I’ve Tried Every Colitis Drug, and now on SCD

Below is a posting from an anonymous person who as you can see has taken many many medications for ulcerative colitis.  I thought it might be helpful for some other UC patients to see how it is not always easy to go from being diagnosed to finding a solution that works for you.  Thanks for the information and the look into your life:

I wish I had only been on four medicines. I’ve been on every single group pyramid-whatever drug possible.

From Pentasa to Flagyll (antibotic) to 6mp to Methotrexate to Remicade to Humira to
SCD!!!!!!!!!!!!!!!!!! (Lifesaver)

I’ve done everything. Name a drug and I’ve done that family of drugs. Name a treatment and my parents got it for me: Whipworms? check. Only NG feeds? Check. Only TPN feeds? Check. Massage? Check (I wish I still got that one…:D) Stand on your head and spin around three times? I would have…

Literally the only thing left was a permanent ostomy. At that point the doctors said there was no harm in trying SCD while we wait to schedule it. Thank goodness my Mom forced me to do it.

6mp, colitis, flagyll, Humira, methotrexate, pentasa, Remicade, SCD, solution, Ulcerative

2 Responses to I’ve Tried Every Colitis Drug, and now on SCD

  1. Romy May 31, 2010 at 7:46 am #

    wow, this SCD diet sounds like a solution.
    I’m on the non-dairy diet and a diet that reduces the amount of acid in my stomach.
    you sounds like youve been through every thing bbut i guess you have you must be incredibly strong

  2. Sarah December 14, 2012 at 8:21 pm #

    I’M 28 year old mother of two. I was diagnosed with UC in 2004 before my kids but it never realised how bad it could be until after with my first I had a bad flare-up where I was in hospital pergnent with my second I dangerously lost weight and got on with my symptoms as I wasn’t aware. Since then I have three occasions where I have been admitted into hospital in 18 month for 7 days plus and in the last 12 months I have 5 course of steriods. My consultant is talking about metherextrate if that doesn’t work (azathriapan & mp had bad reactions to) doesn’t work then I would have to consider surgery which really scares me!!!!

    Any advice????

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