Hi, I am the mother of an 18 year old Hispanic female who’s been diagnosed with severe pancolitis and ulcerative colitis unspecified.
She is been hospitalized for 2 weeks now and started remicade first dose two days ago.
She is feeling better no bleeding and more formed stool at this time.
This has been a roller coaster for us, and all I can think of how did it happened?
We have no family history of Ulcerative Colitis or Crohn’s. She has lost about 25 pounds and she is currently being treated by a pediatric GI.
We are trying to cope and understand this illness. I am a registered nurse , and trying to help my daughter to cope and obtain the best possible treatment. She went through 3 blood transfusions and currently is receiving TPN.
First time admitted she spent 5 days in the hospital and was sent home with prednisone and mesalamine. Five days went by and the diarrhea got worse. Went back to the hospital and she was admitted with cdiff which is controlled now.
The doctors keep telling her that Remicade was the only option for her, since prednisone and mesalamine didn’t work for a week; her liver enzymes and platelets increased while on mesalamine.
She went back to the hospital got better and about to be discharge home soon. Remicade is working after two days of infusion and we see no more bleeding.
I’m looking to find advice from people that has gone through a similar case. I am also looking for a second opinion and willing to try homeopathic or alternative medicine. I’ve been reading different sites and came across this one which it looks very helpful.
We live in New York City.
Any tips or places that we can use will be greatly appreciated. Thank you!