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Humira Reviews

Humira antibody

Monoclonal antibody targeting TNF Alpha


With the recent approval of Humira (Adalimumab) by the FDA, there is a growing need for ulcerative colitis patient reviews of their experiences with this medication.  Like some other biologics, Humira helps to stop the communication of a specific part of the immune system’s inflammatory response.

Many UC’ers are concerned that immune suppresants such as Humira will stop their immune system from working.  That is not entirely true. Humira’s main goal is to stop the TNF alpha section of the immune response.  (if humira stopped everything in our immune systems from working…it would be game over for everyone real quick)

Although Humira was approved by the FDA much later than Remicade which is a similar immune suppressant medication, there has been research and studies with Humira as far back as 1999 when it was still under development.

Like all medications, doctors should be consulted considerably when the decisions are being made to potentially start medications.  Humira is no different.  There are many reported potential side effects, and you as a patient should be well aware of what these are.

If you have experience with taking Humira for treating your ulcerative colitis, please consider leaving a review on this page of your experience.

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Humira immune suppressant and anti TNF alpha medication for treating auto immune disease such as ulcerative colitis SKU UPC Model

My Saving far :)

Jan 12, 2015 by Zach
City/country:: Little Chute, WI 

I had read about all of the horror stories much like everyone else. When I finally took it as a last resort to surgery it saved me. My whole colon was affected and the only relief I had before was while on high doses of prednisone (30 up to 60mgs). It took about 6-8 weeks from my first dose but I can now consider myself "normal" again. It feels so good to be back to my old self again. Happy to do anything and now worrying about how long I'll be away from a bathroom. I also take azathioprene and lialda. I have been on both of those from the start. Humira made the difference. Coming up on a year now of feeling great.

PS. The whole ordering process, self injecting pens shipped to your house, and sharps disposal that they will pay to have picked up makes the entire process so easy. I really am thankful if you can't tell ;)

Humira - RA

Dec 31, 2014 by Mike Devlin

Wow... to read some of these negative post one could be lead to believe Humira causes all the planets ills.

Needless to say I was extremely happy to find my auto inject pen to be virtually painless with ZERO side affects the past 5 months. Maybe I'm the exception.... all I know is I almost declined this treatment based off all the negative reviews. I'm very happy I choose to find out for myself.

Wonderful, Wonderful, Wonderful

Dec 01, 2014 by Nancy Ervin
City/country:: North Versailles, PA 

I have injected Humira once a week for over a year, along with one Mercaptapurine, 50 mg. tab daily. I am
back to being normal. My Dr. had me on every med on the market and nothing worked, even 6 months of Remicade, it did nothing for me. She suggested I see a surgeon. Naturally he wanted to operate, that is his trade. I went back to my Gastro and she asked what I wanted to do. I suggested the Humira one more time. I
had tried it and it worked for a couple of months and then it quit. That's when she put me on the double dose and it has been great ever since. Thank heaven I was willing to try it again........I just had a bout with Breast Cancer and the surgeon wanted me off it before the surgery. I said I can't be off it, so she wanted a release from the Gastro. Dr Tina called her, they discussed my case and the surgeon allowed me to stay on it for the surgery. Thank heaven. I take Humira till the day I die unless something happens that I can no longer take it.

