Hey UC’ers, here’s an update from Frankie below: Dear UCers, I want to thank all the participants who have already taken part in this research study. Thank you! There is no doubt that your participation in this study will enable us to learn more about how IBD patients perceive their medical community, generally, and specifically with regard to trust. Again, thank you all. The research… Read More »Research Study Update: Inflammatory Bowel Disease and Patient Trust
Newly (a few months now, I guess not that new) diagnosed with moderate UC, which began in July 2022 with blood on TP, misdiagnosis for a few months, 5 doctors and finally a colonoscopy. I was told blunty “you have a lifelong disease with no cure and we’re going to start you on IV or self injection treatments. Still stuck on the first part of… Read More »My Circus
My name is Dusty. I’ve had UC since 2006. I will turn 65 later this year. I am currently on Entyvio and Budesenide for my main treatment. I am worried about how I am going to get treatment once I go on Medicare. Is it possible that I could pose a question to the group to ask if people have gotten coverage for the more… Read More »How to Get Treatment once on Medicare?
Hi UCers, This week, I had a very interesting video interview with Frankie Figueroa, he is working in his PhD final project, and has put thousands of hours into research which will impact many of us living with IBD (for us … ulcerative colitis). You can participate if you were diagnosed in the United States. Watch the video, you will get a good feel for… Read More »Interesting IBD Project From Frankie
Brief Bio: My name is Cheryl and I was diagnosed with UC In October 2022. UC (lower end of bowel only) I also have diverticulitis, Acid reflux and Central Nervous System Vasculitis, which is another autoimmune condition that I was diagnosed with in 1999 after two strokes. I took high dose of prednisone for a year, another 6 months to taper off, 2 intravenous Cytoxan… Read More »I Love SCD!