I am from India. I work in IT industry. Around 3 years back I went to London and somehow caught with the colitis bug. I went back to Indian then and there and after 1 year the Non Specific Colitis become a UC. So finally I detected with UC in 2009. Now it is 3 years. However, in these 3 years I never had any period where the colitis has came down.
My Colitis Symptoms:
Whenever there is flare up the symptoms starts with bloating, gas. After 3-4 days loose motion and then after 1-2 weeks it starts with bleeding and going to still almost 5-6 times a day.
My UC Story:
I am from India. My age is 32. In 2009 I was detected with UC. And in these 3 years I had undergone colonoscope for almost once in every year.
I do not drink or no habit of smoking when I was detected with colitis.
The pain in colonoscope is unbearable for me.
UC has changed my life anything. At times the urgency to go to toilet has destroyed my entire social life. The situation is worse when I am driving. I tend to find my entire body shaking. At times I have to get out of this situation just by diverting my attention, however it is very difficult at times.
So cannot go anywhere, cannot eat anything outside and even to an extent always have to carry water along with other food items.
I am not sure if I am allergic to milk or wheat. However, I have noticed sometimes the milk does upset my stomach.
Medicines did help but after taking strong doses for 1-2 months. And then slowly the does have came down however I never got full remission in last 4 years.
For last 1-2 months situation is really bad. Whenever the symptoms I do have a lot of fear to go to the doctor. I fear of doing one more colonoscope.
I did try some alternative medicines like Homeopathy or Ayurvedic however my condition worsened. So now a days I am mentally tired.
I really want help from other UC suffers on how to cope with this disease.
I love non veg food however, I do not typically like even medium spicy food. I have started avoiding raw food. Please suggest if there is anything I can do to improve my condition.
I am in treatment for colitis for last 4 years. So medications though helped however not a full recover.
So all the people here in this forum do provide me some suggestions on how to deal with this problem/mess.
Where I’d Like to be in 1 year:
I really want to enjoy. I have lot of burdens on my shoulders and feeling like this has really cramped my colitis attack.
I am taking-
a. 6 Balacol (5ASA compund) perday
b. 1 VSL#3 per day
c. Iron capsules (Hemoglobin goes down below 10 almost 2-3 times in 6 months)
d. Entofoam (Cortisteroid – Almost 3 times in a day for 1-2 weeks if there is severe bleeding)
e. Loperamide (sold as Imodium in India)
f. Now a days it has affected my eyes with Uvitis.
written by Pintu
submitted in the colitis venting area