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Recently Diagnosed with Ulcerative Colitis

Hey all, I was recently diagnosed with ulcerative colitis within the past 2 weeks.

Since Christmas time I started having stomach issues, and I tried to do things on my own to get better and nothing was working. Finally on January 14th, my symptoms were so bad that my parents took me to the ER. I was admitted to the hospital and I had a colonoscopy the next day. They found that I had significant inflammation in my colon and intestines and after the biopsy results came back they said it was UC.

After they diagnosed me with UC, I stayed in the hospital for 10 days until I started to feel better. They started me on prednisone, asacol and flagyl early in the week, but those weren’t working very well. They gave me a remicade infusion and within the next 24 hours I started to notice relief. They let me go home on January 24th and I have been reading about the SCD diet and have been trying to start things going in that direction. I am currently on prednisone, 40mg a day, and they are tapering me off of it throughout the next month. I will be having another remicade infusion Feb 4th. I have been eating things like eggs, bacon, fish, chicken, bananas, smoothies, peanut butter and stuff like that. I still have yet to have a good bowel movement that is solid and formed. I am just nervous about getting this whole thing under control and I guess I’m really impatient too. I know it’s not going to get better overnight, but it is just hard to see the light at the end of the tunnel. I am 22 years old and have been perfectly healthy my entire life. I have played soccer since I was 4 and have played at a very high level, including college, so I consider myself to be very athletic. So as you could imagine, it was a really big shock to me when I found out that I have colitis. I am hoping that if I stick to the SCD diet that it will really help me out, but sometimes it is hard because I can’t remember the illegal/legal ingredients sometimes of different products. I am happy that I found this site because many of the stories I have read are very encouraging and I think it helps that everyone who has UC has a place to come and share their stories and ideas with others to see what works and what doesn’t. Hope everyone is doing well and I hope that I can start seeing some results and begin the road to recovery to get my life back. =)

-Curtis




diagnosed, hospital

4 Responses to Recently Diagnosed with Ulcerative Colitis

  1. Vicki Thomas January 28, 2011 at 1:09 am #

    HI Curtis
    Sorry to read about your ulcerative colitis diagnosis. But I’m really glad that you posted your story and have found this great web site. I can’t speak for the SCD since I’m one of the few on this web site that doesn’t follow it. But as an athlete I can empathize with you on how frustrating it is to get sick when you’ve been living an active and healthy lifestyle. This is frustrating and believe me you’ll have days when you literally “hate the world” but through all of this, there is light at the end of the tunnel. I suggest keeping a food diary/ulcerative colitis symptoms diary – this will help you track how your body responds to the food you’re eating. It is also helpful to track your sleep patterns and overall energy levels as well. I have chosen to not follow the SCD because I’m an endurance athlete and require a large amount of carbohydrates to fuel my sport – this being said I have switched to a primarily gluten-free/dairy-free vegan/vegetarian diet (I eat this way until supper time and then I either opt in or out of eating meat) – this has been helping for me lately. I’m taking Imuran (just started this on Dec. 30) and Pentassa (similar to Asacol) and I’m tapering off of Medorol (steroid similar to Prednisone). I wish you all the best and be sure to keep us up-to-date with how you’re doing. Don’t be shy to post on this site – all posts don’t have to be upbeat – we all know how rotten this disease can be – so if you need to rant – do it.

    cheers,
    vicki

  2. Ashley January 28, 2011 at 4:00 am #

    Curtis, I was diagnosed almost 1 year ago and had always been a healthy athletic girl with hardly a sniffle a year, UC came as a shock to me as well. It is wonderful that you are trying the SCD diet and feeling out your body’s response. I wish you the best luck on this new phase of your lifes journey, and send healing thoughts your way.

  3. Curtis January 28, 2011 at 6:19 pm #

    Thanks for the kind words! I am trying out different foods to see what works and what doesn’t right now. It’s hard to stay strictly to the SCD diet, so I have sort of expanded to gluten free items as well, even if they might not be totally SCD legal and we’ll see how that goes.

    Another thing, I have lost a lot of weight. I am 6’1 and normally weight around 160 (so I’m tall and skinny/lean already…not much body fat to begin with) and right now I weigh 130 pounds. I need help putting weight back on! Any suggestions?!?!

    Thank you!

    Curtis

  4. Kristi January 28, 2011 at 6:28 pm #

    Curtis-

    Remicade works wonders! I have been taking it for over a year now after trying multiple other medications that failed. Prednisone was the only thing that was working for me but being steroid dependent is awful… Plus it really kills your image. I never heard of the SCD diet but after reading about it on your page I think it’s something I am going to look into. Good luck to you!

    Kristi – SD

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