Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Update: My Colitis Symptoms for 2011


Hey UC’ers,

I wanted to get off to everyone an update with regards to how things are going for me. Last time I shared a story, my ulcerative colitis symptoms were starting to get quite out of control with all sorts of bathroom breaks, filled with soft messy bloody poops. That’s right, full blown colitis flare was just around the corner. Oh, let me point out that I’ve lost about ten pounds in the past month for sure as well. The blue jeans from the levi’s shop in SF that were on sale before the holidays are hanging way too low.

Butt, as my uncle and dad always say, everything in life is temporary. This seems to be the case as well for my UC flare. I’m not completely out of the woods just yet, but that time is getting very close.

What Have I Done Differently?

Starting on January 7th, 2011, I broke my streak of being medication free since Oct. 5, 2009. I started taking a twice a day dose of prednisone steroids. 10mg in the morning, and 5 mg in the afternoon/evening. For a total of 15mg per day (i realize I mis-spoke when I said 10 and 10 in the video, guess I was just too excited about it all…)

Also, I have started over again on the Specific Carbohydrate Diet (SCD). This time, I am working in home made yogurt with my yogurt maker from amazon, that I promised you all I would begin to do. I actually have all kinds of video and photos from my first SCD yogurt making extravaganza that I am behind on publishing too. Here again is the yogurt maker I bought, and its super easy to make yogurt with, and damn tasty too:
Waring Pro YM350 Professional Yogurt Maker

scd yogurt making first time

first time making yogurt with the yogurt machine

My Plan Moving Forward:Right now, I am not wanting to start tapering off the prednisone just yet, but if things keep the way they are and continue to improve to the point where I’m dropping hard bombs in the toilet for the next week, I plan on tapering on a very slow taper over the next two months. This would be similar to my tapering I did the first time I successfully started the SCD diet. Basically, I can see myself going down by 2.5mg to 12.5mg/day for two weeks, and then to 10mg/day for another two weeks etc… until I am at 0mg/day and off all drugs again.
We will just have to see how it all goes. At the moment though, I am getting pretty excited leaving the bathroom with a sense of accomplishment, if you can believe that. Just to throw in a little reality check, I would be lying if I said I wasn’t still a bit scared to see what comes out each time. I know how this colitis disease can turn around and make a run for the worse in just a few days. But, when things are looking up, might as well ride the wave.
Take care everyone & join the writing contest if you haven’t already. I am really hoping that a whole bunch of people will make it to Las Vegas in December 2011 to join me in the half marathon.

-Adam

Amazon Stuff from this post:
Waring Pro YM350 Professional Yogurt Maker
Breaking the Vicious Cycle: The SCD Diet Book




symptoms

13 Responses to Update: My Colitis Symptoms for 2011

  1. Charis January 16, 2011 at 7:42 pm #

    I’ve got a HUGE smile on my face right now. I’m so excited that you’re starting to feel better. That’s a great feeling :) AND, I’m totally with you for Vegas. 100%, no looking back now. We UC’ers are gonna rock that town!

    • Adam
      Adam January 17, 2011 at 4:39 pm #

      Oh snapppp, we got our first confirmed person from the site who’s joining me in Vegas BABY!!!
      Awesome Charis, can’t wait to meet up out there, hopefully we’ll have a gangload of UC’ers meeting up with us!
      Whatch you know about rock n roll?!!!!!!!! BABOOOOOM!! can’t wait til 12/4 Las Vegas, Nevada, United States, North America, Planet Earth, Solar System 1, Universe 2, Galaxy 4.

      • Charis January 19, 2011 at 8:26 pm #

        It’s gonna b EPIC. I’ve been doing celebratory pumping fist dances. I realize this is strange, so i’ll post a video of it for everyone to enjoy this weekend. Am I allowed to post a vid?

        • Adam
          Adam January 19, 2011 at 9:59 pm #

          Oh, yes its gonna be EPICACIOUS right Charisieous!!

          Post VId allowed…???

          Ummm, that’s a big HELL THE FU%^(#!K YEEEEHHHAAAAAWWWW! you go for it.

          WHO’S JOINING US IN VEGAS LANDS???

