Beginning My Fight Against Ulcerative Colitis

Meet Pat:

I was diagnosed with UC in July of 2009. I am twenty one years old applying to dental school. I am so relieved that I found this website and now I know that I am not the only one struggling with this disease.

My Symptoms:

For the past 3 years with ulcerative colitis, I had yearly flareups. These flareups were blood and mucus with my bowel movement. For the past two years, when these flareups occurred, I would take mesalamine enemas for appx. two weeks and everything would be back to normal. For some reason, NOW, for the past month and a half, my flareup is STILL not gone. I am currently taking 4 pills of Lialda daily and hydrocortisone enema. I have a scheduled sigmoidoscopy tomorrow which can hopefully help the doctor give me the right medication.

My Story:

I was 17 years old when I was diagnosed with UC and I have been living with it for 3 years. I have been taking Lialda, two tablets daily, and it has helped me maintain remission with only a few flareups until now. I am very scared that my condition got worse.

The first time I saw blood in my stool was in 2008. I went to a GI doctor, went through a colonsocopy, and did not have UC yet. I was diagnosed with proctitis. But then, one year later, I saw blood again and one day I went to the bathroom 9 times! Then I went to a GI doctor again, he did another colonoscopy, where I was diagnosed with mild UC.

My symptoms while living with UC are mild abdominal pain, blood with my stool, mucus, occasional diarrhea, and occasional nausea.

After reading many stories on this website, and I only came across the website today, and reading Adam’s life changing story really gives me hope. All my GI doctors told me diet has nothing to do with anything, stress has nothing to do with anything, and that medication is the key. But now I see that if I try a good diet and a productive lifestyle maybe I can beat UC as well!

UC has not only changed my life, but my family’s life as well. I cried myself to sleep many times, and currently i feel helpless because my flareup is not leaving. My family worries so much and I feel so bad.

What concerns me the most is that this disease is supposedly incurable and that I will live with it for the rest of my life. I hope I can beat this disease just like Adam did and share with the rest of the people struggling with the disease my success and how they can beat it too.

Where I’d like to be in 1 year:

In one year, I want to be starting dental school colitis free. It is September 7, 2012 8:36pm and my battle against my disease has officially started. I will do whatever it takes to get rid of UC once and for all.

Colitis Medications:

Lialda was great for me. No side effects at all.

written by Pat

submitted in the colitis venting area




7 Responses to Beginning My Fight Against Ulcerative Colitis

  1. Adam
    Adam September 9, 2012 at 8:47 am #

    Dear Pat,

    Welcome to the site and thanks for sharing your story. I realize that since you wrote your story a few days ago, you’ve probably met with your doctor and had another sigmoidoscopy which I hope went well. I’ve had three of those and I’m getting a colonoscopy later this month and just the thought of getting the rod up the old colon hole can be a bit nerve racking right?

    It’s alright though. It sounds like you’ve got a extra stubborn flare, but you know what, you’re gonna wack it! For sure you will. You’ve done it before and you’ll do it again.

    Its so common for UC’ers to go through life with typical flares and then once in a while a flare up will act differently or respond differently to treatments that have worked in the past. But don’t worry, that’s normal. It will end soon.

    On a total side note, I think its WAY cool that you’d like to be a dentist. And someday, you’re going to be talking to a new patient of yours, and he/she is going to tell you that they have ulcerative colitis. It’s going to happen. I’ve told several dentists about my UC in the past few years, and I’m still waiting for the dentist to tell me they have it also. Maybe that’s you.

    Keep your head up, things are gonna calm down soon and UC won’t be the first thing on your mind much longer.

