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Adam-Scheuer iHaveUC founderIn good health,


Adam Scheuer

colitis patient – site admin & author of Feeling Crappy to Feeling Happy


20 thoughts on “Contact”

  1. Hi Adam, I tried searching HPylori and Ulcerative Colitis on your site before contacting you didnt find much though. Ive had Ulcerative Colitis for about 10 yrs with remission, mild flairs and 2 full flair in between. i was flairing mildly about a month ago and then all of a sudden it hit me: diarrhea, gas cramps, bloating, and nausea. i dont feel it in my colon though. my dr is running test for HPylori, just because i asked! My question is has anyone took antibiotics for that with Ulcerative Colitis and what was their experience?

    1. I took lot of antibiotics for couple of years till last year. I stopped using it since I got mouth ulcers last year after taking antibiotics. I instead used probiotics that also contains saccharomyces boulardii and also strong probiotics VSL#3 and it helped me. Whenever I had mild flare I used it and it helped.

      For a month now I’m having mild flare now and then, not regularly. I tried same probiotics tactics but it’s not working properly like before. Just few days I started taking mastic gum. I hope it will work out.

      I have done all the blood and stool tests. Everything is normal, except there is RBC in blood. Inflammation is below <3.

    2. I took Cipro on and off for years. It was a wonderful drug for me until I developed tendinitis. While taking Cipro, I was symptom free. Have also had success with clarithomycin and Xifaxan.
      I’ve had disease since 1998. Pancolitis since 2006. Biologics don’t work for me. Tried three. Uceris topical foam also big help! In fact, game changer!

  2. Hello i was just diagnosed last week with colitis, was in the hospital for 4 days. I need to know if anyone suffers from leg or joint pain from this, ive never been so miserable thank you

    1. Hi Linda,

      Unfortunately, joint pains are very common with us UC folks. Here is a survey that we did not too long ago that has many different ideas and personal stories of UC/Joint pain.

      Wishing you the best with getting the joint pain under control SOON!
      (For me, I have had joint pain on and off for years now, recently in the past few years, it has been dormant so for sure it is possible:)


    2. Hi Linda, this is very common in UC sufferers, because I avoid dairy products, this exacerbates the pain. What has helped has been a daily Vit D supplement, here in th UK you can buy vegan ones online, if that’s your preference. Vit D is very important if you don’t get much sunlight, and also for women approaching menopause, to avoid brittle bone development.

  3. Hello Adam. I’m Maria . My UC started 3 mth ago. I’ve been in hospital for 12 days , just got out. My consultant said the flare up has gone down. He’s sent me home with steroids & Pentasa along with a few other things. My Q is , can a flare up still happen anytime , even on the steroids/Meds . I have a family occasion coming up & im really nervous about eating out & drinking alcohol.

    1. Hi Maria,

      Some people have certainly had symptoms worsen even while on steroids, but by and large, symptoms should find ways to get better on steroids as you know.

      As for other medications such as 5-ASA meds and others, yes, flare ups can unfortunately still happen.

      I wish you the best,


  4. I was diagnosed with UC in July 2018 and symptoms actually started in March 2018. I have had 2 colonoscopies-1st was at 3cm, 2nd went to 10 in like a month and a half later.
    My diet isn’t perfect but I always eat fresh veggies fruits and organic as much as possible. I work for the airlines so eating well can be hard and my husband has bad habits (comes home w soda and deli subs). My rx’s don’t work , I have tried (rowasa,apriso,colocort, lialda, prednisone for 3 weeks and now just a gastro steroid) I have had intervals of no blood or mucous but more flare ups then remissions for sure. And my joints hurt all the time, legs arms hands even jaw and gums- like the flu – is this normal?
    Dr is pushing me to the TNF drugs
    IV Infusions – remicade for the rest of my life.
    I’m not sure how bad you have to be to consider it serious. He says I’m in jeapordy of losing my colon overnight. However I haven’t had a colonoscopy since Aug. We have just been trying meds and in combos sometimes. I have to make the decision by next week (Nov 18,2018)
    My doctor has good bed side manners, came recommend but doesn’t practice diet etc.
    He said once I start the IV tx I can’t come off and then try it again.

    Has anyone used remicade infusions?
    I have had cervical cancer 7 years ago. Only surgeries no cancer meds radiation or chemo so my illness isn’t from that, but I’m told remicade, humira, etc can cause cancer (lymphoma or skin)
    I’m REALLY scared to start this. I’m scared I will get sick w cancer again.
    I hate drugs period.
    I try to eat organic as much as possible and even occasionally take CBD oil without any THC in it.

    I do have a lot of stress or get stressed easily sometimes, but I am also conscious of it and can calm myself down when things get hectic. Not paranoid just super concerned I’m about to make a really bad decision that could ruin my life.
    I have psoriasis too so this MED May clean that up he said.
    Part of me feels I can fix this w out this strong MED as not sure how bad I really am compared to horror stories I have read.
    Please help I’m running out of time

  5. Hello guys,

    How many of you have taken mastic gum so far ? What was the result and how did you take it and how long? What was the dose? Is it OK to take it together with probiotics?

    I’d highly appreciate for your comments.

    Best wishes from Finland.

  6. sorry for spamming here, I tried to answer the newsletter but I got the email returned…

    Hello Adam,

    jak se máš? :)
    I am also from CZ and my husband is from Slovenia. Se I know rather well how is to have some language barriers in the family :) But all improve with a a time.
    I have UC too and I started to follow your posts rather recently. It is cool what you do. I believe that many people need to know that they are not alone and that every situation has a solution.
    I tried to eat according to SCD diet, but I failed few times. I did not give up yet – I am going to try it again for sure (as soon as I deliver a baby which I carry for some months already :)). However I wanted to ask you for an advice – if I may be so spunky…

    I would love to reach a point in my future when I would be able to eat raw vegetable and fruit (so far only cooked and only some types). It is my goal.
    Can you please advice how did you start with SCD diet? What was “the right way” to proceed? And after how long did you start to eat raw food? I need a bit of hope here :)

    Thank you a lot!
    Many greetings from CZ and let me know when you are here! :)

    PC: California and Colorado are amazing too – I was there once for a trip and I definitely plan to return.

  7. Hello,

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  9. Hi Adam
    I got diagnosed UC/Pancolitis 3weeks ago. When got home after 3 days I got rashes all over my shoulder and back, the next day it got worse speeding all over my neck and face. Now it’s taking over all my body. I’m so devastated coz I’m still dealing w/ painful colitis.
    Please help me!! What should I do?

  10. Dear Adam,
    I have purchased your e-book ( 1st of November, Paypal payment), but never received the link for the e-book. Maybe is something wrong with the automate mail?
    Can you please send the e-book link this email address?
    Thank you very much in advance.

  11. Hello,
    Do you have any feedback regarding the use of
    B17 Amygdalin ? My friend uses it to keep her UC under control. I would like to try it on my daughter but would like to hear from other UC
    Patients their experience and dosage.
    Thank you!

  12. Hello dear Adam, good day, I hope you are well
    I have been suffering from ulcerative colitis for 12 years and now we are almost silent, but I have a hard time eating and I get bloating, nausea and diarrhea whenever I eat, sometimes I bleed.
    I live in Iran and I can not buy your books online from here. Do you have a solution for me?
    Thank you for taking the time to answer

    1. Hi Elahe,
      No problem, I would be most happy to send you over my ebooks at no charge. Thank you for messaging and best to you and all the good folks in Iran.


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