iHaveUC - Ulcerative Colitis

One of Our Very Own is Researching IBD / Adolescents / Pain and Emotions!

By Adam on October 5, 2018 in Research

Big Big round of applause for Lana up the coolest city in Canada(Saskatchewan…coolest name for sure). (Video Below)

Lana sent an email over a few days ago letting us know that she is involved with some research focused on people like us (and like her) with IBD. She has ulcerative colitis too, and she needs some help.

NOW…I must warn, she is strictly interested in UC’ers in Canada who meet some age requirements, so not for everyone, but I thought this was a great opportunity to let other UC’ers see what some of the tribe is up to.

And, Lana … Read the rest

Continue Reading 0

Peptide Therapy?

By Jeff G on October 5, 2018 in Alternative Medicine

My name is Jeff. I live in Houston TX. I am 45 years old. My job requires extensive travel. I live in hotel rooms and airplanes the majority of the work week. I enjoy the outdoors and play golf as much as I can (pain permitting). I Have four beautiful kids and my wonderful wife of 20 years.

Some more background:

I love spending time with my family when I can. All my children are or were involved in sports. My two oldest children are out of high school and I have two that are still in. I Love to … Read the rest

Continue Reading 5

10 Years With Ulcerative Colitis

By Adam on October 2, 2018 in Happy Stories

Hey UC’ers,

What is Up…!!!!???

Today, October 2nd, TEN short (sometimes long) years ago, I was getting a ride down to the Stanford Colonoscopy Center, not sure what the heck was going on with my bloody poop attacks.

Ten years ago today, I also had an few tubes plugged into my arm, to shoot in some medication to put me asleep for the very first ever anal violation (full colonoscopy) of my life.

And of course, it was ten years ago today that in the waiting room, the gastroenterologist (Dr. Harvey Young) told me and my family who … Read the rest

Continue Reading 33

Xeljanz (Tofacitinib) Medication for Ulcerative Colitis

By Adam on August 31, 2018 in Xeljanz (Tofacitinib)

XELJANZ® (tofacitinib) for the Treatment of Moderately to Severely Active Ulcerative Colitis

On May 30th, 2018, the Pfizer corporation, announced that the Food and Drug Administration (FDA) has approved its application to allow for Xeljanz to be used by ulcerative colitis patients who meet certain criteria.

There are some more details listed on the Pfizer website about this new medicinal product of theirs. You can read the full press release here: https://press.pfizer.com/press-release/pfizer-announces-us-fda-approves-xeljanz-tofacitinib-treatment-moderately-severely-act

What would be excellent is for the current and future UC’ers of the world who have experience with Xeljanz (Tofacitinib) to start including their reviews of this on … Read the rest

Continue Reading 3

Simponi Failing – Tofacitinib or Surgery

By Amit A on August 31, 2018 in Colitis Stories

Meet Amit:

I’m a Program Manager at large credit card company, 47, male, Chicago, Ulcerative Colitis diagnosed in 2009, married with two kids and otherwise a healthy human being. On my 6th drug for UC out of a possible 7 or 8 per my GI and potentially nearing surgery decision.

Some more about Amit:

I sold my first web page to mortgage broker in 1996 using Netscape 1.0. My favorite instrument is the tabla and I like reading my kids’ novels that they read for school.

Current Symptoms:

10-15 BM per day. Abdominal pain after most BMs. Food intake triggers … Read the rest

Continue Reading 5

1 2 … 469 Next →

Recent Reviews

Colitis Book Reviews SKU UPC Model

Very informative

Oct 20, 2018 by Mary Maass

City/country:: Cincinnati Ohio

I found Adam’s book to be very information on about having UC. I am a mom of a UCer but I also have digestive issues. It can be overwhelming at times and Adams book brought me hope. I highly recommend it as a book to help you find your way through it.

Sharing is Caring

Mar 25, 2018 by Lily Totovian

Thank you for sharing your story and journey to remission Adam. I am integrating some of your ideas and asking more questions of my health care practitioners to get on my own path to remission faster. Also, the immediate changes I made in my diet has been encouraging to alleviate some symptoms.

Thank you again. I look forward to the next iteration of your cook book.

