Hi. My name is Stacy. I have had UC for 17 years. I am a mom with 2 small kids.I hope that I can share some good info about me and this sinister disease because I think we all need to work together to kick its a$$!
Giving UC the Beatdown:
I first was diagnosed in 2005, hospitalized for a month, did steroids for a year. Finally regained remission and stayed on dipentum Then I had a 7 year remission where I went into denial that i even had this nightmare of a year called being diagnosed with UC. During my remission I had a great career met a great guy got married and had some babies. I started flaring on and off was totally miserable trying treatments, blew through doctors and tons of money trying every alternative treatment. Last June I had a fecal transplant via colonoscopy. Best life choice I ever made! My husband was my donor – I was so lucky to find a doctor willing to do this procedure for me. It is being done in Sydney Australia in a clinic and having great success. Since a week after FT i have been symptom free. I would be happy to talk to anyone about the FT – what it was and how it works. ALl of the medicines that I have tried are Asacol, Steroids, Dipentum, Colozal, Lialda, Rowasa and Steroid enemas. I have done herbs, Chinese and nautropathic medicine. I have taken VSL and florastor. I know that Dr. David Rubin at the University of Chicago is working to get a clinical trial done for Fecal transplants. I have been in touch with several others that have had one and are doing well. Some people try and do a home version, but for me because I have pan colitis I needed a doctor to do it via colonoscopy for it to work. There are some that think its gross and well it is! RIght now I am just so grateful that I can be present and healthy totake care of my family and I am down to 2 Lialda a day.
written by Stacy
submitted in the Colitis Venting Area