Blueberries

Introduction:

Mom of a 16 years old girl who was diagnosed with ulcerative colitis(UC) second week of January 2012. We are living at the moment in Paris, France.

Blueberries & Colitis:

My daughter (16) started feeling sick with bloody stool early December 2011 – she was very stressed out with a huge work load at school, including studying for exams, and extra curriculum activities. Her primary doctor advised us to see a Gastroenterologist after a blood test. She had a colonoscopy within 3 days after her first visit the Specialist, and we were told she had UC (her entire colon was inflamed). He put her on Pentasa (both oral and rectal) for 2 weeks. Within a month she will reduce her medicine to once a day.

I attacked Google to learn anything I could about this terrible condition. First, I was amazed at how “common” this decease is as I had never heard anyone mention it. By know I have met several people who knows someone who has the diagnosis. I ordered the book “Breaking the Vicious Cycle” and put my daughter on a SCD diet as soon as she started the medicine. Within 4 days she had completely stopped the bleeding and diarrhea.  I also serve her a serving of Blueberries and Omega 3 every day. There has been a study done at Lund University in Sweden where they researched the benefit of Blueberries (which I pick lots of during our summer months in Norway) and Biotic for UC patients. Very positive results. I do want to believe that a good diet benefit people with Chrons or UC.

The specialist did not want to hear about such a thing,

but I would like to prove him wrong…

Meanwhile, I will encourage my daughter to be wise about what she eats and drinks. She will be moving to college after next year, and she will have to figure out how to deal with this on her own. I wish all of you who suffer with this all the best. You just can’t give up! (I met a French lady the other day who was diagnosed with Crohn’s 30 years ago. She eats lots of bananas even if she hates bananas:)

written by Rose

submitted in the Colitis Venting Area

 




blueberries

12 Responses to Blueberries

  1. Desperate Husband February 12, 2012 at 12:38 am #

    Rose, that’s good you found us on this site and shared. It’s not until diagnosis that people find each other and see how common the disease really is. You will see good success with the SCD for sure. It’s probably the most popular treatment for UC. I read a book, “Self Healing Colitis & Crohn’s”, that talked highly of bananas. Best of luck to your daughter that she keeps this under control.

    -DH

  2. David February 12, 2012 at 7:12 am #

    Hey everyone….first time finding this site, seems cool and up to date with the latest trends toward alternate treatments. Thanks for then efforts on this site!

    I would like to share some of my experiences. I was diagnosed about 3 years ago (all of our experiences in being diagnosed are all pretty similar). Immediately following the colonoscopy I was given the regimen of Prednisone and was started on Asacol. Following the procedure I was immediately better. However, after a few months I didn’t take the meds well b/c I’m terrible when it comes to that responsibility, especially when thing are doing well and I’m not reminded why I have to take the meds on a schedule. My first flare up occurred 1 year later (and it was bad) at which time I was given another Prednisone treatment, which didn’t do jack. Obviously because of my flare up I was back on the prescribed (and bumped-up) Asacol schedule, but the flare up continued on. After 2 months I returned to my GI and I asked for another Prednisone treatment because, after all, it worked so well following my initial diagnosis. I went through it and again nothing came out of it.

    It was at that point that I read an article online followed by research of others with the same claim. My no-doctor, no-medicine treatment now….FASTING! Anyone who came out of diagnosis with immediate improvement, please consider the following info.

    Thing about it….it makes all the sense in the world! You go through a short period of fasting prior to a colonoscopy along with flushing the system from anything sticking in you gut that could be causing irritation. For me this self-treatment has stopped me from going to the doc and I’m off all medications. Granted, I’ve had another 2 flare-ups since I’ve stopped seeing a doc, and I’ve fended them both off through fasting for approx 3 days. My flare ups are triggered by my irresponsibility to stick to a good diet, as I loved so much of the things that I am not told to avoid (crushed red pepper, caffeinated beverages, beer & wine, etc).

