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Will My Life Ever Be Normal?

Introduction:

I was in remission for about one week, no blood, I was so happy, but that was short lived, I am back to square one.

My Story:

I am a 32 year old female, single, no kids. My story started when I visited South America, about 2 years ago, I thought I ate something outdated and had diarrhea for two week straight. I came back to the US, and instead of seeing a doctor I chose to disregard it. Last year, I started to notice blood when I went to the bathroom, first thing, I panicked, I thought the worse. I was given Canasa for six weeks and it passed. In February, 2011, I was scared (men look away) it was so much blood, just that for months, no poopy, lots of gas. I was upset and annoyed, its like a mixture of feelings, nobody understood what was wrong with me. My family just didn’t understand my health concern. Nobody knows what you are going through, I started to get moody and constantly annoyed. Again I went to the same doctor, he scheduled a colonoscopy, mid-July.
colitis forever in nyc

He said I told you this before, you need to be on medication for a lifetime, you have UC.

I thought Ulcerative Colitis was something that went away, but it doesn’t. I don’t want to by on medication for the rest of my life. I am not married, so who will ever understand this uncomfortable way of life. On my own, I started to first, get rid of tea, coffee and alcohol -which did help me. Then I started to read online about these symptoms, I have had “accidents” close by home and have gone through countless undergarments. Let’s face it, this does something to your self esteem.
I started reading about foods that are okay. Before I knew UC, I ate foods with soy sauce, spicy foods (Indian, Chinese and Mexican foods), I added store bought cooking sauces to everything, ketchup, whole wheat bread, everyday I would have my tea with milk and 1 sugar, soda, whole wheat rice. I was eating very unhealthy. Now, I stay away as much as I can from cookies, candy, milk and milk products, anything with soy (such as products from Fiber One), pasta, rice. But what am I left with? Its frustrating to not be able to eat anything that you like without having to worry about: Is this going to cause me to sit on the toilet. I live in NYC area (with countless restaurants) and honestly I have no desire to even socialize because I can’t have alcohol (although I am not a big drinker, its difficult to socialize when u are the only one not drinking) or eat outside. Any suggestions, any words of comfort will be welcomed. For all for those, who are in remission…any tips?
My Colitis Medicatons:
Ascol HD 800mg – 3 pills twice a day
2 pills of fish oil (when I remember to)
Canasa 1000mg (when I go to bed)

Submitted by “NyCgAL” in the Colitis Venting Area