Im a graduate Biomedical engineering student (Graduating August cant wait!). I love the gym/ played rugby hurling and outdoor soccer(Slowly i will work my way back to gym and cycling in next few weeks!). Hoping to get a job in Engineering soon but i want to be full of energy and in a good mindset when taking it on.
Pancolitis(waiting on Biologics) Sevre UC
Conor’s Colitis Story:
Basically i spent 13 days in hospital recently (Got caught on 2 weekends…NO DR!…) then finally finding out my that my diagnosis was Pan colitis (Severe UC). Big shock as I am so young and had never heard of this Disease before. I realize now that the little blood i got in my normal stool years ago was probably and indicator of what was to come but heck what can you do now…! So now i am home for my third day since i was in hospital, my stool is still Type 6 but i am only going once a day Thank god and no blood!. Slowly I am weaning off my steroids ((Prednisodane) + adding Esmoprazale and 2 Biokult per day) so i am not sure how I will feel once there finished?
I had an infusion of Inflectra last week and I am due another in 2 weeks from now then 6 and 8 weeks from then. It was a huge shock But my energy levels are pretty high at the moment will this go or stay?.
Has anyone ever fully recovered from Pan-colitis and been in remission for more than ten years or so? and if so how bad are flare ups after?
Also I am turning into a bit of a health freak/Nutritionist. So I will update all with how my diet regime works in a few weeks from now and tasty recipes.
At the moment i feel good, Insomnia slightly effects me due to the steroids but i feel happy. I take (1 Aloe Vera shot/ 1 shot Cod liver oil / 1 Vitamin B supplement) every day this may also help your energy! along with one whole avocado and probiotic yogurt. Backed up with a Colitis diet and Low fiber diet for the next two weeks & Plenty of Fluids!.
Medications and Protocols to Date:
Slowly I am weaning off my steroids ((Prednisodane) + adding Esmoprazale and 2 Biokult per day) so im not sure how I will feel once there finished?
I had an infusion of Inflectra last week and I am due another in 2 weeks from now then 6 and 8 weeks from then and will see has anyone gone through these infusions?
I take (1 Aloe Vera shot/ 1 shot Cod liver oil / 1 Vitamin B (Stress) supplement) every day this may also help your energy! along with one whole avacado and probiotic yoghurt. These added supplements were my idea and not mentioned by Nutritionist or Dr but there natural so I cant see the harm in small doses!
written by Conor
submitted in the colitis venting area