    Anyway, 3-5 days of fasting allows the body to stop putting so much energy into digestion and allows the digestive system to do some healing. When coming off the short fast it is important to be gentle with the foods you choose, but it has saved me gobs of money that was flowing to the doctor and to the pharmaceutical companies for treatments that were not helping at all. This is a somewhat controversial method, but it has worked for me and I put on plenty of pounds between remission that the weight shedding during the fast is not of any concern.

    I’m currently in a flare up and am on day 2 of my fast (day one is HORRIBLE, every time!) I began fasting the moment I confirmed it was blood I was seeing, and as mentally tough as fasting can be it is worth the effort.

    GIs won’t tell you about fasting, as there is no money in it and they’re not needed for that treatment. They push the new, hot, premium-priced drugs that are pushed onto them by the pharm reps. Get with a doc who can confirm that you are safe to fast and give it a shot. In addition I do take fish oil and probiotics and try to regularly eat the things that are considered super-foods (salmon/tuna (fatty fish), blueberries (see Rose’s info above), eggs, etc. I truely feel that the final step in maintaining a solid remission is to practice self-control with the foods that I know are the cause of my flare-ups, and hopefully I’ll mature to the point where I know the benefits outweigh the consequences.

    Anyway, thanks for taking the time to read this. I truely value everyone’s posts to what works for them, as that is why I found my treatment. To each his/her own, and fasting has been my all-natural solution.

    Final request….I read online yesterday about a super-probiotic called Lee Swanson Ultimate Probiotic and am interested in hearing from any readers of this website if it is truely as helpful as some of reviews say. I’m looking to give it a shot and will keep posted on my ongoing results.

  3. Maggie February 12, 2012 at 8:06 am #

    Diet is a huge key to keeping UC under control. I had never heard that about blueberries but I like to use blueberries, bananas, or pineapple in a smoothie and I use a milk substitute, almond milk. I like to try to find a fruit juice that’s good for my blood type (O) with no added sugar and the only thing really is pineapple juice, but I love my smoothies! Cherry juice is good, too, from the health food sections but it’s so expensive! I wish your daughter the best.

  4. Dede February 12, 2012 at 1:11 pm #

    Hey Rose, glad you found us. I have Crohn’s disease- uc also. I just wrote to this awesome website’s founder, Adam, about why it seems there’s a rise in young, college-bound girls getting inflammatory Boswell disease? In my town, a 17 yr-old dancer is struggling with Crohn’s, and I told her mother about this site, too. It is scary enough to have the disease, but getting support, like you are doing, and educating yourself, like you already have, is just the right thing to do. My son doesn’t have IBD, but he is a second year student at Lewis and Clark in Portland, OR, and they food is so healthy, which makes me happy! If you help your daughter now, she will be better prepared when she goes to college.

    My friend, the mother of the dancer, is having her husband and son do the SCD in support of the daughter. I thought that was cool!

    I did it for three weeks, and that got me n the road to healing! Tha was in 2006, after my surgery. I slow,y started eating solid food, and I kept track of it…. Still in remission, but it takes planning and tell her to avoid food at potlucks ! Just say, I brought my own food, as I have allergies, or something! People can be so pushy about food! Best of luck!

  5. Debbie February 13, 2012 at 10:06 am #

    Hi All, I too am glad you found this website to share your daughter’s story. I am 48 and was dx: at age 24. It felt like a life sentence. After having life threatening C-DIF with thrush in 1993 I quickly realized what a huge role my diet was playing that along with stress. My doctor, while he saved my life, never really seemed to put much emphasis on what I was eating. He would always suggest I “just relax”. I was the one to search out vitamins and diet options.

    I must say, perhaps because I have been asymptomatic for about 12 yrs (unless I eat too much popcorn or greasy food), I had not heard of SCD diet. I am also interested in researching the benefit of blueberries. I am on Dipentum 1500mg/daily which I get the sense not many people take it. I find stress is the primary cause of my flare ups, occassionally food will cause it to, but whenever I do have a flare up I always go back to my basics which is: no soda, no caffeine, low fat, low fiber and take Fibercon 2x/daily. Do any of you have a similar expereince? Thank you all for sharing your stories. Misery does not like company but company always seems to offer support. Deb

    • LightLove February 16, 2012 at 6:49 am #

      Thanks for your post Debbie. I was diagnosed under 6 months ago, so it’s wonderful to read about the experiences of people who have been able to manage their UC positively.

