Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Tired of Being Sick and Tired

9 year with colitis

Trina in the Palm Trees!

I am 33 yrs old and was diagnosed with UC 9 years ago.

Each year my flare ups have continued to get worse. I’ve been a hairstylist for 8years now and this is the time of month that us hairstylist’s look forward to . It’s a month filled with craziness!! VERY BUSY! But it’s always worth the money. Yesterday I broke and almost had a meltdown at work. I was in so much pain I could feel my large intestine throbbing the entire day.

I am currently on Asacol and just finished my second round of Prednisone this year. Since I’ve come off the Pred my body has been teeter tottering and doesn’t know whether it wants to flare or go in remission. Well yesterday my Ulcerative Colitis took a painful turn for the worse. Once again I’m in another flare. I’m 5’2 and weight 120pds and don’t know how much of this my body can continue to take. This disease is kicking my butt and I try my hardest to stay positive most of the time. But this time I’ ve caved in and let this disease get the best of me. I’m sick and tired of being sick….especially during the holidays. I did get the book for the SCD diet but haven’t started it yet. My diet has been very similar for a few years now. But I am lactose intolerant and very sensitive to the nuts so I am not sure if it will be for me. I also work out 4-5 times a week that has really helped with the UC. For months I’ve been reading posts on this website and can relate to so many people here. I can’t tell you how much support I’ve felt from this website. So at this time this is where I’m turning too. Any support would be greatly appreciated.

 

 

Medications I’ve Tried:

Asacol
Pred
Glutamine
Probiotics

 

Written by Trina

submitted in the Colitis Venting Area




5 Responses to Tired of Being Sick and Tired

  1. UC mama December 17, 2011 at 10:13 am #

    Hi Trina,
    I just got out of the hospital 10 days ago. Went on IV steroids, and complete liquid diet. It’s the only thing that helped.I’m better, but am still giving my bowels a rest. Diet makes a difference, it’s not everything, but you should really limit what you’re eating to easy to digest, bland, nutritious meals. Ive been making protein shakes with soy milk (also lactose intolerant) peanut butter, soy protein and bananas. I eat cream of wheat in the morning, and soups or protein shakes for dinner. Give your bowels a rest, and I think you’ll see a difference.
    Sorry you’re having a hard time, it’s not easy, but take it slow and try to cheer yourself up, it will get better.

  2. Lillian Adamour December 17, 2011 at 11:00 am #

    Hang in there Trina! The strees is also a huge, huge thing that will piss off that colon of yours! I have had my UC for longer, (it’s no competition, just letting you know where I’m coming from) and it took 8 surgeries to save my life and take out my sick colon. Your mental well being and your diet are huge! Eat the right stuff….I’m sure you know what that is already, and I know working at a saloon must be stressful so….try not to stress. Think happy thoughts and now there are a lot of people oout there like us! We all forget that sometimes, me too. (:

  3. Sher December 17, 2011 at 12:09 pm #

    Trina,

    Your story sound sooooo similar to mine! I am 33 years old and was diagnosed at 22. I thought it would get easier as time went on, but I was soooo wrong. I read once that after 10 years UC would calm down, that was also a joke. I was on prednisone for a year in my earlier stages, and a few times since, but now I decided never to go back on it. It seems it is such a temporary fix, and makes me crazy! I still have acne scars from when I was on it a year ago. I also am in sooo much pain sometimes, I finally got fed up with that and asked my doctor for something to get me through this rough time. He prescribed me Ultram (tramadol), it doesn’t give you that fuzzy head like most pain killers do and it has helped me get through those long days that my entire body aches, and not to mention that burning, gnawing pain in my intestines! I would suggest asking for something to get you through this time of year, you deserve to feel your best! I know it’s not a permanent fix, but sometimes we just feel like giving up and need a break. I also found diet helps so much. I decided to go gluten free and boy does it make a difference. It’s hard at first to find foods, but after a while you get used to it. I eat meats without the bread, still eat tacos just a corn shell, never flour. I eat salads and baked chicken. I eat the gluten free Chex cereals without the milk, just to snack on. This disease has been the hardest obstacle in my life to overcome, but I also found checking this site gives me so much hope. To know others out there have the same struggles that I do. Reading stories that are so much worse than mine! Getting advise and trying out different remedies. I’ve tried so many over the years, and still waiting for that magical one that will work for me!

    Hang in there, Sher

  4. Tuxedobird December 17, 2011 at 1:05 pm #

    I was diag at 17 with UC.At 27 had colon removed and got an internal pouch. Is surgery an option for you? Have you
    discussed with your doc?

  5. Trina
    Trina December 17, 2011 at 7:36 pm #

    Thank you all for the words of encouragement. I do practice a gluten free diet and it has helped so much. Surgery has not been an option for me at this point. I want to keep my Colon for as long as I can..lol. That sounds funny. I’m sure you all can understand those tough times that we go through. This is just one of those times for me. And I am so appreciative for the tips on diet. Sometimes you think you got it down but then you get a curve ball thrown your way and then you have to start back from scratch. So thank you my friends for your support!! Gosh do I love this site!

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