Diet

scd cooking

cooking SCD Breakfast in the morning

Diet, food, drink, snacks…WHAT should we eat with colitis?

Ever since starting this website, I’ve been amazed how many people have joined me in changing their diets to treat UC.

Much of what I do in terms of diet is based on the “Specific Carbohydrate Diet™” or SCD.  And its been a pretty incredible journey to say the least.  After 5 years of success, I’m happy as ever and how my body has come back to life and hopefully you’ll feel the same very soon too!

SCD has actually been around for several decades, but to most people it’s previously unknown. (It’s almost never talked about in the doctor’s office…big mistake number 1 doc!)

I’d never heard of it either. Not a single doctor ever told me about treating my UC with diet.  The Specific Carbohydrate Diet™ has actually been tested out for well over 45 years by two pretty spectacular people.  Both Elaine Gottschall and Dr. Hass  spent thousands of hours figuring out what works well and what does not in terms of foods.  And I’m very grateful for all their hard work.

What’s great is that diet has worked for so many people who follow this site (including me) by healing and helping our UC symptoms.

Many UC’ers who use diet are amazed that their doctors never said anything to them about it.  But there’s no reason for you to be angry or upset with your doctors, (actually, feel free to be pissed at them if it makes you feel better).  The reality is drug companies and most health care system can’t profit when colitis patients begin to feel better on their own.  It’s simple math at that point.  If you don’t control your UC with medications…you don’t purchase medications.  No rocket science needed here right…

If there was a way for lots of money to be made, and for drug companies as well as doctors to profit from diet changes, you definitely would have heard about this a long time ago, probably at your first doctor visit.  When I started treating my symptoms with diet, I didn’t need all this “help” from the medical world anymore.  I didn’t need to constantly be re-filling my prescriptions every month.  Drug companies hate people like me, they don’t make a dime off people like me.  Pretty cool right!

But there’s more, by moving away from medications and on with diet, I finally stopped worrying about medication side effects.  It really frustrates the hell out of me when other UC’ers email their long list of side effects that their medications are inflicting on their body.  Prednisone/Prednisolone is probably the worst in terms of side effects, but there’s a bunch of others that can contribute to the side effects that are so unfortunate.

“By Changing My Diet, I put my UC into remission,

and got OFF ALL MEDICATIONS.” -Adam

The Science behind this diet is pretty simple. I’ll try to explain it to you in simple terms. “Bad bacteria” in the colon are triggering the immune system to fight. And, that bad bacteria we create from certain foods we eat that isn’t fully digested(certain breads, wheat products, certain sugars for example, corn).

So, when we eliminate those “bad” foods that cause “bad bacteria growth” our immune systems don’t have to keep killing off invaders and attacking. That’s the idea.

It’s Pretty Simple.

Below is a list of some Good and Bad Foods:

(there is a long list of different meals/recipes in my 100 plus page eCookbook (which has been ordered by UC’ers and concerned family members worldwide) with easy to use instructions and ingredient lists)

Good Foods:

  • Chicken (baked, broiled, even off the BBQ if that’s all you have)
  • Chicken soup (without noodles)
  • Hamburger meat, along with most other meats (baked, broiled, off the grill)
  • Fish
  • Eggs (many people can tolerate eggs very well, some people cannot, so don’t freak out if that’s you)
  • Vegetables (a common misunderstanding is that vegetables are bad for people with UC.  I eat veggies everyday and have for years since my diagnosis.  There are times however, like if you are in an active flare where you may want to limit and/or cook veggies more than usual to easy the digestion process)
  • Fruits (many people can handle some fruit in their diet, especially when symptoms have calmed down)

Bad Foods:

  • Grains
  • Soda
  • Beer and most Alcohol
  • Cereals
  • Milk and most milk products
  • Most processed foods (often there are all sorts of unknown ingredients/additives)

How about you?  Where do you fit in terms of the lists above?  Are some of the foods you eat in the “Bad” list?  If so, you might want to consider making some changes to your diet, especially if colitis symptoms are out of control and active right now.

To read and learn more, I’d encourage you to learn more about the ebooks I’ve written.  Along with my wife, I’ve written up all of the most common meals we prepare.  I’ve outlined the meals I ate when I was coming out of a flare, as well as the foods I eat to stay in remission.

My ebook’s details are here:  Adam’s Ebooks Page

If you are willing to invest some time and effort into getting control back to your life and not having ulcerative colitis run you around, I think you’ll really enjoy my ebooks.

In good health,

Adam Scheuer

colitis diet ebooks









60 Responses to Diet

  1. Jen February 5, 2010 at 8:03 pm #

    Thank You for the website love!! Yours is off to a great start, I can’t wait to see what’s in store!

  2. Lynne February 10, 2010 at 11:02 pm #

    The diet has helped me. I still take medication, but I feel much better. I was going to start taking Aciphex for Acid Reflux, but since starting the diet, I don’t need it. I recently bought a yogurt maker to make the SCD yogurt and that has worked out well. I am getting better at reading labels. I shop more often at Trader Joe’s for specialized items.

    I love the corn tortillas. After reading that they were okay to eat, my husband bought some for me and I was hooked. They make lunch at work better.

    • Shirley March 23, 2010 at 2:51 am #

      I am just starting the diet after a year of this crap. I was wondering what varieties you have to fill the tacos, thought they would be a nice change, and Adam seems to get away wih eating them.
      cheers
      shirley

  3. Denise February 27, 2010 at 5:19 am #

    Like you I found my cure with diet modification after 10 miserable years with UC.

