20 Responses to Summer of 2017 & My Colitis Update

  1. Regina Beitel August 14, 2017 at 5:03 pm #

    Thank you for sharing your awesome update.. I haven’t written my story, but am an avid reader of your website. It got me through my worst days and gave me hope. I couldn’t begin to tell you how much I learned or how much you helped me. So thank you for keeping your site going and for helping countless people. I will be forever grateful. I am so very happy that you are doing so great. I love your positive attitude, and your sense of humor. Bless you and your family.
    Regina

  2. Bev August 14, 2017 at 9:03 pm #

    Adam, you look great and you are great.

    A truly wonderful man who deserves all the good things that he has.

    Cheers to you.

  3. Angela August 15, 2017 at 7:57 am #

    Awesome update!!

  4. Mariela G Andrews August 15, 2017 at 9:23 am #

    Adam, I am so glad to know that you are doing well. Thank you for sharing your update. It gives me hope that my son, who has UC, and who I talked to you about a few months ago, will be ok too.
    You look great. Please keep us posted and enjoy the rest of the summer. My regards to your lovely wife; she must be a great person helping you through your fight with UC.
    God bless you.
    Mariela

  5. Cathy Miller August 15, 2017 at 10:02 am #

    So great to hear of your life. You are doing so well. I feel like I know you as we have had very similar experiences.
    If this were a contest I feel I came close to the end more than you…so encouraging that in the U.S. people with this condition aren’t given the last rights with no help at all, as was the case with me. I too am doing amazingly well. I still see blood..just a tad now and then, and then I go straight to the husband implant and I’m fine again for months and months..some times I do two in a row….and I do continue with SCD. It is so powerful for me personally, to not only stop having symptoms, inflammation and all the anxiety, now staying so well without drugs. Equally powerful to know I have a remedy if things go sideways.
    I hope readers can find my Cathy’s Free E book easily on your site. So kind of you to do so. I feel strongly to give people hope and faith.

    My husband is a musician, although no one hears his music but me and his song writing and producing partner. He doesn’t want to work with others, just musicians to write and play all thru his life. He will not take money for his art as he feels he would need to compromise himself and his fellow musicians feel the same. They call themselves Crash and Burn…I think…they change the name if need be (the last thing they need is a law suit). They often call themselves “No Hit Wonders” too. Point is, he wrote a beautiful song when I was in hospital for so long. I adore the song and think it would bring a tear to your eye and a great feeling of gratitude knowing how far we have come. You can hear the pain/love of how our loved ones cope and search for resolve.

    If you would like to hear it he says I could send it to you. Let me know how, if you would like a listen, and maybe some others would identify with the feelings he expresses.
    Much Love and Admiration
    Adam

  6. Shelly From maine August 16, 2017 at 3:42 pm #

    AWESOME update, Adam and kudos to you both! Continued happiness and health to you both! Keep the adventures going…cookbooks and travel books now!

  7. Kate August 17, 2017 at 9:43 am #

    Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I’m thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks.

  8. marko August 19, 2017 at 3:04 am #

    Hey man,

    Very nice read! Come to Romania also if you’re in the neigbourhood :)

    I’m also great, symptom free for about 3-4 years with just one recent flare up which lasted for about 4 weeks (lost 15 kilos, gained them back in no time), but then back to normal. Diagnosed in late 2009. And I can drink beer with no issue, hah.

    We’ve come a long way :)

    • Adam
      Adam August 19, 2017 at 5:34 am #

      What up Marko!

      Hey bud, I was thinking of you when out there knowing you’re just over the border. And for sure if I get to Romania, I’ll hit you up. A whole bunch of the local in the Ukrainian carpathians were saying the Translyvanian carpathians are even better:)) I’m sure its awesome over there, and glad to hear you’re doing well bud! (Send in an update story with some pictures when you got a moment amigo!)
      -Adam

  9. Caroline August 19, 2017 at 3:41 am #

    Adam,your story is certainly something to aspire to.I have huge admiration for you and am delighted you have achieved so much.Many thanks for your help and encouragement.

  10. Sonja August 19, 2017 at 4:10 am #

    So lovely! Thanks for updating us on your summer travels! Enjoyed all the photos too! I love hiking so read your update with great interest! For me, managing UC naturally and staying off the scripts is working. I found you when I was suffering about a year ago. Thanks for all the information you share with this community! You are an inspiration.

