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Help, I’m A Mom of 3 Great Kids and I Have Colitis

I’m young mother of 3!  I live for my children, I’ve lost 3 babies and had 3 healthy babies so I am blessed.

Hi everyone, I’m 26 years old but I was diagnosed with UC when I was 18.

At that time it was under control. Since i had children my whole patterns has changed. I’m frequently soiling myself as I’m not having any warnings I need to go like before the pain was a warning. I’m having a flare up at moment its lasted 6weeks but I’m having pain in my legs,my back and hips my legs by far the worst!!! I’m waiting for an upper GI and another colonoscopy as I’m physically and mentally exhausted I’m scared to leave the house with fear of not making it to the toilet.i take painkillers and mesalizine and steroids (short course!).

Colitis Medications:

Mesalazine oral tablets work better than suppositories.  I think that is because the rectum is inflammed and it’s used to pushing waste out rather than take anything in.

Submitted by “Jenna Young Mum”

in the Colitis Venting Area

Any advice any fellow sufferers can give would be amazing.  I’m still young with 3 beautiful kids don’t want this to ruin their childhood with a sick mummy.

5 thoughts on “Help, I’m A Mom of 3 Great Kids and I Have Colitis”

  1. Hey!

    I am also a mom with Crohn’s Disease and Rheumatoid arthritis. I am 32 and have been diagnosed since I was 15, so although I’m kind of young, I’m a veteran if the disease and have been through many “situations”.

    I have been on Methotrexate, Remicade, Enbrel, Orencia, Cimzia, and now Humira in addition to constant steriods and other FANTABULOUS prescription combos. LOL

    My best advice is control your symtoms as much as you can through your diet. You know what foods make it worse, so listen to your body. I only can eat yogurt chicken soup, ensure, and egg salad. Going on 3 years of that diet! JOY! I don’t like it an have regretted the few times I strayed. When you are a Mom, you do not have a choice but to take care of yourself.

    If you are as bad as mentioned above, you really need to let your dr. know you can’t even leave the house. You may need IV steroids, a better drug, or surgery. Try a yogurt diet as well.

    You will not ruin your children’s childhood. Be honest with them and they will become more compassionate as a result. Do you have any support to help you?

    1. Hi julie,
      Thank you for responding to my story. I have been to my doctor who has put me on antidepressants to help lift my spirits which are helping.i was admitted to hospital on two occassions and on iv steroids but that doesnt help me long term.when i take my kids to school i make sure i dont eat after 7pm night before crazy i know but it works.i have kept food diaries to focus on what foods dont agree with me and to be honest it kind of leaves me with little control my diet i eat small portions but often im not heavy person i weigh bout 8stone and im 5ft so cant really afford to lose weight.i find if i eat for example a sunday dinner (which i love!) It kills me im so sore and never off the toilet sometimes dont even get to finish what im eating before im running to the toilet.

      Im concerned about my joints this is a new symptom for me and my legs feel like there on fire.i cant afford to be restricted anymore than i already appointment with my doctor isnt until 6th december so more waiting. Thank you x

  2. Hi Jenna–I’m a mom of two teens, 13 1nd 16, and glad they are old enough to cook dinner and do chores when I have a flare-up. It must be so much harder when they they are younger and needing more hands-on care all the time. ButI think it does give them more compassion–do not worry about your children–your love is enough. Even healthy moms worry that they are never doing enough for their kids–but children doing things to help their family helps them become better people.

    I hope your path leads to healing…
    Mary Anne

    PS–(General question–has anyone switched from asacol EC to asacol HD and noticed any difference? I cannot take the HD kind.)

    1. Hi anne,

      Thank you for kids are 8,5 16mths so a lot of hands on and running around lol which i love.i worry cos when they see me with hot water bottle on my tummy or going to get my medication there like mum not again,why u always sick or sore. Its not fair on them as im so hands on i do everything with them.lately with my joints being so sore its impossible to keep going way i was.ive told them in a way kids understand (i hope !) Lol. My husband is supportive and helps when he family are great too but i feel like a burden is last option for me x thank you for your kind words means a lot.

  3. Hello Jenna,

    First off, I have no idea what 8 stone is. I do have Crohn’s. I am 62 and nave had it since I was 18. The advice people are giving you about listening to your body is the best. You will have to learn what works for you and what doesn’t. Now for my advice.

    Keep your head up and don’t let this disease take over your life. I have been in constant pain since I was first diagnosed but learned meditation. I take 2000mg of mesalamine 3 times/day. I also take Glucosamine and Condrointin for the arthritis pain. I still take pain meds when I can’t sleep. I also take loperamide HCl. I recently found out that frankincense as boswellia works as good as mesalamine with zero side effects. My son has Crohn’s and went through many different sets of med buts got on Humira with excellent results and now no longer takes any medications.

    By the way, back then when you got the diagnosis of Crohn’s, you had surgery to remove the infected tissue. I have 6 inces of my large bowel removed and 10 feet of my small bowel taken. The weight fell off me pounds at a time. I was told by many people I wasn’t going to make it. Now, I am 290 pounds (about 130KG). So, hang in there. Keep a clean change of clothes with you all the time. Let your kids know what is going on. By all means, laugh your ass off. :)

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