Azathioprine, asacol then, pentasa, then colazol, then lialda

September 9, 2016

Prednisone

58

Insomnia, heart burn & reflux, leg weakness, feeling low, strangely weight loss, agitation, severe tiredness in the afternoons, palpitations

Pentasa,

September 4, 2016

Prednisone

18

Moon face,weight gain,weakened bones(deficiency of calcium),Candida,mood swings,heart burn,mouth ulcer .etc

Pentasa,imuran

September 2, 2016

Prednisone

29

Acne, depression, bone pain

Entyvio, tacrolimus, dificid, citalopram

August 27, 2016

Prednisone

55

Leg weakness
Hair loss
Foggy head
Moody

August 24, 2016

Prednisone

18

hyperactivity

remicade

August 16, 2016

Prednisone

25

Weight gain

August 15, 2016

Prednisone

58

Weight gain, insomnia, irritability, acne, hot flushes.

Pentasa

August 12, 2016

Prednisone

49

shakes

August 10, 2016

Prednisone

22

lack of sleep Acne Moon face

Asacol Azathioprine

August 9, 2016

Prednisone

18

Bloating
Mood swings
Depression
Weight gain / always craving for food
pimples

Imuran
Mesalazine

August 8, 2016

Prednisone

36

I was able to finally taper off of prednisone for the first time in two years. I am currently experiencing severe joint and muscle pain in most of my body. So far my stomach has been good but these pains keep me up at night.

Lialda
Azathioprine
Entyvio Infusions

August 8, 2016

Prednisone

29

Acne, severe thirst, issues with my blood sugar really high around 10-15, couldn't stop eating, put on 35lbs in 4 months.

Imurian

August 8, 2016

Prednisone

18

Muscle pain in quad directly above the knee in both legs, caused pain when bending and a constand dull ache.

Swollen ankles midday making it painful and difficult to walk.

Swollen left thumb.

Mezevant

August 8, 2016

Prednisone

18

agression

August 7, 2016

Prednisone

63

Feeling dizzy when turning quickly. Nauseous when driving.

Asacol

August 7, 2016

Prednisone

53

Massive weight gain

Asacol

August 7, 2016

Prednisone

41

Moon face
Trunk fat gain
Insomnia (now chronic insomnia for the last 3 years in UC remission - not sure if triggered by pred or UC)
Hair loss upon tapering

Mesalazine (Mezavant)

August 7, 2016

Prednisone

53

Hair loss, 10 lb weight gain, overall feeling of bloating.

was not taking another med at the same time

August 6, 2016

Prednisone

18

Hair loss

Pentasa, imuran

August 6, 2016

Prednisone

29

Increased frequency and diarrhea. Severe insomnia, depression and anxiety.

Lialda
Imuran

August 5, 2016

Prednisone

29

Hair loss, weight gain, swollen body, swollen face, moon face, joint aches, increased appetite, increased heart rate

Lialda

July 28, 2016

Prednisone

24

i got way bigger. unbearable joint pain that curled my spine and prevented me from walking. insatiable appetite. mood swings

July 28, 2016

Prednisone

37

gritty teeth, joint pain, gritty teeth, shutting down my emotions, anxiety, no energy at 3pm, awake at 3am, and my favorite - moonface

Lialda, which was insufficient to maintain remission

Today, 6 years later - no meds, in remission

July 28, 2016

Prednisone

30

Weight gain. Blurry vision.

Canasa. Delzicol.

July 27, 2016

Prednisone

35

Acne, moon face, weight gain, mood swings, insomnia, osteopenia.

Asocial, immuran

July 27, 2016

Prednisone

18

Heart hurts when breathing in

July 27, 2016

Prednisone

48

Severe heartburn @40mg
Staph infection @40mg
Insomnia

Colazol
Antibiotics

July 27, 2016

Prednisone

21

Severe mood swings, achiness, headaches

Remicade

July 27, 2016

Prednisone

66

High blood pressure cannot sleep made feel strange no sleep had to go on a sleeping pill. Had to take water pill to bring down pressure ended up in hospital 3 days the water pill took made my sodium level go way below normal .....Abd the sad part was on Predisone 30 days did not do a thing for my UC....

No

July 27, 2016

Prednisone

69

While on a 60 mg (7 days for each 60 thru 10) Prednisone taper for 6 weeks, I experienced inability to sleep through the night; jitters; weakness in my legs; weakness in the muscles in my thighs. My legs felt very heavy and I found it hard to walk up stairs in my house. Around the 4th week of taking the Prednisone, I would need a cane to help support myself. This was the second time on the Prednisone. I was also on it last year for 6 weeks and in addition to the above side effects, I also developed a soreness in my right ankle and then it appeared swollen and tender to the touch. Went for an ultrasound and found out I had superficial phlebitis in that area. I don't know if it was directly related to the Prednisone, but I didn't have it prior to taking this medication. One good thing is that once done with the Prednisone, the strength comes back in the legs. I also took Vitamin D3 and Calcium while on the Prednisone, and also ate more bananas for Potassium.

I was also taking my diuretic for BP, and the second time on the Prednisone, I was started on Lialda for my UC.