          • Charis January 25, 2011 at 2:11 pm #

            You’ve got a way with words, I must say :)
            Of course post vids/pics/whatevs allowed!

  2. Lindsay January 17, 2011 at 1:12 pm #

    Adam – I watched your video today and I just want to say how AWESOME I think you are! You’re so honest in confronting this disease, and you do it with style. This website is an excellent resource for people with UC and their families. My husband (the one with UC) is doing amazingly well on the SCD. Your website is the one that convinced us it was worth a shot.

    Sending you lots of healing thoughts. So glad you’re seeing your way out of this flare.

    • Adam
      Adam January 17, 2011 at 4:37 pm #

      LIndsay,
      thank you so much, you made my day!!!
      Also, an even bigger YIPPIE to your husband, that is awesome he’s seeing some nice SCD results!!

      Keep up the good work, and I’ll try to continue with some videos for you!!
      Are you joining Charis and I in VEgas in December????????
      Laters,
      Adam

  3. Linda January 17, 2011 at 8:14 pm #

    Hi Adam! glad to hear you are on your way back to recovery. I know it sucks having to get back on the Pred, but, sometimes there is no helping it. My son Evan, which you know I’m his voice on here since he is only 6 years old, has actually been on Prednisone since may 2010. right now he is taking 1.5 ml(i think that is like 4 or 5 mg)and we are taking it way slow to wean him this time because he is has had 4 flare ups in the past year, all because of weaning off the pred. the devil/angel medicine!!! here is a run down on what he is currently on.

    Prednisone 1.5 ml(4or 5 mg)
    Prilosec 20 mg. 1 a day
    Iron supplement 47.5 mg (no additives or bad stuff) 1 a day
    Imuran 50 mg 1 a day
    SCD multivitamin 1 a day
    Remicade every 8 weeks now! yeah!! it was every 6 weeks and talking surgery
    SCD diet since sept. 9th, 2010. 4 months now!
    24 to 36 hr. fermented yogurt turned into yummy smoothies.(sometimes he has two a day)i let the yogurt ferment on average about 30 hours to make sure the good bacteria has built up properly and the temp. is accurate, then in the fridge for at 8 hours before i use it.

    long story short, well, i don’t think i’ve ever told a short story.lol. all these combined are getting him on the right track to recovery, and i pray every day will lead to no meds and no surgery!

    most important. for 2 months now, he has had no pain, no blood, no mucous, no diarhea, very solid poop! it is prize winning actually. :-)

    keep up the good work Adam, and I wish you and all the UCer’s on here and their families great health and happiness. Linda.

  4. Christina January 22, 2011 at 2:37 am #

    Adam, I live in Ukraine, I would like to make yogurt, but read that you need yogurtmaker.
    In our country, this device does not. Could I send you money through western union, and you have forwarded me to Ukraine. What is the price of this?? I have no other choice because the doctors suggest Imuran. I really do not want to.

    Christina Romanchak …

    • Adam
      Adam January 22, 2011 at 6:05 am #

      Hi Christina,
      I’ll send you an email soon with some ideas on what we can do.
      hang in there,
      Adam

  5. Christina January 22, 2011 at 7:26 am #

    ok.thank you

  6. tyler Penn January 11, 2014 at 6:02 pm #

    Hi adam, I started the scd 2 years ago and it worked well but now im in my first flare while doing scd, I seen you post this video a while back, but it means more to me now that Im flaring. Just wanted to say thanks for posting, you always have such a good positive view and it was just what I needed today. I think alot of us get on scd and see an improvement and think we are “cured” but sometimes it comes back and bites you in the ass. Anyhow if you get a chance to reply, I thought I remember reading somewhere that alot of folks on scd flare after a couple years.
    Thanks! Tyler Penn

    • Adam
      Adam January 13, 2014 at 6:15 am #

      What up Tyler,

      Hey, thanks for posting your comment, and you are absolutely correct. Its not uncommon at all for people who have found great success with SCD (or other treatments) to find themselves in a flare up after some time (months/years etc…). I have found myself in that exact situation after having long runs of remission. It’s not out of the ordinary, and you’ll for sure get through it.

      I wish you the best,

      Adam

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