    Although I started out on the SCD I found I had to change/eliminate foods to have best results. The book I HIGHLY recommend is “Life Without Bread” which really gave me insight on the foods that hurt our colons, that is carbohydrates.

    My diet is no carb, very little fruit, no fruit juices. High amounts of animal protein (no soy), all veggies with no starch (no potatoes for example), nuts and nut flour are good. Dairy does not do well with my colon except a v. small amount of hard cheese.

    It sounds extreme but I am SO willing to do it compared to the agony of UC which I have had for almost 10 years. Drugs never really made any improvement for me and I never had any “remission” until I started the diet.

    BTW I tried the SCD over 5 years ago with no results. I think this is due to that diet needing to be modified for my narrow requirements and I was too new at this to figure it out. It took desperation for me to try it one more time and really listen hard to what certain foods did to me and eliminate them.

    Daily I also take an Acidophilus pill, a teaspoon of fish oil, 2000 IU Vitamin E and a couple juice-size portions of “greens” juice made at home every day.

    No doctor ever suggested anything but more pills for me. This makes me lose respect for medical doctors. Not just one doctor, I’ve had 4 over the years.
    All they want to do is another colonoscopy and prescribe pills. They are not in the business of curing us, they want a lifetime patient which is what UC is unless we find a cure on our own.

    • admin February 27, 2010 at 8:04 am #

      Hey Denise,
      Thanks for the comment. In fact, comments like yours are my FAVORITE types of comments for a few reasons, and I am sure all of the others who look at or will look at the site will agree.
      The fact that you struggled with UC, tried a bunch of potential treatments, tried the diet I was told, modified it to fit you, and have found awesome results is SO DARN COOL!.
      Congrats for figuring out how to get past UC. That is great news and I can’t wait to tell people to go to your comment when they write in feeling down in the dumps. Thank again, you rock!

    • Shirley I. March 29, 2010 at 4:11 pm #

      Denise, you are so right about the doctors, mine just keeps doing colonoscopys and I have been on Flagyl, and now Asacol., and oh don’t eat anything crunchy, a low fiber, low residue diet. So far nothing has worked, I did by the book Vicious Cycle, but it seems you really have to cook all your own meals. I have no idea what to take to work for lunch, and I still have to cook for for my husband. I work and don’t have lots of extra time. Is there any way to just stay away from carbs without going to the extreme of making your own condiments and yogurt? Can this diet be made simple? I would appreciate your imput.

      • Adam March 29, 2010 at 6:18 pm #

        Hi Shirley,
        You’ve got a great question, how die hard does one need to get to see results?…
        For me, I don’t make any yogurt, and I don’t really make any condiments of my own. I just make use with what I can get at the grocery store.( If I was a better cook, I would like making my own stuff, but that will probably never be the case)
        I never got into making the yogurt for probably the same reasons you seem to have, not enough time, and was not into that.
        For me, a common meal is a salad with either steak or chicken. I make chili quite a bit, I’m sure I break some rules with that, but for the most part it seems to work fine for me.(burger meat, McCormicks seasoning, onion,tomato, can of kidney beans without any sugar.)
        Also, for breakfast I make bacon and eggs quite a bit, seems to work reallly good for me.
        Lunch, I have quite a few more salads than I used to do in my former life, and also, quite a bit of mexican food, with corn tortillas.(many people following a diet for UC don’t eat Corn at all, for me it has not been a problem)
        I make up a morning smoothie quite a bit and it seems to work well, and I can make one up in just about 2 minutes flat, so my guess is faster than anyone else’s typical moring breakfast other than cereal which is a Major NO NO for me.
        Let me know if that helps out at all,
        Adam

    • Kris January 29, 2011 at 7:19 pm #

      Denise,
      I saw your message and it sounds like me exactly. What is this book you are talking about and what modifications did you make. I just got out of the hospital again and everything I eat I get such cramping and pain I can not take it anymore. Any suggestions I would greatly appreciate.

      Kris

    • Gary Smith October 30, 2014 at 5:45 pm #

      I am convinced that keeping away from white flour is a good start. Different diets may work for different people. Many health problems including UC begin with bad habits, then continuing bad habits lead to a chronic health problem. After dealing with several serious health problems and 30 years of research I have found some common foundations that are useful for a variety of health problems. UC begins (in my opinion) with the breaking down of the mucus lining. Without this lining the enzymes and acids necessary for digesting food would literally eat our stomach’s tissue. But this lining or protective layer protects our sensitive tissue. If this lining heals properly UC can be eliminated entirely without worrying about reoccurrence. Once the mucus lining deteriorates in a segment of the stomach sores develop, and until this lining is rebuilt and new tissue regenerated the condition worsens,
      Saccharides, and in particular mucopolysaccharides are necessary for the rebuilding of this tissue. Pantothentic acid and colloidal gold may also prove beneficial if used with mps, One good source of mps is aloe vera. Since av may have a laxative affect in the beginning one should start with one to two ounces twice a day and increase gradually.

      Just remember that ulcerative colitis is a breaking down of this lining and tissue must be restored and made healthy again.

  4. Jen February 27, 2010 at 6:17 pm #

    I’m right there with Adam, Denise, I LOVE to hear stories like this!!! I know for sure that millions of people could be a lot healthier if they’d just make the commitment to heal naturally. I’m so glad you shared your story!