Must read

Mar 15, 2018 by Carly

City/country:: Lakeland, FL USA

What an amazing resource. It definitely opened my eyes to the world of UC. I love how realistic Adam was about all the different treatments, and the details of the struggles to get to remission. While it definitely wasn’t what I wanted to hear (I think we can all agree it would be nice if we could just wake up and feel better), it was definitely comforting to know I’m not the only one struggling hardcore to get to remission so that I can hopefully control my pancolitis with lifestyle and not medications eventually. The book had me laughing at times and in tears from being able to relate to the struggles. Thank you so much for writing this book. It’s been such a valuable resource in so many ways, including helping me learn ways to share information so my family and friends can have a better understanding of what it’s like. So again, thank you for this Adam. It is a must read for anyone struggling to gather as much information as possible.

My Biography

Jan 16, 2018 by Prinolan Govender

City/country:: South Africa

I honestly felt like you wrote my biography. I've lived my life the same way you did, eating, drinking and partying without having to worry. I did have signs along the way as well but didn't take to much notice to it until the blood showed up. I was diagnosed in October 2016 and at the time my GI told me it had nothing to do with my diet, so I lived my life the same way I always did. I've been trying many different meds without little or no results. After my 29th birthday in June 2017 I started feeling more sick and the weight loss had started, I've always been a skinny guy and ever since I lost quiet a bit of weight which has been something that just makes me feel more uncomfortable. I consulted a Homeopath in October 2017 and she started me on the Paleo diet, while researching that I came across your site and the SCD diet which I started in December 2017. I didn't do any of the diets a 100%, but I did start seeing results. I went a bit off the rails during the festive season while traveling but I'm easing into the SCD diet again and plan on going 100% this weekend. UC has caused a lot of stress for me but I've come to accept it and look at it in a positive way. My goal is to eat healthy, put some weight back on and start living a normal life again. I haven't let UC stop me from living my life although it has limited me, but thats all going to change! Thank you for sharing your story and being an inspiration to all of us.

Feeling lucky

Dec 10, 2017 by Kathryn-Jane

City/country:: Vancouver Island, Canada

I found this to be a very funny, informative book. It made me realize how lucky I am, as well. I haven't suffered anything like the severity of symptoms Adam has experienced, for which I am grateful - but that's not to say I haven't known the usual UC misery at times! As a wordsmith and grammarian, though, I wish the book had been given a more thorough edit. Maybe in the next edition.

Feeling crappy to happy

Nov 21, 2017 by Lynn

City/country:: North Carolina

The book was so honest and forthcoming about UC symptoms. It was almost like reading my own story since this journey began for me 2 years ago (no remission yet). I was starting to feel pretty hopeless about this whole situation but Adam’s book gave me hope that I (we) can take control of UC. I have been following the SCD and eating what Adam ate while in a flare. I can tell a difference! Still sticking with my docs medical plan for now. But, I am hopeful that healing is coming and that diet is the key. Thank you Adam for continuing th share your journey!

Thank you!

Oct 06, 2017 by Jennifer

City/country:: Toronto, Canada

Thank you so much for writing your e-book. I'm glad I came across it. I learned a lot. I realized that I don't like my GI doctor and need to find another one. She hasn't helped me at all. As soon as I was diagnosed with a mild case of UC back in 2009 I knew that I had to visit my Naturopath. I was not interested in taking any medication. I was prescribed salofalk enemas and I tried a few but when you keep having to run to the bathroom it didn't make any sense to me. I was prescribed the pills as well. I sat down with my Naturopath and we went through the side affects. My symptoms were less than the side affects so I decided not to take it. It has been quite a journey and unlike Adam I knew it had a lot to do with food. I'm sorry you had to suffer so much Adam. I gave up pop and any carbonated drinks, deep fried foods and aspartame/splenda. This seemed to help. I now think I need to take things to the next level. I just came across FODMAP and what Adam suggests. I'm also looking into Keto or Paleo. My stress levels are less currently due to a less stressful job and I realized that has helped. I take supplements like probiotics, digestive enzymes, fish oil, etc. Thank you so much for sharing your story Adam. It makes me feel like I'm not alone in this.

eBook Details ->

Navigation