Hi, I’m Phillip, I am engaged to my high school sweet heart, after not seeing each other since High School in 1988. We both have kids from previous relationships that didn’t workout. But we are both happy with each other and support each other with our diseases.
Some more about me:
I live in Adelaide in Australia. I am 41, I work as a forklift driver for a major car componet factory. During the summer here in Australia i play outdoor cricket for Magill Morialtia Cricket Club. during the colder months I go to watch Australian football. I also like to work on cars, enjoy gardening and have recently finished building a raised garden bed. We will be growing herbs and vegetables in it. I will post a photo of it once the vegies have started to grow.
My Colitis Symptoms:
I was diagnose with UC in 2006. The Dr started me Sulfasalazine. That helped for about a month or two. had a colonoscopy in 2007, that’s when i was told that it had spread 25cm up my butt. The Dr put me on prednisolone 25mg’s, working my way down 5mg’s each week. that settled it, but after a month off the Pred, i would have a flare up. This keeps happening to me, and it stresses me out. Just wish there was a solution to this disease. Then I found iHaveUC on Facebook. I have purchased the E-books, which i am currently printing out now.
What Is Going On Up There!
Ulcerative colitis has changed my life big time, by the way of drinking alcohol or having a big bender, My main concerns are about the being on the crapper for much of the day and going through three to four rolls of crap paper.
Eating habits have changed slightly, but still get flare ups.
It interferes with my cricket, especially when I’m out in the field, can’t exactly run off to the toilet during the game, so I just clinch my butt checks and hope for the best. I have considered wearing adult nappies, but too embarrassed. I just wait til a break in the game or when it’s time for drinks.
Constantly having to race to the toilet all the time at work, as I drive a forklift and have to supply parts to the line, I tend to get behind and stop sometimes, but not all the time, touch wood.
I see the Doctor every 3 months, but if I have a flare up during that time, I’m to see him straight away.
I have no problems with the Dr checking out my butt,
my theory is “what has to be done, has to be done”.
My partner is very supportive to me, as she also has a butt disease, as she has “Diverticulitis”, pockets that have formed in the bowel.
My family supports me as well. My young brother has UC as well, so I will let him know about this. Hopefully we can support each other through this crisis. Hopefully this will help stop him from eating take away, like KFC and pizzas. What do other UC’ers do to control their symptoms? I am most concerned about having my colon removed. I just want get off these medications that pretty much run my life and just to be able to live a normal life without the pressure of trying to find a toilet.
Medications I’ve Been Prescribed:
Sulfasalazine, 2 tablets three times a day.
Inuram, 1 tablet three times a day.
written by Phillip K
submitted in the colitis venting area