  5. Ashley March 8, 2010 at 10:37 am #

    I’ve tried every diet imaginable… including liquid diets and baby food… nothing worked. i wish i was as lucky to have diet work, then i probably wouldn’t be talking surgery like i am now!

    • Suz January 10, 2011 at 3:22 pm #

      I’m new to the site & will post my story later however, I’ve had UC since I was 4 years old so it has been quite awhile for me. I’ve found that most carbs bother me in way or another. Anyway, I will post more later & I’m happy to be here.

  6. Jen-Ireland March 21, 2010 at 4:07 pm #

    In regards to Peanut Butter in Ireland and UK …Kelkin Peanut butter is what I use it just has peanuts and oil! Its great. Kelkin are great for making produce for dietary needs. Also for anyone with a sweet tooth I love making my special jam…which is apple and blueberry jam…I basically throw them in a pot and stew them and add honey instead of sugar…its soo sweet you would swear there is a ton of sugar in it. :)

  7. Kat March 24, 2010 at 6:17 am #

    Are you really ok with eating corn tortillas? (Just a note they are really not allowed on SCD ;)

    I originally went gluten-free before SCD and tried corn tortillas and the experience was pretty awful.

    • Adam March 24, 2010 at 10:02 pm #

      Hey Kat,
      What’s up! I think I am doing pretty good with the corn tortillas. I definitely break the rules of the true SCD with a few things, but seem to be doing pretty darn good. But I am always looking for ways to feel even better, so I will try to cut back on the corn tortillas for a little while and see if anythings happens.(Don’t hold me to it though right away, I’m a massive sucker for mexican food) Thanks for keeping your site active too. Side note to anyone reading, got to Kat’s blog ASAP, there is a link on everypage of this site down at botom right hand side.

  8. Michelle Robertson March 26, 2010 at 3:39 pm #

    I have microscopic or collogenous colitis. I had a horrible flare that sent me in for a colonoscopy in October of 2007. I was on the Asocol for a while but grew very tired of taking the horse pill! At this point I am in constant pain and will be trying diet changes as you are suggesting to combat the problem. I’ll let you know if it works!
    Thanks

    • Adam March 26, 2010 at 7:58 pm #

      Michelle,
      I’ll keep the fingers crossed that you have good luck like me.
      I hear you loud and clear about the Asacol horse pills, I started calling them Crapacol pills to my wife.
      Not sure where you are at, but if you are in the states, and would like me to send you my copy of the book I talk about on the site which has the diet in it, just let me know. you can email me at ihaveuc@ihaveuc.com if you like. Otherwise, you can get it yourself.
      Good Luck,
      Adam

  9. Paul Willoughby March 28, 2010 at 4:44 pm #

    Wow! That’s pretty startling but not really surprising. I’ve cut way back on my diet soda intake but that sucralose stuff has found its way into so many 0 calorie drinks it’s hard to get away from it.

    Paul

  10. Jen March 30, 2010 at 5:46 am #

    Shirley!

    I am in the same shoes as you with no time and making meals for other people. But it can work! I find SCD meals are quick and easy and I don’t have any yoghurts or condiments. If you have a blender it makes it easier. You can make smoothies for breakfast and you can make soups say after dinner. Cook a few veggies and then throw them in a blender and bring to work the next day. Also use lettuce leaves as wraps for chicken or tuna and for dinners I find omlettes are quick and easy. Or last night I made honey and garlic chicken. It tastes amazing! All the family would love it. It is in the BTVC book. Then throw on veggies for everyone and maybe potatoes for everyone else like I did! Sorted!

  11. Zach November 21, 2010 at 11:25 am #

    hello everyone,
    I was just recently diagnosed with UC and I was very scared to eat anything pretty much. I found this site and started face my fears about eating things that i love. Well i am eating very well and have stopped the need for meds. so i thank ya’ll for this site

    • Adam November 21, 2010 at 12:30 pm #

      Hey Zach,
      That’s awesome news, what type of diet are you using to get things back in order? Thanks for letting us know how you’re doing buddy!

  12. Sheri January 1, 2011 at 12:18 am #

    Hi,
    I am kind of desperate here. I was diagnosed about 5 years ago with UC and it was all because I quit smoking. The doc told me for some reason the nicotine kept the inflamation down so therefore I never had a flare up when I was smoking. I quit to better my health and then get this. I have three children but at the time when I was smoking I was able to chauffauer my kids around with there friends and be the very attentive and fun mom. I am no longer that person and feel that it has impacted my kids lives, in fact I know it has. I am just tired of dealing with this. I am sick of not being able to be spontaneous and say to the kids, let’s get in the car and pick up your friends and go shopping or go to the movies. When I do go out I am always looking for a bathroom. I am on the generic brand of colozal now after already trying Lialda & asacol. I have been hospitalized three times and have tried to stick to a gluten free diet because I was told that helps but it is very expensive. Mornings are the worst for me. As soon as I open my eyes I immediately have to go and that will last about two to three hours. What is remission exactly because I do not think that I have experienced yet?

