Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Some Relief!

Introduction:

Barb M – I am a 43 year old woman, married with two children. From Philadelphia. My motto is to live life to the fullest! Kinda of tough when you are having a flare but always try to think positive!

My Colitis Symptoms:

None

Colitis Story:

OK here it goes…..I have had Colitis for 14 years. I was diagnosed when I was pregnant with my son. Since then I have had a few flares. Seems to come when I am stressed or if I eat a lot of things like salad, fruits, onions doritos, chocolate, coffee, I try to avoid these things big time especially when I am having flare ups. The thing that really killed me the most was my social life. I missed so many of my son’s hockey games and baseball games because I feared that there would not be a bathroom open….YIKES……If you have Colitis you know exactly what I am talking about…

Just this year I decided to quit smoking which caused yet another flare but refused to give in and go back to smoking. For 11 months I battled with this flare took Predisone and Asacol and I even did the shots of Remicade which did nothing. I switched doctors, she told me that the other doctor took me off to soon and that is why I kept flaring up. I was so inflamed, she put me on 40mg Prednisone for four weeks and the 30 for four and so on. I am now down to 10mg and feeling much better. I have been healing since July and I am feeling much better. The fact that I can attend my son’s baseball game with out the urge of going to the bathroom is RELIEF alone!

I just order Adam’s ebooks so I am hoping the recipes will help when I get off all this medication. It is a little scary the thought of being off all the medication but I am gonna have to stick to my new way of living and stay away from certain foods which I love but will be worth it!

Where I’d like to be in 1 year:

Off all medications and being able to eat what I want.

Colitis Medications:

Prednisone is a miracle worker for me.

submitted by Barb




16 Responses to Some Relief!

  1. massybird October 25, 2012 at 3:51 pm #

    Please, please, please make sure you take Vitamin D and Calcium supplements while on Prednisone to reduce the risk of osteoporosis. Best of luck!

  2. bev October 25, 2012 at 4:44 pm #

    Hi massybird,

    Please please please try a good probiotic. I am med free for 9 months and in complete remission. Just ask a clerk at a vitamin store which one is recommended for UC. It should be at least 50 billion strong. Probiotics are starting to be recognized in treating UC…and in attaining and retaining remission! They worked and are working for me!

    If you can figure out how, please read my various posts on this site. I have alot of them, all with the same advice.

    Cheers,
    Bev:)

  3. Lane October 26, 2012 at 3:58 am #

    Hi massybird,

    I decided to try Bev’s regimen and it is also working for me. I’m in remission now and have no bleeding. I am taking a Probiotic and it has helped so I highly recommend. You can find probiotics in health food stores or online. Prices vary. You just have to experiment with different products and see which one works best for you. Oh, and I didn’t see any results for about 2 months so you have to be patient. I am also watching my diet and had to cut out milk products as they really bothered me but I do take Vitamin D3.

    Best wishes,

    Lane

    • bev October 26, 2012 at 6:20 am #

      I am Bev and I approve this message! Lane is correct! This could work for alot of UCers, I believe. And, it does take time to see results. With me is was only a couple of weeks, but it could take a bit longer…so hang in there.

      I didn’t mention in my post above that besides the probiotic, I take a scoopful of powdered L-glutamine in juice everyday. It heals the mucosa of the colon and it works. I also take vitamin D as well as a 4mg capsule of astaxanthin, which are both natural anti inflammatories.

      Cheers:)

      • massybird October 30, 2012 at 6:17 am #

        Challenge accepted Bev and Lane :) I purchased Ultimate Flora Critical Colon 80 Billion from my local Whole Foods, they did not have the 50 billion formula so I’m opting for this one.

        I have tried probiotics in the past, I was making more yogurt each month than the Chobani factory :) for years while I followed the SCD. But I did discover that milk products were a no no for me.

        But I’m always up for something new.

        I will report in a month how I’m doing. I’m currently on 20mg Prenisone and things started slowing down after a week.

        • bev October 30, 2012 at 6:41 am #

          I’ve got three words for you, massybird….FAN-TAS-TIC!!!