Just started Humira

Aug 29, 2014 by 40yr old female
City/country:: BC Canada 

Hi, I'm on my 3rd week of Humira. I found if you inject into fat on your stomach area it doesn't hurt too much. A bit of stinging but that's about it.
First two weeks my side effects were bad headache, sinus pain and pressure, severe abdominal pain and constipation ( ended up in the ER! ), nausea, burping ( something i never did prior ), and my skin was greasy feeling. Not going to lie I felt like garbage!
I wasn't sure if I would do the next shot but I'm in a very difficult position due to my health so after much consideration I chose to do my next shot 2 weeks after the first ( as prescribed ). I'm on day 16 now and the headache is gone. Still experiencing the other side effects but not as bad. I have not noticed yet any relief from pain or other areas I'm taking it for but my doctor told me it takes approximately 6-8 to notice any improvement.
This drug scares me, and I'm not sure I want to be on it but I have no other choices if I want some sort of life again then I need to try it.
I gave a rating of 3 stars because I don't know yet if this drug will help, but I am praying! Being sick 24/7 for the last 7 years has been no life at all so here's hoping!!!
I hope this helps for anyone considering using Humira. May everyone one day find something that helps!
My illnesses - Sarcodosis , Ehlers Danlos Syndrome, severe Arthritis, Synovitis in every joint, Sacriolitis, uterine/rectal prolapse, hiatus hernia, Rocesea, Psoriasis , C-Diff infections ( off and on ), mild scoliosis, depression, anxiety( due to chronic illness ), chronic pain, and sleep apnea! ( what a list! )

Bad side effects from HUMIRA

Aug 22, 2014 by Nikki
City/country:: Arlington 

I has a mild case of pustular psoriasis on my right hand and small patch on my left shin. After 4 injections of humira it hospitalized me with a bacteria infection and severe pustular psoriasis from my scalp all the way down to the bottom of my feet. I'm now covered with pustular psoriasis and mortified to walk out of my house. I hate humira and wish it to stop being made

Jul 11, 2014 by Seattle Gal

I had UC for 20 years, and was shocked to recently learn it has turned in Crohn's. Humira was started two weeks ago. The shots sting, but they only last to the count of 10. With high grade dysplasia, surgery is the best option so I can finish raising my two young children. Surgery is in the next three weeks, and I would imagine I will go off the Humira at that time. No side effects as of now. Feeling better actually. Solid stools for the most part. Everyone has to make one's own choices, but it's been a positive experience for me.

Saved my Colon

Jul 07, 2014 by Zach Tatro
City/country:: Little Chute 

I read a lot of these reviews and was at first surprised by how negative they are. But then again, as with any review those who are not happy tend to be more motivated to give their opinion.

That being said I would like to provide a story of success so far. I was diagnosed with UC 3 years ago. During the first 2.5 years I have been on Azathioprene, Lialda, Remicade, and Prednisone. What I found was the only thing that would help was a high dose of Prednisone. As soon as I tapered off I would start to be very sick again. This past winter I was only taking Aza and Lialda because my doc said I needed a break from Prednisone and I had stopped Remicade early on because I didn't think it was working for me. I was sick, fed up, and ready to have my colon removed.

I went to see a surgeon and she actually suggested I give Humira a try. Hearing a surgeon tell me to try it was kind of a wake up call as to how serious a procedure this was. I figured I better try it. Well, that was 5 months ago and these last 5 months have been the best I've had since I was diagnosed. I am back to eating and drinking what I want. I still try to eat healthy and not drink too much alcohol but if I want to party I do.

I think the self injecting pens are really easy to use and they ship right to my door so the whole process is almost painless. I could not be happier with my decision to give Humira a try and my wife and two girls feel that way too I'm sure. It took about 8-10 weeks for it to really start working well but ever since then it's been smooth sailing(knock on wood). I definitely suggest giving this med a try even if Remicade and others have not worked for you. I am still on Aza and Lialda as well but Humira appears to be the x factor for me.

humira made symptoms worst!

Jan 14, 2014 by judy r

Diagnosed 6 years ago with UC. Took every medication prescribed. Have colonoscopy every 6 months. Taking humira 4 months now. Symptoms are so bad, that I am bowel and bladder incontinent. Pull-ups are the most vital part of my wardrobe! the pain and diarrhea are unbearable. my doctor is trying everything. I am scared to eat! my tush is beat up! I just need to feel well. I am depressed and irritable all the time.