  11. Trish August 19, 2017 at 5:05 am #

    Thanks Adam. It is inspiring to read about your getting out there and adventuring .
    I was only diagnosed last November. One if my best friends nearly died with UC so I am well aware of what’s possible. It has been a massive journey in that time since November 2016.
    I know I had lost my confidence to even do one sleepover away from home in case my system went haywire and undid any progress. I’ve gradually had weekends away. And one whole week last week in hot sunshine doing intensive yoga and wining and dining ! And I’m very well. I just had a sigmoidoscopy yesterday and things are looking good fingers crossed.
    I’ve been using diet, meditation, good company, and mostly an awareness of the need to step back and engage less in stress indusing situations. Even if this means less work or cancelled social occasions. We can’t and don’t need to DO everything.
    I am a mother of young children. And that is busy too. But learning to slow down and not feeling guilty about it affects my colon positively it seems.
    Anyway. Thankyou so much Adam as I have certainly found you inspiring along my shorter time with this which has felt like ages!
    If I am out of the woods after the end of this year I will list here my route here.
    Wishing wellness to one and all.

  12. Alice Bookman August 19, 2017 at 5:19 am #

    Thank you Adam for sharing your great Summer 2017 adventure and story. It is just so wonderful to know a UC patient can have the opportunity to travel and venture to new foods and styles. I love your encouragement that keeps others with the same diagnosis hopeful. Your wife is a beautiful person and amazing to understand your condition- it takes a special person.So happy you were able to have a much deserved vacation. Wishing you many more years of good health.

  13. Lisa August 20, 2017 at 11:35 am #

    So happy to hear you are thriving right now!

  14. Angela October 10, 2017 at 7:22 am #

    Thanks for sharing Adam and good to know that eventually I can get my UC under control without worrying whenever I go out. Thank you for your website and for everyone sharing their experience and advice.

  15. Tricia October 14, 2017 at 4:45 pm #

    Hello. I’ve read Adam’s website a few times. My husband was diagnosed with UC last March 2017. He’s what I would call a type “A” when it comes to his work and exercise. Side note: discover he has HCM (heart condition) in 12/2016 and had a defibrillator implanted same month. So, UC came about shortly afterwards. It’s been really tough on us both as he doesn’t feel like I’m doing enough to provide UC friendly meals. I k ow he’s anxious and depressed about his heart and UC diagnosis so I’m trying to be patient. I’ve been trying my best to follow the SCD diet. Has worked well and we’re seeing improvement. Any advice as to help him improve attitude? I could really use some advice. Feeling the need for some alone time.

    • Adam
      Adam October 28, 2017 at 11:41 pm #

      Hi Tricia,

      Have you (or him) ever thought about trying to find somebody in your local area who also has UC and perhaps having the opportunity to link them up so they can talk together?

      I think it would be very powerful for him (and as well benefit you as he would then be able to share some ideas/feelings/thoughts about the disease with someone who also has it/living with it etc…). This for me was a big turning point, when I finally met someone else who had been living with the disease(somebody in person).

      Adam

  16. Jane February 10, 2018 at 8:20 am #

    Adam can you please please share what you’re doing for your Uc to keep it in control. Are you taking any Meds, Probiotics & Vitamins?

    • Adam
      Adam February 11, 2018 at 12:42 am #

      Hi Jane,

      Thank you so much for asking, I do not take any medications, probiotics, or vitamins. Specifically regarding probiotics and vitamins, I would not say I take them on a regular standard basis. However, I definitely do get probiotics into my diet on a random basis. For example, there are some drinks served in a bottle from several grocery stores such as whole foods which do have probiotics in them.

      I have written extensively about using diet to control my UC, is I do continue with diet techniques. I must admit though, for at least The last half year, I have been eating a very open diet meaning things like breads on occasion and some other carbohydrates which I previously would not eat at all. And so far, things are going very well. I will be sharing a story on the website soon about my recent colonoscopy that I just had in December 2017.

      One major thing I would like to add, finding ways to reduce stress in my life has been essential. This is not something doctors can prescribe medications for, there are no probiotics to take that do this for you, it simply takes hard work of each of our own selves. It’s not easy. Especially when you living with a digestive disease. But finding ways to reduce stress in my life has been very beneficial.

      I wish you the very best, Adam

      • Jane February 11, 2018 at 5:00 pm #

        I’m so happy for you. It feels so good to meet other people with ulcerative colitis. I always enjoy reading what other people goes through here. Shows that I’m not alone. I thought my world was over when I first got diagnosed in 2014 and hospitalized multiple times after that. I’m still taking meds and trying my best to stick to paleo which is hard sometimes you know craving gets in the way . I really want to stop taking the meds but I’m scared I might end up going through a flare. I’ve been in remission for the past 3 years with meds and diet(not 100% paleo or scd yet. Still eating things I’m not supposed to here and there) Please share your story about the colonoscopy. Did they find any inflammation? Please keep us updated. Thank you Adam.

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