    • Adam January 1, 2011 at 11:12 am #

      Hi Sheri,
      I am so sorry to hear about how this nasty colitis has affected you and the rest of your family so much. I definitely understand exactly what you are talking about. In fact, i am in the middle of a nasty flare up at this very moment, and wanting more than ever to get things back in order to move on through life(its a great feeling writing like this to someone who knows exactly what I’m talking about)j
      Anyways, to answer your question as best I can “What is remission exactly..?”
      For me, I felt I was in remission finally after just about one year of being diagnosed. After my diagnosis I had tried prednisone,asascol,colazal,sulfasalazine,Remicade, and Humira(in that order) also some enemas mixed in. Anyways, nothing seemed to get me in any type of symptom free state for more than a day or two, so I considered them all a failure in that respect. Once I started the SCD diet after trying all those medications, things started to improve. By improve I mean harder bowel movemnts, blood getting much less in volume and in frequency, and gaining weight back. Eventually after about 6 weeks on the strict diet, I was off all medications and taking 1-2 craps per day. Things were looking really up for the next 14 months. But, now, I find myself in a pretty bad flare up once again. I have not gone on any meds yet, and the bleeding and loose stools are back. I do believe that me changing my strictness on the diet over the last six months very well could be the contributing factor in why I am where I am currently. So I still have faith in the diet, especially as I know far too many people who have had much more continued success on it than me, and who are also more strict on it than I am.

      I hope this helps answer some of your questions. In a nutshell, for me remission is, no bleeding, no cramping, 1-2 bowel movements that are hard per day, normal energy levels, and no joint pains or lower back pains.
      -Adam

      • Kim Y June 23, 2014 at 3:09 pm #

        Adam are you okay now? I heard about your condition read all your posts… Please tell us your updates and how you are presently doing since then… hugs

        • Adam June 24, 2014 at 10:31 am #

          Hi Kim,

          I’m feeling really good. Have put on some weight even in the past few years so am back where I was before my diagnosis. Strength is back too which is nice. And I’m sleeping through the night once again which is awesome. I wish you the best with your UC too!

    • Beth January 3, 2011 at 2:55 pm #

      I have had UC since my late 20’s. Can’t stand prednisone (weight gain) and Sulfasazaline gives me horrible headaches. I have maintained my self for the most part with nicotine lozenges for over 5 years. If I do have a flare up I take the sulfa for a week. Over the last 6 months tho, if I have vodka in mixed drinks, I have an almost immediate flare up that goes away in a couple of days without taking the sulfa, as if it is an allergy. Any one else experience this?
      P.S.I have been on a very specific carb diet (Adkin’s) but didnt know it could help UC

      • Adam January 3, 2011 at 3:08 pm #

        Hey Beth,
        What you are talking about I haven’t heard yet from anyone else on the site(with regards to the nicotine lozenges helping your UC. But, geez, that sounds great! Good for you for doing something super alternative. Have you also been on the adkins diet for the past 5 years too? I wondering what you feel is helping your uc stay out flares the most, (no vodka, nicotine lozenges, diet etc…) any thoughts on that?

        As for similarities, I definitely had horrible headaches when I started sulfasalazine, and they only went away once I dropped the dose way down. I think I recall a few others talking of the nasty headaches after that drug too. I don’t drink alcohol, so can’t really comment on that one though. best of luck to you!

    • Adria January 4, 2011 at 7:39 am #

      Hi Sherri, I also smoked. I was diagnosed with UC when I was 15. Took meds for maybe less than a year and then started smoking when I was 16. I went into remission not even really realizing it. Now, 24 years later, I quit smoking a year ago to live a healthier life and all signs and symptoms have returned!! Was it the nicotine or all the chemicals that kept it at bay or both. Geezz! I was actually thinking about the nicotine patch(might be to potent though), but maybe the lozenges may help? Certainly do NOT want to smoke ever again. I have come across some articles about smoking(nicotine) that help suppress our intestines. We might not be stressed but our intestines do not now that. As far as the SCD, I love it! and it has helped me quite a bit. Been on it, well, actually 1 month today. Although does anyone know about the alomond flour. I think I may have been eating too many muffins and alomond flour bread that it has irritated my colon. Thank you…

      • Adam January 4, 2011 at 8:24 am #

        Hey Adria,

        Interesting stuff regarding SCD, smoking, and almond flour for you.
        Hey, regarding the almond flour, there have been several people who have also said that too much almond flour has definitely irritated them, so it might be a good idea for you to take it easy with that stuff until later when you are either more healed, or just to go light on that for quite some time.
        I try not to put down too many muffins myself when I am not feeling 100%, even though they taste so good.:)

  13. Danielle January 17, 2011 at 5:10 pm #

    Im going to try and do the scd diet but there are alot of ingredients that you cant have and ive just been into the kitchen cuboards reading different labels and the majority of food has startch ingrediant in or glucose! Im realy finding it hard!! Im not eating bread or potatoe although im not usualy too bad after potatoe. I have usualy redy brek for brekfast with milk and im usualy ok. Do you think i should change this?? Please help i just dont know what to eat! And now i know your not suppose to have that ingredient im scared of eating it! :/ xx

    • Adam January 17, 2011 at 5:22 pm #

      Hey Danielle,
      Have you ever tried eating hard boiled or scrambled eggs for breakfast? I do that alot, and it seems to be working out great for me. I think you should for sure give the SCD diet a go. As for me, I don’t have any milk products anymore, I used to cheat and have some in my coffee, but I have stopped that 100% and I think its helping alot for me. Most people on SCD don’t drink any milk, or atlease if they do, they do VERY rarely. best ofluck with it, and keep us posted on how it goes!

      • Cathie May 25, 2014 at 5:13 pm #

        I am thinking the diet connection applies to all of us who have an auto immune condition, whether UC or not. I am cutting out milk and breads. What is your take on protein powders? Mine are whey protein isolate. I DO buy the flavored kind which contain sucralose. Hmmm… But is they whey considered an allergen in same way other dairy products are?