July 27, 2016

Prednisone

28

Moon-face, insomnia, hunger, hyper, osteopenia and osteoporosis later on - 59 yrs. old now. Did nothing for my U/C symptoms and have not taken any since.

Dipentum

July 27, 2016

Prednisone

73

red spots weakness in lower legs

July 27, 2016

Prednisone

67

Hair loss after stopping prednisone

July 27, 2016

Prednisone

41

Every course of steroids gives me rosacea which is a flushed red face and spots (after food). You can get rid with oral antibiotics but this causes colitis to flare. You need to take the topical cream for 8 weeks to clear.

Asacol.

July 27, 2016

Prednisone

18

Leg pain thigh

July 27, 2016

Prednisone

60

Catteracs within 4 weeks of taking a high dose

July 27, 2016

Prednisone

48

Anxiety, depression, major mood swings

Lialda, Azathioprine

July 27, 2016

Prednisone

28

Weight gain, hair loss, acne, swollen face, thinning of skin, dry skin patches, fatigue, high heart rate , night sweats, insomnia, weakness

None

July 21, 2016

Prednisone

22

Moon face that lasted months, severe weight gain due to always being hungry, night sweats, mood swings and trouble sleeping

Salofalk granules 1.5mg

July 20, 2016

Prednisone

30

Weight gain, moon face, insomnia, easy to bruise, thin skin resulting in stretch marks, osteopenia and osteoporosis, hip fracture.

Asacol, colazol, uceris, Humira

July 20, 2016

Prednisone

25

Extreme night sweats, joint/ knee pain, tremors in my hands, insomnia, mood swings

Lialda

July 20, 2016

Prednisone

27

Rapid heart rate, weight gain, trouble sleeping, chipmunk cheeks, acne, anxiety from knowing all the bad things that can happen with long term steroid use!

I've had to combine Prednisone with different meds. I am now combining them with Humira. In the past I have combined them with mesalamine. I've also combined them with Canasa. I've also combined them with sulfas. Doesn't matter what I combine them with, they still produce the same side-effects.

July 20, 2016

Prednisone

31

-Reduced sleep
-Dry skin on hands to the point of cracking
-Moon face

Lialda (started 1 month into Pred)

July 19, 2016

Prednisone

26

-sensitive teeth from anything slightly cold
-tongue sores and pain
-insomnia
-weight gain
-things smelled and tasted different....almost metallic
-severe hair loss

Remicade and Imuran

July 17, 2016

Prednisone

41

Osteopenia

6mp

July 17, 2016

Prednisone

42

Extreme sensitivity to cold on my teeth. I had to drink everything through a straw it was so bad. When I asked my GI he said it wasn't the Prednisone but my dentist thought it could be. Now that I see other people have had this side effect, I know it's for real. Plus a few weeks after I finished the medication the sensitivity disappeared.

July 17, 2016

Prednisone

26

Weight gain
Hunger
Insomnia

Mezavant

July 17, 2016

Prednisone

33

Extreme agitation, anxiety, headaches and red face at 40mg dose. Increased appetite.

Octasa

July 17, 2016

Prednisone

23

Not able to sleep, pain in knees, alot of hunger, mood swings

July 17, 2016

Prednisone

37

Prednisone: insomnia at high doses, joint pain in fingers when weaning off.

Salofalk (mesalamine): no side effects so far.

No

July 17, 2016

Prednisone

28

Shortly after taking a high dose of prednisone, I began to feel sensitivity in my teeth, that only after inquiring with my dentist did I learn is something that many other patients have experienced.

At the time I was taking a 5-ASA medication called colazal

July 17, 2016

Remicade (Infliximab)

64

photo sensitivity

September 7, 2018

Remicade (Infliximab)

58

Extreme fatigue, muscle and joint pain. I stopped taking it two months ago after 4 infusions. The side effects are still with me, but starting to wear off. In the beginning I slept more than I was awake, I walked at the pace of a 90-year-old man and was extremely weak with no strength. Fortunately I have now found a doctor who is looking for causes (so far she has determined I am gluten sensitive) and not just throwing drugs at it

Mesalamine tablets (1.2 gms/4 per day) and one Canasa suppository daily, both of which I have been on since I was diagnosed in 2005. I don't have any side effects from these drugs, but I'm also not sure they've done any good. I go back to my new doc for test results on 9/12 (she did a colonoscopy and an endoscopy a couple weeks ago), and she has hinted she will take me off those drugs

September 7, 2018

Remicade (Infliximab)

19

Worsening cystic acne on cheeks and forehead. Skin was clear before starting Remicaide two years ago

Vitamin D3 and fish oil

June 17, 2018

Remicade (Infliximab)

47

I always used to feel hot, since on Remicade I have constantly cold hand and feet.... Have sometimes pains in my hands and feet (joint pain)

Meds: Asacol and Azapress. Supplements: Vitamin D3, C, Calcium, Magnesium, Curcumin, Fish oils, Vitamin B complex, Colostrum, Zinc, CBD tablets and THC oil

May 15, 2018

Remicade (Infliximab)

39

Unwanted Weight gain, almost 1/2 lb a day, while eating incredibly healthy and only about 1,200 calories a day- on SCD diet

Lialda, but I have been taking that for over a year with zero weight gain

March 18, 2018

Remicade (Infliximab)

45

Have had loading doses number 1 and 2 so only my first month. After week one my stool went from unformed average 2 a day to difficult to pass, lumpy, and hard! Through intro of more insoluble fiber (flax meal, chia mostly) and more water it's only somewhat improved things. Currently at about end of week three since beginning. Total elimination of UC symptoms otherwise. Slight headache/fatigue, slight appetite loss follows 2 days after both infusions so far.

