27 Responses to Thank You UC – Pablo’s Incredible Story

  1. Adam
    Adam March 12, 2017 at 10:09 am #

    Pablo,

    A massive thank you for sharing your story with all of us.

    I can’t thank you enough for putting your life out there for all of us to see and read, and wishing you and your family (especially your father for cleaning your for sure stinky underwear down by the river:) an awesome start and rest of 2017 and well beyond.

    Take care, and thank you for all your thoughts,

    Adam

    • Pablo Romero
      Pablo March 12, 2017 at 10:22 am #

      Thanks Adam! For me, putting it all out means more authenticity in our interactions with each other. While I haven’t participated much in the past, your site (and everyone who’s shared their stories) has been super helpful for me in my journey. So again, thanks to you and the community you’ve created.

      As for my dirty undies, yeah, I bet my dad didn’t think he’d be washing his son’s at age 35 haha. He’s my hero. A huge support and inspiration for me.

      Take care!

  2. Rick March 12, 2017 at 10:43 am #

    Hey Pablo, a great, inspiring story. How unique is every IBD sufferer’s journey.
    Thank you so much for sharing a good deal of yourself!

    • Pablo Romero
      Pablo March 12, 2017 at 2:38 pm #

      Thanks Rick! The uniqueness of everyone’s journey was definitely a hard lesson learned. I remember getting so frustrated when things that worked for others, didn’t do anything for me. That being said, I’ve learned so much from trying a lot of different things, and now I get to apply some of those learnings today (diet that works for my body, changing the way I exercise, mindfulness etc.). Thanks for reading :).

  3. Ioanis John Nikolaou March 12, 2017 at 12:32 pm #

    Thank you so much for this article. I am 1 year into my UC journey and found your story spoke to me. I have the same fears and anxiety you have and my anger is ruining my relationships. This quote will be printed and go with me wherever I go “This shift in mindset has opened doors for me mentally, physically, and spiritually (still working on this one). I used to feel like my life was being stolen from me, piece by piece. Today, seven years after being diagnosed with Ulcerative Colitis, I feel very different. I’m more mindful and grateful for all the amazing relationships and experiences I have in my life. I’m building something special with the people I love.”

    Thank You

    • Pablo Romero
      Pablo March 13, 2017 at 8:19 am #

      Hi Ioanis, and thanks for your kind words. Our loved ones are usually the ones at the receiving end of our frustrations. Practicing mindfulness and being grateful has made me a happier and better person. Don’t get me wrong, we still have our moments but they’re different now. I talk about my frustration, and together we look for ways to deal.

      One thing I left out as a treatment is seeing a psychologist with my wife. It allowed us to learn new things about each other. When you’re putting so much effort into your personal life (e.g. trying to heal, working, finding new interests), your relationships can change. In short, therapy is helping my wife and I reconnect with one another so we can empathize and understand what we were each going through…something we weren’t doing well on our own.

      It’s not always easy to accept help, especially from a psychologist or the like, but the way I see it – it’s just like doing exercise or following the right diet for your body. You need to exercise and expand your mind.

      Good luck in your journey. There’s something right for you out there so keep trying.

      P.

  4. Chris March 12, 2017 at 12:38 pm #

    I love your comments about being vulnerable and authentic in your relationships Pablo! You are an inspiring young man. I also like your honesty when you say you’re still working on the spiritual aspect of your journey . In the ups and downs of life cost by just being born in sinful bodies , there is only one who can give us peace in the midst of our trials . Jesus said, I am the way the truth and the life ,no man comes to the Father except by me. He can deliver from the greatest anxiety, oh where will I go when I die” . Just call on him Pablo- no other religion in the world has a Savior that can deliver me or you from our sins that we are born with . ” All have sinned and fallen short of the glory of God ” The Bible tells us if we “confess with our mouth Jesus as Lord and believe in our heart God raised him from the dead we will be saved Pablo . He Will give you peace in your pain – and may fully delivery you from it ! Thank you for your encouraging story !

