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Weird, Painful and Somewhat Embarrassing Disease – Yeah, Colitis!

Introduction:

Hi – I’m Chellie. I was diagnosed with UC on May 23 2013. I’m a mother of a fantastic 21 year old daughter, and I have the most wonderful husband, friend, and soul mate.

Some more about me:

I haven’t had hobbies for the longest time – working too many hours. However, since my diagnosis, I have been aiming to get back into writing music, singing and playing the piano. I love to cook, and love spending time with my family and extended family. Oh and I just love love love real estate.

Symptoms:

Just gotta love the double over pain – constantly running to the toilet – and then noticing blood and mucus in stools – if you can call them stools – as it is more like rapids with weird stuff mixed up in it all.

Weird, Painful and Somewhat Embarrassing Disease

I’ve joined to say “Hi” and meet other people with UC.

It’s a crazy time in my life trying to read everything I can and understand what is going on with my body. Things I read seem to make sense – until I read something else – which completely negates what I just read. I feel in control and then completely out of control again and feel completely useless with the lack of information I actually have. so I try things I read – which seem to work – for a day – then I seem to get worse – or is that better……it’s just all confusing.

So I joined the Crohn’s and Colitis Association and went to my first IBD forum – which turned out to be information on Crohn’s – as I’m getting excited about the food and how this helps you get into remission – then after 2 hours of listening – writing copious notes, and getting extremely excited – a lady in the audience asked if it worked with UC – and to my dismay – no it didn’t.

Does food help in any way?

I’ve read eating foods that help inflammation are good. Of course drinking loads of water is also supposed to be good…. and when does the higher fiber start. at the moment I’m on a low fiber diet – only because it give me less pain. When do you really know you are in remission – clinical remission is different to mucosal remission. If this actually really exists. Seen too much reading and just getting more and more confused.

I see that this site has an EBook for sale – I think this may actually be my next port of call.

I met this wonderful lady at the IBD forum who put me onto this website! thanks for the support – the website seems great!

written by Chellie

submitted in the colitis venting area