Hi, my name is Mandy and I’ve had UC for about 3 or 4 years now. It’s been a rough go of things but while my Gastroenterologist believes me to be a moderate to severe sufferer, I have not had any surgeries (knock on whatever happens to be around that resembles wood), and I am “medication compliant” as they say, which basically means out of desperation I obey the doctors.
Some more about Mandy:
I try very hard to be active but migraines and my gut can make it difficult. The time in between my twice daily enemas always seems to be shorter and shorter and I need to be home for that. My family would say I’ve always been somewhat sickly for most of my life with something or the other.
I have mostly the constipated kind of UC and while my blood is mostly controlled, the mucosa is not all that controlled currently.
Wish people knew more about this disease, Ulcerative Colitis. Since I was diagnosed my whole immune system has gone haywire. My MIGRAINES have become unruly and more frequent than ever. The theory is that my body is busy aiding my gut and while my body may have been able to control the migraines before, now it’s not. So I take a whole wack of migraine preventatives that don’t work so well. I am currently on Salofalk pills and enema, Cortifoam enema and Prednisone 30mg. I’m not taking Probiotics because a naturopath said it would counteract the effects of the Prednisone being a immunosuppressant. Anyone know anything about that?
When I was first having problems, my GI guy put me on an all white flour, low fiber diet. That made me sicker and put me in full flare. I think that is called a low residue diet? Thanks GI guy! You told me I had Annusitis and didn’t catch my Ulcerative Colitis until 2 years afterwards!
Now I eat tons of cooked/steamed veg, minimal raw veg as it hurts my gut, and take Metamucil 1 tbsp/day. Carbs do not bother me and I find when I don’t have them, my stomach feels raw and “uncoated”. Anyone else find that?
- Anyone else get migraines with UC?
- Anyone else take two enemas a day?
- What do people do to combat constipation long term other than veg and whole grains?
- Anyone else find it difficult to exercise because of increased muscle/joint pain?
- What about Probiotics and Immunosuppressants?
Again, currently taking:
- Prednisone 30mg for another 6 weeks for UC and migraines
- Salofalk 6 pills per day
- Cortifoam enema in the a.m.
- Salofalk enema in the p.m.
I’ve got Asthma, Hypothyroid, Migraines and muscosketal issues with increased inflammation in my body. It makes it difficult to exercise as most things increase muscle pain.
written by Mandy B