Tapering off prednisone. Was at 35mg week of first infusion, am down to 15mg by second infusion.

March 14, 2018

Remicade (Infliximab)

41

I took 4 treatments. I started breaking out with it. Big psoriasis looking sores. All over my body. Had a biopsy and I'm allergic to both humira and remicade. It's very painful and burns.

Just vitamins

March 9, 2018

Remicade (Infliximab)

38

minor stomach pain

none

March 5, 2018

Remicade (Infliximab)

47

Hair loss weight gain memory loss confusion hands shake dropping items pustual psoriasis body jerks vomiting which causes teeth loss

Remicade humera methetrexate Prednisone dulera

March 3, 2018

Remicade (Infliximab)

47

Ankle/foot swelling, redness, / mild after first infusion, then worsening after second, and third. Docs were baffled. Within 24 hours of third infusion, both ankles/ feet were swollen, red, hit to touch, difficult to walk

Prednisone

February 8, 2018

Remicade (Infliximab)

37

No side effects

Dexilant (for GERD). I have been on Remicade for 10 yrs with no side effects. I had a healthy baby 5 yrs ago while on Remicade. I also was restarted on Remicade 3x because of moving to different states.

January 21, 2018

Remicade (Infliximab)

41

I built up antibodies to the medication. Very ineffective drug anyway....

No

December 27, 2017

Remicade (Infliximab)

55

Head pain, tiredness, lack of focus

Lialda

December 24, 2017

Remicade (Infliximab)

35

swollen Lymph nodes
shortness of breath
chest pains

November 24, 2017

Remicade (Infliximab)

35

Psoriasis on my head, inside ears, behind ears. Eczema on my arms, hips, behind my legs and on my neck.
Fatigued at times
Brain fog
back pain
some hair loss
acid reflux
anxiety
muscle soreness

November 24, 2017

Remicade (Infliximab)

56

SHOULDER JOINT PAINS
CALVES PAIN
MEMORY LOSS ( MAINLY FORGETTING NAMES )

ASACOL
PANTAPRAZOLE

November 18, 2017

Remicade (Infliximab)

35

vasculitis

November 14, 2017

Remicade (Infliximab)

70

Hair loss

Imuran

November 8, 2017

Remicade (Infliximab)

37

Fatigue, weight gain, prone to infections

Anti-Depressants

November 1, 2017

Remicade (Infliximab)

55

Pain in hands and feet
Convulsions
Swollen lymph nodes

Delzicol
Mesalamine enemas
Steroid enemas
Prednisone
6MP

July 2, 2017

Remicade (Infliximab)

25

bleeding

no

June 15, 2017

Remicade (Infliximab)

24

Acne

Nothing else but I maintain a healthy diet. Had moderate to severe U.C. prior to Remicade. Though Remicade works great for now, hoping to switch to CBD someday and use that exclusively with diet. I do not trust medicine, doctors or the government with what they label as "safe."

May 31, 2017

Remicade (Infliximab)

41

Dizziness, confusion

Diazepam

May 2, 2017

Remicade (Infliximab)

54

shingles

March 31, 2017

Remicade (Infliximab)

54

psoriasis

March 31, 2017

Remicade (Infliximab)

46

Exhaustion
Dizziness
Shortness of breath

February 23, 2017

Remicade (Infliximab)

49

psoriasis all over body and red spots all over

yes,lialda,topomax.lomotil, tramadol,triamerene,gabapentin

February 21, 2017

Remicade (Infliximab)

44

Hodgkin Lymphoma

Azathioprine

February 4, 2017

Remicade (Infliximab)

50

muscle pain

February 4, 2017

Remicade (Infliximab)

35

Anaphylaxis

Pre-meds in effort to avoid negative reaction. Solumedrol, benedryl, Tylenol.

February 3, 2017

Remicade (Infliximab)

64

sick to mu stomach and no energy

aspirin 81mg

February 2, 2017

Remicade (Infliximab)

32

Melanoma, hair loss, skin rashes

6 mp

December 30, 2016

Remicade (Infliximab)

54

Fever that wouldn't go away every night. Oral thrush.