          I can’t wait to hear how it works and wasn’t aware that there was an 80 billion strain one in that brand! The more the better!

          I was not on pred when I took the probiotics, but I’m sure it will work just the same!!

          Bev:)

          • massybird October 31, 2012 at 11:34 am #

            Bev, did you experience a lot of gas and bloating after starting the probiotics? That’s what I’m going through right now and have to minimize any sugary drinks/food like orange juice and bananas. Otherwise, I’m tooting the whole night.

        • bev November 1, 2012 at 6:44 am #

          I don’t recall gas and bloating at the beginning of the probiotics, but it’s quite possible that I did!

          That should calm down after a little bit. I almost NEVER get gas, or bloating, at all any more!

          Not only that, but I find that I never ‘smell’ at all, if I do get gas! No kidding. It’s like the probiotics ‘clean’ everything up. It’s kinda nice, actually.

          I hope that wasn’t TOO much information!

          Bev:)

          • massybird November 1, 2012 at 6:52 am #

            Thanks Bev. No such thing as too much information in this ‘poop business’ of ours :)
            And yes, a healthy digestive system should produce very little foul gas… Good for you! I’ll be there again after I get over this bump in the road. I enjoyed the last 8 months of having solids and no bad gas.

        • bev November 1, 2012 at 7:44 am #

          LOL…it’s funny what we UCers enjoy!

          Solids and no bad gas…LOL!!

          They can really make our day….

  4. Maggie October 26, 2012 at 7:31 am #

    Hi, Barb. I always flared really bad after quitting smoking. It’s been over 3 years since I quit for good. However, my worst flare ever started right afer last Christmas when I went to the movies Christmas Day and ate popcorn, that evening we drank some grand marnier, the next day I had eggplant parmiagian which really tipped me over the edge. I was starting to get bad from taking an antifungal also but it seems I did everything wrong. I’ve had ups and downs since, some meds, lots of supplements, such as Bev mentioned and a new one called Larch powder I now take regularly. I also take slippery elm and turmeric. No more caffeine! Hope you find the best combinations to help you stay off meds. The only one I use is Canasa suppositories as needed. I now have to take an antacid because I have acid reflux. I used to take Remicade, it worked wonders for me but the co-pay was killer. Aloe Vera juice works real good, too. Best of luck finding your combos!

  5. uma October 26, 2012 at 8:29 am #

    Probiotics has put my colitis in remission for 2and 1/2 year now. So please try them. I must appreciate Bev here who patiently advices each and every one on the merits of probiotics and how it has helped so many of us. Thanks Bev and god bless you.

    • bev October 26, 2012 at 9:11 am #

      Thank you Uma. You are very sweet. I am absolutely thrilled that you are in remission from probiotics, too! And for 2 1/2 years??! That gives me tremendous hope!!

      YOU are wonderful too!

  6. lane November 1, 2012 at 8:27 am #

    Hi Bev and all UC’ers,

    Bev,

    Just want to say I don’t have ANY symptoms of UC right now. It’s been about 2 months since I started your regimen. I have also started Prebiotin and mix it in juice every morning. Will see if it helps as well. Again thank you SO MUCH for your recommendations. Prebiotin was developed by a doctor so I’m hoping it will keep me in remission. Right now I don’t have any blood or gas or bloating. Feel great and hope it continues! Thank you Bev!

    • bev November 1, 2012 at 8:37 am #

      Oh, Lane, how good is this???

      I want to cry…really, I do. Isn’t it the best thing in the world to feel ‘normal’?

      I appreciate your thanks, but it is down to you, Lane. You should be so happy with yourself for trying it and following through with it. If only everyone would at least give it a shot! I wish everyone with UC would do this. You don’t know whether it will work for you or not, if you don’t even try it.

      Cheers, my friend. Life is good!

      Bev:):):)

    • massybird November 1, 2012 at 11:51 am #

      Hi Lane, congratulations and I hope that you stay this way forever! When you say you implemented Bev’s protocol, can you list the specifics. Thank you. And thanks Bev. My bloating is easing from the probiotics. It will take time.

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