Hello, my name is Yvonne and I was diagnosed two weeks ago. I have started the SCD diet and feel pretty tired and very light headed. I am also taking Lialda which made a difference right away, but the change in diet is definitely affecting my energy level. I am wondering how I can keep it up. What exactly is considered remission? After the first dose of Lialda the bouts of explosive bloody diarrhea stopped and my stool is normal color but still thin. Is this considered remission? I am wondering when to add the SCD recipes for remission. It is hard to know since I am on medication. Thank you!
Some more about me:
I love to take walks, cook (bummer) with my husband, and spend time in the garden. I truly the simple pleasures of life and hope I can continue to do so.
Symptoms I’m Feeling:
I am currently on Lialda, which I started right after the colonoscopy. It alleviated the flare symptoms right away. I have a bm every morning but it is on the thin side. I can hear my stomach making growling noises in the night and morning and my body feels weak.
Trying to Learn All I Can
I was just diagnosed two weeks ago and am feeling scared and overwhelmed. I am trying to stay positive so I don’t make it worse. I really believe that the way we think makes a huge impact on our health.
- I am wondering if others experienced any joint pain prior to the onset of UC?
- Did anyone feel very lightheaded and weak after starting medication and special diets?
- Does anyone else hear their stomachs make growling noises in the night and mornings?
- Do bowel movements get back to totally normal during remission?
I am meeting with a second Doctor in 2 1/2 weeks and will also pose my questions to him/her. My husband and friends are super supportive and keep me feeling normal. I decided to talk about it right away. Most of my family and friends were already asking because they knew I had just received my 50 year colonoscopy and that I was experiencing some concerning symptoms. It sure is hard to be diagnosed with something that does not have a lot of clear information. I suppose we are always ultimately in charge of our own health.
The Doctor that preformed my colonoscopy seemed very bored with his work and was in a rush at the pre-screening appointment. He did not meet with me immediately after the procedure, a young nurse came to say a sample had been taken for a biopsy to check for UC. I was really ready for the follow up with questions and instead of meeting with him I met with his assistant. I am going to see a different Doctor in a few weeks who now accepts BCBS insurance and hope he has more interest in answering my questions. I have had time to read quite a bit of information and feel prepared to compare and contrast. I want to feel confident that I can find a way to manage this disease but for now just feel pretty sad.
written by Yvonne
submitted in the colitis venting area