Uceris, Bentyl, Allegra, Ibuprofen, VSL3, Iron, MultiVitamin, Vit D and Calcium

November 13, 2016

Remicade (Infliximab)

52

tiredness

November 13, 2016

Remicade (Infliximab)

50

Aches in knee joints at times, bloating from time to time when I'm getting close to my next infusion.
Some fatigue.
It got me out of a terrible flare which I was hospitalized
for a week. I get it every 8 weeks now since April 2016

Methotrexate 12.5 MG once a week
Folic Acid 5MG

November 4, 2016

Remicade (Infliximab)

32

shingles

none

November 4, 2016

Remicade (Infliximab)

56

My hair thinned out and I got scaly plaques on my scalp diagnosed as Lichen planopilaris, an autoimmune disorder. Also have joint pain in my hands and feet. The fun never ends.

Lialda

October 26, 2016

Remicade (Infliximab)

47

Symptoms similar to MS, including drop foot, loss of dexterity in my hands and weakness in my left side. Stopped Remicade and still some lingering issues 8 months later.

No

October 14, 2016

Remicade (Infliximab)

20

Fatigue, suicidal thoughts, itchy rash all over my body, moods swings. Get angry very quickly,join pain and swelling

CYMBALTA, SULFASALAZINE, NEXIUM, ATIVAN, VENTOLIN INHALER,

September 17, 2016

Remicade (Infliximab)

48

Immediete allergic symptoms, after 3rd dosage too far apart, therefore developed immunity

Azathioprine, asacol, calcium citrate

September 9, 2016

Remicade (Infliximab)

57

Joint soreness, fatigue

mesalamine

September 7, 2016

Remicade (Infliximab)

34

lot of bacterial infections (mouth sores, ear, cheeck, joints), abscess, acné, shingles, ..because of low (or none) resistance
This happens more and more the last years...i get remicade since 11 years.
The day i get my remicade..i'm very sleepy, warm and sweaty...and HUNGRY !!!
In the beginning: Hair loss
Psoriasis came, went, came back, went again...

no (or maybe some cbd...)

September 3, 2016

Remicade (Infliximab)

30

Nausea and head aches. Lots of headaches. I will feel down and out for at least a day after infusion as well.

September 3, 2016

Remicade (Infliximab)

60

Been on remicade for almost a year. Had hair loss but not sure if it was from that or a combination of other meds I was on at the time. Anyway.. it came back curly! Now the only medicine i'm on is the Remicade every 8 weeks. Now i'm getting extreme bloating, like my stomach has a spare tire. I've started walking 3 miles / day and it's not helping at all. Also I get abscesses constantly. Some very severe.

August 27, 2016

Remicade (Infliximab)

55

Broke out in a rash while receiving the infusion. Added Benadryl and that took care of it. Dr. says I have developed antibodies to Remicade so now not sure what will happen. He has me going to Mayo Clinic next month for another opinion.

August 22, 2016

Remicade (Infliximab)

68

Hives, itching, rash, fatigue

August 19, 2016

Remicade (Infliximab)

57

Cough, fever, itchiness, insomnia, anxiety

Yes...I am taking mesalazine 6 tablets a day, azathioprine 50mg on Monday, Wednesday & Friday; 75mg rest of the 4 days. BP meds Amlopidine Besilate 2.5mg daily.

August 18, 2016

Remicade (Infliximab)

60

Headache for 2 -3 days after infusion; not debilitating
Voice is weak and hoarse for a couple days after infusion

I get an injection of prednisone immediately prior to infusion.

August 15, 2016

Remicade (Infliximab)

37

Had first dose when hospitalized in around 2010. Worked great and got me out of a terrible cycle of flair ups and prednisone .
6 weeks later went for follow up dose and had anaphylaxis . Chest felt right, hard to breath , face flushed and confusion . My mom who was there recognized it and got nurse immediately. Reaction began to leave as soon as the nurse stopped the med. nurse also immediately administered Iv benedryl

Asascol; prednisone

August 15, 2016

Remicade (Infliximab)

52

Drug induced Lupus - while my UC symptoms were getting better, I couldn't get moving again. Exercising was torture - yoga was torture. I kept thinking I just needed to push through it and I was being lazy. Blood tests revealed Lupus. I stopped Remicade and it went away.

Steroids

August 12, 2016

Remicade (Infliximab)

32

My liver became blackened and dead. I required a liver transplant.

Dotheipin Hydrochloride. Yasmin.

August 12, 2016

Remicade (Infliximab)

34

Psoriasis on the palms of the hands.

Lialdia

August 11, 2016

Remicade (Infliximab)

37

Remicade worked well until I built antibodies...BUT it did make my hair fall out, in chunks.

August 11, 2016

Remicade (Infliximab)

61

weakness

August 9, 2016

Remicade (Infliximab)

25

I occasionally get eczema as a side effect, vomiting occasionally, nausea, my equilibrium feels off, sensitivity to light at night, sensitivity to sun, bloating, occasional constipation, extreme fatigue, hot flash type symptoms where my face will turn red and flushed and I get really hot and feel like I have to vommit

Asacol
Omezaprole

August 8, 2016

Remicade (Infliximab)

18

Suicidal ideation. Awful.

