I have had ulcerative colitis for almost 6 years now with flare ups consistently 2x a year requiring steroids each time (and as a result of steroids, I now have osteoporosis and I am only 31 yrs old..but it could be much worse, so I am thankful its not).
I was initially diagnosed 2 months after my brother passed away..in 2005..lost about 12 lbs in 1 week… I have tried many different diets over the years, supplements, vitamins, nutritionists, as well as going to a couple different GI specialists; (both of them insisting diet has no role in the symptoms) in which I always thought was insane, since diet plays a role in diabetics, kidney disorders, etc… however nothing really changed all that much in my condition. The last flare up I had lasted almost 7 months..started in December 2009 and did not experience much relief until the end of may 2010. I was hospitalized 2x..That was when I had my first dose of remicade. Remicade has given me its own set of side effects; but in my case the benefit surely outweighed the risk. I was able to return to work in August.. I had lost 20lbs and was down to 87lbs (not pretty!). Remicade started working quickly, though now I am finding that I am having slight allergic reactions with the infusions and shortly after and flu symptoms with every infusion. My sister called me up about 2 weeks ago and told me I must try the SCD diet. I read the book Breaking the vicious cycle
Questions of Mine:
Is it possible to add back any “illegal” foods once you are asymptomatic..periodically? I feel like it is impossible to go out to eat anymore? Any restaurants that you know are compliant with this diet?
Medications Hx: Prednisone up to 60mg IV in the hospital.. usual dose was 40mg PO, asacol, Rowasa, Canasa, Colazal, 6MP, and Remicade; currently only taking Remicade-at present keeping symptoms at bay.
This story was submitted by Pacuchic in the Colitis Venting Area
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