    Good luck,
    -Adam

  2. Steve September 9, 2012 at 5:02 pm #

    Thanks for sharing you story Pat! I dig your outlook and while now might be different than the past, as Adam said, you will beat this. While we may have to live with the possibility of flares if we do not take care of ourselves, to say UC is incurable is silly. Don’t buy into the hype of some doctors. I’m sure the only way they would believe UC is fixable is if they had the illness and tried the treatments, traditional or alternative. Hope you are well and keep us posted. I’ll be thinking of you the next time I’m at the dentist for sure, hoping my teeth are up to spec! Steve

  3. Bev September 9, 2012 at 5:41 pm #

    Hi Pat…

    You bet you can beat this disease…we all can. Alot of us have attained remission naturally, as well. A very good probiotic daily (recommended by a vitamin store clerk), some L-glutamine daily, and a strong little natural anti inflammatory called astaxanthin daily…I know…as tax what thin? Weird name!

    I chose to go off of asacol (lialda) eventually because it made me feel so nauseated and made alot of the colitis symptoms worse! Loose movements and a ton of blood. I actually got better when I went off of it. Imagine that. 13 years on it, and I didn’t even realize it was causing me alot of problems. I thought it was the UC.

    I am in complete pain free, blood free, only going to the bathroon once a day, sweet remission. It took a few weeks to really see the results, but I did…and continue to do so!! Oh, and I also eat whatever I want.

    Cheers:)

    • Lane September 10, 2012 at 1:03 am #

      Hi Bev,

      I just wanted to let you know that I’m trying your regimen…and so far it seems to be working. I’ve noticed my symptoms have improved. To Pat: I’m on the same medications…Lialda and also the cort enemas but after hearing Bev’s story, I decided to go off the Lialda and enemas to see if the probiotics and the other supplements she recommended would work. I’ve only been off my meds a couple of weeks but I can see that I feel much better. I still see a little blood but not as much as before and I’m not constantly running to the bathroom. Thank you for the information, Bev. I am looking forward to a remission too, Bev.

      • Bev September 10, 2012 at 12:40 pm #

        Hello Lane!!!

        You are the second person on this website that this is working for…actually, three, including myself!!

        This is absolutely wonderful! Sorry for all of the excalmation points. I’m just so hyped up and excited about this.

        You know, I don’t know if it’s the probiotic, OR the L-glutamine…but I am starting to believe it may be the two together. After a month or so on the probiotic, I was feeling so much better, that I thought…what the heck…I’m dropping the meds. I thought, if the worst happens, I can always take them again. I’m SO glad I went off the meds now…and I know I will NEVER go back. I feel like a totally normal person off of the meds. I though the nausea, the pain, and the loose bloody stools were all a part of the disease itself, but for me, it was the asacol (or lialda) that was causing all of those things. (I wonder how many people think they feel so terrible from the UC, and not because of their meds…mmm) All of those symptoms went away, the longer I was off of the meds. That little bit of bleeding lingered, though, so that is when I went back to the vitamin store, and asked what might stop that. The clerk there told me all about L- glutamine, and it’s healing properties, and that body builders and other athletes swear by it to repair their muscles and other internal stresses in teh body. I’m SO glad, now, I added it to my regimen, as now there is no bleeding. I will take probiotics and L-glutamine forever. Also, the astaxanthin, that powerful little natural anti-inflammatory too, just for good measure.

        I am one happy girl!! I hope you are too…heck, you must be!

        I could not be more thrilled…I wish everyone would try it and just see if it works for them too…it would be a perfect world then!!

        Cheers, and thank you for letting me, and other UCers know!!

        Bev:)

  4. Dallas September 11, 2012 at 7:43 am #

    Hello Pat,

    Your story sounds a lot like mine. Loose stool, blood, mucous–no fun. Although these symptoms are n the mild side, they are still disheartening. What I found with my flare (7 months) that didn’t seem to go away was that my body quit tolerating the enemas–especially the hydrocortisone. I started taking a probiotic and quit taking the enemas. After a few weeks, my body adjusted and I got back in remission. I still take 4 pills of Lialda, but you might want to rethink the hydrocortisone and look for a good probiotic.

    • Bev September 12, 2012 at 12:13 pm #

      Great point Dallas!

      Our bodies sometimes do stop tolerating a certain treatment…who knows why. Or, they just stop working. Again, who can say why that happens either.

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