Hi my name is Anne. I have ulcerative colitis and been struggling with it for 6 years. 3 years had a severe flare, I’ve written on here a few times I’ve tried many medications and even was on a clinical trial for fecal transplants. I seem to improve and have mild symptoms than I flare up again, I’m currently having an acute flare up just before Christmas and ended up in hospital for a week on hydrocortosone 100mg 4 x a day infusions. Lucky I was able to leave hospital on Christmas Eve my condition greatly improved with the infusions but I still have ulcers diarrhea and occasionally bleeding. I’m currently on mtx injections and now my GI wants me also on infliximab infusions Australia has finally approved it for UC patients.
Some more background:
I work in information technology industry a job I enjoy, I also love going to the gym when I can and loved doing cross fit training but sadly my body has so much arthritis and my UC makes me exhausted I find I can’t do cross fit the way I would like to. I love to sing but don’t have the courage to do anything about it.
Symptoms of UC Right Now:
I have urgency with loose bowel movements and watery diarrhea, occasionally bleeding I also have feeling wanting to go but I don’t. I’m fatigued all the time and get tired very easily and suffer from mild abdominal pain
Methotrexate and Infliximab
So i have been diagnosed with UC now for over 6 years it was only mild when first diagnosed then had a flare for a year but trying I was in denial and didn’t want to go on Imuran so I sorted homeopathic meds but the flare was getting worse. I joined a colitis and Crohn’s meetings and discuss that I was going to get better doing scd diet, but was so ill I wasn’t eating and was pushing my body going to the gym 3 times a week. I don’t know how I was able to push myself lie that. Then eventually I was so sick that I was admitted into the hospital for 6 weeks I didn’t realize how sick I was until I heard my cpr was over 300 and I was basically on my death bed.
I’m currently having an acute flare and was hospitalized just before Christmas at the moment I’m on methotrexate injections and prednisone there is talk about putting me also on infliximab infusions as well so was wondering if any one is also on methotrexate injections and also on infliximab and if it has helped with their ulcerative colitis, also if they have any side effects from taking both medications.
I also suffer from prednisone induced diabetes and been on medication for my diabetes now for 3 years. I also take turmeric, Green lupid muscle oil, flaxseed oil and milk thistle, plus since my first flare and I’ve being on hydrocortosone and prednisone for nearly 2 years I had to go on blood pressure meds and cholesterol lowering drugs. I’ve also had to have a total thyrictomy looking for cancer but luckily no cancer so on full time thyroxine meds. I swear I hear my meds move and juggle in my body.
Medications and Supplements:
I’ve tried homeopathic and naturalpath meds, Imuran, 6mp methutputen hydrcortson infusions, had 3 x infliximab infusions 3 years ago, I try diets but I’m not good with diets, ensure plus .
written by Anne
submitted in the colitis venting area