I was diagnosed with severe UC one year ago. My life has altered since that. I’m still in graduate school and am due to graduate in May of 2013.
1-3 BM per day
I get Remicade infusions every 8 weeks & there’s always 1 day out of that time period when I’ll go 5-6 times. Then I go back to my “normal.”
First off, I was able to get an internship at a nursing home. I love working with the people there, but the work itself could be really frustrating at times. But then, aren’t all internships supposed to be somewhat rotten?
I went to see my GI doctor for a check up. I knew that it would be time to schedule my colonoscopy, so I was prepared for that when I arrived. He asked how I was doing & by this point I was going to the bathroom about 5 times daily (all solid). I told him that as soon as I went for Remicade, literally the next day, I dropped back down to my “normal.” I asked him if that could be stress-related, and he thought that there was more to it than just stress. So I scheduled my endoscopy for ten days after my 27th birthday. What a gift to myself!!
I celebrated my birthday with my friends, family, and boyfriend’s family. I’m so amazed and thankful that everyone has become so incredibly understanding as to what I can and can’t eat. I ended up with three parties & 2 birthday dinners. So, all in all it was a great weekend.
My doctor wanted me to start a clear liquid diet the day before the procedure. Since I couldn’t really compare anything to my last one, because I was in the hospital, I decided to do that for 2 days. Needless to say, I was hungry & really cranky. It didn’t help that Aunt Flow decided to come early, which was just awesome!! :/ There’s nothing like prepping for a colonoscopy during that time of the month.
I was given Suprep, which has got to be the most vile thing on the planet. It was kind of like drinking grape flavored axel grease. My friend called to offer support & told me to think of it like a cocktail. Yeah right!! Like that would work. I’ll never think of grape the same way again. But, I was able to get down most of the first dose the evening before, until I started to throw it up & I quit. I got up extra early that morning to try to get down the second dose. I was able to get down almost all of that.
So anyway, the big day arrives. I knew I needed to be cleaned out, but I didn’t know what that should look like. Again, I was in the hospital for my last one & all I saw was blood. So I did an internet search & discovered I was supposed to be producing some sort of yellow thing. Good. That’s what I had.
I wasn’t nervous at all. I was just totally ready for the thing to be over with so I could get some food. My mom drove me to the Endoscopy center & I was taken to the back. My nurse was so sweet. She put on Journey on Pandora for me while I was waiting on the doctor. Then the CRNA came to deliver the “magic juice” to put me to sleep & I woke up about 20 minutes later.
Turns out that there was some SERIOUS healing over the past year. Yay!! What good news!! My doctor found a bunch of pseudopolyps all throughout my colon, which he said was to be expected & it was nothing to worry about. And it turns out that only the lower part of my colon is now the part that is still really affected (it was my entire colon last year). He said that if I should go into a flare, we’d be able to treat that spot locally with some enemas. Oh joy!! LOL
There was still some inflammation, so I’m to continue on my medications. However, he did feel like he could remove the Nexium from my list. I’m soooooooooo glad to be off at least one!!! That was my goal for this point.
So all in all, my summer has been super busy & really productive. I ended up with all A’s this semester & may end up with a job offer. I know I was the only person to apply for this one administrative position & will be interviewing on Friday. Wish me luck! The one thing I’m concerned about is, how do I bring up the fact that I get Remicade infusions? I feel like they ought to know. They kind of do now, but I want everything to be out in the open to begin with. Any suggestions?
Where I’d like to be in 1 year:
Well I just got off one of my medications, which was my goal. So I guess my new goal is continued healing.
written by Lara
submitted in the colitis venting area