        • Adam May 26, 2014 at 10:55 am #

          Hi Cathie,

          Most people have not had the best of luck with protein powders. I myself have never tried them since getting diagnosed so I don’t have any first hand experience. If they are working for you, great, if not, I’d consider making a change and substituting for something else..

  14. Danielle January 20, 2011 at 3:05 am #

    Hey!! Thanks for the breky tips! Ive been doing it for 3 days and have began to get realy hungry! And some times stomach ache! Is this normal? I spoke to the ibd help line which my doctor had gave me and when i mentioned this specific diet she hadnt heard of it. Its so confusing my gaestronoligist told me to have a healthy balanced life style and to have potatoes and veg etc. Im thinking of doing a food diary and trying to pin point the different foods that give me an upset stomach. I dont eat much bread or startch anyway but i am usualy too ok to eat potatoes. I realy wish i could have a normal digestive system people take it for granted!! Its putting me on a downer! Everyone else seems to manage on this diet! Xx

  15. Elizabeth January 20, 2011 at 12:16 pm #

    I have had UC for 15 years. I thought I knew what it meant to live with UC, but I really had no idea until this last flare. Things got out of hand when I got pregnant and and continued to spiral out of control after Mickey Jean was born. She is now 15 months,and I just got realeased from a 3 week hospital stay. I have been on prednisone no less than 35 mg and up to 60 mg doses for over six months now and two weeks ago I had a scope done that sbowed very liittle decrease in inflamation. I have also developed pyadirma with this flare up and have skin lesions breaking out all over my body. I am so afraid that I am going to be faced with surgery and I cannot wrap my head around that as an option. When I got home from the hospital my mother and my husband informed me that I am going on the SCD diet and I am scared enough to try anything at this point. I am praying this works, as I havenot been able to take care of my own childern, my house, my husband, my life for almost a year now. I am so tired of my body hurting me. So many positive stories related.to this diet give me hope. Thank you.

    • Adam January 20, 2011 at 6:18 pm #

      Hi Elizabeth,
      Hey, hang in there, I know almost exactly what you are talking about/going through (minus the having kids part as I’m not there yet.) but most definitely i hear you on worrying/thinking about surgery. I was having meetings with the surgeons before I tried the SCD diet the first time.
      I wanted to ask you a question though about the skin lessions, because I had those too when I was in the middle of trying all sorts of medications. Did you take Humira or Remicade infusions for your UC? Reason being, there was a recent study published, that I posted about on the website about a small percentage of IBD patients breaking out with psoriasis type lessions after taking those types of drugs. Anyways, just wanted to throw it out there if it might be the case for you, as it was for me. I have another post somewhere with pictures of what my horrible looking skin looked like at the time, thankfuly, it has all cleared up and gone away for the most part, minus some that is still on one foot. Keep me posted, and best of luck with the SCD diet! I wish you good success like so many others of us have had with it!

    • Melia Keep June 3, 2014 at 8:42 pm #

      Hi Elizabeth, new to this website, I too got pyoderma after a bad flair, not too many people know about this horrible disease, hope you are ok

  16. Adam January 29, 2011 at 1:10 pm #

    Christina,
    How are you doing? Have you started to feel any better? I really hope so!

  17. Pam June 25, 2014 at 1:32 am #

    I have had UC for 27 years and at one stage was on 33 pills a day + enemas .Now I am down to one tablet a day which is for acid reflux – this is a side effect of taking high blood pressure pills .I have gradually stopped bp pills and it is normal .I have been veggie for years and since last year been 100% vegan and my health has improved enough for me to go to uni and do a complementary therapies degree .Energy is coming back ,joints don’t hurt ,no flare ups – just the odd upset .As I am intolerant to potatoes ,wheat ,tomatoes ,and grapefruit I avoid these most of the time and eat fruit ,vegetables ,brown rice ,seeds ,soya yoghurt and soya milk ,sweet potatoes ,quinoa , amaranth .I also use lots of essential oils ,give and receive reiki ,take flower essences and life is so different to those dark days of spending hours in the bathroom ,scared to leave the house ,totally exhausted .There is always hope and if we listen to our bodies they give us messages as to what they like and dislike .Love to everyone

    • April October 12, 2014 at 1:45 pm #

      Thank-you so much Pam for your experience strength and hope. My Doctor thinks I have SC and is sending me to a specialist who I see next week. Have been suffering a flare-up for about two weeks. Taking antibiotics that I think are finally helping. I like Adam and many other suffers don’t want a temporary fix. A nutritionist at my health food store told me you can heal yourself one day at a time through diet. Can you tell me what you have for breakfast being Vegan??

  18. Linda July 18, 2014 at 10:20 am #

    Thank you all for your comments and advice. I no longer feel alone. I see the connection between quitting smoking and colitis. I am recovering from my third bout with colitis. I have gotten a little of my strength back. I have not been given any medication except for an antispasmodic stomach pill. I am trying today to eat just a little bit all day. I am so thin that I’m sure I would feel better if I could eat and experience not experience cramping and if I could go back to the gym. I am just not there yet. It is a real challenge to discover that food I can eat. For me, it might be grilled, baked chicken and fish. I don’t know of much else – scrambled egg and sometimes biscuits. I ate a pancake and a scrambled egg and it has settled pretty well. I ate a half of a banana and next will try a soda cracker.

