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I’ve Tried Every Colitis Drug, and now on SCD

Below is a posting from an anonymous person who as you can see has taken many many medications for ulcerative colitis.  I thought it might be helpful for some other UC patients to see how it is not always easy to go from being diagnosed to finding a solution that works for you.  Thanks for the information and the look into your life:

I wish I had only been on four medicines. I’ve been on every single group pyramid-whatever drug possible.

From Pentasa to Flagyll (antibotic) to 6mp to Methotrexate to Remicade to Humira to
SCD!!!!!!!!!!!!!!!!!! (Lifesaver)

I’ve done everything. Name a drug and I’ve done that family of drugs. Name a treatment and my parents got it for me: Whipworms? check. Only NG feeds? Check. Only TPN feeds? Check. Massage? Check (I wish I still got that one…:D) Stand on your head and spin around three times? I would have…

Literally the only thing left was a permanent ostomy. At that point the doctors said there was no harm in trying SCD while we wait to schedule it. Thank goodness my Mom forced me to do it.



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