It's very complicated

Aug 04, 2013 by Foo Fighter

I was diagnosed with UC 17 or 18 years ago. Initially treated with prednisolone enemas, corticosteroids and sulfalazine, all of which were already a bit old-fashioned, with known serious side-effects, to be seriously considered as a long-term treatment. Saw no relief over two years

Then switched to another doctor who put me on to aziathiaprine (Imuran) and Salofalk granules (mesalazine), my first immunosuppressants. Things improved very slightly, but still no remission for another 7 or 8 years.

Over the years my diagnosis changed from UC to Crohn's Colitis, to (maybe, I think) Crohn's Disease. It's not clear, and different doctors tend to hand wave around the distinction between them in my experience.

Then was put on anti-depressants (Zoloft, an SSRI), which caused complications. I was jumping through hoops at this point, trying to get put on to infliximab (Remicade), such as going back on corticosteroids to prove to my new doctor that they didn't work before he could advocate for me to receive Remicade through the public health system. As serotonin is involved in signalling for blood coagulation, the SSRIs caused massive bleeding. I had always had bleeding and urgency, with several visits to the toilet per day, but now I was incontinent with blood and had to start using sanitary napkins (I'm a man) and had to come off the SSRIs. Complications ensued and I ended up becoming paraplegic.

Being partly paralysed mostly ended the bowel spasms (ie urgency) associated with UC, along with all sensation in that area. By then I had given all but decaf coffee entirely, but occasionally would get funny feelings across my skin and would feel the need to twitch and stretch, especially after caffeine (a few times people spiked my coffee for a laugh, so I know). I'm quite sure this is how the bowel spasms manifest themselves after the damage to my nervous system. In other words, I still get some nervous system response to caffeine, but the sense of urgency is gone as I have very little feeling left in that area. Nevertheless, by that stage I was getting those funny skin feelings fairly regularly, even without caffeine -- that is, I think that I was getting this new, strange manifestation of bowel spasms fairly regularly.

I still had bloody diarrhoea, which is particularly hard to manage in combination with a paralysed detrusor reflex.

At this point I started an 18 month treatment with Humira. I don't recall any noticeable side-effects, though I may have had subtle things like tiredness or worse mood which I didn't associate with it; certainly people seem to have had very bad experiences with it. Over those 18 months stools improved to become pretty normal, and funny skin sensations (bowel spasms) mostly disappeared, so it seemed to have a positive effect.

I remained on mesalazine & immurane throughout the Humira program and for another 18 months. All together it's hard to know how useful the Humira has been, as my nervous system damage complicates the observations.

I became concerned that being on immunosuppressants for so long was causing me to become intolerant of certain foods. Any remotely "challenging" foods to my body -- ie caffeine, sugar, alcohol -- now result in me feeling what I can only describe as very badly hung over the next day, even after only a small dose. Because of my suspicions, I managed to get off the Imuran, seemingly without any problems.

Also, shortly before getting off the Imuran I had started taking a quarter-teaspoon of baking soda (sodium bicarbonate) in water in the morning and night. This is because I came across a paper in a journal of medical hypotheses which corralled a bunch of medical correlations to argue that Crohn's Disease is a consequence of the body's inability to digest the cell walls gram-negative bacteria properly. Intestinal alkaline phosphotase (IAP) is apparently an enzyme necessary to digest these cell walls properly, but which doesn't operate well in an environment that's too acidic. Thus, the author suggested that a sufficiently alkaline diet might help ease Crohn's Disease. To this end, I continue to take small doses of baking soda, which is alkaline, and it seems to positively influence stool consistency, something which my absent detrusor reflex makes very easy to notice.

I recommend trying to see if baking soda alleviates symptoms a bit, and certainly quitting caffeine. I can't recommend paralysis as a solution to bowel spasms ;-)

Jul 23, 2013 by Crystal

Humira has to be one of the worst medications I have taken for my UC. I developed Autoimmune Hepatitis from Humira and now have to be a slave to labs every two weeks, monitoring my liver, hoping that it will go away and stay gone. Not enough research has been done on this drug to know if the Autoimmune Hepatitis will remain a chronic condition, or go away now that I have stopped the medication. Be VERY cautious when taking Humira, and listen to your body - I was told that there was less than a 2% chance of having any liver problems, and look what happened to me. Be your own/best advocate especially when doctors won't listen to you.