      I agree with your comments. I’ve noticed that stress is the biggest inducer for symptoms- it’s almost instantaneous. I also seem to be following a similar diet, which given how recent my flare up was, is my new daily regime. Unlike most people on this site, I haven’t tried the SCD diet, but have chosen to be smart about eating low fat, low fiber, no oil, and gluten and lactose -free ( for atleast 90% of my diet), and it’s been working well.

  6. Debbie February 19, 2012 at 8:55 pm #

    I cannot seem tovfind any info re:bennefits of blueberries. Aalso wondering,how people who need to lose weight are doing on the SCD.

    • Rose February 20, 2012 at 1:19 pm #

      google: Lund University – Blueberries

      • Debbie February 20, 2012 at 5:57 pm #

        Hi Rose, thnk you for the info…will do.Deb

  7. Debbie February 19, 2012 at 8:56 pm #

    Sorry for typos, i am typing from my Nook. Thanks for any responses!,!

  8. Leilani February 25, 2012 at 11:10 am #

    Hi Rose,

    Thanks for sharing your daughter’s story! I was diagnosed when I was 30 but I suspect I’ve had UC since I was about 19 years old (first time I noticed blood in my stool but was too afraid to tell my mom). I lived with UC through college and my advice to your daughter – she needs to at least tell her teachers about her condition. I cannot tell you how many times I’ve had to get up in the middle of a lecture to use the restroom. During exam time, when you’re already stressed out, it can be even more brutal because teachers automatically think you’re going to “cheat” if you leave the classroom in the middle of the exam (and some do not permit it at all). She needs to map out where the closest restrooms are and become familiar with the student health center (if there is one on her campus).

    I must say that the SCD diet has definitely improved my quality of life and I feel like a “normal” person again. Shortly after I was diagnosed and put on Asacol HD and prednisone, I read about the SCD diet. When I was tapering off of prednisone the bleeding returned and I was scared. I figured I had nothing to lose so I started the SCD diet and within 4 days the bleeding stopped and I began a slow road to recovery. It has been well over a year now and I am in remission (aside from a small flare due to required antibiotics for a severe sinus infection). I hope your daughter can be successful on the SCD diet!

    Blueberries: I have read a few articles myself on the beneficial properties of blueberries when given with yogurt (or another source of probiotics). Apparently, the combination of the two are incredibly important in helping to heal UC.

    I wish you and your daughter nothing but the best! Good luck!

  9. Andri March 22, 2014 at 7:06 am #

    It is great that people are finding out about blueberries!
    I was diagnosed with UC in 2008, got diagnosis “upped” to Chron’s in 2010 and was having really bad flare-ups, was in hospital getting prednisol into veins several times a year. I have been in remission since august 2013, and was crazy enough to try and quit the meds, as i got such a good result with blueberries that it encouraged me to try and see if I would get another flare without meds or not. It was damn worth it!
    I did not eat raw blueberries though. I bought organic blueberry juice (100% cold-pressed, unfiltered juice from wild blueberries, no sugar, no water added) and drank it diluted with water (diluted almost as little amount as you would use syrup basically, maybe a little bit more, like 1:7 or 1:8 even) every morning before I eat anything and in the evening before supper, 1 glass. The effects that followed were amazing for me:
    1) The flare-up that was about to start (I already had some blood in stool and high amount of liquid stools per day) did not start – this was strange to me as I never got out of a flare-up before without some prednisone.
    2) Inspired by the initial effect, i continued this for about 2-3 weeks and I got so well as I had not been in even a few years!
    3) The final result: I am off meds, drinking the juice like a fanatic every morning, having 1 solid stool per day.
    If anyone else told me that this is possible, I would not have believed them ever, still I feel that there is a catch to this but so far I have been in remission for 8 months and like living in a (friggin’ positive) dream!
    My point is – keep on going with the blueberries, but use the juice, not the whole berries – and you may have some amazing results!
    Just my 2 cents :)

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