August 8, 2016

Remicade (Infliximab)

62

hives
nightmares on night of infusion

pred 5
meloxicam
atenolol
tramadol

August 7, 2016

Remicade (Infliximab)

66

Low blood pressure
Itching over whole body starting while getting infusion
Bad Headache for 24 hours
Inability to stand in one spot for more than a few seconds without leg pain and weakness
100 % antibodies to drug within 1 year of starting it determined through the prometheus blood test

Lialda 8 per day

August 7, 2016

Remicade (Infliximab)

41

No side effects that I could detect

August 7, 2016

Remicade (Infliximab)

36

Stiff joints high blood pressure and pain all over

No other meds

August 7, 2016

Remicade (Infliximab)

67

At 1st I was just very tired..all the time. I was not sleeping well either. These both come and go. About 1 year into therapy the pain started...1st in my L foot, then R foot, then my hands until I could barely walk. I was finally diagnosed with drug induced Lupus, though through it all I am in remission, the pain is now manageable with prednisone (20>5mg a day)
At this time with the level of my pain where it is, and how my body is cooperating, I can enjoy my life

I would be hydrated in the ER and given oxy for the pain
at one ER visit early on, my thyroid went from hypo to hyper so they changed my synthroid levels

August 6, 2016

Remicade (Infliximab)

43

Drug induced lupus. (too bad because it was the first med that put me into remission)

Asacol

July 29, 2016

Remicade (Infliximab)

35

Edema

Prednisone

July 29, 2016

Remicade (Infliximab)

72

Effective for 1st year, then ineffective. Started to get severe pain night of infusion.
Platelets dropped from normal to 44,000.
Stopped Remicade, now platelets are normal.

6mp, Lialda

July 28, 2016

Remicade (Infliximab)

48

Memory loss

no

July 28, 2016

Remicade (Infliximab)

28

Fatigue, joint pains, insomnia, nightmares, depression

Tramadol, Omeprazole, antrptyline

July 28, 2016

Remicade (Infliximab)

25

Sometimes, the day of the IV i have weird head sensations: ending up in a room w/o knowing how I got there, head feels like a bowling ball. Since I started taking it I get the occasional blockage of peripheral vision. Also my wife said that since I began I became generally more depressive.

July 28, 2016

Remicade (Infliximab)

50

Mouth sores/pain. Psoriasis on limbs and scalp. Acne.

None

July 28, 2016

Remicade (Infliximab)

36

Blister like growth on my gums.

Imuran, asocal

July 27, 2016

Remicade (Infliximab)

18

14 yr old daughter tried Remicade after Humeria. Developed sever reaction after first dose. Was unable to move, her whole body hurt could hardly walk, get dressed, all her joints hurt. Very bad reaction

Lialdia

July 27, 2016

Remicade (Infliximab)

64

Took it for a year with no problems.

July 27, 2016

Remicade (Infliximab)

57

Hair loss. A few muscular spasms in fingers. Tired.

Prednisone.

July 27, 2016

Remicade (Infliximab)

18

PSORIASIS

July 27, 2016

Remicade (Infliximab)

25

Chest pain, full body rash (became allergic according to Doctor)

Prednisone, pantaloc, pentasa

July 27, 2016

Remicade (Infliximab)

55

SEVERE eczema of my eyes - extremely swollen eyelids/both eyes, by the 3rd infusion

Asacol HD

July 24, 2016

Remicade (Infliximab)

24

Have only had one infusion so far when I was in hospital and no side effects from what I can tell. If anything I felt better after it.

Steroids and salofalk granules

July 20, 2016

Remicade (Infliximab)

47

Leg pain. Hair loss

Azathioprine

July 17, 2016

Remicade (Infliximab)

26

-severe night sweats
-for the first 6 months I would get incredibly tired lasting a couple days after the infusion
-low BP

Imuran

July 17, 2016

Remicade (Infliximab)

18

Serum sickness in hospital for days . Couldn't walk high fever

July 17, 2016

Salofolk

39

Flu like symptoms

No

January 22, 2018

Salofolk

70

nausea headache increased appetite leading to weight gain

Asacol suppositories beta blockers and aspirin

December 22, 2017

Salofolk

36

Insomnia

No

December 18, 2017

Salofolk

33

Smelly urine

October 3, 2017

Salofolk

33

Smelly urine

Pentasa

October 3, 2017

Salofolk

55

Thinning hair
Slight breathing issues

Metformin
Gliclazide
Aspirin
Simvastatin
Multivitamin
Cod liver oil

September 8, 2017

Salofolk

35

no

no

March 8, 2017

Salofolk

44

I take salofalk when I have a flare. Like most fall seasons, I had a bad flare in Oct and increased to 8 tablets a day. 2 weeks later of being bugs vigelent onbit, abdominal pain gone and more solid BM. But I also cut out most wheat, dairy and sugar at this time too.

I increased my probiotic and aloe

October 23, 2016

Salofolk

21

Gas

Remicade

September 28, 2016

Salofolk

34

Pain tiredness

September 27, 2016

Salofolk

45

Massive massive tiredness to a point you could hardly function at all

August 15, 2016

Select Medication

51

hair loss

August 30, 2018

Select Medication

18

Put on this Med for Crohn’s 200mg morning 200mg night ok for first 5 days then all hell let loose, violently sick ? with high temperature felt really ill. Consultant then cut the dose down to 5mg taken with another drug used for gout again felt so ill with very high temperature and violently sick worse than before taken off the drug and started to feel normal so taking my old medication mezavant.