I hate it as much as prednisone

Jul 23, 2013 by Joanna

After my excruciating loading dose, i developed frozen joints and c diff after a day. I did not know humira could cause c diff or else i really doubt i wouldve taken it. Been struggling with that for the entire year since my loading dose in january. I only took that first day of doses- only three of the four because i fainted from the pain of the shots. I couldnt bare to take the last one. Definitely something i regret taking. I always hate seeing those untrue commercials of the happy humira patients because i have a feeling there is a way larger amount of unhappy humira patients.

The "gift" that keeps giving!

Jul 22, 2013 by Shelly Miller

After becoming allergic to remicade and hitting another severe flare and waiting weeks for approval...I think it did stop the bleeding despite being allergic to it the whole time(6 months)-I experienced lots of rahes, numbness, tingling, chest pain-even had to have heart stress test, nerve pain, my body is forever changed because of it.
I hope it works for others, but read all you can so you know what to expect for side effects and make an informed decision.

so far so good

Jul 22, 2013 by Jennifer

i have been on humira for approx 1 month now. not showing any vast improvement nor am i showing any major problems shown below (however i'm also noticing its around the 3-4 month mark where ppl seem to have difficulties). i will say my urgency has increased. i have about 15-20 second window before ill shit myself, and usually dont make it about 3x per week. take ty3 for pain (it slows my gut down too).
haven't had any lesions or fevers yet, however had to stop the 6MP immediately due to staph infection on my ankle WBC was 2 and hemoglobin was 7.8 (this was before humira though).

ive been a lot worse, but definitely wont accept this to be "normal". i have UC pancolitis and have tried all the sulfa and mesa drugs, canasa, rowasa, remcaid, uceris, apriso, asacol, etc. will update in another 2 months to see if i have any of the bad reactions around the same time period. hoping not... hoping this drug kicks in. dont have any options left other than surgery...

Too much too handle!

Jul 22, 2013 by Violet Sterba

I do not like Humira period. It has made me miserable since starting it. I was diagnosed two years ago with UC and have been uncontrollable. Put on Humira 4 months ago and I have been sicker with everything else since. Had a 2 week long cold. Than had a nasty fungal infection that lasted two weeks in my mouth, basically thrush combined with multiple canker sores. Couldn’t eat without Vicodin. After a week into fungal infection, my sinuses flared and ended up with a 4 week long sinus infection. First 2 weeks was self care, finally broke down and went on antibiotics when I spiked a 103 temp and couldn’t move off my couch. Couldn’t get any air up my nose, nor could I get a sinus rinse to go up. Than the bumps started. Yes, I looked like a spotted leopard on my arms and legs. Erythema nodosum is what they call it. I have giant red patches all over my arms and legs that are hot, painful and sometimes itchy. My ankle is the size of a softball, literally no thanks to the bump on my tendon swelling. I could barely walk at one point the pain in my ankle was do severe. Back on Vicodin I went as well as a 2 antibiotic because the other antibiotic wasn’t working as well so I got to get a stronger one. Sinuses are clear now, start of week 5 but my spots are just as horrible. I’ve asked to be taken off Humira – denied. They actually want to increase my injections!!! Now I’m being referred to the University of WA to see their specialists. I have basically stopped all meds except for prednisone and I feel better. I felt worse on all the meds with no UC results. I think I’m going to hit this with diet now. I’m tired of the meds and broke cause I take so many. Humira may work for some but it’s been a horrible experience for me!

Nope Nope Nope.

