First, id just like to say thanks Adam for making this site … i FINALLY found a website that actually has information on it from people who suffer with IBD as i do.
My story … well I’m 27 and have a twin sister and we both have Colitis!!!
Our doctors have been so useless in helping us … there solution is more drugs the better …. they don’t seem to ever care about what your actually doing through.
I have had it for 5 years and have had 3 bad flare ups, this one im having now has been ongoing for about 10months!!!!! I had my beautiful baby girl in January 2011 and my Colitis started to flare up in my last trimester.
It was so bad that i would have to stop her from feeding and run to the toilet and leave her screaming … so awful and upsetting listing to her cry while i was on the toilet unable to get to her!!! …. So sometimes i would take her to the toilet with me :-) …. not the most hygienic thing to do but i had to do it.
So my baby now is 6months old and i still have my colitis quite bad … im on 10mg of Prednisone and Asacol tablets but they are doing nothing. I have been drinking green tea and that seems to be helping the cramps.
So i am considering changing my diet and have been looking for ideas on the net hoping to find a cure or some relief from this horrible thing.
So good to read your stories it gives me some hope and also lets me know that im not alone!!!
Submitted by Louise in the Colitis Venting Area