Ulcerative Colitis Tips


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Ulcerative Colitis Update for September 2011

Hey UC’ers of the World,

It’s Adam here reporting live from my bathroom in Berkeley, CA.

I know that some of you may have noticed a bit of a change with the website over the past week, and yes indeed, you are right, a few format changes due to an uninvited guest (virus) of the website.  But nothing to crazy.

What’s Going on with You Colitis Peoples?

I know that for quite a few of you who follow the website and who are subscribed to the newsletter that the past few weeks and months have been really hard considering worsening ulcerative colitis symptoms.  I know that feeling all too well.  And yes indeed, its just about the worse part of this disease when you see your symptoms slowly getting worse.  Especially if you have been trying different medications that you and your family’s are hoping will bring the nasty bleeding to an end.  But, please, realize that for everyone here, bad colitis symptoms, and the fatigue, and other symptoms that come along with UC do eventually come to an end.  Your lives will for sure move on eventually.

One thing’s for certain, this website is here as a resource and an online spot for all of you to share your stories, and hear back from fellow UC’ers who are also struggling and in many cases finding out strategies to deal with, treat, and move on past life with bad UC symptoms.  I’m always so happy to see the comments that you all leave on other people’s stories, and the genuine support that Colitis People have for each other.  I hope it continues all the way through 2011 and beyond.

What’s New with Good Old Adam?

Well, a few weeks ago, I was involved in an interview by the guy who runs the website: www.tips4running.com.  Actually, there is a post you are welcomed to read with some on and off topic writing about my experiences and life before and during ulcerative colitis.  It’s located here: http://www.tips4running.com/running-with-uc.html

In terms of my own life, as many of you know, I still follow very strictly the SCD diet(details are here: www.ihaveuc.com/the-diet), and I think I’m now going on a 6 or 7 month string of really great symptom free months.  I’ve put back all my weight, and I recently joined the CAL Berkeley Gym.  Yes, I know I’m not a college student anymore(that was 10 years ago) but my wife is a student, so the rates were great to join for me as a “spouse”.   So, back to pumping iron and working out is getting into the schedule.  My main goal is to get in shape, and put on some more muscle.  But I think another main goal is to prove that just because I’m now in my 30’s, and I don’t look nearly as fit as I did 10 years ago, it’s still entirely possible to get back into good health, even with ulcerative colitis.  I’ll keep you posted on that.  Maybe even shoot a quick video from the gym, might have to go undercover for that though…

Also, I’m starting to do some running, the Las Vegas Half marathon is getting closer and closer, it comes up in December, and I’m super pumped for that.

Lastly, I was emailing with a gastro doctor a few days ago who completed a study on the average healthcare associated with Ulcerative Colitis per patient each year.  I was shocked to see the numbers- $5066 per year per colitis patient!  Wow, that’s a lot of money.  And pharmaceutical claims were 27% of those numbers too.  That’s some big numbers, but I guess I’m not surprised.  When I was very sick with UC two years ago, I can remember blowing through my health insurance deductible the first month of the year.

And Finally:

The “Colitis Writing Contest” is coming to a close at the end of the month.  There have been hundreds of stories submitted so far, and I’m super excited to see who the winner will be.  As you may remember, the story with the most “unique visitors” since January 2011 will be the winner of the $250 prize.  I should be able to have that figured out just about 1 or 2 days into October.  I’ll let you all know so we can congratulate the winner too.

To close out this months update, I want to re-iterate on something that isn’t commonly talked about in the Gastro doctor’s office.  Stress.  I really feel that much of my success with keeping my colitis symptoms in remission is directly related to stress reduction over the past several months.  Many of you have already read my story on “Ulcerative Colitis and Stress” and if you haven’t you might want to check it out.  If you can find small ways to reduce “stressful” parts of your lifestyle, it very well may help you heal your colon too.

