When I’m Stable I Only Use the Bathroom Once a Day

Introduction:

Hi there, I am 20 years old and am from Dubai.

I was diagnosed with ulcerative colitis about 6 months ago, so it’s all so new to me. I’m a very outgoing person, I love to go out and see things and try things. (No so much food anymore but its alright.)

I try to be positive about it and not over-think but sometimes I can’t help being down and sad.. the idea that I am sick and there is no cure for it freaks me out.

Some more about me:

I like to go to the beach and play all the water games.
I also absolutely love to go out with my friends they make me feel better and forget about me having UC, and am always open to new things and new experiences.

One of my weak spots are animals lol. I always find some poor homeless cat or dog and take them home with me I have 5 cats and 1 dog for now (i hope my mum doesn’t read this) am planning on getting at least one more dog :))

Symptoms I’m in the Middle of:

When am stable I only use the bathroom once a day and am very thankful for that but when I start getting sicker I go to the bathroom from 4-7 times. I do get stomach cramp and gases it hurts a lot lately! And that weird feeling to push I seriously feel that my insides are about to come out! Normal days no blood in the stool except for the sick phases I do get bloody stool and a lot.

My Story:

I have been diagnosed with UC in the summer of 2013 after a month of vomiting, diarrhea and fever. It got to a point where I couldn’t move from my bed or bend down. I felt like I was 60 and I really thought I was gonna die.

In this month I was admitted twice to the hospital. It was soo horrible it was the worst experience of my life specially that it was finally the summer and everyone was having fun and I was pouncing from the hospital to my home and from my home to the hospital. Spending a week in the hospital every time I go cause am feeling sick.

Then, when I was finally diagnosed I was prescribed with pentasa and krtzon and for the next 4 month my stool was like a normal person’s stool and I could eat a lot of things without it affecting me in a bad way.

I think it was thanks to my pentasa pills. But then I got sick again and had to go the hospital and as usual be admitted, they said that my pancreas enzymes were 5 times higher than they should be. I was still getting bloody stool but id go to the bathroom once a day or twice max and then i had to get off pentasa because it was the reason for my high pancreas enzymes the doctor was shocked and said it was very rare for someone to get that reaction from pentasa and i was prescribed with a light kind of krtzon called entocort and am taking currently 9mg my symptoms are kinda coming back although am on crtzon!

Recently my doctor was telling me about the possibility of trying humira injections frankly am scared and I don’t know what to do if anyone is on humira or knows anything about it please let me know because iv looked it up and i got even more scared!

Medications:

I think pentasa helped a lot.. again i don’t have a background on lot of medications i only tried pentasa and kotzon and i think they both work really well but you cant be on kotzon for ever because of all the side affects.

written by Amna

submitted in the colitis venting area