Main Points
Here are some main points I think are important for anybody living with UC or for relatives living near colitis, maybe some of this thinking will resonate with you too:
- Remission periods can be very long, or sometimes very short
- We, the UC patients know our bodies real well, and we need to hold ourselves responsible to monitor how we are doing over time
- No matter how you treat your colitis (i happen to use diet), you don’t need to settle for only partly feeling good, great health and happiness is possible, even if you have UC
- When symptoms are present after a remission period, some changes may be needed (maybe just slight changes too)
- If you have a re-boot plan (or some program you use to help fight potential flare ups)…GREAT, if not, its time to develop one
- Put your re-boot plan to use earlier rather than later, as it’s very easy for a super super mild flare to turn into a monster one in just a few days
- It’s always helpful to look at controlling your UC as a challenge, something that you’re excited to overcome (that’s what i told my wife yesterday morning after shooting yesterday’s video) And what i’m getting at here is – don’t get down on yourself and all bent out of shape, instead look at your UC symptoms as the oponent and YOU, You are going to be the one to eventually win the game and let UC know who’s really in control here.
- As for doctors and your GI, make sure you trust your doctor. If you don’t trust your doctor, or if you don’t see eye to eye with him or her, spend some time trying to find another one who might suit you better. At the same time, you can’t solely rely on your gastro doctor to fix every single ulcerative colitis related problem that comes up in your life. If that is how you handle your UC right now, I think you’re in for a very hard time. We as UC patients have the ability to learn so much information, facts, details, and survival skills about our disease. Take advantage of the growing knowledge that exists, this will make your UC journey much easier.
In the end, I wish you all the very best with managing your colitis in the coming weeks and months. September and October have proven difficult times for many a UC’ers over the past 5 years since I started this site. UC’ers are heading back to school, some are starting new jobs, others are welcoming new family members to the family(well..I guess that’s always happening year round) but life will go on. For each and everyone of us.
As for me, I’m going to be heading back to school come early September, going to be tuff sitting down at a desk in a classroom once again after nearly a 15 year break, but I’m super pumped at the same time.
And if the past weekend’s softiness of stool run was only a shot over the bow for me to get my eating and drinking a bit more in check, EXCELLENT. And thank you to the colitis gods for keeping me honest. I’m pretty sure I’ve got you back in mind, and back where I want you to be, so let’s be friends once again.
Adam Scheuer
PS:
If you’re wondering what you can do to make this website a better place, do this:
Go to the reviews pages, and write a review on any of the medications you’ve already taken. It takes about a half minute, and here’s the links to the different medications, and supplements, and even my ebooks that I’d love for you to review so others can benefit from your knowledge:
CLICK ANY LINK BELOW and write your reviews (and read what others have already posted to learn more too:):
My Ebooks (Feeling Crappy & Cooking for UC)
(Thank you everyone, once you hit submit to your reviews on the pages above, they get posted very quickly afterwards:)
PSS:
have a great friggin day:)
I started site shortly after being diagnosed in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
I’ve written 2 different ulcerative colitis ebooks, you can check them out here.
And, the Free eNewsletter, which has important updates can be joined here.