Thanks for being part of the website, I really enjoy posting your stories from the “Colitis Venting Area”, and have a great September. (If you haven’t joined the newsletter yet, you can do so below)

 

-Adam

 




4 Responses to Ulcerative Colitis Update for September 2011

  1. Amanda September 3, 2011 at 11:29 am #

    Hey Adam!
    I just want to say “thank you!” for starting this website. I am having a really tough time with a flare-up, my worst one yet, this whole summer. It has forced me to stay in and become extremely isolated, which I have never been. I can’t go out to eat, have social drinks, just basically live a “normal” life. The positive part about it is that I stumbled across your website, have started the SCD diet and I am also participating in the Vegas Marathon. I am hoping all these things will help heal me!
    Thank you, Thank you, Thank you for what you do! See you in Vegas!!
    ~Amanda

    • Adam
      Adam September 3, 2011 at 1:19 pm #

      Hey Amanda,
      I’m so sorry that this nasty flare you’re in has taken its toll on your life this summer. I really hope you feel some relief soon so you can get back to a real life without UC disturbing it and popping its nasty bloody head out.
      That’s great you found the site! If its made you happy, that’s super awesome. And that’s also super cool that you’re starting SCD. As you know, I’m now past my two year mark on it, and happy indeed.
      As for VEGAS!!!! We should meet up there and chat. Would be great to hear your whole story. I’ll be going Friday Dec. 2 and returning Monday the 5th. Feel free to hit me up on my email at: ihaveuc@ihaveuc.com if you want. There’s a few other UC’ers from the site making out there from across the US, and I’m hoping to see some others from the site too who live in the area.
      All the best to you, and stay in touch,
      Adam

  2. Amanda September 7, 2011 at 3:38 pm #

    Hi Adam!
    I would love to meet up with everyone in Vegas! I will be staying the same days. Love your e-mail address, very unique! As for the SCD diet, I am only on Day 7 and damn it is hard. I want ice-cream and chocolate and everything else you have to stay away from. How do you curb your cravings?? Do you cheat? I am having a positive reaction to the diet so that is helping me stay focused, but sometimes it is really challenging! Any advice??

    Thanks!
    Amanda

    • Adam
      Adam September 7, 2011 at 8:21 pm #

      Hey Amanda!!! What’s up!
      So great to know you’re going to Vegoooose too! Awesome.
      Are you doing the half marathon? Or are you just there to hit the blackjack tables!

      Anyways, I just got my room booked, and I’m staying at Bally’s Hotel on the strip. I might be staying with my old roomate one night who lives there too, but either way have the hotel for Fri-Monday. And, my wife’s joining who you may have seen in some of the videos… anyways. can’t wait to meet you.

      As for your diet questions, first off, congrats on starting the SCD diet.
      I’ve got to tell you that the initial days on the diet are always the hardest for everyone who starts it. Whether you start it while you’re on medicatons, or if you start it while not on medications it’s tough. But don’t worry, that’s TOTALLY NORMAL!
      Stay away from the chocolate and ice-cream, that stuff can set you back to the beginning, I know that’s not what you wanted to hear, but from my experiences with cheating…It sure aint worth it.
      As for cheating… well I’m pretty experienced on the diet, I’ve been doing it for over 2 years now. But I can say with a straight face that I RARELY cheat at all. As for curbing my cravings, I would usually try to eat some meatballs, and by meatballs, I mean ground up hamburger meat, broiled in the oven with some salt on them. No sauces, just meatballs. For me, that seemed to do the trick in the early days. Also, what really helped for me was learning more about the process of the SCD diet, understanding that I’m really trying to make a change to my gut bacteria community.
      It’s a war down there in the GUT. There are billions of reactions going on every hour down there, and as crazy as it might seem to some people, we(the Colitis People of the World) can make a difference in making changes to how things work in our guts. I would suggest that you watch some of the gut bacteria videos that I filmed with the scientist from Stanford Univerisity’s Microbiology/Immunology department. There should be about an hour worth of all the videos I shot with him, and that might be interesting to you since its footage that you can’t really find anywhere else on the internet (unless you look really hard, which I’m not a big fan of doing…) The first video is here: http://www.ihaveuc.com/gut-bacteria-part-1/
      and you can go forward with the 2nd and 3rd, 4th etc.. video’s from that page if you are interested.

      Also, send me an email to ihaveuc@ihaveuc.com so we can connect for meeting in Vegas. (Are you a blackjack player by any chance????) I hope to retire on this trip…
      thanks for writing in Amanda, can’t wait to hear from you,
      Adam

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