  19. Gio July 24, 2014 at 10:17 am #

    And…here we start! I have been diagnosed with UC on Monday and now I am in the process of building my new diet. Thanks A MILLION for your advices, sir!

  20. Neetu July 26, 2014 at 4:38 pm #

    Hi Adam,

    First off thank you very much for putting up this website. It helps us all feel as if we are not alone. I was diagnosed 3 years ago with UC and had not much luck with Asacol so I had to switch to Imuran. Me and my husband are wanting to have kids soon so I decided to completely change my diet and lifestyle so I could not be on medication since Imuran is not recommended. After 5 months of success I am currently flaring. I feel the cramping, little blood in stools and I go to the bathroom 2-3 times per day. I don’t know what I should do now. I don’t want to go to my doctor because he will just say its because I am off the Imuran. Basically that would mean I could not have kids. Do you know what drug would be safe for pregnancies or someone who has taken a medication being pregnant. I can’t really try to have a baby during a flare either so I am really torn about what to do. Please help anyone!

  21. lyndsey August 1, 2014 at 7:45 am #

    Hi all I haven’t been diagnosed yet with uc as my doctor thinks it might be ibs but I can relate to some of your posts. I’m finding it difficult to know what foods to eat as when I suffered from ibs I could eat oats but now I can’t. Caffeine appears to irritate my symptoms a lot even in hot chocolate! Alcohol I think also but we have been invited out to the pub next week and worried about what to eat/drink obviously safe option is water but I can’t have that on someone’s bday celebrations? Also I was wondering if any of you are affected in regards to going for a pee more often or getting the urge to? And do crackers irritate many people I.e. Cream crackers like Jacobs?

    • Adam August 2, 2014 at 9:40 pm #

      Hi Lyndsey,

      I have not heard of people mentioning the need to pee more due to UC, however, with UC, pretty much anything is possiblee. As for crackers…I’d stay away from them for sure. Grains are not a very good idea in my opinion (which is why I’ve been off them for 5 years now:)

  22. Joanne Hooper August 7, 2014 at 9:31 am #

    Has anyone used the McDougal diet (plant based diet) to curb their UC. I have a freind who is really encouraging me to do this.
    Jo

  23. Nichole August 15, 2014 at 9:26 pm #

    My 7 year old has UC. I believe she is starting to have another flare after lowering her meds. I can tell because her gas she passes is extra smelly. I started her on a gluten free diet and now cut a lot of stuff out like bread and some fruit but she wanted Udis and some gluten free cookies. So I don’t know if it was because of lowering the meds or the carbs. But why smelly gas and poo?

    • Adam August 17, 2014 at 9:47 am #

      Just about impossible to say. The smell and color of things coming out can often change radically when symptoms come up, but hopefully, things will change. As far as gluten free cookies, if that’s what the label reads, they are probably not SCD legal foods, as grains in general (gluten or not) are not allowed.

  24. Teddy August 24, 2014 at 7:13 am #

    Diagnosed December 2012 and have checked off 5 ASAs, Rowasa and sodium butyrate enema’s, and Remicade so far. Only prednisone works, so off and on that to calm down symptoms when they return. Will start Symponi next. My question to all is, how soon after food intake do you feel a negative effect? I understood that it takes 24 – 30 hours to discharge our waste, but how soon after food intake do you think, viola! And rule that food out of your diet? Thanks.

    • Adam August 25, 2014 at 3:44 am #

      Great question Teddy,

      I remember asking my first GI doc who I was with for over a year the same question about foods and how long it takes to digest. The answer he gave me was quite a bit different than you wrote about discharging foods, he said within 8-12 hours typically.(Still seems strange since I’ve for sure gone longer than 12 hours without pooping before…but anyways)

      I don’t think anyone can conclusively say that within 24-30 hours you can rule out with certainty that a particular food causes you harm. Instead, I think several days of testing with a particular food while not changing other variables such as other foods you commonly eat with no apparent issues is a better way to go about it. What can make this investigation perhaps a bit more challenging is that some foods our body may not tolerate well at a specific time, but days/months or even years later our bodies may do perfectly well with a certain food.

      But the show must go on, I’d take several days with a new food to help the decision making process. Best of luck to you Teddy!

      • Teddy September 12, 2014 at 9:05 am #

        Adam, thanks for the reply. I actually have some mind-blowing news to share (at least for me) that I hope is not premature, but am passing it on for however you think it might help others whose diagnosis was/is “indeterminant” UC. After the onset of symptons over 2 years ago, and going through the treatment modalitities above, I started backtracking only to realize a correlation between symptoms and dental retainers (invisalign), which I wore virtually every night for the past 3 years until about 2 weeks ago. The first day after NOT wearing them I had a marked improvement in symptoms, which continue to improve. I am at the point where I clearly still have some proctitis issues, but it may also soon be clear that they are not related to UC! I’m having completely normal days for the first time since the end of 2011.
        Now, I was not able to find much (only one useable reference)that ties proctitis together with plastic or polyurathane dental retainers on the www, but that may be because I have a unique, otherwise non-measurable intolerance that just does not show up with many other people. Nonetheless, I pass this on in the hopes that others may benefit from my experience. I’m still considering how else I might get this word out. In the meantime, my heart goes out to all those that truly are sufferring from this dibilitating disease (indeed, all IBS/IBD sufferrers), and that I have sympathized with over the past 2 years. Please keep up your good, uplifting work for them (and you).

