Colitis – Not Sure How To Cope With It

Meet Pintu:
I am from India. I work in IT industry. Around 3 years back I went to London and somehow caught with the colitis bug. I went back to Indian then and there and after 1 year the Non Specific Colitis become a UC. So finally I detected with UC in 2009. Now it is 3 years. However, in these 3 years I never had any period where the colitis has came down.
My Colitis Symptoms:
Whenever there is flare up the symptoms starts with bloating, gas. After 3-4 days loose motion and then after 1-2 weeks it starts with bleeding and going to still almost 5-6 times a day.

My UC Story:

I am from India. My age is 32. In 2009 I was detected with UC. And in these 3 years I had undergone colonoscope for almost once in every year.

I do not drink or no habit of smoking when I was detected with colitis.

The pain in colonoscope is unbearable for me.

UC has changed my life anything.   At times the urgency to go to toilet has destroyed my entire social life. The situation is worse when I am driving. I tend to find my entire body shaking. At times I have to get out of this situation just by diverting my attention, however it is very difficult at times.

So cannot go anywhere, cannot eat anything outside and even to an extent always have to carry water along with other food items.

I am not sure if I am allergic to milk or wheat. However, I have noticed sometimes the milk does upset my stomach.

Medicines did help but after taking strong doses for 1-2 months. And then slowly the does have came down however I never got full remission in last 4 years.

For last 1-2 months situation is really bad. Whenever the symptoms I do have a lot of fear to go to the doctor. I fear of doing one more colonoscope.

I did try some alternative medicines like Homeopathy or Ayurvedic however my condition worsened. So now a days I am mentally tired.

I really want help from other UC suffers on how to cope with this disease.
I love non veg food however, I do not typically like even medium spicy food. I have started avoiding raw food. Please suggest if there is anything I can do to improve my condition.

I am in treatment for colitis for last 4 years. So medications though helped however not a full recover.

So all the people here in this forum do provide me some suggestions on how to deal with this problem/mess.

Where I’d Like to be in 1 year:
I really want to enjoy. I have lot of burdens on my shoulders and feeling like this has really cramped my colitis attack.

Colitis Medications:
I am taking-

a. 6 Balacol (5ASA compund) perday
b. 1 VSL#3 per day
c. Iron capsules (Hemoglobin goes down below 10 almost 2-3 times in 6 months)
d. Entofoam (Cortisteroid – Almost 3 times in a day for 1-2 weeks if there is severe bleeding)
e. Loperamide (sold as Imodium in India)
f. Now a days it has affected my eyes with Uvitis.

written by Pintu

submitted in the colitis venting area

6 thoughts on “Colitis – Not Sure How To Cope With It”

  1. Hi Pintu!

    I’m sorry to hear about your current troubles!!!
    I would recommend that you start taking Vitamin D as soon as possible. It has an awesome anti-inflammatory capability. I would recommend going on an anti-inflammatory diet (Paleo diet). If milk upsets your stomach, maybe you should give up dairy, and I would also recommend a gluten free diet (no wheat). You can also try giving up processed food and food that contains sugar in any form (fructose, high fructose corn syrup, etc). You should cook with lots of turmeric. You could try Vitamin B12 to help with the fatigue. I just spoke to an MD this week, and she explained the difference between an anemia caused by an iron deficiency vs. an anemia caused by a B12 deficiency. You are probably dehydrated, so I would recommend drinking coconut water. I would also recommend taking a big dose of fish oil every day.

    Hang in there, feel better soon!!!

  2. I’m sorry to hear you are having such a bad time with your colitis :( I am half Indian myself and know how hard it is to not be able to enjoy a good curry because of all the spices!

    Have you ever been checked for clostridium difficile infection? It can be tested by doing a stool test through your doctor. It might be worth doing, I think a lot of people with UC have contracted this infection, including myself. I thought by UC was just getting worse but it was in fact the infection on top of the UC. There is a specific type of antibiotic called vancomycin which eliminates this infection.

    In regards to food – it is important you try to eat as simple as possible – many people on this site follow the scientifically researched diet called the ‘Specific Carbohydrate Diet’, which basically involves eating food that can be broken down and passed through your digestive system very quickly (earing simple carbohydrates and avoiding complex carbohydrates).

    I follow a very strict diet called the ‘Low FODMAP’ diet which is also scientifically researched and involves all foods that ferment in your digestive system. Typical foods to avoid are onion, garlic, cabbage, cauliflower, peas, wheat, dairy, beans and lentils. (unfortunately many of these yummy ingredients are found in a vegetarian indian diet!) There are many other foods to avoid. I am more than happy to send you complete list of these FODMAP foods to avoid if you wish. This diet has helped me so much. I also a large selection of probiotic supplements and eat lots of fish, and I avoid red meat completely as it aggravates my UC.

    I do hope you start to feel better soon and that remission is just around the corner for you!

  3. OrdinaryWorldWhereRU

    Gosh, I am so sorry for what you are going through. Personally my diet consists of protein and starches and that has worked the best for me. Pretty much what you can and cannot eat can be a very unique and personal thing. What works for one person may not work for another. It’s all trial and error. When I was at my worst I started out very simply with tender chicken breasts, no skin, and potato water which is mashed potatoes with a lot of water in them. Over time less water was added to the mashed potatoes. At that time I couldn’t even take care of myself so I stayed with my parents and they helped me get through it. I do take powdered vitamins and minerals that are also very gentle on the stomach. I really hope you improve soon.

  4. You said that you are taking balacol. Have yo tried sazo en or mesaccol. Why has you doctor not tried this when balacol is not working. And a short course of prednisone will also put it in remission, which must be carefully maintained later with diet and probiotics.As there has been no let up for 3years i suggested prednisone which is ok for a short period.You said VSL3, is this probiotic available in india. Get well soon and good luck.

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