Remicade ( or “Infliximab” as some might call it) is a relatively new medication first approved for Crohn’s Disease in 1998 that sometimes is used to treat ulcerative colitis patients who are not responding to other medications. Remicade is an artificial antibody, and its use has been approved by the FDA for treating other autoimmune diseases such as Crohn’s Disease, Psoriasis, Psoriatic Arthritis, in addition to ulcerative colitis.
People who decide to use Remicade receive the medication through infusions typically at a hospital or infusion center. The entire infusion process can take anywhere from 2-4 hours.
Wikipedia about Remicade/Infliximab:
Remicade patient assistance program : Help Paying for Remicade/infliximab
Remicade side effects can be found on the medication side effects database here.
If you have used/use Remicade to treat your UC, please feel free to submit a review on your experience and rating of the medication below.
Submit your review
In 2016, I was put on Remicade during an emergency hospital stay. I was so bad off if I had waited another day I wouldn’t be writing this review. It worked and by 6 months I was in remission and stayed there. Off and on during the first two years I would notice I’d have fatigue and aches and pains a week before my infusion. It was stated that was normal and maybe Remicade level increase likely. By the start of my third year, I became incapacitated with severe pain in joints, muscles, and tendons. Physically I was a mess and then mentally with anxiety, depression. Only a very high temperature indicating for me inflammation was raging brought me my second hospital stay in 2019. The diagnosis drug induced lupus. A side effect only a very small portion of IBD patients experience. Not a category I wish to ever be in again. 6 months after being Remicade free, lupus symptoms have disappeared. Granted Remicade was the sledgehammer to the penny nail to eradicate my flare and help heal my colon yet it was the worse thing for my body. Lesson for others , please be your advocate and review side effects even the rare ones.
Oh and through all this experience my colon stayed in remission. I’m currently on a course with Entyvio.
Its an awesome drug thatworked wonders for my uc. It kept it in check. But....now Im being FORCED by the insurance co to do have it done at home.
I live alone and i feel vunerable. My drs only ever gave me asacol/predsione and imuran. When they didnt work they didnt want to see me anymore.
Why didnt they give me a diet plan?? Why does the drug cost $88,000???
But yes I do well on it for over ten yrs. In 48hrs my stomach stops rumbling
After working for around a year it stopped working.
My immune system started eating it. It was great while it worked though. Even if the infusion took 6 hours cause of the side effects.
I have been on a Remicade infusion every 8 weeks for 8 years and it literally saved my life. My only other alternative was colon removal as none of the other medications provided any relief. Occasionally I will have a very mild flare-up but I can usually associate it with something I ate. So thankful for this medication.
Was on Remicade for a number of years with it helping some.My body was processing the drug too quickly so infusions were shortened to 6 weeks. Still using the drug up early so quantity was increased.Did not feel the best after first increased treatment for several days. Several days after 2nd treatment thought I was having angina,turned out to be a heart incident with heart rate over 190 bbm with subsequent heart damage . Many trips to Emerg and 5 days in CCU I'm trying to get better but is going to be a long haul. Doing research ,with my heart condition I probably should have been switched to another drug instead of increased remicade.Have had 3 previous heart attacks over 20 plus years before this incident. Started Entyvio last week and my fingers are crossed. To be truthfull scares the heck out of me
I started Remicade immediately after a flare forced a cancelation of a trip to Europe 4 years ago. Whether it was the Remicade or the requisite benadryl that is administered before the infusion, it was effective within 48 hours and has been effective ever since. I'm of the belief that flares occurred with me because of stress. During my first infusion 4 years ago, I experienced relief from the UC symptoms immediately after the dose of benadryl.
I have been on Infliximab/Remicade for four infusions so far and it’s been helping me. Although I had a lot of stress last month so my colon has flared a little as I wasn’t being consistent with my diet too and I took up smoking for a week after a family member died suddenly. But the side effects for me have been severe itching mainly on my back and small bumps over my body. But that was only for the first three treatments. Now it seems to have calmed down a lot. I’ve also got two infections in my gums so have to have two teeth removed. But that might just be an aside. Otherwise I have been able to work fully and do as much as I need to survive.
I’ve noticed a massive increase in my sex drive, from nothing to finally being able to feel like I want to have a sex life again, whether that’s just since having an iron infusion and I have more energy back I don’t know. But it’s a very welcome side effect. All in all I say go for it. It’s given me my life back again. So I highly recommend.
Remicade was very effective in managing my UC symptoms. It also helped with my overall inflammation. The down sides of it are of course the immunosupression. And having to do IV infusions every 6 weeks (as I recall, it has been a while). I was on Remicade for 6+ years. Strangely enough, it also increased my libido right after my infusions. Weird, huh? On a more serious note, if you choose/need to take Remicade, or are taking it, be vigilant in addressing any possible infections. I had a urinary tract infection that got out of control and went into my kidneys, then sepsis, and then I ended up in the ICU. This is the case for any immunosuppression medications, so be vigilant.
I have been on Remicade for 9 years and it took 6 months to see any results and over a year to go into remission. I have taken Imuran during that time and not able to stop because I start to have symptoms. I would like to stop Remicade but fear to go back to being so sick. I understand if I stop taking Remicade I may not be able to go back on to it so I will continue to get the infusion until I can no longer afford them.
I was prescribed Remicade after a bad flare. It worked well for several months until I contracted kidney cancer and had to go off of it to enhance my immune system prior to surgery. Later, when I wanted to go back on it, blood tests showed that I had developed an antibody to the drug so it would do me no good.
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
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