Lori has had C-difficile since December, and 9 separate rounds of antibiotics have not been able to do the trick.
Lori’s C-Diff Story:
C-diff has changed my life so much, I can’t go to work because I work with people.
I’ve lost 30 pounds, I have no appetite and I’m scared to leave the house because I might go to the bathroom in my pants. My son and husband don’t really understand it but they’ve been helpful. My son has been to the hospital with me six times due to the pain and due to the lack that I can’t stop going to the bathroom. He has been sitting there with me for hours. My husband…well I don’t think he really knows what to do.
I’ve seen two specialist, one that offered me fecal transplants but she didn’t know how to do it so she sent me to somebody else. Finally they did the fecal transplants, but they did not stop the c-diff.
I’ve been on nine rounds of antibiotics, every antibiotic that they use for C diff and after three days of taking the antibiotics I’m right back to where I started from.
My question would be if anybody has had the fecal transplants and did they work and how many times have they had to have it done.
I’m scared and frightened, not sure if I will lose my bowel over this. I’m 47 years old. Was on antibiotics, they’re not sure how I contacted this but all I know this life is been hell.
How do people get through this? How do you live a normal life and I sit here and I Google search for answers and questions because I have no one to talk to.
I don’t even think my doctor knows what to do, it’s hard.
It’s hard on families, it’s hard on you, it’s hard on your family, hard on your income, and my husband can’t support me and my son and they won’t let me go back to work. I wouldn’t wish this on anybody. How do people get through this? I’m depressed, I feel isolated I feel lonely, I feel lost, and I don’t know where to turn. You know you can talk to your family but they don’t understand what you’re going through. The doctor said well we can try the fecal transplant again or wean you off the antibiotics slowly. Well the antibiotics haven’t helped so I’m lost any information you can give me I would be glad for the help.
written by Lori P
submitted in the colitis venting area