Jul 22, 2013 by Geof

have had UC proctitis since summer 2010 – Average 6-10 BM’s a day, pain between 5-9 every day,

I have tried near every medication and diet except remicade, nothing works and most of it makes me miserable.

after detoxing from 6mp for several months after it crashed my immune system and put me in the hospital with a 104 fever for a week they finally put me on humira.

very bad decision.

I was on it for 3 months at my doctors request, and every day forward after starting in mid march was a spiraling loss of control. A constant daily sever shooting level 10/10 pain in the upper left side of my abdomen, it felt like I was constantly being stabbed. bowel movements 15-20 times a day with a 10 second urgency to shitting myself response (it was so bad i couldnt sleep)and diet did nothing. weight gain was around 10 lbs. loss of the will to leave the house, to eat anything, or to even live became a constant depressing mantra.

I stuck it out in may due to my gi clinic’s request, but it was like inducing torture to inject up… and i would not have lasted another 2 weeks at that rate. I quit taking injections mid may, and suddenly the clouds parted, and the first week i felt 10 % better, the next week 20% better, and so on and so on.

if that was a “light reaction” anything more would have been criminal.

it is now July 22 I am on Zero medications other than vicodin and occasional prednisone for when i have to leave the house… which is rare because this disease has ruined my life and humiliated me past the point of no return. but anyways… I feel 100% better after being on humira and 60% of normal, bm’s settling down to 6-10 a day depending on diet which takes me out of the colostomy territory.

Did not work for me

Jul 22, 2013 by  Scheuer

I decided (along with my GI) to attempt Humira as a treatment after failing with Remicade and 5-ASA's and sulfasalazine, and prednisone and rowasa enemas.

Long story short is it gave me severe skin lessions to my hands, scalp, feet, and legs.

Along with this, joint pain increased to a level I'd never known was possible.

Within a few rounds of the injections, the decision was made to stop.

(just my experience, and I'm hoping that some people with UC have had great results with Humira, just didn't work for me)

2.8 5.0 16 16 I had read about all of the horror stories much like everyone else. When I finally took it as a last resort to surgery it saved me. My whole colon was affected and the only relie Humira

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21 Responses to Humira Reviews

  1. Jennifer Zwingle July 22, 2013 at 12:24 pm #

    I was on Hunira, key word was. I had an allergic reaction like none other. I lost about 8 days of time as after the 2nd part of the loading dose I went into an awake coma state. I had pain throughout my entire body, so bad I needed help standing up off of the toilet. My mind was scattered and I had no conception if time. This was the end of this January and I missed things like the Super Bowl and my mothers birthday because in my mind it was Christmas. I was talking in my sleep and basically in a state of delirium.

  2. bev July 22, 2013 at 1:48 pm #

    This is a great idea to review humira from people who have taken it. Not from a pharmaceutical point of view, but from a HUMAN one!

    Yey Adam!

  3. Reid B. Kimball July 22, 2013 at 4:09 pm #

    Adam, do you know about They are encouraging patients to write about their side effect experiences with Humira.

    They also have a campaign I am helping with to raise awareness that the drug makers of Humira have NOT released all of their clinical study data.

    • Adam July 22, 2013 at 4:46 pm #

      What up Reid!
      Great to hear from you (everybody, check out Reid’s website if you have not already)

      No, i have not heard of the stuff you mentioned, but it for sure does not surprise me. But again, and although I lean on the non western end of things for treating UC, I’m still hoping that there’s lots of people reading here who have had positive experiences.
      Best to you amigo:)

  4. Dean B July 23, 2013 at 12:28 pm #

    I have been on Humira for 6 months now. I was on Remicade for about 2 years. I have been doing real
    good. As far as the going to the bath room it has made me about as normal as I have been in years.
    I am noticing some joint pains that I didn’t have before. I just had blood work done and it shows
    my blood platelets are low. Another plus for me is the cost of the Humira. I was going broke fast on
    Remicade. I can afford Humira but if my blood platelets stay low I may have to go back to Remicade.