    • Pablo Romero
      Pablo March 13, 2017 at 8:21 am #

      Hi Chris,

      Thanks for sharing more about your faith. I know this has been super powerful and healing for many.

      P.

  5. Melissa March 12, 2017 at 1:40 pm #

    Thank you so much Pablo for sharing your experience and photos and giving a happy human face for us to relate to (after undergoing the “j-pouch”). Thank you for the honesty and inspiration! Wishing you health and happiness!

    • Pablo Romero
      Pablo March 13, 2017 at 8:24 am #

      Thanks Melissa! I’ll keep you guys posted on how the full surgery goes. My last one to reverse the stoma should be happening in mid May. I have to say, I’m a bit nervous but also excited at the thought of my new life…made a big list of things I’m going to do (maybe differently, but with excitement and positivity). Wishing you all the best in your journey!

      P.

      • Melissa March 22, 2017 at 5:09 pm #

        Thanks Pablo :) You will certainly have many people thinking of you and sending warmth and well wishes this May!

  6. Bridget March 12, 2017 at 1:58 pm #

    Thanks for sharing! I don’t feel so alone when I read stories from other people with UC

    • Pablo Romero
      Pablo March 13, 2017 at 8:25 am #

      You’re not alone. Adam has created an amazing community here and there are a lot of people who care about you (people you might not even know) :).

  7. N Cooper March 12, 2017 at 2:50 pm #

    Hello all
    Our stories are intense and so heart wrenching
    Speed forward
    I ended up with a pouch a
    BCIR
    It’s great
    I became a RN after colon removed
    Strange
    I don’t think I’d be the person I am without
    UC is so humbling
    My daughter, my neice and my nephew all have it
    In 1891 my grandmothers sister had UC
    And her sisters daughter had UC

  8. Mariela Andrews March 12, 2017 at 5:43 pm #

    Pablo thank you for sharing your story. I have a son suffering with UC. I wish you the best and a complete recovery from your surgery.

    • Pablo Romero
      Pablo March 13, 2017 at 8:53 am #

      Hi Mariela. I can only imagine what it’s like to have a child going through this. I hope everything works out. There’s something right for each of us out there.

      • Mariela Andrews March 13, 2017 at 2:24 pm #

        Pablo thank you for your reply. Please keep us posted. Best wishes!
        Mariela

  9. Andrea March 13, 2017 at 4:41 am #

    Thank you Pablo for sharing your story. What a journey! And thank you again Adam for ‘I have UC’, it makes you feel less alone. The physical journey with UC is only a part of it, the emotional and psychological and, yes, spiritual journey is ultimately where I feel I have grown the most. From the disbelief, the slow dawning of what UC meant, the rage – I threw all my toys out of my pram, I can tell you! – then gradually the learning to listen to my body, eat for a healthy life. I’m a different person. So grateful for the support from my husband and friends, and so much more aware of what others might be going through in their lives too, that you can’t always see.

  10. Safaa March 13, 2017 at 6:51 am #

    Thanks Pablo for your story! I am wondering how are you doing after the surgery? If you don’t mind sharing with us! My daughter is going through the same surgery! I wish all of you the best!

    • Pablo Romero
      Pablo March 13, 2017 at 8:50 am #

      Hi Safaa. I don’t mind sharing at all. I was just thinking about this the other day.

