My son’s worst flare up since his diagnosis in October of 2012. We live in Delaware and I am very happy with our doctors attention to him, although right now nothing seems to be working.
My 16 Year Old’s Ulcerative Colitis
Hi. my son is 16 and has UC. He was first diagnosed in October 2012 and we are in the worst flare since originally diagnosed. He has had constant diarrhea with blood for three weeks now. Our doctor has had him on Asacol ( which they are not making anymore from my understanding) so then we switched to Asipro, with the use of Cortifoam also this calmed things down for a few days.
Because of the severity and the 12 pound weight loss in just 7 days she put him back on the steroid (prednisone) just 3 days ago. Still no help.. he is on the couch now… asleep, pale and weak.
We will be starting the diet tomorrow and hope that it can help in some way…
Are there any other parents out there who just feel helpless?
It is so frustrating to not be able to do anything because we don’t know how or what causes this horrible disease. I have an extremely strong willed son but I see him giving up all hope because he is so used to mom or the doct or being able to fix things. Would just be interested in what any other parents have to say and at what point do you start to feel better about this condition? right now I know that we would both be happy just to look in the toilet and see no blood… I know that would be just the best feeling but its been 3-4 weeks…. is that too long? We have gone for the poop sample which came back ok and the blood test on this past Thursday which our doctor didn’t seem too concerned about. His hemoglobin was 10.6 which was down from 12.6 in March. I can always tell when his blood levels are low because that is when the weakness and paleness sets in.. Any help or encouragement for my son and I would be much appreciated at this time…
written by Paula
submitted in the friends and family of UC’ers section