  5. Sharon July 27, 2013 at 4:56 am #

    I started on Humira in June of 2012. I cannot take any ASA drugs and the prednisone, VSL#3DS combo wasn’t kicking my flare. I have 4 kids and I could not take care of anyone or even myself. I told my doctor I did not want to be sick all the time on an immunosuppressant, didn’t want the side effects, had almost died from Lialda, etc. He very kindly told me I was about as sick as I could be in the state I was in. I would be back in the hospital within days with very few options for meds. I took my loading dose, upped my pred and saw results within 2 days. I went into remission quickly and never looked back. I had swelling and itching at the injection site every time but otherwise, no side effects. After about 9 months, the pharmacy had multiple screw ups and I missed my dose by a week. Shortly after, I started to flare. We did re-boosting loads and I continued in a mild flare until I finally called my GI and asked for 20 mg of prednisone to get over the hump. It worked. When I first started Humira, I had agreed with my doctor that I would take it for 6 months to a year. If I stayed in remission, He wanted me to come off of it. When I flared, he decided I should stay on the Humira. I decided differently. I haven’t had an injection since June 5th. I started to feel a flare coming on but took L-glutemide, Astaxanthin, iron, protein powder, and high doses of VSL#3 DS. Flare averted :) I feel great right now.

    I hope to stay off of the Humira and other heavy hitter drugs for as long as possible but if I had no other choice, I am glad Humira is an option.

  6. Jonny July 27, 2013 at 6:44 pm #

    I was first diagnosed with UC in 1996 and was in remission up until 2011. After a couple of rounds of prednisone (which only provided temporary relief) I was put on Humira in March this year and I am starting to see an improvement now after over 4 months. The urgency has decreased and I am starting to go ‘regularly’ within an hour of waking up. I have also eliminated gluten and raw fruits and veg and take a probiotic before bed – perhaps the diet is making the difference or Humira – either way things are vastly improved. No side effects from Humira other than a slight rash at the injection site the day after… I put something frozen over the area before taking the injection which really helps. So my experience has been positive, I take the injection once every 2 weeks – I also take a multivitamin since I stick to a high protein diet with minimal fruit and veg. Good luck to those taking / considering Humira!

  7. Dan August 23, 2013 at 4:14 am #

    I started Humira 10 weeks ago and I am now in hospital. When I started it I was in a flare.I lost 7 kgs and needed two units of blood along with two units of potassium followed by infusion of Iron. I found when starting Humira it caused me to pass water through my bowel which never happened before since diagnosis late 2011.Im convinced it made me worse.Waiting in hospital now to star remicade today if that doesnt work im off for an OP.Fingers Crossed no op .Trial and error for UC, humira might work for you.Best of luck to all.Dan, Ireland

  8. Matthew Adair September 25, 2013 at 7:14 pm #

    I want anybody that has had these side effects to please let me know on my website email address please.
    Sick the whole time on Humira, 6 months I took it, Lost all the skin on my legs and my fingernails rotted off lasted 14 months until I found something that worked to help, it’s not totally gone away yet. Now my RA levels are so high my primary care doc says I shouldn’t be able to walk, I’ve lost the ability to use my hands and pain is terrible, I have numbness in my arms and legs, and bone pain, I’m having neurological issues not yet seen the doc for these, and now have drug induced Lupus and not sure what all is being attacked, Every day I get up I have to see how bad it is before I can do anything or what might be new. Please let me know if you’ve had these types of things happening to you. I know others, Adam had a couple of things I’ve had and that’s how I found the wonderful site. Please Please Please let me know, at either email address.
    Thanks Matt.

    • Matthew Adair September 25, 2013 at 8:08 pm #

    • bev September 26, 2013 at 6:24 am #

      Omg…and these drugs are supposed to be taken by humans???