Had been on Mezavant

June 17, 2018

Select Medication

18

Black mucous

February 7, 2018

Select Medication

72

. I have been in a flare up for almost 3 years. Even with the meds I still have "episodes" every 10-12 days. Started PANTOPRAZOLE 40 mg daily on Aug 1 and experienced 7 days of episodes in August. So far in first 20 days of Sept I have had 5 days with episodes

3200 ASACOL daily. SALOFALK Enema 1 daily. Zopiclone 3/4 nightly

September 22, 2017

Select Medication

18

Burning, tingling face

Bisipropol and fostair

August 22, 2017

Select Medication

32

Fever, back pain and heart rate

Zantac 75

August 4, 2017

Select Medication

18

increased liver enzymes

aspirin

July 18, 2017

Select Medication

18

Stretch marks on back

Imuran and enemas

July 4, 2017

Select Medication

27

Weight gain, hair loss, severe sepsis

January 12, 2017

Select Medication

57

Balsalazide. Foggy feeling, fatigue, body swelling up, itchy red spots that look like eczema. Causes lots of gas and belching. Small bumps on my arms and legs. Cough.

January 8, 2017

Select Medication

20

Pancreatitis

LIALDA

November 3, 2016

Select Medication

57

Hunger tearful angry week legs shaky and fast heartbeat and loud hears it in my head. Dont know if its the prednisolone doing it or itd part of the copd I akso take spiriva and seritide

September 30, 2016

Select Medication

29

None that I can notice.

Prednisone- only with an active flare-up.

September 6, 2016

Simponi (Golimumab)

41

Hair thinning/falling out

None

October 31, 2017

Simponi (Golimumab)

30

Slight skin rash

None

August 27, 2016

Simponi (Golimumab)

32

None

No other meds

August 7, 2016

Simponi (Golimumab)

31

Painful when injecting and causes bruising

Prednisone & 6mp

July 22, 2016

Stelara (Ustekinumab)

43

Perianal bumps, muscle ache, fatigue

July 20, 2017

Stelara (Ustekinumab)

57

Hot flashes, anxiety, chest tightness, mouth ulcers

April 24, 2017

Stelara (Ustekinumab)

42

Bruises on back of legs

Lialda

March 5, 2017

Sulfasalazine

44

Severe vomiting and diarrhea with just one dose.

none

September 7, 2018

Sulfasalazine

51

Blood spotslike.looks like dark purple bruise

No

June 28, 2018

Sulfasalazine

60

Dizzyness and nausea

buspirone

June 1, 2018

Sulfasalazine

43

Joint pains, tiredness

Yes

October 12, 2017

Sulfasalazine

29

Vagina discharge that stinks

None

July 30, 2017

Sulfasalazine

43

diarrhea

December 13, 2016

Sulfasalazine

55

Headache
Dizziness

Salazopyrin Tablets 500mg

November 27, 2016

Sulfasalazine

69

Achy joints

October 23, 2016

Sulfasalazine

30

I don't have pains or nobody aches but I still have diarrhea.

Lialda didn't work at all. I was still getting pains and severe cramping and bloody diarrhea

September 11, 2016

Sulfasalazine

57

Tiredness. Could not be bothered doing anything and preferred to sleep the day away instead. Started to lose a lot of hair after being on it for a few weeks. My red blood cell count was low because of this medication. I stopped using it. I feel better now. I will try and see if there are more natural ways to deal with my UC. I am taking a high dose probiotic, kefir and kombucha products and fermented foods. Not going to take the toxic rubbish that doctors prescribe.

I was taking prednisone for 5 weeks at first but tapered off slowly, as advised.

September 3, 2016

Sulfasalazine

43

Rash, shortness of breath, increased heart rate, fatigue, increased abdominal pain and redness of skin that lasted for several weeks after stopping the medication (sunlight made it way worse)

August 21, 2016

Sulfasalazine

31

Heart palpitations
Joint pain

No

August 9, 2016

Sulfasalazine

50

headaches
(they can be minimized by drinking plenty of water, which may also help with the other side effects)

none

August 7, 2016

Sulfasalazine

23

Soon after being prescribed sulfasalazine I was diagnosed with drug induced Lupus.
It took 3 months of tests to prove sulfasalazine was the cause during which time I had intensely painful, inflamed joints throughout my body, as well as UC.

Steroids

August 7, 2016

Sulfasalazine

27

After taking 3x2 salazopyrin a day for about a year, my kidneys flared. I think it was called glomerulonephritis. After the flare has gone my kidneys left in a 3rd state of insufficiency.

August 4, 2016

Sulfasalazine

48

None

July 29, 2016

Sulfasalazine

72

Extreme tiredness, ringing in the ears, tingling in fingers.

