My name is Erin and I live in New England. I was diagnosed with UC in early November, 2013. Hoping to manage the UC using the Specific Carbohydrate Diet!
Some more about me:
I’m married with three kids. If I could be doing anything in the world right now, I’d be reading a good book on the beach!
Looking to Control the UC with the Specific Carbohydrate Diet
My symptoms started about two months ago – Sept 2013. I initially thought the bleeding was due to an internal hemorrhoid and my GP thought so too. But I did get referred to a GI doctor, as the bleeding had been going for a month, and I’d never had an issue related to a hemorrhoid go on for so long.
So, off to the GI doctor for a colonoscopy! By this time, I’d been doing some research on my symptoms and figured they were looking for UC. Colonoscopy confirmed it; the doctor called it mild/moderate, as apparently he saw the signs at both the beginning and the end of my colon. Because I’d been having some serious joint pains and fatigue, it was almost a relief to know that these were related to UC…I was kind of afraid that I was developing arthritis or another disease impacting the joints.
Because I had been reading up on UC (including this very informative site!!) I had a rough idea of the medication options and the impression that controlling one’s diet could do a lot to control the disease. Yet most of the mentions to the Specific Carbohydrate Diet that I saw online were not on major sites (CCFA, Mayo Clinic, etc) but rather sites such as this, and I have to admit, I was skeptical. It kind of sounded like a fringe-y, fad thing: no whole grains, bananas must have brown spots to be ‘legal’, and a lot of recipies that seemed to use a whole stick of butter.
When I told the doctor that I wanted to control it with diet, he seemed surprised but told me to get ‘Breaking the Vicious Cycle‘ so I figured there must be something to it.
He gave me a 30 day Rx for Canasa as well. I am not anti-medicine by any means but I do believe that meds intended to treat one thing can have side effects requiring either more meds or causing ill effects in a different form. (The Canasa was $130 for a 30 day supply!!)
Started the SCD, and I’m amazed at how it’s worked. Not that I don’t think that diet is a contributing factor to health, I’m just surprised that the symptoms are mostly gone without meds. I say mostly, because I’ve cheated a couple of times (and learned my lesson the hard way) and also because I am pretty new to this.
The doctor cautioned that it was important to keep ‘flares’ in check to limit the spread of UC. Any tips on at which point a flare is getting out of control, and I should call the doctor, or see about starting meds? Or will it be self-evident? :)
Medications & Supplements / Vitamins:
written by Erin D
submitted in the colitis venting area