Nothing worked for me. SCD diet, Prednisone, Remicade, nothing. My colon was very severe. Surgery was the only option.
So here is my update. I had to come back to the hospital on Feb 15 because the second round of Remicade wasn’t working and the scd diet wasn’t working either and I wasn’t seeing any improvement. When I went back into the hospital, they gave me a stronger dose of Remicade and I was back on the Prednisone for a week to see if that helped. No improvement after the week and so the only thing left to do was to have surgery to take out my colon….the first step of the J Pouch surgery.
This came as a huge shock to me of course because i was just diagnosed on Jan 14, 2011, and I am already in need of surgery!
They said that my colon was very severe though so I guess this is the best option for me and my well being. I had the surgery this past Saturday and I feel better without having that infected colon inside me, but I am just in pain from the surgery itself you know? The surgeon said that when they take the colon out, it all comes out in one piece, but when she took mine out, it was falling into pieces! This is good news though because that means they got it out before it actually perforated and infected my insides. I probably had about 24 hours until that would have happened, so that is good news. So right now, it’s just about recovering and learning how to live with my ileostomy pouch for about 4 months until they make the j pouch inside of me and take the ileostomy pouch out. But after all is said and done, I should be back to normal for the most part, able to eat whatever I want to in the long run, play my sports, go back to school and work, all of that good stuff, it’ll all just take some time. I have a friend who had the same surgery and he’s living in France now getting his Masters in Computer Science and is eating and doing whatever he wants to, so that is encouraging.
Well thats my update for now, I hope everyone finds a way to recovery that works for them, this was my last option so I had to do it….hope it works out!