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What Do I Do, I Was Just Diagnosed with Colitis?

Meet Justin:

My name is Justin from new Mexico. I’m 26 and was diagnosed with moderate uc two weeks ago along with a hernia in my esophagus. I was real into bodybuilding and fitness and have always had a fairly healthy diet. But now I’m a little lost with all of this news._

Justin’s Symptoms:

Currently I have few symptoms, I believe the prednisone is doing its job although I hate it with a passion. I’m down to one bathroom visit in the afternoon and one first thing in the morning. The pain has almost left me but sometimes in the middle of the night it hurts.
Justin from New Mexico

I was Diagnosed 2 weeks ago
with ulcerative colitis.
Thanks for reading my story.

Justin’s Story:

It all started about 2 months ago when I started noticing a little blood after using the restroom. A combination of no health insurance and being a knucklehead led me to do nothing about it. About a month of bloody bathroom time passed then about 3 and a half weeks ago after eating out at a restaurant I got a pretty nasty belly ache. Next day the pain was still there and I started have pure liquid bowl movements with a lot of blood. I still didn’t bother to see a doctor or anything just kept working and going to the gym. But after a couple days of pain and lots of potty breaks I noticed my weight was dropping pretty rapidly. After two weeks of increasing pain and bleeding I started to get very week and could not do my job, almost passed out climbing up a ladder and fell a few times. Finally I went to the er. I was 171 pounds before the symptoms started and at the emergency room I weighed 150. They admitted me immediately and I spent a week in the hospital. After the colonoscopy they diagnosed me with “moderate ulcerative colitis” and started me on prednisone 40mg and mesalamine.

After I got out of the hospital I was 135 pounds and pure bone.

It has now been 7 days and I am back to work and feeling somewhat decent. With the help of prednisone I’ve gained about 6 pounds back all in the gut (which looks weird on a skinny skeleton body) still pretty weak and get tired easy but everyday is better then the one before it. I am still in shock as this all happened so fast, any feedback would be much much appreciated. I have questions like will I have to be on steroids for ever? Will I flare up as soon as I’m off them? Will I ever be able to eat a steak again? And I know recovery is most important but will I ever be able to live my previous life of weight lifting and bodybuilding?

Where I’d Like to be in 1 year:

I’d like to be able to not have “where is the nearest bathroom ” always on my mind. And I would like to be able to bulk up enough to compete as a bodybuilder in the light weight class.
inflamed colon

Justin’s Colonoscopy pictures of his colon

Justin’s Medications:
Started on 40mg prednisone with a 5mg taper every two weeks. It seems to be helping but the side effects are horrible. Night sweats, fat gains, joint pain and depression. Also on mesalsmine, vitamin b12, omeprazole, and probiotics

written by Justin

submitted in the colitis venting area