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I’ve Tried Every Colitis Drug, and now on SCD

Below is a posting from an anonymous person who as you can see has taken many many medications for ulcerative colitis.  I thought it might be helpful for some other UC patients to see how it is not always easy to go from being diagnosed to finding a solution that works for you.  Thanks for the information and the look into your life:

I wish I had only been on four medicines. I’ve been on every single group pyramid-whatever drug possible.

From Pentasa to Flagyll (antibotic) to 6mp to Methotrexate to Remicade to Humira to
SCD!!!!!!!!!!!!!!!!!! (Lifesaver)

I’ve done everything. Name a drug and I’ve done that family of drugs. Name a treatment and my parents got it for me: Whipworms? check. Only NG feeds? Check. Only TPN feeds? Check. Massage? Check (I wish I still got that one…:D) Stand on your head and spin around three times? I would have…

Literally the only thing left was a permanent ostomy. At that point the doctors said there was no harm in trying SCD while we wait to schedule it. Thank goodness my Mom forced me to do it.

2 thoughts on “I’ve Tried Every Colitis Drug, and now on SCD”

  1. wow, this SCD diet sounds like a solution.
    I’m on the non-dairy diet and a diet that reduces the amount of acid in my stomach.
    you sounds like youve been through every thing bbut i guess you have you must be incredibly strong

  2. I’M 28 year old mother of two. I was diagnosed with UC in 2004 before my kids but it never realised how bad it could be until after with my first I had a bad flare-up where I was in hospital pergnent with my second I dangerously lost weight and got on with my symptoms as I wasn’t aware. Since then I have three occasions where I have been admitted into hospital in 18 month for 7 days plus and in the last 12 months I have 5 course of steriods. My consultant is talking about metherextrate if that doesn’t work (azathriapan & mp had bad reactions to) doesn’t work then I would have to consider surgery which really scares me!!!!

    Any advice????

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