Im still alive ….just about!
Alot has happened since I last wrote I have been on one hell of an emotional rollercoaster. I have just got out of hospital last week. I was only allowed out as I demended a few days to enjoy my birthday as they could do no more for me in hospital with my meds. I got another scope showing that my colitis is active and is not going to go into remission even with steroids. I was on high dosage of IV steroids but didnt work so they have brought me down to 60mg a day and slowly weaning me off to start me on Imuran! So I now have to get sick in order to get better and that is only if Imuran actually works. Not to mention i am so so afriad going onto these meds. After going so well on diets and alt meds and then BAM!! colitis strikes back its like one step forward ten steps back! Im really shocked that even steroids arnt working this time and its the highest dosage ive ever had. My head is a giant football, i have acne,backne and I am an emotional wreck. Im constantly crying and so confused. I havnt been sleeping I manage to get one hour a night for the past two weeks and thats just crazy dreams. My joints are also screwed. I felt like I turned 85 this weekend not 25! One thing I did enjoy was the fact that they removed my feeding tube from my throat so I could have my birthday cake this year! It was awesome! What is funny this time round with the steroids is that not only am i eating everything in front of me..(im surprised im not chewing my arm right now)..its that they have stopped my bowel motions completely except for blood! I still pass blood but have stopped all other bowel movement..so i have to keep getting scans to check my colon because its now twice the size it should be…i look like im 7 months pregant with a giant football head..hmmm so very appealing for all the men out there! sigh! Its now 1am here and I now have a full night of not sleeping and having freak outs about starting new drugs and going back into hospital!
In regards to imuran Id love to hear peoples input on the drug! I am left with no choice they told me imuran or go home sick! Do people get the bad side effects? did you have to start off in hospital? do you still take steroids with imuran?