July 27, 2016

Sulfasalazine

63

Blistering on my chest

Atenolol
Premarin

July 27, 2016

UCERIS (Budesonide)

59

Bone pain, cramps, vitamin d deficiency

August 7, 2016

UCERIS (Budesonide)

63

High blood sugar

August 7, 2016

UCERIS (Budesonide)

53

Some hair loss, 5 lb weight gain

was not taking another medication at the same time

August 6, 2016

UCERIS (Budesonide)

18

I have not had a period for 10 years. I am 50 yrs. old. This is my 7th day in Uceris 9 mg/ daily. I started vaginal bleeding this morning.
I also have had nausea and vommiting along with flatulence and diarrhea! I thought this medication was going to ease my symptoms! This has NOT been the case. I will gladly go back to prednisone and suffer the adverse side effects! Best of luck to all who suffer.

July 29, 2016

UCERIS (Budesonide,Entocort)

44

Severe vomiting and diarrhea with just one dose. The gift of time release capsules.... I'd be violently ill for 3 1/2 hours, get about a 30 minute break and time release would kick in. It was a miserable 24 hours. (almost exactly to the minute)

none

September 7, 2018

UCERIS (Budesonide,Entocort)

45

Mild muscle cramping in back, headaches

Atenolol 20mg twice daily
Omeprazole 20mg twice daily
Xanax as needed
Tramadol as needed

July 28, 2018

UCERIS (Budesonide,Entocort)

55

Have UC for about a year now. Uceris review: Did not see any discernible impact. Symptoms did not necessarily improve. Took it for 4 months. Stopped as forgot to take it on a trip out of town, and have not taken almost two months. Relieved as holistic medicine practitioner had suggested liver function was showing signs of malfunction. That is has dissipated now. Bottom line, UCERIS showed zero benefit, took it for flareups and stayed with it. Does not seem like a good idea and it's a very expensive drug if Insurance does not cover it.

Taking Lialda at the same time.

June 3, 2018

UCERIS (Budesonide,Entocort)

66

increased appetite, nausea and diarrhea worse, no positive results yet

March 15, 2018

UCERIS (Budesonide,Entocort)

72

Horrible nerve pain shooting through my legs, weakness in legs and inflammation. VERY scary since the drug is supposed to be 90% into the gut ant that's all. For me, it was different and violent.

Lialda

January 14, 2018

UCERIS (Budesonide,Entocort)

36

No major side effects. Felt relief of UC symptoms after 3 days. After about 3 weeks on it, I started to notice joint pain and occasional headaches, but not enough to make want to stop taking Uceris.

None.

December 22, 2017

UCERIS (Budesonide,Entocort)

36

Got my first and worst flare up ever had! In October 2017.
A two-week span of 2 - trips to er 2 cat-scans, one colonoscopy and a 6 day stay in the hospital, finally labeled me with severe ulcerative colitis! 6 days in hospital was promising getting I.v. Prednazone to put colon into remission and was working (slowly) ! When released to go home after day 6 of treatment they gave me a scrypt of (BUDESONIDE) - to take 9mg a day starting day I left. So I get generic BUDESONIDE (thanks to insurance) and take 3-3mg capsules. Within 6 hours of leaving hospital I begin to go down hill!!!!!! Bleeding slowly coming back every movement. Cramps, pains, gas, ext. urgency to go grows every hour! By Monday morning , I was back on the phone with my specialist who therefore remove me from the budesonide & put me back on prednizone and it started a slow road back up hill. I cautious those who try new medicines! if something isn't broke don't fix it !

November 1, 2017

UCERIS (Budesonide,Entocort)

35

Very few side effects with oral uceris. Much better than being on Prednisone. Increased urination at night. Low appetite & nausea. Also took a solid 2 weeks before it fully kicked in. Some relief after 3 days, but 2-3 weeks before it fully kicked in.

Mesalamine, VSL #3, Omega 3 fish oil

October 16, 2017

UCERIS (Budesonide,Entocort)

52

Frequent night urination, insomnia, increased appetite, reflux.

Side effects started once I started taking Lialda w/ Uceris

October 12, 2017

UCERIS (Budesonide,Entocort)

72

heavy night sweats, frequent urination, very bloody stools (from 3-4/day when I started to 12-14/day when I quit) thrush, facial hair, leg cramps (especially at night), interrupted sleep (awake two hours at a time)

Lialda - 2 /day

August 21, 2017

UCERIS (Budesonide,Entocort)

44

Increased, soft bowel movements (sometimes right after injecting) and they are SUPER stinky!! I don't see anyone else reporting this...

4 lialda/day

July 21, 2017

UCERIS (Budesonide,Entocort)

43

swelling and pain in both ankles

canada, lialda

July 19, 2017

UCERIS (Budesonide,Entocort)

49

Extreme fatigue and very vivid dreams.

I take Lialda 2 tabs per day. Krill 500mg per day, Nutrí Calm one per day. I also OxyPowder 3 tabs every other day.

June 4, 2017

UCERIS (Budesonide,Entocort)

53

Weight gain, vaginal bleeding, increase facial hair

Triamterene/hctz, cymbalta

May 17, 2017

UCERIS (Budesonide,Entocort)

58

medication helped my symptoms, but after 4 weeks had moon face and swelling in ankles. Also frequent urination at night (5 times most nights). I have also had weight gain. Dosage was 9mg per day. Discontinued medication.

