I’m Nilesh, 28
Software Engineer. An Indian who is fun loving and techno savvy. Only earning person in the family with great deal of responsibilities involving mother with arthritis, father with 2 heart valve replacement surgeries and a new born son.
Some more about me:
Well,I am from India – I can sing, play guitar, have played competetive level cricket. Love watching soccer. S/w Engineer by profession, can design and develop fancy websites and encryption softwares with ease.
Symptoms I’m dealing with:
Well, I am not sure whether I have UC or not. It started back in April-2013.
3-5 stools a day with 2-3 times with traces of blood, formation varies from slight watery to well formed
Blood frequency – from traces mostly, to easily visible blood in stool.
Mucous – has increased of late
Pain – Just a slight discomfort in left side, increases when i sleep on my left.
No fever or vomit, general weakness, mild fatigue
weight – lost 3 kgs but i think its due to a zero fat diet and a brisk walking schedule for last 4 months.
Looking For Answers
Well as said before, I don’t know whether I have Ulcerative Colitis or not.
I had sigmoid scopy done on May 16th revealing ulcers and pus.
It wasn’t a pleasant experience, I got up almost instantly and didn’t fart too much.
My biopsy came back yesterday with – ‘No suggestion of IBD’. Impression: Infective.
Family has been source of great strength. My wife delivered a cute baby boy during this time.
I am most concerned about my job. As I work outside my hometown, stay on a rented flat and come back home on weekends. For last 45 days I am at home with on/off relief.
There are days with no blood which makes me feel great.
And when I have blood, it just ruins my day.
I am the sole working guy in my family. That’s my biggest concern. I also have 15 year old scalp hair folliculitis and hypertension since my higher school days.
I am bit confused as to where all this is heading too.
My symptoms are not too bad( as I have read on other forums, I haven’t suffered even 10% of what some people have gone through with UC).
I am just scared to hell, as to what this disease can do.
I don’t want to go for a colonoscopy again, It would be too early.
I noticed substantial bleeding after having my sigmoid scopy.
My biopsies have come negative for IBD.
Really I am a confused lot.
I will be trying Ulcerin 1 and 2 ayurvedic compounds in near future.
I have sent my reports to Dr Harish, got a response.
I have relief for now, but i know whenever there are some fizzing sounds in the abdomen, I will have bloody stool.
considering my age, my BP remains alarmingly high 140-150/95-100 with heart rate over 95.
I am really stressed out.
My physician advised me VSL3, Meva C before meals, while treating for IBS.
My GI suggested SNOLAC pre-pro biotic
I have noticed VSL3 to be more calming and stopped taking SNOLAC
Tried eating raw papaya, didn’t help (It had helped one known aunt with severe UC gaining full remission)
Meals – I eat a normal Indian diet
Vegetables, wheat grain rotis(Indian staple food), rice, Lentils, potatoes, peeled fruits.
Avoid – too much spices, no or little red pepper, use ghee no other oil for cooking, avoid nuts, juices
Bael juice is great, although fruit form of Bael is more beneficial.
written by Nilesh