  25. Pam August 27, 2014 at 4:32 pm #

    I am 70 years old and have had colitus for 28 years. I also have Parkinson’s. I play tennis three times a week,
    And I have never gotten sick on the courts. Well here is the problem. I want to go on the scd diet, however I
    Keep eating junk, and can’t get started on it. The more I say I want to start, I indulge even more.
    What do you suggest?
    Pam

    • Adam August 28, 2014 at 12:25 am #

      Hi Pam,

      What you’ve mentioned is quite possibly the most common problem, and it is not one with a simple solution. The desire to try something 100% can only come from within the person who wants to make changes. I’m guessing your UC symptoms aren’t as severe as mine were (but that’s only a guess) because for me, the desire to get better finally, far outweighed my desire to continue to eat foods I’d always had in my previous life. I don’t know what to say other than I wish you the best, many people have been where you are before and found great relief with SCD eating, myself included, hence the reasons why I started this site and spend 3,000 hours each year maintaining this. Best to you,
      Adam

  26. Lacey October 1, 2014 at 2:54 pm #

    Hi Adam!
    I just got done reading your book and I can’t tell you how many times your story had similarities with mine. I was diagnosed with UC in late 2011 and had two great years medication free until it’s violet return February 2014. I made a huge leap from Lialda to Humira this summer and it’s terrifying to say the least. I’m currently in a bad flare that I would like to attribute to my half-marathon training I was trying to do (only made it to 11 miles and I think I’m throwing in the towel on the race). I just felt terrible after every run and I know I shouldn’t put my body through this. I just started Entocort in addition to the Humira, but I am eager to begin the SCD-Lifestyle to hopefully get off some of these meds. I was curious about caffeine and on-to-go snacks. I’m a student, so I rely a lot on caffeine during classes to keep me awake. Do you drink caffeine? If so, what do you recommend? Also, what are your go to snacks that you carry with you? Thanks for all of your help!

    • Adam October 2, 2014 at 8:01 am #

      Hey Lacey,

      Great question on caffeine. Kinda funny you’re asking right this moment because as of yesterday, I’ve gone about 28 days now with zero caffeine which is not usual for me in the past 5 years since starting the diet. But, I’ve been thinking about kicking it completely for some time and decided to finally give it a go since I’m back in school (after 15 years off…) and wanted to prove I could make it through the day without it.
      So…that said…you’re probably wondering how the heck that’s possible right…Yeah, I was kinda doubting it was possible too since previously I was drinking mainly decaf coffee for my first few years on SCDish eating, then I moved back and fourth between regular and decaf coffee. Previously I was drinking 1-2 cups per day, no milk, no sugar except for honey, and I tried to make the coffee relatively weak. Starbucks coffee was too much for me, so I would usually make my own at home with a french press and again it was often much weaker than what my wife would make for herself for example.
      The problem I would somtimes run into with coffee came about in the mornings. You see…there would be times when I’d wake up and want a coffee really bad and I’d end up having two cups BEFORE eating anything… And, later in the day, I’d realize via the bowel movement changes and just not feeling as well that having coffee in the morning before any food (especially more than a cup) was a BAD idea….
      So, if you are going to have coffee in the morn…I’d suggest having something in your stomach prior. Coffee is pretty high on the acidity charts, and I think its too much of a body shock unless there’s something else in there.

      If you are wanting to try and kick the coffee, I’d suggest changing over to ginger tea (fresh ginger and throw in some squeezed lemon and some honey). And maybe some fresh mint if you have access. (It’s pretty awesome and I have been making one EVERY morning for quite a few months now).

      As for snacks on the go. I have been doing a banana for a snack many days and I think it works great in between meals. Also, small salads in tupperware with something like chicken, maybe some strawberry slices, and a honey/mustard dressing…That kind of thing goes well for me. Just for sure, stay away from the vending machines at school. I don’t think there’s anything in there that’s good for us, especially the candies, definite no-no there in my opinion.

      I hope the best for you Lacey, and I think its a good idea to throw in the towel (for now) on the race deal, especially if you’re flaring. Let your body recover, and for sure there will be plenty more races in the future.

      Best to you,

      Adam

  27. Bobby October 17, 2014 at 9:55 am #

    Had the first colonoscopy today..
    This forum is such a blessing. Thanks people.

  28. Adam October 27, 2014 at 7:48 am #

    Hey,

    I have now done this diet for over a month now with military precision and have had zero results. I am starting to believe that this diet isn’t going to work for me as it has for so many people. It’s impossible to know what foods trigger a problem when you can’t stop the problem in the first place. I am happy that it is working for you but even Elaine said that if you aren’t improving in a month this diet isn’t for you. How long did it take before you noticed a change?

    • Adam October 29, 2014 at 9:18 am #

      Hey Adam,

      I’m sorry to hear you have not had any luck so far. And one thing is for sure in that this diet does not work for everyone in terms of controlling symptoms. So don’t feel like you’re the only once because you’re not, and over the past 5 years I’ve heard from several people like you who have gone about things this diet changeover in a full on effort type of way with little/no positive results.

      I myself started seeing positive results within just a few days. Please realize that when I initially started the SCD diet, I was also on a mild prednisone taper, so that may have been a positive influence on things. But, also please realize that I have had a couple of flare ups in the past 5 years and I’ve controlled those with going back to basics on this diet and that has allowed me to get things back under control.

      No matter what decisions you make moving forward I wish you the best of luck with regaining control, and I’m sure you will.