    • Byron Gillespie October 17, 2013 at 11:59 am #

      Hi Mat, I to am suffering from strange lupus like problems from the humira, after having two sets of loading doses I started to suffer from severe pain in my feet and knees, this after 13 months is continuing but soon after the other symptoms started it now affects my shoulders , ribs and lower back, and strange rashes , severe fatigue.
      I had been on a humira trial 4years ago and had no real side affects then, but this time things started to happen straight away so I refused to have any more humira injections but the joint/bone /tendon pain remains, now I take lots of heavy pain killers just to hobble about and sleep.
      After 13 months it is still affecting me and my doctors here in Nottingham, England do not known what is causing these affects or how to treat me, I have been referred to a rheumatologist who also does not know what to do.
      I am also on the usual crohn,s drugs while also I have just been put on methotrexate recently , 9 weeks ago but this has not changed anything yet.
      Do you have any experience with any treatments that have helped you or anyone else , I would love to hear from you and anyone else that is going through this hell.
      Your sincerely

  9. Tony Netto November 11, 2013 at 1:30 pm #

    I’ve been on Humira for 3 months. Could wrap up in a fetal position almost anytime and take a nap. Tired all the time. Aches/pains in my feet, shoulders and generally just not feeling well. Not sure I’ll continue. In remission, but was in remission almost 2 weeks before starting Humira, so I can’t really tell. I have frequency returning (4-6 times daily – few times more, few times less) and urgency also. Would like to “pop” 20 mg of prednisone to see if it would take hold of this colitus. I was on prednisone for about 3 weeks after starting and that period was good. Then the pain, which in part, I’m sure was from tapering off prednisone, but thats 6 weeks ago. I don’t think I’m going to re-fill px. But done want to stop without discussing with Doc first.

  10. josephinefarrow November 25, 2013 at 12:51 am #

    I’m on humira 5 months now and suffer from all the above mentioned symptoms. I find vitamin d helps a lot. The worst side effect for me was and is massive hair loss. Caffiene shampoo helps, wish I had found it earlier. #crohns

  11. Denise K. December 3, 2013 at 9:14 am #

    Hi Adam,
    I was just reading all the responses above. I was diagnosed with pancolitis in July 2010 and have done all the different meds except for Remicad or Humira. Really didn’t want to try those two drugs and did not like the side effects. Have tried all the others, asacol, lialda prednisone, etc. but with no help. Until I went to an Internist and she prescribed cholestyramine-4 G per scoop 4 gram powder, Commonly known as: QUESTRAN. No side effects with this drug. I was taking 4X daily but down to 2X daily and off all other meds. This is a wonder drug used for older people to control their bowls.

    • Adam December 3, 2013 at 9:20 am #

      Hi Denise,

      Sounds like you’ve found a great thing that’s working for yourself! I myself have never heard of that before, but that’s super awesome you’re seeing good results! Thanks so much for sharing!


  12. Keith June 8, 2014 at 11:49 am #

    I have u/c must be 19years I was very ill when they got me to hospital I had less than half an hour left .if we have health service we have now I would not be hear. After bad spell in hospital .ihad got to fell a bit better they said I could go home .i don’t know what happened I went down hill fast. .and never rember Mitch about next 3months was taken to bed I made effort and got up I was put on 20 steroids a day and was awake 18 hours a day was crying with pain
    Gradually I started to come round .i was off work a year . I was told by health worker to drink Ribena eating was problem then i remberd a dish of old
    Portage and how it set hard in empty dish waiting to be washed so I thought
    Do it set inside you when you eat it so nothing to losse tired it and still having a bowl a. Day .
    I have been given so many steroids over the years .my kidneys damaged
    So I cant now take a lot of pain killers was given embril injections
    They didn’t work I was given himura