Lialda, gabapentin, verapamil

May 2, 2017

UCERIS (Budesonide,Entocort)

36

abdominal pain

Pentasa

April 25, 2017

UCERIS (Budesonide,Entocort)

51

I have UC and have taken Uceris for 18 months continuously and it has helped somewhat. 5ASA, imuran, etc. have not worked on me. Side effects include, sleeplessness, tired, weak legs and I am always hungry. I am trying to wean myself of Uceris by taking it every other day and I am experiencing itching symptoms on my things and arms.

No

March 30, 2017

UCERIS (Budesonide,Entocort)

19

Even after one week on the med, still in severe pain, bloodier stool, extreme nausea (nausea meds help little). Patiently waiting...hoping.

March 2, 2017

UCERIS (Budesonide,Entocort)

67

Headache, achy joints, dizziness.

No

February 22, 2017

UCERIS (Budesonide,Entocort)

19

Stomach pain, fatigue

None

February 11, 2017

UCERIS (Budesonide,Entocort)

45

Severe nausea

February 1, 2017

UCERIS (Budesonide,Entocort)

58

Had to get off Lialda because of kidney damage. Started flaring so I tried Uceris for 4 days. Bad idea. Debilitating cramps every time I tried to eat and no change in the blood amount. Glad it worked for some. It contains lactose, which I am highly sensitive to, which many or may not have been the problem.

Asthma meds symbicort, albuterol, zyrtec.

January 10, 2017

UCERIS (Budesonide,Entocort)

24

Pressure on chest, blurry, restless, weird jittery feeling in body

January 4, 2017

UCERIS (Budesonide,Entocort)

52

Hives. Would start in the evening under arms and over night spread all over torso. Mild headache

December 27, 2016

UCERIS (Budesonide,Entocort)

41

increased appetite, weight gain, bloating, gassy, puffy face, hair growth on face

Liadla

December 14, 2016

UCERIS (Budesonide,Entocort)

52

Frequent urination - up every 2 hours at night. Had to stop after 2 months. Also caused my blood to get very 'thin'.

Warfarin, Balsalazide

December 11, 2016

UCERIS (Budesonide,Entocort)

38

Loose stools, itching on top of feet, swollen leg, liquid leaking from swollen leg, tired, mood swings

Ursodiol, azathioprine, bupropion, asacol hd

December 10, 2016

UCERIS (Budesonide,Entocort)

41

Been on this medication for a week now and I have noticed lesser blood on the stool, sometimes there is still blood though. I have also noticed itching of the skin mainly around my sides and underwear area (around the hips and lower stomach), red dots. I believe this is a side effect from the medication. My appetite is up and it also before my menstrual cycle, too. Which does not help. My face is puffy but not too bad yet. If this becomes worse with weight gain and puffiness, I will stop the medication. For this is why, i refuse to take prednisone.

Lialda

November 9, 2016

UCERIS (Budesonide,Entocort)

31

I have had a difficulty sleeping, gained weight/moon face, night sweats, increased appetite as well as skin sensitivity.

6MP and Entyvio infusions

November 1, 2016

UCERIS (Budesonide,Entocort)

53

Uceris Rectal Foam Fever, sore throat, sneezing

Azathorprine, Apriso

October 31, 2016

UCERIS (Budesonide,Entocort)

24

This steroid literally put me in a flare.
Bleeding more than ever.
Bathroom 5 times a days.
Cramping.
Nausea

Lialda- was doing 2 tabs a day but now off steroid back up to 4.

Iron supplements

October 23, 2016

UCERIS (Budesonide,Entocort)

22

Worked well for me except for the big mood swings as well - strange to describe - this set in after 3 months of usage and I chose to tapper off quick during month 4.

October 20, 2016

UCERIS (Budesonide,Entocort)

44

None

None

September 15, 2016

UCERIS (Budesonide,Entocort)

45

Lethargic
Headaches
Weight gain
Loss of focus

Lialda
Pantoprozole
Canada
Corticosteroids

September 11, 2016

UCERIS (Budesonide,Entocort)

31

Uceris gave me horrible mood swings. I would be cool and collected at one moment and then the next moment I have the rage of the Hulk. I was so glad to get off it!

Canasa
Remicade
Apriso

September 9, 2016

UCERIS (Budesonide,Entocort)

34

Swollen Ankles, Anxiousness, Trouble Sleeping, Stomach Cramping, Diarrhea

Balsalazide, Humira

September 2, 2016

UCERIS (Budesonide,Entocort)

55

Weight gain, facial hair growth, diarrhea

Lialda

August 27, 2016

UCERIS (Budesonide,Entocort)

61

muscle cramps headache back ache

balsalazide

August 22, 2016

UCERIS (Budesonide,Entocort)

56

Headaches and swollen legs.

Advair(for asthma) and
Nasacort(for sinus).

August 16, 2016

UCERIS (Budesonide,Entocort)

31

Nausea, headaches, dizziness, memory loss

Lialda, mercaptopurine

August 15, 2016