My name is Suzie. I live in the West Jordan, Utah, USA. I’m 35 and my nine year old daughter Rose suffers from U C. She had her first flare with blood and diarrhea in November of 2010. We believe it was do to a contusion she received when she fell out of her bunk bed and the ibruprophen may have exacerbated things as well. Then about 4-5 months later her first flare happened and she nearly had a blood transfusion. Scary!
Frustrated Mommy of Nine Year Old Girl with Colitis
My daughter Rose is nearly ten years old and has had Ulcerative Colitis for nearly three years. Her flare ups were happening once or twice a year, but this summer has been an ongoing battle. We thought we had things sorted just before school started, but then Rose downed almost an entire can of pineapple (while my husband and I were out on a date) because she couldn’t have popcorn (babysitter did a movie night). And then owie and more ups and downs.
Rose just had a colonoscopy and I’m worried that the clean out may have made her colitis worse. In her colonoscopy her doctor saw inflammation at the beginning of her colon and the end. She also had little white dots here and there. Anyway, within two days of her scope she’s been experiencing pain in the morning and at night, and feeling yucky. The pain seems to fade during the middle hours of the day. I’m going to put her back on homemade gelatin/jello and beachbody.com shakeology shakes. She seemed to be doing really well with those.
Rose has missed a month of school and I’m considering homeschooling her.
Please give me food ideas for her or how to make broiled hamburger exciting! Ideas? Advice? Help?! She has a good appetite and is hungry all the time.
She’s a really great kid. Please help me to help her!
The selfish part of me really misses my daily routine and tines for the day when I can return to my morning Zumba classes!
Rose is currently on four blue 500mg pentasa pills a day and 5mg of prednisone (we almost had her off of a taper, dangit, but our new doctor thought it might be helping to keep her flare down). And vsl#3 junior probiotic 250 billion little critters.
written by Suzie B
submitted in the parents of UC’ers section