      Best,
      Adam

  29. Eddie November 1, 2014 at 7:57 am #

    Happy Saturday everyone. I was diagnosed with UC and Diverticulosis and Diverticulitis in 2001 right before 9/11. I worked in Tower 2 and lost a brother-in-law and several acquaintances and former co workers. I had just moved to New Jersey and the commute was then about an hour and twenty to an hour forty each way. My father developed medical issues and I was tasked with getting him back and forth from a NY hospital, getting to work, getting home, waiting for the authorities to find my brother-in-law’s remains and negotiating the physical and emotional devastation of the area. My UC flares got worse and worse..no wonder right. I was hospitalized twice in 2002. The commute increased to 2 hours, now it is about 2.5 each way. It is a HORROR.

    All the sulfur meds prescribed caused diarrhea and ocular pressure, the retention enemas worked for a while but I can’t tolerate the discomfort. So what helped me? I’ll give a small list:

    #1. Prayer. As a Roman Catholic I received great comfort and healing through the Holy Sacrifice of the Mass, Confession, through the Charismatic healing prayers of joyful praise music and thanksgiving and uniting my sufferings with Jesus on the Cross. It is truly amazing. I had many people praying for me and over me including my wife. The laying on of hands and prayerful intercession are so healing.

    #2 Prednisone is a miracle drug and was the only thing that helped me (until recently).

    #3 Bing cherries… a lot of them. The red in the cherry is an antioxidant.

    #4 Avoiding whole milk.

    #5 Avoiding stress… impossible lol.

    #6 Imodium

    The gastro doc recommended that MP6 drug – I think that’s what it was, a cancer drug, I said no. The med’s side effects can cause more problems than they solve. What is amazing about this disease is that there is not one solid fix for any one person. We are all so complex and what works for one doesn’t help another. This is a great web site, thank you Adam. It helps me see patterns as to what we all suffer, why, when and what helps. Training yourself to keep positive is a main ingredient in healing. Not easy to do. Prayer helps me a lot to stay positive. I keep focusing on my blessings.

    I was in complete remission in 2009. The last colonoscopy showed no uc. That was the last time I had a visit with the gastro guy. My uc has been flaring since last December 2013 and has reached a point where I am now in the can’t leave the house without being near a bathroom in a pinch. It is stress related. My DO put me on prednisone and is sending me to a new gastro guy. I am now scheduled to see a new gastro guy in a few days and not looking forward to it. I am almost finished with the prednisone but I am still showing small amounts of blood showing as light pink mucous, frequency and urgency.

    Lately chicken soup has really been great for me along with hamburgers and grilled cheese. Here is my mother-in-law’s recipe. This is the best. I put in pasta because it doesn’t affect me. Plus I have been drinking plenty of cherry juice, iced tea and water.

    Netty’s Chicken Soup
    Prep time – 7 minutes
    Cooking time – 90 minutes
    Serves 4 – 6
    Ingredients
    1 cut up chicken
    5 stalks of celery
    5 carrots peeled
    Salt and pepper to taste
    1 large onion
    12 cups of water

    Directions
    Place all the above ingredients in an 8 qt sauce pot and bring to a boil on high heat, lower heat
    and simmer for 90 minutes stirring occasionally. Remove chicken from the pot and let cool.
    When cool, remove skin and bones and shred chicken meat to be added back into pot later.
    Remove carrots, celery and onion and in small portions with some broth liquefy the vegetables in
    a blender (be careful not to overfill the blender with contents – use a ladle full of broth to help
    liquefy and use a towel to hold cover on top as heat sometimes will cause the cover to pop up
    and make a mess). Strain broth for any bones and then add the liquefied carrots, celery and
    onion along with the chicken meat back into the broth and serve with your favorite pasta.

    I am praying for all of you and your families. May the Creator and giver of all good gifts heal each and every one of us soon.

  30. Monica Smith November 15, 2014 at 9:45 pm #

    Thanks for this site. I dontnhink I have ic, becauwe I dont have blood in he stool and have a history of pancreatitis…but I have chronic diarrhea, fatigue and other similar symptoms. He traditional medical community has not been much help. One, like you mentioned, the industry is driven sell tests and pharmaceutical, but at least I have a family doctor whomisnr into that. I know something is wrong, but because it comes and goes and doesn’t always pick up on a blood test, I get blown off. Ive had food allergies since I was akid, andi see where lactose intolerance and celiac get worae as you age. Hmmmm….. coincidently one of he times I felt best stomachwise was when I was prescribed prednisone for plantar facitis. Hmmm again
    I was thinking about engaging a dietitian and or chiropractors to help be solve yhis misery a little more wholistically. The dietician because I am just food pryamid dumb, and the chiropractor, well has anyone had any experience here?
    Its so relaxing to find a site where “poop” can be discussed. I once was on a comute into town when he uhoh moment hit and I oulled into the bank lot, the only store off the diagonal, and the guy didnt want to let me use the restroom. Im holding a squirming toddler, im sweating and trying not to cry, fortunately the lady let me use it. But its yhat attitude of people yhat just cant comprehend how an “upset stomach” alters your life. Another time, waitinf for a shuttle bus from airport parkinf to terminal….I couldnt wait. My apologies to the lightpole and the returning passengers if it didnt rain. Living rural, I cant count rhe times ive had to jsut stop while taking my kids to soccer, etc. Amazing it doesnt bother my teenagers.

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No matter what, colitis flares don't last forever, don't forget it:)