My UC Story:
I was diagnosed with Ulcerative colitis 16 years ago when I was only 5 years old.
This is not an “Old Persons Disease”. I have had many flare up and hospital stays through out the years, then sadly after almost 3 years of remission I started to flare again this past April and was hospitalized for 16 days which wasn’t very fun. I wasn’t feeling well for a couple of weeks and had the usual symptoms of a flare then a fever showed up, maybe i was getting the flu. It was coming and going for a couple of days then I decided to take myself to the hospital. I sat with my mom for about 2 hours in Emergency before a doctor even looked at me. Once a doctor looked at me she decide to run a whole bunch of x-rays and a CT scan. The CT scan showed that the left side of my colon was swollen and that there was some sort of infection going on and that’s what was causing my pain. I was admitted soon after that. Tons and I literally mean TONS of blood work was done on me through out my hospital stay at least three time a days. The nurse started an IV and gave me my antibiotics that way. The infection was getting worse and I turn septic, i was then given stronger and more powerful antibiotics. Through out those loooong 16 days I lost 20 pounds and I didn’t even look at all like myself. It was so depressing, all I wanted to do was sleep. When I was coming closer to being discharged I had another colonoscopy and a nutritionist was sent to my room to discuss my diet. She suggested NO fried, spicy, high fat, or processed foods, NO raw veggies, absolutely NO drinking alcohol, NO whole grains and to watch my sugar intake. After I was discharged I did gain back most of my weight since I started to eat some REAL food besides Jello and the symptoms of my flare subsided in June thank god.
On a side note, I’m losing more hair then usual and i’ve never experience this before. Could this be from the inflammation I had/have?
I’m Currently on Sulfasalzine, Cortiform enema, Vitamin B12, Folic Acid
Submitted by “Kristy Marie” in the website section where anyone can Write About Your Ulcerative Colitis
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