Hi there, I’ve just found this site and at last it’s great not to feel alone anymore.
I was diagnosed with ulcerative colitis when I was 18 and have now being living with it for 20yrs. I’ve been really lucky that I’ve only ever had two really bad flare ups but the result of those is that it is now pancolitis. I’m having a flare up now and I feel just like I did when I was 18, scared that it’s going to turn out I have colon cancer, cause the symptoms are a bit different this time. The blood&mucus are there the pain is there, the feeling sick is there, the running to the loo and thinking your insides are coming out is there but the really loose bm are not. My blood work seems to be ok but I know I’m not feeling right. They put me on the steroids which I hate cause I’ve done really well to lose a load of weight and I know will now creep up again, increased the meds I’m on all the time but they gave me the enemas too which normally work but I can’t use them t his time as it’s too painful. My doc has told me they’ll see me in two weeks but if i’m not feeling better to the hospital & they’ll bring me in I know it’s probably the best but it’s been 11 yrs since I was in the hospital last time. I sometimes just feel so angry that I have this and I couldn’t really talk to anyone about it so thanks for setting up this site so I could have my little rant.