Worried Parents

My Son Has Ulcerative Colitis

Our son is 22 and was diagnosed with severe Ulcerative Colitis in May of 2010. He has been on prednisone and Apriso for the past year and Imuran was also added to the list 5 months ago. As soon as he gets the prednisone lowered to 10 mgs his bleeding starts all over again. Then he has to up the prednisone and it takes months to get it lowered again, only to start all over again. Does anyone have any suggestions? We need help.

Submitted by “RKD” in the Colitis Venting Area

 

Additional Stories from Concerned Parents with children living with IBD and Colitis:

There is a category on the website geared specifically for parents either living with ulcerative colitis or for parents who have children that are living with the disease.  You can find that here: Parents

My Teenager is Living with Colitis

Optimistic Ulcerative Colitis Mother

My 4 Year Old Has Ulcerative Colitis

My 5 Year Old Son Was Diagnosed with Ulcerative Colitis

 




3 thoughts on “Worried Parents”

  1. It has been 6 months on the imuran 1 year on Apriso maybe longer and on prednisone 20 mgs right now. Hasn’t noticed any improvements since taking the Imuran. Starting Humeria in 2 weeks.

  2. my daughter was on Imuran for a few years and had same problem with prednisone being dropped to 10 mgs and starting to bleed again. We took her off Imuran and started her on 6mp. she has been on this for 4 years now and she has had only 1 flare up. I also give her ulitimate 10 probiotic once a day and she gets a serving of oatmeal a day but i reduced it to 3 times a week to soak up the acid in her gi track.
    she has had UC since she was 3 and she is now 11. she also tried all kinds of meds and the ones that work for her was pentasa 500 mg 2x day. 25mg of 6mp 1.0 ML 2 xs day. that is about it. Good luck.

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.