      Here are some thoughts I have after going through my second surgery (I had to have it done in three steps):

      :: The first surgery was harder to recover from (I believe this had to do with me going in pretty sick)
      :: I got two infections (an abyss that required drainage and antibiotics for my incision)
      :: My bowels didn’t work well after surgery, so I needed a nose tube to empty my stomach
      :: This was uncomfortable at the time, but not that bad when I think back
      :: I was in the hospital for about 15 days
      :: Strongly recommend getting up and walking as much as possible
      :: This helps a lot with the gas which can be painful at the beginning
      :: I found chewing gum also helped me
      :: Sleeping on my back was hard for the first two months…I slept on a recliner
      :: I was good to go and running/working out within three months
      :: I’m competitive so it was hard for me to take things slowly…but I did and that helped me avoid injuries like hernias (started with walking, body weight activities, and went from there)
      :: I used the Osta Belt for physical acvitivity
      :: Finding the right diet and eating pattern was important too
      :: I had home care to help with the incision and that was helpful
      :: Only had one leak during this period (faulty bag)

      Things were/are a bit different with my second surgery:

      :: I was discharged fairly quickly after three days
      :: My incision got infected and had to be opened to let heal (in the picture)
      :: My surgeon said this is the fastest way for it to heal and so far, he’s been right
      :: Problem is that the incision is close to the stoma so it’s hard to seal the ostomy bag correctly
      :: I have to change it more often or it leaks (every one to two days for now…until the incision heals)
      :: The stoma is also not as good (in that it doesn’t protrude out as far) so irritation and leaks have been a problem for me in this first month
      :: I didn’t get home care this time around
      :: I used a silver guaze called Aquacel AG which really helped to drain the incision for healing
      :: Felt like I wasn’t as well informed with the possible after effects, so here’s what I went/am going through:
      :: On day four, after being discharged, I woke up and noticed some blood loss from my behind
      :: This is supposedly normal as the j pouch area heals and drains (I bought adult diapers for sleeping but it only last 2-3 days)
      :: Once in a while, I need to go to the bathroom to release mucous that is now forming (which is natural) – I noticed the quantity depends on the food I eat (I’m staying away from dairy for now)
      :: Because the stoma is not great, I’m noticing more irritation around it (I bought thin wafers and I’m trying to away from anything that gives me liquid stool as that causes the most irritation…immodium helps too
      :: Also a powder for the irritated skin helps (also helps to dry the area before applying the wafer)

      Sorry is this is too long of a response and not well put together (I’m sneaking it in during a coffee break). I might even be missing somethings. I hope this helps your daughter. She can always reach out if she has any questions. Good luck!

      • Pablo Romero
        Pablo March 13, 2017 at 9:00 am #

        Hi again Safaa,

        Just remembered a couple of more things…

        1. I had a catheter that went in while I was under. Coming out was relieving and a bit uncomfortable but fast…not sure what it’s like for women though

        2. Recovery can be hard sometimes (e.g. set backs, frustration, etc.). I’m getting better by the week and know that I’ll recover. That’s the thing to keep in mind.

        Okay, I’m done :)

        • Safaa March 13, 2017 at 2:42 pm #

          Thanks Pablo so much! I wish you the best and wish all who are suffering with this the best of health!

  11. Afshan March 13, 2017 at 7:09 am #

    Hi Pablo, Your story is encouraging and thank you for sharing it. Inspiring stories always motivate and help all of us to understand the power of the mind.

    Best of luck,

  12. Ben March 21, 2017 at 3:24 pm #

    Hi, Palo:

    Thank you very much for sharing your story with us., I have tried SCD for a couple weeks and it didn’t work for me either. prednisone (40mg) per day is the only thing goodles for me but it comes with very bad headache.

    Ben

    • Pablo Romero
      Pablo March 21, 2017 at 3:48 pm #

      Hi Ben! Prednisone was double-edged sword for me too. Take it from someone who was on it too long, it can do some damage. Keep fighting the good fight and trying to figure what works for you. There’s some for you out there.

  13. Laura F March 25, 2017 at 3:27 am #

    Hi Pablo! Thanks for explaining the pics, that you had an abscess. I was wondering about that. I’ll be praying for you and your doctors, for a successful surgery in May. Take care until then.

  14. Pablo Romero
    Pablo April 10, 2017 at 10:25 pm #

    Thanks Laura! And sorry for the late reply. My final surgery is planned for mid May. A bit nervous but lots of excitement and positive visualization in there too :). Hope you’re doing great yourself. P.

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