Ulcerative Colitis Sucks

Meet Hayley:

I’m 24 engaged, and have a beautiful 16 month old girl :) I live in Dorset in the UK

Some more about me:

I love spending every waking minute with my daughter, she’s growing up so quick, every day she is doing something different. We also have a Doberman cross dog, who we rescued from Greece, she is lovely and very good with our daughter. Best friends for life I think :):)

Colitis Symptoms I’ve Got:

Currently- loose stools, urgency, bloating, pain, blood, mucus, general tiredness

Ulcerative Colitis Sucks

I was finally diagnosed in December 2008 when my dad rushed me to hospital, called 999. Spent 4 years being told it was IBS, until 2 weeks before being admitted I spent 2 weeks on the sofa with severe diarrhea (blood and mucus/water) and vomiting, couldn’t keep anything down, lost 2 stone. Stupid GP said it was gastro flu…

Turned out to be serious (extensive UC) had scans/cameras/biopsies ( consultant said looked like world war 3 inside) 10 bags of saline later was so dehydrated. Spent a week in hospital.
My dad was so scared for me, seeing me being blue lighted to hospital, his dad was in another hospital on life support with legionnaires disease, so it was a terrifying time for him.

Finally over the next 2 years got stabilized on drugs

Feb 2010 another severe flare spent the 4 weeks in hospital, started IV ciclosporin along with my others. My partner was fantastic he visited me everyday bless him, he made hospital bearable :)

Jan 2011 found I was pregnant, colitis 100% disappeared :) daughter born August 2011 6lb 3oz emergency c section

October 2012 colitis returned still bad now in Jan 2013 :(

Due to see consultant in 2 weeks….. Fingers crossed, hoping for a scan to see what’s going on up there haven’t had one since my last admission in 2010…

So camera test up the butt 1st one was terrified, but gave me sedation ( best thing ever) now I request it every time, and I get it, and I honestly don’t care what they do, that stuff is brilliant :):)

I would love to say colitis doesn’t ruin my life, but it does, can not wait to get pregnant again, will hopefully go into remission for approx 2 years :):) ******* fingers crossed*******

Colitis Medications and Supplements:

I take
– 4x 1200mg Mezavant XL daily
– 125mg Ciclosporin
-1000mg vitamin C
Cod liver oil capsule daily

Sometimes it works…. I think my body just gets used to the drugs, then it stops working….

written by Hayley

submitted in the colitis venting area