Thank you so much for all of your helpful emails, information, and encouragement. I’ve been a member of your newsletter for only a few weeks, but I’m very glad you have built this resource for those of us struggling with UC. I’m not sure if you want people emailing you directly – if not just let me know and I’ll go through whichever channel you prefer in the future.
I just felt like reaching out because your email was so poignant today(from the free newsletter). I have been struggling UC for 2 years (officially diagnosed last May), and I’ve been in an active flare up for a full year…but who’s counting….:P I definitely have felt very low, angry, frustrated, sad, and most of all hopeless as I’ve tried a lot of things and this flare up will not seem to budge. I’ve been on Entyvio for 2 months and was very hopeful at first, but I have not seen any improvement yet. I am in the middle of negotiating some work accommodations at my new work place to help on the days when things are really bad, and it’s definitely a hard and scary place to be.
I have sought out other UC’ers through the Crohn’s and Colitis Foundation of America, there was a local support group I attended once. It was nice to talk with others who understand and to know I wasn’t along, but honestly their stories about having surgery and everything they’ve been through scared me a little – I’m not to the point of having surgery and hope to never get there.
Emotional Elements of Ulcerative Colitis
I don’t want to be a downer, but that is unfortunately the reality sometimes with this illness, isn’t it? I’m trying to stay hopeful though, and to see this as an opportunity for growth when I can. Thank you so much for listening – from reading your website, I know you understand what I’m saying. I’m getting more serious about investigating possible emotional trauma/blockages that may be the underlying cause of the Ulcerative Colitis and have started going to therapy specifically for this. I’m wondering if you’ve run across anyone else who has tried to address UC from that angle?
Again, thank you for reading and listening. I appreciate everything you’ve done for those of us living in this tough position. I also find it inspiring that you’ve utilized your experience with this illness and created something so useful. Your encouragement and reminders that we’re not alone really are helpful.
Have a great weekend,
New user of the iHaveUC website in early 2017, diagnosed about two years prior!