New Mom, New UC’er

Any new moms with success with medications?
How long with the UC Diet did you notice a difference?
It was a little over a year ago I was diagnosed with UC. I am a emergency room RN and put off going to the hospital for about 3 weeks but as my bleeding and other symptoms got worse I knew I had to go get it checked out.
I was admitted to the hospital stayed about a week, I received and colonoscopy and the diagnoses of UC.
I went home on a Thursday from the hospital and found out 2 days later I was pregnant. I was very concerned about the babies well being due to the anesthesia, medication and procedures I had went thru in the hospital. I was considered a high risk pregnancy and was very well monitored by three docs during my pregnancy. I now have a very healthy little boy who will be 11 weeks old tomorrow. I am currently taking Asacol, enemas and I weaned myself off prednisone 9 days ago. I was on prednisone for nearly and entire year and do not like taking it. The drugs I can take are very limited due to the fact that I am nursing. I am concerned however because I have bee n feeling terrible. It is not so much the getting up and having to go to the bathroom often it is more the joint, back pain and severe fatigue I have been experiencing. I go back to work in 2 weeks and I am worried I wont be able to hang for my entire 12.5 hr shift and I know that I am being the best mom I could be to my little boy. I am feeling very down today and I am so stiff and in a lot of pain. I feel like no one in my family really understands and I feel at times I do not understand. I just want to have energy again and feel well. I am willing to do what ever it takes.
written by: RN with Questions
submitted in the Colitis Venting Area



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2 Responses to New Mom, New UC’er

  1. UC mama December 2, 2011 at 1:46 pm #

    Hi,

    I’m also a mom, have had UC about 14 years, found I had UC my 7-8th month of pregnancy, so I definitely understand your pain and dilemma. Take my advice (though it’s hard for me to take my own advice) take it easy and don’t go back unless you’re pretty close to normal. At least consider requesting to go back with reduced hours. I also work in healthcare/hospital so I know it’s stressful, and stress makes it worse. Pace yourself. If you’re not well, you can’t be there for your son and the others who depend on you and love you!

  2. Debby December 5, 2011 at 10:03 am #

    I agree with UC Mama. You need to stay home and pace yourself. I was diagnosed 29 years ago when I was 6 months pregnant with my second child. Having energy to care for yourself and your children is the important thing right now. RE: meds-I have never been able to take Asacol, Lialda, ASA etc. due to serious side effects like blacking out with violent vomitting and diarrhea. Predisone was the only drug that worked for me during my pregnancy and in the following flares. Yes, I was afraid it would affect my child, but I am happy to report she arrived with all parts intact and working properly. Today she is a very healthy young adult. I did stop the predisone after she was born and was able to breast feed for a few weeks, but the UC flared after about six weeks. I went back on predisone to get into remission and regain strength so I could care for my baby and her 2 1/2 year old sister. Hope you get to feeling stronger !

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