  13. Coralie July 7, 2014 at 10:38 pm #

    I am amazed to read the shite all these people are wading through to get relief from their own shite. Please, somebody, tell them to go on the Specific Carbohydrate Diet. Adam has written a book, correction, books about it. I am preaching it next to Godliness because it works. And in case you didn’t realise, on the diet you eat all the natural food God gave us, which is why it works. Haha. I’ve been on it for one year and 7 months now after being on all those stupid mouse cell infested drugs the doctors are trialling on you humans and they were no good for me EITHER. Wake up people and get a bit of discipline. Of course you can live without sugar, grains (all), lactose, starch and caffeine. When you see how well you will be it is EASY. I know that in some parts of the USA people don’t cook. They eat stuff already prepared somewhere else. Well, you can stop that right now. Learn to cook. You won’t regret it. Your symptoms clear up almost immediately. You have lives to live. Get out there and live them. At the moment you are chained to your toilet like home detention. I know you feel lethargic and are gonna drag your feet on this one. No diet ever worked for anyone. I know. But surprise, surprise. This one does. I had suffered a severe reaction to Remicade and was told ‘well, we don’t have any option but to remove your bowel’.
    I wasn’t having a bar of that. I had heard about the SCD and people saying it kind of worked for them. I decided on a whim to give it a go. Magic. I shouldn’t say that because God gave us good food to eat and what do we do? We eat crap.
    So take a look at what you are eating. Don’t eat rice, rye, oats, wheat, barley, or any other gluten free, gut wrenching grain that someone tells you will help. Not quinoa or amaranth or cornflour or anything else.
    Oh yes. I sorely miss the taste of warm ciabatta with butter running down my chin but it is worth it to be well. Come February, I will have been on this delicious diet for two years. At which point I may consider introducing something that I ahve (see how excited I am ? ) eliminated from my diet and see if I can handle it maybe once a month. Maybe kumara. Sweet potato, for you Americans.
    It makes me so sad to read all your stories because I was where you are at.
    Hope is just around the corner. Let God bless you with the natural food sources that will allow your gut to heal.

  14. lisa July 21, 2014 at 12:10 pm #

    I got the approval for humira. I really don’t want to take it. Sounds scary. I want to do all natural. When I was on prednisone I felt like crap. I’m feeling better now but I still end up going to the bathroom. Most of the time my pain is like a 4 or 5. But I seriously want to be off meds…..

  15. Rick August 2, 2014 at 4:13 am #

    I’m one of the lucky ones (if you can call it that). I have distal UC, that flared for the first time 4 years ago. I was prescribed Asacol, which made it worse. I stopped the Asacol and all symptoms went away almost overnight.

    Last year, i had typical UC symptoms, which likely were brought on my Advil I had taken after shoulder surgery. Bloody stool, mucous – I lost 30 pounds in two weeks. Prescribed Imuran and Rowesa enemas (fun). Nothing helped. They had me on Colozal in the hospital along with a steroid. I stopped the Colozal and the symptoms stopped.

    The past year has been largely symptom free with no meds other than a probiotic and a casual following of the SCD. Four months ago, asymmetrical arthritis attacked my left hand. Two fingers blew up about 3x normal size. I got steroid shots for that, but that didn’t help so more prednisone. Prednisone helped.

    Now I have arthritic joints (vertebrae) in my neck.

    I pushed hard for Entyvio, but my insurance rescinded an initial approval until i tried a biologic. They said remicade, but my doctor argued that I would likely show an allergic reaction to it. They settled on Humira, which I start next week.

    My gut symptoms are pretty normal, but the joint inflammation is brutal. I’m going to try the Humira and see how it goes. The negative reviews are nasty, but I’m at a point where I need to try something.

  16. katie December 23, 2014 at 11:28 am #

    I was FINALLY diagnosed with UC in March, after many years and several doctors. No meds were working, then I started Humira. Humira has put me into remission, after 6months but the side effects are making me almost as miserable as UC does. I’m exhausted, ALL the time… I developed a pin-head rash on my neck, back and arms- which they’re saying is a skin infection from Humira. My joints hurt. I have bad muscle aches and a muscle enzymes test showed muscle detiereoration. I have had walking pneumonia once and bronchitis once, so far this winter. I am seeking another med at this time, but am terrified of relapse, since this is working for the UC.

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