How did UCERIS work for YOU?
(also called Budesonide )
With the previous posting from Alice on this potential alternative to “prednisone”, I think its for sure time we add a new “medication review” for UCERIS.
Here is a direct quote from the UCERIS website:
“UCERIS is a different kind of treatment for ulcerative colitis. It is specifically designed to target the colon and helps eliminate the symptoms of UC, with a safety profile similar to placebo (sugar pill). UCERIS is a prescription corticosteroid medicine used to help get mild to moderate UC under control.”
So, if you have experience with UCERIS, please fill out a review regarding your experience via the button below!
And, if you are interested in reading Alice’s story which talks about UCERIS, you can do so via the link to her story her – .
Research on Uceris (Budesonide):
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I just started a nasty flair in December, which is out of the ordinary for me as I usually flair each year in spring until October/November. I am now feeling desperate and extremely frustrated. I am a financial advisor that had a huge upside until UC flairs have crushed my work life 10 years ago and now I feel like I'm in a depressing survival mode struggling to be productive (no fixed income, I only get compensated for adding value to clients). Each year my results have been getting worse.
I have taken Lialda for years and my physician just switched me to Sulfasalazine. I absolutely can't stand any pharmaceuticals but I can't control my UC with any diet that I have tried.
My physician also just started me on Uceris Foam which I started a few days ago. Please share with me anyone's experiences with the foam! My major concern is that I can't keep it in for more than a few hours and after paying around $1,300 for it my gas and bowel movements are now feeling very expensive! Does anyone have any tips for keeping it in longer?
my mother had a trial of 30 days and it worked great she stopped it because the prescription with medicare rx payment was $966. She is on a fixed income and did not pick up the medication. She had great results...she is in a flare now and I am looking for a coupon or program for assistance? Does anyone know of any?
After initial UC diagnosis and six weeks of unsuccessful treatment with other drugs my GI doctor said let's try the Rolls-Royce drug and put me on six weeks of uceris. Within seven days the flare subsided and I was symptom free by the end of treatment. I've been on daily mesalamine since, and my latest colonoscopy showed effective remission. Uceris is very expensive, but I'd have to say worth the price.
Not a fan, but it helped my symptoms short term. Not as effective as Prednisone for me.
The first time I used Uceris it took me out of a flare in two weeks. Never had any side effects, but my Dr. does not keep me on it more than a month. The second time it did not work, but I was under an enormous amount of stress. My Dr. put me on Immuran (sp?) for a short while then added Cromolyn Sodium when I was better and took me off Immuran and I am now on Cromolyn. Cromolyn Sodium has little or no side effects. I am also on apriso twice a day and follow the SCD diet with adding foods in that seem to be O.K.
I am an Event Planner a very stressful job and into another season and another flare up. I took Uceris and got rid of the bloody stools and cleared up somewhat. Trying now to go back to the SCD diet, but it is hard once you can eat all the gluten free products including corn tortilla's. On, cooked vegetables, meat, eggs and yogurt only. Seems to help and trying to be patient.
I have been using the Uceris rectal foam for 2 weeks now and it has not stopped the bleeding. The only difference is somewhat less diarrhea. Canasa for 2 weeks did nothing! The Uceris is twice a day for 2 weeks, and then once a day for 4 weeks. I am hopeful that this works and so disgusted with this horrible condition! Dr. is suggesting biologics and I really don't want to do that...
I've been on Uceris for a loooong time, way longer than I should have been because nothing else worked for me. I have not had any side effects that I know of. However, I recently found out through endo testing that my adrenal glands are completely shut down because of the Uceris. The drug is touted as "GI specific" and not as bad as prednisone, but be aware that it can cause the same problems as prednisone!!
I am on Mesalamine pills daily and have been doing Uceris for a month. NO side effects that I can identify and I think it is working because I have not had a flare, but I had not had a flare for 5 months before I started taking Uceris. My Gastro MD believes Uceris will help calm down the inflammation in the lower part of the colon which gives me the UC diagnosis.
Used it for three months and then switched to Stelara which is not doing well for me. Uceris did seem to work but it is a steroid and hard to stay with.
Hair falling out by the brush full
It makes me incredibly angry/moody
Decreased diarrhea immensely. SEffects: weight gain,vag bleeding,facial hair increase,moon face
Has been great in terms of reducing my flare and doesn't have as many side effects as pred, but unfortunately, it still comes with the rage - absolutely furious irascibility. Where normally, I'd just shake it off, I'm really struggling to not fly off the handle...
I had C-Diff in 2015 from too many antibiotics given for kidney stones. Finally after app. 6-8 months, got rid of it, taking Vancomycin. The diarrhea continued, I had a colonoscopy, showing I had Microscopic (collagenous) Colitis. Dr. prescribed Budesonide 3 mg. tab each day. After 2-3 days, I couldn't have a bowel movement & was in pain from it. I have tried several different ways of taking from 1 each day to every other day. To no avail, I just can't stand the constipation.
I just found out that the Budesonide has lactose in it, which I have an allergy to.
I am a 79 year old female. Dr. just put me on Lialda 1.2 GM twice each day & Predisone10 mg.once each day. I've been on these two for two weeks & am still having terrible diarrhea. I have also modified my diet to exclude fiber, acids, etc. I wonder if anyone else had the constipation problem from Budesonide. Thanks
I am on my 6th and final week of Uceris. It has helped, but definitely has not stopped the bleeding. The side effects that I have experienced are insomnia, leg cramps and headaches. Was so hoping that this medicine would be the answer to my prayers. But it doesn't seem to be for ME.
Started using uceris back in December 2016. Its late January 2017 now and it seems like its helping my flare up but I think its giving me lower back pain and I have these big red swollen lumps all over my legs. I really can't give a review right now. I'll see you guys in another few months
Started with Lialda,added prednisone, then added Uceris, and was weaned off prednisone. I have been on Uceris for 4 months. All the steroids are starting to affect my body though. Tiredness and they have increased what was controlled high blood pressure, to the point the md will probably add more bp medicine, as it is now extremely high. Very frustrating. About 95% in remission, except when I start to get stressed about my bp, which doesn't help. Uceris is not a forever drug, I know. And I am determined to go the other direction, not add more UC drugs to my regimen. Any thoughts? The high blood pressure is really a concern. 189/90, so I will probably be going off very shortly here. It was good while it lasted.
Intially the Uceris seemed to help with my moderate UC, I noticed less blood. However as time went on, the blood returned. I used it just over two months. My appetite increased, I gained 10 lbs. even though I workout 5 days a week. I was extremely bloated and gassy. I am a thin person, so this was extremely difficult on me. I stopped 5 days ago. First I was nauseated and tired, but that is getting better daily. I have also taken Canasa and Lialda. None of which has helped. Going to gastro next week to discuss other options.
I have had an extremely positive view of taking Uceris for three months. I have had no side effects and I wish I were able to take it full time, but as it is a corticosteroid , I realize that is not possible. I was prescribed Uceris after terrible reactions to trials of (Canasa, Apriso, and sulfasalazine). I, unfortunately am in the small percentage who can not take/tolerate 5-ASA meds, a real bummer for me!! Uceris brought me back to a normal state of living. Now I have to figure out a remission plan without the helpful 5-ASA's that most folks can take. I do know I can count on Uceris for flare-ups. It works wonderfully well.
I was on Uceris for 10 days but the horrific gas (and pain along with it), increased acne, increased blood pressure and mood swings were not worth it. I stopped and am continuing with Lialda.